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Quality-Adjusted Life Years in Erythropoietic Protoporphyria and Other Rare Diseases: A Patient-Initiated EQ-5D Feasibility Study.
Barman-Aksözen, Jasmin; Minder, Anna-Elisabeth; Granata, Francesca; Pettersson, Mårten; Dechant, Cornelia; Aksözen, Mehmet Hakan; Falchetto, Rocco.
Afiliação
  • Barman-Aksözen J; International Porphyria Patient Network (IPPN), 8032 Zurich, Switzerland.
  • Minder AE; Institute of Laboratory Medicine, Municipal Hospital Zurich Triemli, 8063 Zurich, Switzerland.
  • Granata F; Swiss Reference Centre for Porphyrias, Municipal Hospital Zurich Triemli, 8063 Zurich, Switzerland.
  • Pettersson M; Swiss Reference Centre for Porphyrias, Municipal Hospital Zurich Triemli, 8063 Zurich, Switzerland.
  • Dechant C; Division for Endocrinology, Diabetology and Porphyria, Municipal Hospital Zurich Triemli, 8063 Zurich, Switzerland.
  • Aksözen MH; International Porphyria Patient Network (IPPN), 8032 Zurich, Switzerland.
  • Falchetto R; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, S.C Medicine and Metabolic Disorders, 20122 Milano, Italy.
Int J Environ Res Public Health ; 20(7)2023 03 28.
Article em En | MEDLINE | ID: mdl-37047912
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Protoporfiria Eritropoética Tipo de estudo: Health_technology_assessment / Observational_studies Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Protoporfiria Eritropoética Tipo de estudo: Health_technology_assessment / Observational_studies Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article