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Scientists and scientific journals should adhere to ethical standards for the use and reporting of data from Indigenous people.
Yracheta, Joseph; Morriseau, Taylor; Dale, Kali; Gerth, Ashlynn; McGavock, Jonathan.
Afiliação
  • Yracheta J; Native BioData Consortium, Eagle Butte, SD, USA.
  • Morriseau T; First Nations Health and Secretariat of Manitoba, Winnipeg, MB, Canada.
  • Dale K; Diabetes Research Envisioned and Accomplished in Manitoba, Children's Hospital Research Institute of Manitoba, Winnipeg, MB, Canada.
  • Gerth A; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
  • McGavock J; Native BioData Consortium, Eagle Butte, SD, USA.
Diabetologia ; 2024 Aug 06.
Article em En | MEDLINE | ID: mdl-39103722
ABSTRACT
Internationally, governments and scientists are bound by legal and treaty rights when working with Indigenous nations. These rights include the right of Indigenous people to control the conduct of science with Indigenous nations. Unfortunately, in some cases, individual scientists and scientific teams working with biological and genetic data collected from Indigenous people have not respected these international rights. Here, we argue that the scientific community should understand and acknowledge the historical harms experienced by Indigenous people under the veil of scientific progress (truth) and implement existing standards for ethical conduct of research and sovereign control of data collected within Indigenous communities (reconciliation). Specifically, we outline the rationale for why scientists, scientific journals and research integrity and institutional review boards/ethics committees should adopt, and be held accountable for upholding, current international standards of Indigenous data sovereignty and ethical use of Indigenous biological samples.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article