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More than words: Parent, Patient and Public Involvement perspectives on language used by clinical researchers in neonatal care.
Moss, Becky; Lammons, William; Johnson, Samantha; Ribas, Ricardo; Uthaya, Sabita; Battersby, Cheryl; Cornelius, Victoria; Babalis, Daphne; Modi, Neena.
Afiliação
  • Moss B; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK. Electronic address: b.moss@imperial.ac.uk.
  • Lammons W; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK.
  • Johnson S; Department of Health Sciences, University of Leicester, Centre for Medicine, University Road, Leicester LE1 7RH, UK.
  • Ribas R; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK.
  • Uthaya S; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK.
  • Battersby C; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK.
  • Cornelius V; Imperial Clinical Trials Unit, Imperial College London, London, UK.
  • Babalis D; Imperial Clinical Trials Unit, Imperial College London, London, UK.
  • Modi N; Neonatal Medicine Research Group, Imperial College London, Chelsea and Westminster NHS Foundation Trust, 369 Fulham Road, London SW10 9NH, UK.
Early Hum Dev ; 171: 105611, 2022 08.
Article em En | MEDLINE | ID: mdl-35785689
ABSTRACT
In this qualitative study exploring parent views of information about research studies, we found they accepted uncertainty as justification, and that three key aspects of language - words, tone, and pace - influence parents' decision about their baby's inclusion. We recommend parents are routinely involved in developing information materials.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Idioma Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Humans / Newborn Idioma: En Ano de publicação: 2022 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Idioma Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Humans / Newborn Idioma: En Ano de publicação: 2022 Tipo de documento: Article