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BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study.
Cheung, Christabel K; Miller, Kimberly A; Goings, Trenette Clark; Thomas, Bria N; Lee, Haelim; Brandon, Rachel E; Katerere-Virima, Thuli; Helbling, Laura E; Causadias, José M; Roth, Michael E; Berthaud, Frantz M; Jones, Laundette P; Ross, Valentina A; Betz, Gail D; Simmons, Cole D; Carter, Jay; Davies, Simon J; Gilman, Megan L; Lewis, Mark A; Lopes, Gilberto; Tucker-Seeley, Reginald D.
Afiliação
  • Cheung CK; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Miller KA; Department of Preventive Medicine and Dermatology, Keck School of Medicine, University of Southern California, Los Angeles, CA 90033, USA.
  • Goings TC; School of Social Work, University of North Carolina, Chapel Hill, NC 27516, USA.
  • Thomas BN; Temple University School of Podiatric Medicine, Philadelphia, PA 19107, USA.
  • Lee H; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Brandon RE; University of Michigan School of Social Work, Ann Arbor, MI 48109, USA.
  • Katerere-Virima T; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Helbling LE; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Causadias JM; T. Denny Sanford School of Social and Family Dynamics, Arizona State University, Tempe, AZ 85287, USA.
  • Roth ME; Department of Pediatrics, University of Texas MD Anderson Cancer Center, Houston, TX 77030, USA.
  • Berthaud FM; The Hospitals of Providence, El Paso, TX 79938, USA.
  • Jones LP; University of Maryland School of Medicine, Baltimore, MD 21201, USA.
  • Ross VA; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Betz GD; University of Maryland Baltimore Health Sciences & Human Services Library, Baltimore, MD 21201, USA.
  • Simmons CD; Bryn Mawr Graduate School of Social Work and Social Research, Bryn Mawr, PA 19010, USA.
  • Carter J; University of Maryland School of Social Work, Baltimore, MD 21201, USA.
  • Davies SJ; Teen Cancer America, Los Angeles, CA 90064, USA.
  • Gilman ML; AYA Psychiatry, Memorial Sloan Kettering Cancer Center, New York, NY 10065, USA.
  • Lewis MA; Department of Gastrointestinal Oncology, Intermountain Healthcare, Salt Lake City, UT, 84107 USA.
  • Lopes G; Sylvester Comprehensive Cancer Center, Miller School of Medicine, University of Miami, Miami, FL 33136, USA.
  • Tucker-Seeley RD; Health Equity Strategies and Solutions, Los Angeles, CA 90008, USA.
Future Oncol ; 20(9): 547-561, 2024 Mar.
Article em En | MEDLINE | ID: mdl-38197386
ABSTRACT

Aims:

To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials &

methods:

Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study.

Results:

Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals.

Conclusion:

The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Neoplasias Tipo de estudo: Guideline Limite: Adolescent / Adult / Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Neoplasias Tipo de estudo: Guideline Limite: Adolescent / Adult / Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article