Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands.

Kerstens, Hans C J W; Van Lith, Bas J H; Nijkrake, Maarten J; De Swart, Bert J M; Van den Bemd, Laura A C; Smeets, Rob J E M; Klemens, Fheodoroff; Van de Warrenburg, Bart P C; Van der Wees, Philip J; Geurts, Alexander C H

Kerstens, Hans C J W; Van Lith, Bas J H; Nijkrake, Maarten J; De Swart, Bert J M; Van den Bemd, Laura A C; Smeets, Rob J E M; Klemens, Fheodoroff; Van de Warrenburg, Bart P C; Van der Wees, Philip J; Geurts, Alexander C H.

Afiliação

Kerstens HCJW; IQ Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands. Hans.kerstens@han.nl.
Van Lith BJH; HAN University of Applied Sciences, Nijmegen, The Netherlands. Hans.kerstens@han.nl.
Nijkrake MJ; Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
De Swart BJM; Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
Van den Bemd LAC; Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
Smeets RJEM; HAN University of Applied Sciences, Nijmegen, The Netherlands.
Klemens F; Department of Rehabilitation, Sint Maartenskliniek, Nijmegen, The Netherlands.
Van de Warrenburg BPC; Department of Rehabilitation Medicine, Maastricht University, Research School CAPHRI, Maastricht, The Netherlands.
Van der Wees PJ; CIR Revalidatie, Eindhoven, The Netherlands.
Geurts ACH; Department of Neurorehabilitation, Gailtal-Klinik, Hermagor, Austria.

Orphanet J Rare Dis ; 16(1): 283, 2021 06 24.

Article em En | MEDLINE | ID: mdl-34167574

Assuntos

Paraplegia Espástica Hereditária; Adulto; Atenção à Saúde; Humanos; Internet; Motivação; Países Baixos; Inquéritos e Questionários

Palavras-chave

Experienced treatment effects; Healthcare utilization; Hereditary spastic paraplegia; Needs assessment; Patient-reported outcomes; Spasticity; Survey

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Paraplegia Espástica Hereditária Tipo de estudo: Prognostic_studies Limite: Adult / Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2021 Tipo de documento: Article

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