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Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida.
Ridosh, Monique M; Adams, William; Payne, Allison D; Hilderbrand, Taylor L; Magaña, Fabiola; Sawin, Kathleen J; Holmbeck, Grayson N.
Afiliação
  • Ridosh MM; Marcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA.
  • Adams W; Stritch School of Medicine, Loyola University Chicago, Chicago, IL, USA.
  • Payne AD; Department of Psychology, Loyola University Chicago, Chicago, IL, USA.
  • Hilderbrand TL; Department of Psychology, Loyola University Chicago, Chicago, IL, USA.
  • Magaña F; Marcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA.
  • Sawin KJ; Department of Nursing Research and Evidence-Based Practice, Children's Wisconsin, Milwaukee, WI, USA.
  • Holmbeck GN; Self-Management Science Center, School of Nursing, College of Health Professions and Sciences, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Dev Med Child Neurol ; 2024 Mar 17.
Article em En | MEDLINE | ID: mdl-38494664
ABSTRACT

AIM:

To examine socioeconomic, condition-related, and neuropsychological predictors of self-management trajectories in adolescents and young adults with spina bifida.

METHOD:

In this longitudinal study, participants completed the Adolescent/Young Adult Self-Management and Independence Scale interview. Socioeconomic status (SES), shunt status, lesion level, and executive functioning were assessed. Growth in self-management was estimated using linear mixed-effects models.

RESULTS:

Participants (n = 99) were aged 18 to 27 years. Approximately half (52.5%) were female and White; 15.2% were Black; and 32.3% Hispanic or Latino. Although none of the predictors were associated with growth in self-management from ages 18 to 27 years (p > 0.05), several factors were associated with the intercept at age 18 years for total self-management. Higher SES at baseline predicted a higher total self-management score at age 18 years (b = 0.03, standard error [SE] = 0.01; p < 0.001). On average, participants at age 18 years with a shunt scored lower than those without a shunt (b = -0.90, SE = 0.32; p = 0.01); those with a thoracic lesion scored lower than those with lower lesion levels (lumbar b = -1.22, SE = 0.34; sacral b = -1.20, SE = 0.36; p = 0.001 for both). Better parent-reported and teacher-reported executive functions predicted higher total self-management (metacognitive b = -0.03, SE = 0.01; behavioral regulation b = -0.04, SE = 0.01; p < 0.05 for both).

INTERPRETATION:

On average, all participants improved in self-management over time. Additionally, baseline superiority in self-management for adolescents and young adults without a shunt, less severe lesions, better executive functions, and higher SES persisted over time.

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article