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Supporting behaviour change in younger-onset dementia: mapping the needs of family carers in the community.
O'Connor, Claire M C; Fisher, Alinka; Cheung, Sau Chi; Caga, Jashelle; Piguet, Olivier.
Afiliação
  • O'Connor CMC; Centre for Positive Ageing, HammondCare, Sydney, Australia.
  • Fisher A; School of Population Health, The University of New South Wales, Sydney, Australia.
  • Cheung SC; College of Nursing and Health Sciences Adelaide, Flinders University, Adelaide, Australia.
  • Caga J; School of Psychology and Brain & Mind Centre, The University of Sydney, Sydney, Australia.
  • Piguet O; Sydney Medical School and Brain & Mind Centre, The University of Sydney, Sydney, Australia.
Aging Ment Health ; 26(11): 2252-2261, 2022 11.
Article em En | MEDLINE | ID: mdl-34424808
OBJECTIVES: Almost 10% of people with dementia experience a younger-onset of disease (before 65 years). Changes in behaviour are common, as are delays in diagnosis and limited access to appropriate support and services. This study aimed to explore the specific behaviour support needs of families living with younger-onset dementia. METHODS: Seventy-one families of people with younger-onset dementia were surveyed to understand the experience of family carers regarding difficult-to-manage behaviour changes, confidence in identifying and implementing behaviour support strategies, use of specific behaviour support strategies, and use of formal and informal support services regarding behaviour changes. RESULTS: Survey responses were received from family members of people living with behavioural variant frontotemporal dementia (n = 28), semantic dementia (n = 17), and Alzheimer's disease (n = 23). Over 90% of family carers reported difficult-to-manage behaviours which fell into four main domains: (1) aggression, (2) compulsive behaviour, (3) disinhibition and inappropriate social behaviour, and (4) apathy. A range of preventative and responsive strategies, with an emphasis on de-escalation strategies were identified and carers reported variable confidence in managing behaviour changes or in accessing formal support strategies. CONCLUSIONS: Difficult-to-manage behaviour changes in community-dwelling people with younger-onset dementia are common. The existing agency of families should be recognised and built upon with better access to specific behaviour support services to increase competence and confidence in providing behaviour support and ultimately improve quality of life for them and their family member with dementia.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Demência Frontotemporal / Doença de Alzheimer Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Demência Frontotemporal / Doença de Alzheimer Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article