Parents with intellectual disability reporting on factors affecting their caregiving in the wake of the COVID-19 pandemic: A qualitative study.
J Appl Res Intellect Disabil
; 35(6): 1380-1389, 2022 Nov.
Article
em En
| MEDLINE
| ID: mdl-36207144
ABSTRACT
BACKGROUND:
Parents with intellectual disability are vulnerable to parenting stress and overwhelming life events. The COVID-19 pandemic constitutes a potentially overwhelming event, but there is little knowledge concerning the effects on parents' caregiving. The present study aimed to fill this gap.METHOD:
Semi-structured interviews with 10 Swedish parents with intellectual disability were analysed using thematic analysis.RESULTS:
One broad caregiving-related theme increased caregiving demands and reduced resources for coping resulting in strained parent-child interactions and relationships. Four subthemes highlighted influential factors pandemic information, professional support, social relationships and informal support, and children's school activities. Strained parent-child interactions were particularly common in the absence of adapted pandemic information, if professional and informal support were compromised, and if the parents had dealt with school-related changes.CONCLUSIONS:
Findings support contextual models of caregiving and a stress-resources perspective, and emphasise the importance of adapted information and support to parents with intellectual disability during crises.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Pais
/
COVID-19
/
Deficiência Intelectual
Tipo de estudo:
Prognostic_studies
/
Qualitative_research
Limite:
Child, preschool
/
Humans
Idioma:
En
Ano de publicação:
2022
Tipo de documento:
Article