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Sharing brain imaging data in the Open Science era: how and why?
Giehl, Kathrin; Mutsaerts, Henk-Jan; Aarts, Kristien; Barkhof, Frederik; Caspers, Svenja; Chetelat, Gaël; Colin, Marie-Elisabeth; Düzel, Emrah; Frisoni, Giovanni B; Ikram, M Arfan; Jovicich, Jorge; Morbelli, Silvia; Oertel, Wolfgang; Paret, Christian; Perani, Daniela; Ritter, Petra; Segura, Bàrbara; Wisse, Laura E M; De Witte, Elke; Cappa, Stefano F; van Eimeren, Thilo.
Afiliação
  • Giehl K; Department of Nuclear Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany; Institute of Neurosciences and Medicine (INM-2), Research Center Jülich, Jülich, Germany.
  • Mutsaerts HJ; Radiology and Nuclear Medicine, Vrije Universiteit Medical Center, Amsterdam University Medical Center, Amsterdam, Netherlands; Amsterdam Neuroscience, Brain Imaging, Amsterdam, Netherlands.
  • Aarts K; European Brain Council, Brussels, Belgium.
  • Barkhof F; Radiology and Nuclear Medicine, Vrije Universiteit Medical Center, Amsterdam University Medical Center, Amsterdam, Netherlands; Amsterdam Neuroscience, Brain Imaging, Amsterdam, Netherlands; Queen Square Institute of Neurology and Centre for Medical Image Computing, University College London, London
  • Caspers S; Institute of Neuroscience and Medicine (INM-1), Research Center Jülich, Jülich, Germany; Institute for Anatomy I, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
  • Chetelat G; Normandie université, UNICAEN, INSERM, U1237, NeuroPresage Team, Cyceron, Caen, France.
  • Colin ME; EBRAINS, Brussels, Belgium.
  • Düzel E; Faculty of Medicine, Institute for Cognitive Neurology and Dementia Research, University of Magdeburg, Magdeburg, Germany; Center for Neurodegenerative Diseases, Magdeburg, Germany.
  • Frisoni GB; Department of Rehabilitation and Geriatrics, Memory Center, Geneva University and University Hospitals, Geneva, Switzerland.
  • Ikram MA; Department of Epidemiology, Erasmus University Medical Center, Rotterdam, Netherlands.
  • Jovicich J; Center for Mind/Brain Sciences, University of Trento, Rovereto, Italy.
  • Morbelli S; Nuclear Medicine Unit, AOU Città Della Salute e Della Scienza di Torino, Turin, Italy; Department of Medical Sciences, University of Turin, Turin, Italy.
  • Oertel W; European Brain Council, Brussels, Belgium; Department of Neurology, University of Marburg, Marburg, Germany.
  • Paret C; Department of Psychosomatic Medicine and Psychotherapy, Central Institute of Mental Health Mannheim, Medical Faculty Mannheim/Heidelberg University, Mannheim, Germany.
  • Perani D; San Raffaele University and San Raffaele Scientific Institute, Milan, Italy.
  • Ritter P; Berlin Institute of Health, Charité, Universitätsmedizin Berlin, Berlin, Germany; Department of Neurology with Experimental Neurology, Charité, Universitätsmedizin Berlin, Berlin, Germany; Bernstein Focus State Dependencies of Learning and Bernstein Center for Computational Neuroscience, Berlin, Ger
  • Segura B; Medical Psychology Unit, Department of Medicine, Institute of Neurosciences, University of Barcelona, Barcelona, Spain; Hospital Clinic Foundation for Biomedical Research-August Pi i Sunyer Biomedical Research Institute, Barcelona, Spain; Biomedical Research Networking Center on Neurodegenerative Di
  • Wisse LEM; Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
  • De Witte E; Neurosurgical Department, Erasmus University Medical Center, Rotterdam, Netherlands.
  • Cappa SF; University Institute of Advanced Studies, Pavia, Italy; IRCCS Mondino Foundation, Pavia, Italy.
  • van Eimeren T; Department of Nuclear Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany; Department of Neurology, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany. Electronic address: thilo.van-eimeren@uk-koeln.de.
Lancet Digit Health ; 6(7): e526-e535, 2024 Jul.
Article em En | MEDLINE | ID: mdl-38906618
ABSTRACT
The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Disseminação de Informação / Neuroimagem Limite: Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Disseminação de Informação / Neuroimagem Limite: Humans Idioma: En Ano de publicação: 2024 Tipo de documento: Article