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Genetic discrimination: introducing the Asian perspective to the debate.
Kim, Hannah; Ho, Calvin W L; Ho, Chih-Hsing; Athira, P S; Kato, Kazuto; De Castro, Leonardo; Kang, Hui; Huxtable, Richard; Zwart, Hub; Ives, Jonathan; Lee, Ilhak; Joly, Yann; Kim, So Yoon.
Afiliação
  • Kim H; Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.
  • Ho CWL; University of Hong Kong, Hong Kong, China.
  • Ho CH; Academia Sinica, Taipei City, Taiwan.
  • Athira PS; National University of Advanced Legal Studies, Kochi, India.
  • Kato K; Department of Biomedical Ethics and Public Policy, Graduate School of Medicine, Osaka University, Osaka, Japan.
  • De Castro L; University of the Philippines, Quezon City, Philippines.
  • Kang H; BGI-Shenzhen, Shenzhen, China.
  • Huxtable R; Centre for Ethics in Medicine, University of Bristol, Bristol, UK.
  • Zwart H; Erasmus University Rotterdam, Rotterdam, The Netherlands.
  • Ives J; Centre for Ethics in Medicine, University of Bristol, Bristol, UK.
  • Lee I; Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.
  • Joly Y; Centre of Genomics and Policy, McGill University, Montreal, QC, Canada. syoonkim@yuhs.ac.
  • Kim SY; Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea. yann.joly@mcgill.ca.
NPJ Genom Med ; 6(1): 54, 2021 Jul 01.
Article em En | MEDLINE | ID: mdl-34210984
Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2021 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2021 Tipo de documento: Article