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The Position of Neuromuscular Patients in Shared Decision Making. Report from the 235th ENMC Workshop: Milan, Italy, January 19-20, 2018.
Lochmüller, Hanns; Ambrosini, Anna; van Engelen, Baziel; Hansson, Mats; Tibben, Aad; Breukel, Alexandra; Sterrenburg, Ellen; Schrijvers, Guus; Meijer, Ingeborg; Padberg, George; Peay, Holly; Monaco, Lucia; Snape, Mike; Lennox, Anne; Mazzone, Elena; Bere, Nathalie; de Lemus, Mencia; Landfeldt, Erik; Willmann, Raffaella.
Afiliação
  • Lochmüller H; Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, Canada and Division of Neurology, Department of Medicine, The Ottawa Hospital, Ottawa, Canada; Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, Fr
  • Ambrosini A; Fondazione Telethon, Milan, Italy.
  • van Engelen B; Department of Neurology, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Hansson M; Uppsala University, Uppsala, Sweden.
  • Tibben A; Centre for Human and Clinical Genetics, Leiden University Medical Centre, Leiden, the Netherlands.
  • Breukel A; European Neuromuscular Centre, Baarn, the Netherlands.
  • Sterrenburg E; Prinses Beatrix Spierfonds, the Hague, the Netherlands.
  • Schrijvers G; Spierziekten Nederland, Baarn, the Netherlands.
  • Meijer I; Centre for Science and Technology Studies (CWTS), University of Leiden, Leiden, the Netherlands and Spierziekten Nederland, Baarn, the Netherlands.
  • Padberg G; Centre for Human and Clinical Genetics, Leiden University Medical Centre, Leiden, the Netherlands.
  • Peay H; RTI International, Research Triangle Park, NC, USA.
  • Monaco L; Fondazione Telethon, Milan, Italy.
  • Snape M; AMO Pharma Ltd., Wonersh, UK.
  • Lennox A; Myotubular Trust, London, UK.
  • Mazzone E; Department of Child Neurology, Catholic University, Rome, Italy.
  • Bere N; Public Engagement, European Medicines Agency, London, UK.
  • de Lemus M; SMA Europe, Freiburg, Germany.
  • Landfeldt E; Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden; and Icon plc, Stockholm, Sweden.
  • Willmann R; Swiss Foundation for Research on Muscle Diseases, Cortaillod, Switzerland.
J Neuromuscul Dis ; 6(1): 161-172, 2019.
Article em En | MEDLINE | ID: mdl-30714970
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Observational_studies / Prognostic_studies Aspecto: Patient_preference Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2019 Tipo de documento: Article País de afiliação: França País de publicação: Holanda
Texto completo
Adicionar na Minha BVS
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XML
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Observational_studies / Prognostic_studies Aspecto: Patient_preference Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2019 Tipo de documento: Article País de afiliação: França País de publicação: Holanda