The view of Hong Kong parents on secondary use of dried blood spots in newborn screening program.

Hui, L L; Nelson, E A S; Deng, H B; Leung, T Y; Ho, C H; Chong, J S C; Fung, G P G; Hui, J; Lam, H S

Hui, L L; Nelson, E A S; Deng, H B; Leung, T Y; Ho, C H; Chong, J S C; Fung, G P G; Hui, J; Lam, H S.

Afiliação

Hui LL; Department of Applied Biology and Chemical Technology, The Hong Kong Polytechnic University, Hung Hom, Hong Kong SAR, China.
Nelson EAS; Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Deng HB; Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Leung TY; Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Ho CH; Department of Obstetrics and Gynaecology, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Chong JSC; Academia Sinica, Taipei, Taiwan.
Fung GPG; Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Hui J; Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Lam HS; Private paediatrician, Hong Kong SAR, PR China.

BMC Med Ethics ; 23(1): 105, 2022 11 01.

Article em En | MEDLINE | ID: mdl-36319979

Assuntos

Bancos de Espécimes Biológicos; Triagem Neonatal; Recém-Nascido; Criança; Feminino; Humanos; Triagem Neonatal/métodos; Hong Kong; Pais; Mães

Palavras-chave

Biobanking; Data privacy; Informed consent; Newborn screening; Parental autonomy; Residual dried blood spots

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Triagem Neonatal / Bancos de Espécimes Biológicos Tipo de estudo: Diagnostic_studies / Qualitative_research / Screening_studies Limite: Child / Female / Humans / Newborn País/Região como assunto: Asia Idioma: En Ano de publicação: 2022 Tipo de documento: Article

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