The role of digital tools in the delivery of genomic medicine: enhancing patient-centered care.
Genet Med
; 23(6): 1086-1094, 2021 06.
Article
em En
| MEDLINE
| ID: mdl-33654192
ABSTRACT
PURPOSE:
Alternative models of genetic counseling are needed to meet the rising demand for genomic sequencing. Digital tools have been proposed as a method to augment traditional counseling and reduce burden on professionals; however, their role in delivery of genetic counseling is not established. This study explored the role of the Genomics ADvISER, a digital decision aid, in delivery of genomic counseling.METHODS:
We performed secondary analysis of 52 pretest genetic counseling sessions that were conducted over the course of a randomized controlled trial evaluating the effectiveness of the Genomics ADvISER. As part of the trial, participants were randomized to receive standard counseling or use the tool and then speak with a counselor. A qualitative interpretive description approach using thematic analysis and constant comparison was used for analysis.RESULTS:
In the delivery of genomic counseling, the Genomics ADvISER contributed to enhancing counseling by (1) promoting informed dialogue, (2) facilitating preference-sensitive deliberation, and (3) deepening personalization of decisions, all of which represent fundamental principles of patient-centered care providing clear high-quality information, respecting patients' values, preferences, and expressed needs, and providing emotional support.CONCLUSION:
This study demonstrates that our digital tool contributed to enhancing patient-centered care in the delivery of genomic counseling.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Genômica
/
Conselheiros
Tipo de estudo:
Clinical_trials
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Prognostic_studies
/
Qualitative_research
Limite:
Humans
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article