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Patient education needs in severe asthma, a pilot study.
Laurence, Rodolphe; Ancel, Julien; Devilliers, Maëva A; Carre, Sophie; Dury, Sandra; Dormoy, Valérian; Deslée, Gaëtan; Perotin, Jeanne-Marie.
Afiliação
  • Laurence R; Department of Respiratory Diseases, University Hospital of Reims, Reims, France.
  • Ancel J; Department of Respiratory Diseases, University Hospital of Reims, Reims, France.
  • Devilliers MA; University of Reims Champagne-Ardenne (URCA), Inserm UMR-S 1250, SFR Cap-Santé, Reims, France.
  • Carre S; Department of Respiratory Diseases, University Hospital of Reims, Reims, France.
  • Dury S; Transversal Unit of Patient Education (UTEP), University Hospital of Reims, Reims, France.
  • Dormoy V; Department of Respiratory Diseases, University Hospital of Reims, Reims, France.
  • Deslée G; University of Reims Champagne-Ardenne (URCA), Inserm UMR-S 1250, SFR Cap-Santé, Reims, France.
  • Perotin JM; Department of Respiratory Diseases, University Hospital of Reims, Reims, France.
BMC Pulm Med ; 24(1): 134, 2024 Mar 15.
Article em En | MEDLINE | ID: mdl-38491533
ABSTRACT

BACKGROUND:

Severe asthma is characterized by frequent exacerbations, altered lung function, and impaired quality of life. Tailored patient education allows for the improvement of both asthma management and quality of life. Our study aimed to assess the needs of severe asthma patient in therapeutic education, according to previous therapeutic patient education background and asthma phenotype.

METHODS:

Consecutive patients monitored for severe asthma in a tertiary referral center were considered for inclusion and answered a questionnaire detailing their patient education needs and the topics they would like to discuss. Asthma history, clinical and biological data, and lung function results were recorded.

RESULTS:

Fifty-three patients were included and 47 (88.7%) expressed at least one need. The most frequently selected topics were "life with asthma" (83%), "treatment use" (68%), and "exacerbation management" (60%), independent of previous participation in a patient education program dedicated to asthma. Patients of older age at inclusion, uncontrolled asthma, and T2-high phenotypes were associated with different profiles of patient education needs.

CONCLUSION:

Our study identified frequent and various patient educational needs among severe asthmatics, highlighting the importance of an in-depth assessment of severe asthmatics expectations and the crucial need for the development of dedicated educational tools.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Asma Limite: Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Asma Limite: Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article