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1.
Sex Health ; 212024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-39250598

RESUMO

Background Structural stigma and institutionalised discrimination towards people living with HIV remain pervasive in many settings. However, qualitative explorations of experiences of stigma, health and social service engagement, and quality of life among people living with HIV in Singapore remain under-researched. Methods Semi-structured interviews were conducted with 73 participants in Singapore. These included 56 people living with HIV (30 men who have sex with men, 23 heterosexual men, and 3 women) and 17 stakeholders including healthcare professionals and other allied workers. Interviews focused on participant perspectives or experiences of HIV diagnosis, navigating healthcare, attitudes towards HIV, and impact of HIV on relationships. Data were analysed through inductive thematic analysis. Results Our findings were framed within a minority stress model, highlighting the distal and proximal stressors relating to living with HIV. With regard to distal stressors, participants highlighted that they had experienced or were aware of institutionalised discrimination towards people living with HIV across various aspects of their lives. These included experiences - overt and covert - of discrimination in education, workplace, and healthcare settings. With regard to proximal stressors, participants highlighted the role of anticipated stigma and the stress of concealment. This included participants' fear of potential legal and/or social repercussions resulting from the disclosure of their HIV status, actions that they may not be able to anticipate and articulate. Although employers may not overtly discriminate, the fear of such anticipated discrimination influenced decisions to conceal HIV status in job applications and workplaces. This restricted agency for the people living with HIV in our study by affecting their regular medical follow-ups, socialising behaviours, and overall quality of life. Consequently, many participants felt that concealment of their status, and forgoing potential educational, employment, and even health opportunities, were the only ways of protecting themselves from such forms of stigma and discrimination. Conclusions This study found that anticipated stigma and discrimination diminished the quality of life of people living with HIV in Singapore. Implementing an anti-discrimination framework could address the unpredictability and alleviate the manifold unknowns of anticipated stigma.


Assuntos
Medo , Infecções por HIV , Qualidade de Vida , Estigma Social , Estresse Psicológico , Humanos , Masculino , Singapura , Infecções por HIV/psicologia , Feminino , Qualidade de Vida/psicologia , Adulto , Estresse Psicológico/psicologia , Medo/psicologia , Pessoa de Meia-Idade , Pesquisa Qualitativa , Discriminação Social/psicologia
2.
Medicine (Baltimore) ; 103(36): e39485, 2024 Sep 06.
Artigo em Inglês | MEDLINE | ID: mdl-39252312

RESUMO

The study of human immunodeficiency virus (HIV)-related stigma and discrimination has been burgeoning with important implications for public health and society, as it negatively impacts people living with HIV. However, data on the experiences of rural women living with HIV/Acquired Immune Deficiency Syndrome (AIDS) in Zimbabwe are lacking. Women represent 50% of the global pandemic, while deaths from AIDS-related illnesses have exceeded 35 million. This study aimed to explore the experiences of rural women living with HIV/AIDS in Zimbabwe. Forty rural women living with HIV were selected from 6 villages (one village per district) of Matabeleland South Province in Zimbabwe. A qualitative descriptive research design using in-depth individual interviews from 22 purposefully selected rural women living with HIV and 3 focus groups, was used to collect the study data. The transcripts of the interviews were analyzed using interpretative phenomenological analysis. Three interconnected themes were identified: social prejudice, social discrimination, and psychosocial dysfunction. A key finding in the themes was that women living with HIV in rural Zimbabwe were psychosocially dysfunctional because of social prejudice and discrimination perpetrated against them by significant others in their communities. The findings provide a valuable understanding of women's experiences of living with HIV and AIDS in Africa's low-income countries. These results can be used by researchers, clinicians, mental health providers, and policymakers to address the unique needs of rural women living with HIV/AIDS.


Assuntos
Infecções por HIV , Pesquisa Qualitativa , População Rural , Estigma Social , Humanos , Zimbábue/epidemiologia , Feminino , Adulto , Infecções por HIV/psicologia , Pessoa de Meia-Idade , Grupos Focais , Adulto Jovem , Discriminação Social/psicologia , Entrevistas como Assunto
3.
Acta Derm Venereol ; 104: adv40384, 2024 Sep 10.
Artigo em Inglês | MEDLINE | ID: mdl-39254291

RESUMO

Self-stigma beliefs are common among people with visible chronic skin diseases and can negatively affect their quality of life and psychosocial wellbeing. Hence, evidence-based interventions are urgently needed. The objective for this systematic review was to summarize research on available interventions and evaluate their benefits and limitations. Following PRISMA guidelines, we conducted an electronic database search of four databases (EMBASE, PsycINFO, PubMed, Web of Science). Studies were eligible if they (a) investigated interventions to reduce self-stigma in adults with chronic skin disease, (b) were original empirical articles, and (c) were written in English or German. Two independent reviewers conducted the abstract and full text screening as well as data extraction. The quality of the included studies was evaluated using the Critical Appraisal Skills Programme checklists. The initial search yielded 5811 abstracts; of which, 23 records were eligible. Studies addressed a broad range of skin conditions, and interventions ranged from social skills training, counselling and self-help to psychosocial and behavioural interventions. Overall, interventions had mostly positive effects on self-stigma and related constructs. However, the study quality was heterogeneous, and further efforts to develop, thoroughly evaluate and implement interventions tackling self-stigma in multiple skin conditions and languages are warranted.


Assuntos
Qualidade de Vida , Autoimagem , Dermatopatias , Estigma Social , Humanos , Dermatopatias/psicologia , Dermatopatias/terapia , Conhecimentos, Atitudes e Prática em Saúde , Doença Crônica
4.
Soins Psychiatr ; 45(354): 17-22, 2024.
Artigo em Francês | MEDLINE | ID: mdl-39237214

RESUMO

The psychiatric care team offers comprehensive, personalized support, raising public awareness, promoting mental equilibrium and combating stigmatization. Its role includes collaboration, communication, designing adapted treatment plans and creating a climate of trust to influence the quality of care. In this way, she contributes to a more inclusive and caring society. As such, her own state of well-being deserves special attention. However, they often work in a highly degraded ecosystem that can be likened to psychiatry in a war zone.


Assuntos
Colaboração Intersetorial , Transtornos Mentais , Equipe de Assistência ao Paciente , Enfermagem Psiquiátrica , Humanos , Transtornos Mentais/enfermagem , Transtornos Mentais/psicologia , Comunicação Interdisciplinar , França , Comportamento Cooperativo , Estigma Social , Papel do Profissional de Enfermagem/psicologia
5.
J Int Assoc Provid AIDS Care ; 23: 23259582241277655, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39238476

RESUMO

OBJECTIVE: This study investigated women living with HIV/AIDS (WLHA)'s practices and decision-making regarding disclosure of HIV status in healthcare settings in Vietnam. Introduction: Disclosure of HIV status in healthcare settings is under-studied. METHODS: We conducted in-depth interviews with 30 WLHA in Hanoi, Vietnam. Thematic analysis was conducted to investigate the patterns, considerations, and consequences of HIV disclosure. Results: Most participants chose a selective disclosure strategy based on the type of procedure and healthcare setting. They considered several factors: concerns about stigma/discrimination, risks of confidentiality breach, relevance to healthcare provision, and altruism towards protecting providers and other patients. Selective disclosure or non-disclosure often prevented participants from accessing comprehensive care. Conclusion: The study underscores the need to prepare WLHA to make informed decisions regarding disclosure and provide them with service navigations and support. It also highlights the necessity of reducing stigma and enhancing confidentiality protection to ensure safe disclosure in healthcare settings.


Telling Healthcare Providers About HIV Status: How Women with HIV/AIDS in Vietnam Decide and What They ConsiderThis study focuses on how women living with HIV/AIDS in Vietnam decide to share their HIV status with healthcare providers. We interviewed 30 women with HIV/AIDS in Vietnam and found that many choose to reveal their status only in certain situations, depending on the medical procedure and the setting. They weigh various factors before deciding to disclose, including the risk of facing stigma, the need to protect their privacy, how relevant their HIV status is to their other health issues, their wish to protect their healthcare providers and other patients, and how they have been advised by HIV specialists. Unfortunately, choosing not to disclose their status sometimes stops them from getting the full range of medical care they need. The findings stress the importance of helping these women make well-informed choices about disclosing their HIV status. We also need to provide them with additional support and navigational help through healthcare services. Moreover, reducing stigma in healthcare, enhancing providers' ability to gather necessary health information, and ensuring patient privacy are crucial to encouraging more open discussions of HIV status in medical settings.


Assuntos
Confidencialidade , Infecções por HIV , Estigma Social , Humanos , Feminino , Vietnã , Adulto , Infecções por HIV/psicologia , Pessoa de Meia-Idade , Adulto Jovem , Revelação da Verdade , Pesquisa Qualitativa , Tomada de Decisões , Revelação
6.
PLoS One ; 19(9): e0306119, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39240888

RESUMO

Does a harmful act appear more intentional-and worthy of opprobrium-if it was committed by a member of a stigmatized group? In two studies (N = 1,451), participants read scenarios in which an actor caused a homicide. We orthogonally manipulated the relative presence or absence of distal intent (a focus on the end) and proximal intent (a focus on the means) in the actor's mind. We also varied the actor's racial (Study 1) or political (Study 2) group. In both studies, participants judged the stigmatized actor more harshly than the non-stigmatized actor when the actor's level of intent was ambiguous (i.e., one form of intent was high and the other form of intent was low). These data suggest that observers apply a sliding threshold when judging an actor's intent and moral responsibility; whereas less-stigmatized actors elicit condemnation only when they cause the outcome with both types of intent in mind, more-stigmatized actors elicit condemnation when only one type, or even neither type (Study 2) of intent is in their mind. We discuss how these results enrich the literature on lay theories of intentionality.


Assuntos
Intenção , Motivação , Humanos , Masculino , Feminino , Adulto , Estereotipagem , Adulto Jovem , Princípios Morais , Adolescente , Homicídio/psicologia , Estigma Social
7.
Alcohol Res ; 44(1): 05, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39246430

RESUMO

PURPOSE: Sexual and gender minority (SGM) people are at heightened risk for alcohol use, hazardous drinking, and alcohol use disorder compared to heterosexual and cisgender individuals. This paper: (a) presents an oppression framework that integrates intersectionality, stress, stigma, and addiction-based theories to examine the complex and nuanced ways oppression-based stress (e.g., minority stress) leads to sexual orientation and gender identity inequities in alcohol use; (b) conducts a narrative review that summarizes recent and novel advancements in the literature on the impact of oppression-based stressors on alcohol use outcomes across structural, interpersonal, and intrapersonal domains among SGM people; and (c) provides future research and intervention directions for the alcohol field. SEARCH METHODS: A select review of the literature was conducted on July 10, 2023, using multiple electronic databases (i.e., PsycInfo, PubMed, Web of Science) and focusing on studies that had examined the associations between oppression-based stressors and alcohol use outcomes across structural, interpersonal, and intrapersonal levels. Search terms focused on alcohol consumption; SGM people, particularly SGM people of color; and oppression-based stress. Cross-sectional studies that focused on heterosexism-based and anti-bisexual oppression-based stressors at the interpersonal or intrapersonal levels and alcohol use outcomes were excluded as they have been included in prior reviews of the literature. SEARCH RESULTS: The initial and combined search across the databases resulted in 3,205 articles. Of those, the narrative review included 50 peer-reviewed articles that focused on the following four areas of the literature on the associations between oppression-based stressors and alcohol use outcomes: (1) experimental, longitudinal, and experience sampling studies of heterosexism- and anti-bisexual oppression-based stressors (22 articles); (2) any studies of cissexism-based stressors (12 articles); (3) any studies of intersectional oppression among SGM people of color (seven articles, one article overlapped with the first category and another overlapped with the fourth category); and (4) any studies of structural oppression (11 articles). DISCUSSION AND CONCLUSIONS: Results of this narrative review indicate that mounting evidence implicates oppression-based stress in inequities in alcohol use, hazardous drinking, and alcohol use disorder in SGM populations. This reflects SGM people's embodiment of oppression and injustice at the structural, interpersonal, and intrapersonal levels. Given some inconsistent and mixed patterns of findings, future research needs greater specificity in drinking inclusion criteria, robust and well-validated measures, more attention to culturally and developmentally relevant moderating and mediating mechanisms across the lifespan, application of sophisticated methodologies, and integration of intersectional and addiction frameworks.


Assuntos
Consumo de Bebidas Alcoólicas , Minorias Sexuais e de Gênero , Estresse Psicológico , Humanos , Minorias Sexuais e de Gênero/estatística & dados numéricos , Consumo de Bebidas Alcoólicas/epidemiologia , Masculino , Feminino , Alcoolismo/epidemiologia , Estigma Social
8.
Ann Med ; 56(1): 2399316, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-39234650

RESUMO

BACKGROUND: Medications for opioid use disorder (MOUD) are the gold standard. However, significant barriers limit their use in the primary care setting, including limited knowledge of the medications and stigmatizing attitudes. In this study, we assess knowledge levels among primary care-aligned professionals (PCPs) currently in practice, and whether knowledge of MOUD is associated with stigma and treatment attitudes. PARTICIPANTS AND METHODS: Using rosters from the state of Ohio licensing boards, we surveyed 403 physicians, nurse practitioners, and physician associates in 2022, on the mechanism of different MOUD, as well as stigma and treatment attitudes. To assess MOUD knowledge, we employed descriptive and bivariate statistics. We fit four linear regression models, which controlled for empathy towards patients with OUD and provider demographics to assess the relationship between MOUD knowledge and four endpoints: stigma, perceived controllability of opioid use, perceived vulnerability to opioid use disorder, and support for abstinence-only treatment. RESULTS: 43% of participants correctly identified the mechanism of all 3 medications whereas 13% of participants did not identify the mechanism of any MOUD correctly. MOUD knowledge was higher among physicians as compared to nurse practitioners and physician associates. Lower MOUD knowledge was associated with more negative attitudes towards patients with OUD and MOUD treatment. CONCLUSION: Expanding access to MOUD treatment requires a trained and willing health-care professional (HCP) workforce. Our findings highlight considerable variation in clinician knowledge of MOUD and suggest that knowledge levels are also related to negative attitudes towards patients with OUD and MOUD. Training interventions that increase knowledge, as well as focus on stigma reduction, are critical for reducing the longstanding treatment gap for opioid use disorder.


Assuntos
Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Transtornos Relacionados ao Uso de Opioides , Atenção Primária à Saúde , Estigma Social , Humanos , Transtornos Relacionados ao Uso de Opioides/tratamento farmacológico , Transtornos Relacionados ao Uso de Opioides/psicologia , Transtornos Relacionados ao Uso de Opioides/terapia , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Ohio , Analgésicos Opioides/uso terapêutico , Inquéritos e Questionários , Médicos de Atenção Primária/estatística & dados numéricos , Médicos de Atenção Primária/psicologia , Profissionais de Enfermagem , Tratamento de Substituição de Opiáceos/métodos
9.
Am J Trop Med Hyg ; 111(3_Suppl): 93-104, 2024 Sep 03.
Artigo em Inglês | MEDLINE | ID: mdl-39236706

RESUMO

Mental health stigma remains a major global problem associated with low self-esteem, social withdrawal, and poor health-seeking behavior in individuals. However, limited published evidence details these challenges in Liberia. Knowledge of public perceptions toward mental illness and key trends in the associations between knowledge of mental, neurological, and substance use disorders (MNSs) and stigma is crucial to designing evidence-based mental health policies and supporting service delivery. This population-representative survey explored and quantified stigma related to MNSs in four health regions in Liberia, using a multistage stratified random sampling of 1,148 residents. Four internationally validated scales were used to assess knowledge, attitudes, and perceptions toward schizophrenia, bipolar disorder, epilepsy, and substance use disorder including the 1) Mental Health Attribution Questionnaire; 2) Five Question Stigma Indicator Questionnaire to assess Community Stigma; 3) Reported Intended Behavioral Scale; and 4) Personal Acceptance Level of Conditions. Data from interviews with 1,140 participants (96% response rate) were analyzed using central tendencies, hypothesis testing with simple logistic regression, and bivariate analysis for association between dependent and independent variables. Low mental health knowledge was found to be a strong predictor of discriminatory behaviors and stigma. Results revealed that exposure to movies or television significantly predicted increased discriminatory tendencies and that a lesser degree of acceptance was shown toward substance use disorder than any of the other conditions. These findings underscore the need for increased awareness and education about mental health to eliminate stigma and promote better care and inclusion for people living with MNSs.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Transtornos Mentais , Estigma Social , Transtornos Relacionados ao Uso de Substâncias , Humanos , Masculino , Feminino , Libéria/epidemiologia , Adulto , Transtornos Relacionados ao Uso de Substâncias/psicologia , Transtornos Relacionados ao Uso de Substâncias/epidemiologia , Pessoa de Meia-Idade , Transtornos Mentais/epidemiologia , Transtornos Mentais/psicologia , Inquéritos e Questionários , Adulto Jovem , Adolescente , Doenças do Sistema Nervoso/psicologia , Doenças do Sistema Nervoso/epidemiologia
10.
Natl Med J India ; 37(2): 82-85, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39222528

RESUMO

Background High levels of human HIV and tuberculosis (TB) stigma have been reported among healthcare workers (HCWs). Methods We compared HIV and TB stigma scores reported by nursing students and ward staff from hospitals across India. Transmission worry (TW) and intent to discriminate (ID) for HIV and TB were captured using a validated stigma scale. Results A total of 3733 individuals were interviewed. Nursing students and ward staff expressed higher TW while carrying out high- and low-risk tasks on patients with HIV compared to TB. Mean scores were 2.1 and 1.86 among nursing students; 1.82 and 1.79 among ward staff (all p<0.001). Both groups expressed a significantly higher ID against patients with HIV compared to TB (mean percentage: 75.6 and 70.3 among nursing students; and 81.8 and 78.8 among ward staff; all p<0.001). Conclusion TB stigma has implications for providing quality TB care. Training of HCWs regarding transmission dynamics, the importance of standard precautions during patient care, regardless of diagnosis is essential.


Assuntos
Atitude do Pessoal de Saúde , Infecções por HIV , Estigma Social , Tuberculose , Humanos , Índia/epidemiologia , Infecções por HIV/psicologia , Infecções por HIV/epidemiologia , Infecções por HIV/transmissão , Infecções por HIV/diagnóstico , Masculino , Feminino , Tuberculose/psicologia , Tuberculose/diagnóstico , Tuberculose/transmissão , Tuberculose/epidemiologia , Adulto , Pessoal de Saúde/psicologia , Pessoal de Saúde/estatística & dados numéricos , Estudantes de Enfermagem/psicologia , Estudantes de Enfermagem/estatística & dados numéricos , Adulto Jovem
11.
PLoS One ; 19(9): e0309687, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39259707

RESUMO

Many people who are stigmatized along concealable features (e.g., sexual minorities or people with mental illness) anticipate social rejection due to their features and associated labels, and these beliefs are a prominent predictor of psychological distress. While ecological approaches to stigma research have highlighted the social basis of these two related outcomes, it typically has focused on the impact of non-stigmatized counterparts. Also embedded in the social environment are similarly-stigmatized others who, in concealing, may be less accessible to the individual. Given the centrality of psychological distress and rejection concerns as a relational self-conception in attachment theories, we tested if identity-based rejection sensitivity and distress may emerge from diminished access to similarly-stigmatized others as identity group members. Leveraging the University as a partially-controlled, naturalistic setting, we collected measures of concealment, identity-based rejection sensitivity, and psychological distress from undergraduate students in introductory psychology courses who reported a concealable stigmatized identity (N = 355; k = 15 identity groups). With concealment aggregated to the level of the identity group, multi-level modeling showed that concealment by similarly-stigmatized students was positively associated with both individuals' identity-based rejection sensitivity and their psychological distress. Moreover, rejection sensitivity mediated the association of group-level concealment and distress. Findings suggest that rejection concerns and distress may emerge from identity group inaccessibility in the social environment, with the association of concerns and distress possibly contextualized by underlying group attachment dynamics. Results reveal the identity group as a novel source of social influence in the lives of individuals with concealable stigmatized identities.


Assuntos
Identificação Social , Estigma Social , Humanos , Masculino , Feminino , Adulto Jovem , Adulto , Distância Psicológica , Estudantes/psicologia , Adolescente , Angústia Psicológica , Estereotipagem , Autoimagem
12.
Ann Ist Super Sanita ; 60(3): 197-207, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39269001

RESUMO

INTRODUCTION: People with substance use disorder (SUD) face challenges like stigma and discrimination, impacting their healthcare experiences. AIM: This study aims to: (i) assess physicians' clinical practices and stigma toward SUD patients among healthcare personnel and (ii) explore the relationship among stigma, psychological well-being, and burnout. METHODS: A survey covering sociodemographic data, physicians' clinical practices, stigmatizing attitudes, psychological well-being, and burnout was completed by 1,796 employees of the Veneto's Local Health Units (Italy). RESULTS: Healthcare professionals reported increased stigma towards SUDs (p-values<0.05). Stigma consistently correlated with variables such as sex, profession, department, and levels of burnout (p-values<0.05). Notably, high burnout levels were associated with increased stigma. Staff in addiction departments displayed lower stigma levels compared to other departments. No significant differences were found in physicians' clinical practices. CONCLUSIONS: Targeted training for healthcare professionals is crucial to reduce stigma, enhance attitudes toward SUDs, and broaden overall knowledge of the condition.


Assuntos
Atitude do Pessoal de Saúde , Esgotamento Profissional , Pessoal de Saúde , Estigma Social , Transtornos Relacionados ao Uso de Substâncias , Humanos , Itália , Masculino , Feminino , Transtornos Relacionados ao Uso de Substâncias/psicologia , Transtornos Relacionados ao Uso de Substâncias/epidemiologia , Adulto , Pessoa de Meia-Idade , Pessoal de Saúde/psicologia , Esgotamento Profissional/epidemiologia , Esgotamento Profissional/psicologia , Inquéritos e Questionários , Médicos/psicologia
13.
Sci Rep ; 14(1): 21440, 2024 09 13.
Artigo em Inglês | MEDLINE | ID: mdl-39271746

RESUMO

Loss to follow-up (LTFU) from Option B plus, a lifelong antiretroviral therapy (ART) for pregnant women living with human immunodeficiency virus (HIV), irrespective of their clinical stage and CD4 count, threatens the elimination of vertical transmission of the virus from mothers to their infants. However, evidence on reasons for LTFU and resumption after LTFU to Option B plus care among women has been limited in Ethiopia. Therefore, this study explored why women were LTFU from the service and what made them resume or refuse resumption after LTFU in Ethiopia. An exploratory, descriptive qualitative study using 46 in-depth interviews was employed among purposely selected women who were lost from Option B plus care or resumed care after LTFU, health care providers, and mother support group (MSG) members working in the prevention of mother-to-child transmission unit. A thematic analysis using an inductive approach was used to analyze the data and build subthemes and themes. Open Code Version 4.03 software assists in data management, from open coding to developing themes and sub-themes. We found that low socioeconomic status, poor relationship with husband and/or family, lack of support from partners, family members, or government, HIV-related stigma, and discrimination, lack of awareness on HIV treatment and perceived drug side effects, religious belief, shortage of drug supply, inadequate service access, and fear of confidentiality breach by healthcare workers were major reasons for LTFU. Healthcare workers' dedication to tracing lost women, partner encouragement, and feeling sick prompted women to resume care after LTFU. This study highlighted financial burdens, partner violence, and societal and health service-related factors discouraged compliance to retention among women in Option B plus care in Ethiopia. Women's empowerment and partner engagement were of vital importance to retain them in care and eliminate vertical transmission of the virus among infants born to HIV-positive women.


Assuntos
Infecções por HIV , Transmissão Vertical de Doenças Infecciosas , Pesquisa Qualitativa , Humanos , Feminino , Etiópia , Infecções por HIV/tratamento farmacológico , Infecções por HIV/psicologia , Adulto , Gravidez , Transmissão Vertical de Doenças Infecciosas/prevenção & controle , Perda de Seguimento , Adulto Jovem , Fármacos Anti-HIV/uso terapêutico , Complicações Infecciosas na Gravidez/psicologia , Complicações Infecciosas na Gravidez/tratamento farmacológico , Estigma Social
14.
BMC Womens Health ; 24(1): 518, 2024 Sep 14.
Artigo em Inglês | MEDLINE | ID: mdl-39277729

RESUMO

BACKGROUND: Vaginal laxity (VL) is rarely discussed among patients and their physicians possibly due to the lack of evidence-based treatments, embarrassment, and lack of knowledge in recognizing this condition. We aimed to understand the meanings that women attribute to the sensation of VL. METHODS: This is a qualitative study using in-depth interviews and thematic analysis. Sixteen participants were intentionally selected from February 2020 to December 2021. One researcher interviewed each participant in a private room guaranteeing that rapport was established. Two independent researchers performed a complete transcript of each interview immediately after its end. The sample size was achieved according to the Information Power analysis. We followed the thematic analysis proposed by Braun and Clarke. RESULTS: Of 16 patients, only one did not undergo delivery. Her complaint was not different from the rest of the group. Five major themes and subthemes were identified: the long and lonely pathway: from the identification of symptoms of VL to diagnosis (from the invisibility of VL to the perception of their symptoms; "everything will fall out!":shame, guilt and stigma as diagnosis barriers and "but I had no idea of looking for a treatment." Women's strategies to begin a help-seeking process), "the label of vaginal laxity is a heavy burden to bear" meanings associated with VL complaints, effect of VL on sexual intercourse and "I know it changed everything!" relationship with the partner. CONCLUSION: VL is a symptom that is still little understood by women, and little explored by health professionals, with repercussions on personal and marital life.


Assuntos
Pesquisa Qualitativa , Vagina , Humanos , Feminino , Adulto , Pessoa de Meia-Idade , Vagina/fisiopatologia , Doenças Vaginais/psicologia , Estigma Social
15.
BMC Prim Care ; 25(1): 329, 2024 Sep 05.
Artigo em Inglês | MEDLINE | ID: mdl-39237868

RESUMO

BACKGROUND: As a rare endocrine disorder, Cushing's Syndrome (Cushing's) is characterized by numerous symptoms and a non-specific presentation, leading to a delay to diagnosis for patients with this disease. To date, research examining the lived experiences of patients with Cushing's in healthcare is absent in the literature. This preliminary inquiry into the healthcare experiences of women with Cushing's aimed to examine the utility of this line of inquiry to support the patient centered care of individuals with Cushing's. METHODS: Seven women from across Canada with endogenous Cushing's participated in the study. Semi-structured interviews were conducted examining participants' healthcare and body-related experiences with Cushing's. Results pertaining to healthcare experiences were analyzed for the current study using reflexive thematic analysis. RESULTS: Four themes emerged whereby women with Cushing's experienced (1) a lack of patient centered care, characterized by provider miscommunication and medical gaslighting; (2) a misunderstanding of their symptoms as related to weight gain; (3) weight stigma in healthcare encounters; and (4) a shift in their quality of care following diagnosis. CONCLUSIONS: The results highlight the importance of patient centered care as well as the negative impact of commonly reported barriers to patient centered care. Cushing's specific barriers to patient centered care may include weight stigma as well as the rare incidence of Cushing's. Further research is needed to better understand the healthcare experiences of people with Cushing's in Canada.


Assuntos
Síndrome de Cushing , Assistência Centrada no Paciente , Pesquisa Qualitativa , Humanos , Feminino , Síndrome de Cushing/psicologia , Síndrome de Cushing/terapia , Canadá/epidemiologia , Pessoa de Meia-Idade , Adulto , Estigma Social , Qualidade da Assistência à Saúde , Aumento de Peso , Entrevistas como Assunto
16.
Afr J Prim Health Care Fam Med ; 16(1): e1-e10, 2024 Aug 09.
Artigo em Inglês | MEDLINE | ID: mdl-39221733

RESUMO

BACKGROUND:  Population ageing and access to antiretroviral therapy have resulted in an increase in the proportion of older people living with human immunodeficiency virus (HIV). However, scant knowledge is available to inform the design of educational programmes to target these persons in low- and middle-income countries. AIM:  This study aimed to examine how persons aged ≥ 50 years view their risk of contracting HIV, and the extent to which they are supported in preventing infection and are impacted by the HIV or acquired immune deficiency syndrome (AIDS) epidemic. SETTING:  Rural sites in the Western Cape Province of South Africa. METHODS:  This study followed a qualitative design. Two focus group discussions with persons aged ≥ 50 years and interviews with two key informants were conducted at seniors' centres. Discussions were digitally audio recorded and the recordings were transcribed, and data were thematically analysed. RESULTS:  Overall, awareness of the risk of older persons contracting HIV infection in this population was poor. Stigmatisation of the disease in the community and at health care facilities affected individuals' willingness to be tested for the virus and/or to disclose their status, if positive. Participants viewed HIV and AIDS education programmes as focussed on the youth and educational sessions for large groups were not helpful in stemming the epidemic. CONCLUSION:  Dissemination of information on older persons' vulnerability to the disease, and education on HIV and AIDS tailored for and targeted at this age group have been relatively neglected.Contribution: Educational programmes on HIV, as well as productive channels and platforms to target older populations, particularly those with a low health literacy level are required.


Assuntos
Síndrome da Imunodeficiência Adquirida , Grupos Focais , Infecções por HIV , Conhecimentos, Atitudes e Prática em Saúde , Pesquisa Qualitativa , Humanos , África do Sul , Masculino , Feminino , Infecções por HIV/prevenção & controle , Pessoa de Meia-Idade , Idoso , Síndrome da Imunodeficiência Adquirida/prevenção & controle , População Rural , Estigma Social
17.
Aust J Gen Pract ; 53(9): 682-685, 2024 09.
Artigo em Inglês | MEDLINE | ID: mdl-39226608

RESUMO

BACKGROUND: Reducing weight stigma in healthcare is critical to supporting and improving the health of people living with overweight or obesity and decreasing the risk of adverse patient outcomes. We were invited as stigma researchers to participate in an online workshop alongside community members, healthcare professionals and policymakers to codesign guidance for reducing weight stigma in healthcare. This workshop prompted us to reflect on why and how weight stigma should be addressed in healthcare, and to provide recommendations for healthcare professionals and policymakers to reduce weight stigma in healthcare. OBJECTIVE: This paper presents our reflections and recommendations for addressing weight stigma in healthcare following the codesign workshop. DISCUSSION: Recommendations include targeting individual healthcare professionals and involving clear, practical guidelines and training that leverage the notions of 'do no harm', improving practice and recognising biases. Importantly, such strategies must be couched in broader structural approaches to weight stigma reduction.


Assuntos
Pessoal de Saúde , Obesidade , Estigma Social , Humanos , Pessoal de Saúde/psicologia , Obesidade/psicologia
18.
PLoS One ; 19(9): e0309562, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39226275

RESUMO

OBJECTIVE: To collect evidence on the possibility that patients with depression experience self-stigmatization based on label information for medications. METHODS: We developed a discrete-choice experiment (DCE) survey instrument that asked respondents to make choices between hypothetical treatments for major depressive disorder (MDD). We also included treatment type (antidepressants versus antipsychotics) and approved indications for the medication. The choice questions mimicked the information presented in product inserts and required systematic tradeoffs between treatment efficacy, treatment type, and indication. We calculated how many patients were willing to forgo efficacy to avoid treatments with information associated with self-stigmatization, and how much efficacy they were willing to forgo. We also evaluated the impact of contextualizing the treatment information to reduce self-stigmatization by randomizing respondents who received additional context. RESULTS: A total of 501 patients with MDD were recruited to complete the DCE survey. Respondents had well-defined preferences for treatment outcomes. Over 60% (63.4%) of respondents were found to be significantly affected by treatment indication. These respondents were willing to forgo about 2.5 percentage points in the chance of treatment efficacy to avoid treatments indicated for schizophrenia. We also find that some level of contextualization of the treatment details could help reduce the negative impact of treatment type and indications. CONCLUSIONS: Product-label treatment indication can potentially lead to patient self-stigmatization as shown by patients' avoidance of treatments that are also used to treat schizophrenia. While the effect appears to be relatively small, results suggests that the issue is likely pervasive.


Assuntos
Antidepressivos , Comportamento de Escolha , Transtorno Depressivo Maior , Preferência do Paciente , Humanos , Masculino , Feminino , Antidepressivos/uso terapêutico , Adulto , Pessoa de Meia-Idade , Transtorno Depressivo Maior/tratamento farmacológico , Transtorno Depressivo Maior/psicologia , Preferência do Paciente/psicologia , Inquéritos e Questionários , Rotulagem de Medicamentos , Estereotipagem , Antipsicóticos/uso terapêutico , Resultado do Tratamento , Idoso , Estigma Social
19.
PLoS One ; 19(9): e0309694, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39226283

RESUMO

External HIV-related stigma remains pervasive, and its effect debilitating among PLHIV in South Africa, even though the country has made many advances against HIV. External HIV-related stigma impedes both HIV prevention and access to health care and reduces the quality of treatment and care received. This study examined the prevalence of and factors associated with higher levels of HIV-related stigma among youth and adults 15 years and older in South Africa. The analysis used a nationally representative population-based household survey data collected using a multistage cluster random sampling design. Exploratory factor analysis was used to calculate the primary outcome (higher and lower HIV stigma index scores above and below the mean, respectively), based on the total number of factors retained from the 10 item self-reported questions relating to attitudes and beliefs against PLHIV. Bivariate and multivariate generalised linear models with a log link and binomial distribution were fitted to estimate crude and adjusted risk ratios (ARR) with 95% confidence intervals (CI) for factors associated with external HIV-related stigma. Of 38 919 respondents, 49% (49.8%; 95% CI: 48.6-51.1) were categorised as having higher levels of external HIV-related stigma. Higher levels of HIV-related stigma were significantly associated with those who had secondary level education than those with no education/primary education [ARR = 1.14 (95% CI: 1.05-1.24), p = 0.002], those employed than unemployed [ARR = 1.08 (95% CI: 1.02-1.14), p = 0.006], those in rural areas than urban areas [ARR = 1.15 (95% CI: 1.07-1.23), p<0.001], those who were aware of their HIV status than not aware [ARR = 1.34 (95% CI: 1.12-1.61), p<0.001], those who were HIV positive than HIV negative [ARR = 1.09 (95% CI: 1.02-1.17), p = 0.018], and those with no correct HIV knowledge and myth rejection than their counterparts [ARR = 1.09 (95% CI: 1.03-1.15), p = 0.002]. The findings highlight the need for peer-facilitated HIV-stigma reduction interventions targeting all types of educational institutions and the strengthening of work-based interventions. The findings emphasise the prioritisation of rural informal settings/tribal areas when developing and implementing HIV stigma reduction interventions. The study suggests that stigma reduction should be considered an important component of HIV testing and awareness. Addressing public misconceptions about HIV can mitigate externalised stigma.


Assuntos
Infecções por HIV , Estigma Social , Humanos , África do Sul/epidemiologia , Infecções por HIV/epidemiologia , Infecções por HIV/psicologia , Feminino , Adulto , Masculino , Adolescente , Prevalência , Adulto Jovem , Pessoa de Meia-Idade , Inquéritos e Questionários , Conhecimentos, Atitudes e Prática em Saúde , População Rural
20.
BMC Public Health ; 24(1): 2396, 2024 Sep 03.
Artigo em Inglês | MEDLINE | ID: mdl-39227860

RESUMO

BACKGROUND: Stigma is a key barrier to disclosing traumatic experiences of violence in childhood with adverse consequences for help-seeking behaviour. Disclosing behavior differs by gender and the form of violence experienced. However, there is a lack of comprehensive studies that address societal perceptions of males and females with a history of sexual or physical violence in childhood. Therefore, our aim is to focus on the impact of gender on the perception of individuals who experienced sexual or physical violence in childhood. METHODS: We conducted a study on a representative sample of the German general population in terms of age and gender. Participants were randomly assigned to brief case vignettes addressing sexual or physical violence in childhood. Analyses base on a sample of n = 659 individuals (50.1% female). Stigma was assessed through examining respondents' readiness to address specific traumas in conversation and respondents' attitudes toward the individuals in the vignettes. Mann-Whitney U tests were applied to check for differences between female and male victims and survivors as well as female and male respondents. RESULTS: Our results reveal that male victims and survivors face higher negative stereotypes (harm, unpredictability) and evoke communication barriers more often when compared to female victims and survivors, especially in male respondents. Sexual violence is associated with more distinct gender differences than physical violence. CONCLUSIONS: Findings reflect greater stigma toward male victims and survivors of sexual violence than female ones. Men had a greater tendency to stigmatize - especially toward their same-gender peers. Socially ingrained gender roles may act as a basis for different communication cultures and the notion of victim-perpetrator constellations in which males are not envisaged as victims.


Assuntos
Estigma Social , Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Adulto Jovem , Adolescente , Alemanha , Criança , Fatores Sexuais , Idoso , Estereotipagem , Abuso Físico/psicologia , Abuso Físico/estatística & dados numéricos , Sobreviventes Adultos de Maus-Tratos Infantis/psicologia , Sobreviventes Adultos de Maus-Tratos Infantis/estatística & dados numéricos
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