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1.
J Interprof Care ; 37(4): 655-661, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-36153746

RESUMEN

Understanding of the processes associated with socialization into collaborative work plays an important role in interprofessional education and collaborative practice. In order to evaluate changes in socialization toward interprofessional collaborative practice a measure is needed that captures professional beliefs, attitudes and behaviors of individuals in learning activities and in workplace practice. This article presents the translation and psychometric properties of the German Version of the Interprofessional Socialization and Valuing Scale (ISVS-21). Following translation from English to German, data of the German version of the questionnaire (ISVS-21-D) was collected in six different interprofessional education and practice settings amongst undergraduate students and health professionals. In total, 494 responses were analyzed. Results showed high reliability with Cronbach's alpha .90. Although not all fit indices are in the desired range, results give preliminary indication of the underlying single factor of the ISVS-21-D and suggest that the German version of the ISVS-21-D is a reliable instrument that can be used to measure interprofessional socialization in German health professionals and health care students as well as within other disciplines.


Asunto(s)
Relaciones Interprofesionales , Socialización , Humanos , Conducta Cooperativa , Psicometría/métodos , Reproducibilidad de los Resultados , Actitud del Personal de Salud , Encuestas y Cuestionarios
2.
Phys Occup Ther Pediatr ; 43(6): 780-805, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37122071

RESUMEN

AIMS: This scoping review explores what is known about programs that support youth with physical and developmental disabilities to create virtual social connections as a means toward friendships. METHODS: Peer-reviewed studies were searched in six electronic databases: CINAHL, EMBASE, ERIC, MEDLINE, PsycINFO, and Scopus. Two reviewers screened articles that described programs in which participants, ages 8-20, interacted with others online, and reported outcomes related to virtual social connections and friendships in their personal social networks. Data extraction involved program characteristics (e.g., duration, group members, online platform) plus qualitative description outlining access and participation experiences. RESULTS: After screening 12,605 articles, 9 were determined eligible. Programs followed two approaches: (1) training youth to use the internet and technology to access virtual spaces independently; and (2) designing virtual opportunities and activities that encourage youth interaction and collaboration. Each approach was grounded in the principles of fostering privacy and independence (i.e., socializing with peers without relying on caregivers), safety and self-expression (i.e., communicating authentically), plus confidence and capability (i.e., trying new skills). CONCLUSIONS: This scoping review provides guidance on enhancing access and participation of youth with disabilities in virtual spaces where they can develop social connections that increase chances for friendships.


Asunto(s)
Personas con Discapacidad , Amigos , Adolescente , Humanos , Cuidadores
3.
BMC Pediatr ; 22(1): 375, 2022 06 29.
Artículo en Inglés | MEDLINE | ID: mdl-35764983

RESUMEN

BACKGROUND: Child-oriented goal-setting in pediatric rehabilitation may improve child motivation, engagement in therapy, child outcomes related to therapy, and service delivery efficiency. The primary objective of this trial is to determine the effectiveness of a principles-driven, child-focused approach to goal-setting, Enhancing Child Engagement in Goal-Setting (ENGAGE), on pediatric rehabilitation outcomes compared to usual practice. The three secondary objectives are to 1) compare costs and secondary outcomes of the ENGAGE approach to usual practice, 2) determine the influence of child, parent and therapist characteristics on child engagement in therapy and rehabilitation outcomes, and 3) identify barriers and facilitators to the implementation of ENGAGE. METHODS: This research protocol describes a pragmatic, multi-site, cluster, effectiveness-implementation (hybrid type 1 design) randomized controlled trial. Therapists (n = 12 clusters of two therapists) at participating sites (n = 6) will be randomized to 1) the ENGAGE intervention group, or 2) usual care (control) using a computer-generated, permuted-block randomization sequence with site as a stratification variable designed by a statistician (RR). Each therapist will recruit four children 5-12 years old with neurodevelopmental conditions (n = 96), who will receive ENGAGE or usual care, according to therapist group allocation. ENGAGE therapists will be trained to use a 'toolbox' of evidence-driven, theory-informed principles to optimize child and parent motivation, engagement in the goal-setting process, and performance feedback strategies. Outcomes include goal performance (primary outcome), engagement in therapy, functional abilities, participation, and parent and child quality of life. Qualitative interviews with children, parents, ENGAGE therapists, and managers will explore challenges to implementation and potential mitigation strategies. Mixed effects multiple linear regression models will be developed for each outcome to assess group differences adjusted for clustering. A cost-effectiveness analysis will combine cost and a measure of effectiveness into an incremental cost-effectiveness ratio. Qualitative data on implementation will be analyzed inductively (thematic analysis) and deductively using established implementation science frameworks. DISCUSSION: This study will evaluate the effects of collaborative goal-setting in pediatric rehabilitation and inform effective implementation of child-focused goal-setting practices. TRIAL REGISTRATION: NCT05017363 (registered August 23, 2021 on ClinicalTrials.gov).


Asunto(s)
Objetivos , Calidad de Vida , Actividades Cotidianas , Niño , Preescolar , Humanos , Motivación , Estudios Multicéntricos como Asunto , Padres , Ensayos Clínicos Controlados Aleatorios como Asunto
4.
Qual Health Res ; 32(14): 2147-2158, 2022 12.
Artículo en Inglés | MEDLINE | ID: mdl-36373512

RESUMEN

Transition to adult life can be a challenging time for disabled youth and their families. This article describes the collaborative creation of Transitions Theatre, a research-based reader's theatre activity based on narrative interviews with eight disabled youth (aged 17-22) and seven parents. Analysis of these interviews generated two opposing yet interrelated themes. On one hand, youth and families felt lost in transition facing multiple gaps in healthcare, financial support, education, and opportunities for social participation after having "aged out" of the pediatric system. On the other hand, they started cripping "normal" adulthood to envision more inclusive futures wherein disabilities are understood as integral to society. These two themes were transformed into two reader's theatre scripts, one featuring a youth, the other featuring a parent. Seven youth and four parents (six of them were original interview participants) then participated in a Transitions Theatre workshop to read the scripts together and discuss the authenticity and relatability of the scripts. Participant feedback suggested that the reader's theatre method was effective in sharing findings with research participants and stimulating a critical dialogue on how to (re)imagine transition to adulthood. We discuss the importance of implementing inclusive design strategies to make reader's theatre accessible to participants with diverse abilities and preferences.


Asunto(s)
Niños con Discapacidad , Adulto , Adolescente , Niño , Humanos , Padres , Atención a la Salud/métodos , Participación Social
5.
Phys Occup Ther Pediatr ; 42(2): 154-171, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-34266361

RESUMEN

AIMS: To examine goal attainment, engagement, and the stances used by coaches providing a solution-focused coaching intervention (SFC-peds) for young people with cerebral palsy pursuing friendship goals. METHODS: The case study involved two clients with cerebral palsy (a young child and his mother, and a youth) and their service providers. An interpretive descriptive approach was used to analyze quantitative and qualitative data. Friendship goal attainment was assessed by the Canadian Occupational Performance Measure and goal attainment scaling, and client engagement was assessed using the Pediatric Rehabilitation Intervention Measure of Engagement-Service Provider version. Information from post-intervention client interviews was used to identify coach stances and relationships with client engagement. RESULTS: Participants met their friendship goals and were considered to be highly engaged by their coaches. Four coach stances were identified: Respectful Inquiry, a Strengths Presupposition, Implementation Curiosity, and Inspiring Commitment. These stances, and aligned tactics, engaged clients on affective, cognitive, and behavioral levels, and impacted the client's stance toward their goal. CONCLUSIONS: SFC-peds appears to be an effective and engaging approach for young people with disabilities working on friendship goals. The findings illustrate how the coach's stances and tactics engage clients, thus impacting the client's own stances toward change.


Asunto(s)
Parálisis Cerebral , Tutoría , Adolescente , Canadá , Parálisis Cerebral/rehabilitación , Niño , Amigos , Objetivos , Humanos
6.
Phys Occup Ther Pediatr ; 41(5): 467-484, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33593199

RESUMEN

AIMS: Perspectives of children with and without disabilities on social inclusion are seldom sought in the childhood disability literature, impeding the ability to provide inclusive experiences for all children. This qualitative study explored meaningful aspects of social inclusion from the perspectives of children with and without disabilities in an inclusive recreation program. METHODS: Drawing on the interpretive paradigm and subjectivity epistemology, this study adopted a generic qualitative methodological approach. Seventeen children with and without disabilities involved in the same inclusive recreation program participated in two semi-structured interviews. These interviews were analyzed using an inductive thematic analysis. RESULTS: Three key themes emerged and were interpreted as dimensions of social inclusion: contextual, intrapersonal, and interpersonal. The contextual dimension included the freedom to choose activities and receiving equal attention from staff. The intrapersonal dimension was characterized by psychological safety and group fellowship. The interpersonal dimension included having positive authentic interactions and giving/receiving help. CONCLUSIONS: These findings may influence future program development and implementation to promote inclusive experiences for all children.


Asunto(s)
Niños con Discapacidad , Personas con Discapacidad , Niño , Humanos , Investigación Cualitativa , Inclusión Social
7.
Phys Occup Ther Pediatr ; 41(4): 340-354, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33441052

RESUMEN

AIMS: This qualitative evaluation study assessed perceived impacts of a solution-focused coaching (SFC) training rolled out in a Canadian pediatric rehabilitation hospital from the perspective of clinical service providers. METHODS: Thirteen clinical service providers were interviewed six months after receiving 2-day SFC training. Participants retrospectively described perceived impacts of the training and benefits and challenges pertinent to the implementation of the SFC approach. Interview transcripts were transcribed verbatim and analyzed thematically. RESULTS: SFC training was considered making a valuable addition to participants' toolbox, increasing their confidence in developing positive therapeutic alliance with clients, and enhancing their strengths-based orientation. The training was also seen improving team cohesion and promoting collaborative solution-finding among team members. Structural barriers such as time constraints, lack of continuous organizational support and clear expectations around the use of the SFC approach were reported as factors impeding effective clinical adaptation. The need for tailoring the SFC approach to unique service contexts was also reported. CONCLUSIONS: Future SFC training initiatives should integrate a team-based approach and a culturally sensitive lens to help providers better assist clients in identifying their unique strengths. Follow-up training and continuous organizational support mechanisms will be vital for facilitating sustainable implementation after the initial training.


Asunto(s)
Tutoría , Canadá , Niño , Atención a la Salud , Humanos , Investigación Cualitativa , Estudios Retrospectivos
8.
Mil Psychol ; 33(2): 104-114, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-38536349

RESUMEN

Military service can include numerous adverse events. As such, resiliency has been considered as a means of potentially helping active-duty personnel face adversity and be better prepared for the demands of military service. However, research in military contexts has been hindered by use of disparate conceptualizations, definitions, and measures of resiliency. To provide some resolution to these inconsistencies, we use a comprehensive, theoretically based model of resiliency to explore how self-regulation processes contributed to Soldiers' negative affect and self-perceived effectiveness. We hypothesized that self-regulation (comprising distinct affective, behavioral, and cognitive processes) increments prediction of Soldiers' outcomes over and above trait-based resiliency protective factors. Using a sample of active-duty military personnel, cognitive self-regulation and affective self-regulation incremented the prediction of negative affect and self-perceived Soldier effectiveness, respectively, over and above trait-based protective factors. These results support the use of a comprehensive model and measure of resiliency, which may enable greater consistency across future research endeavors. As these results validated the links between self-regulation and post-adversity outcomes, this study provides a basis for developing new resiliency training programs. Additional implications for theory and continued research on resiliency in military contexts are discussed.

9.
Child Care Health Dev ; 46(3): 249-267, 2020 05.
Artículo en Inglés | MEDLINE | ID: mdl-31944352

RESUMEN

BACKGROUNDS: Resiliency has attracted a growing interest in paediatric rehabilitation as a key capacity for disabled children and their families to thrive. This study aimed to identify measures used to assess resiliency of disabled children/youth and their families and critically appraise the current use of resiliency measures to inform future research and practice. METHODS: A two-stage search strategy was employed. First, systematic reviews of resiliency measures published since 2000 were searched. Second, full names of measures identified in at least two systematic reviews were searched across four electronic databases. Included studies assessed resiliency among children/youth (0-18 years old) with chronic health conditions and/or disabilities and their families. Identified articles were then analysed to discern the study's definition of resiliency, authors' rationales for measurement selection, and types of perceived adversities facing the study participants. RESULTS: From an initial yield of 25 measures identified in five systematic reviews, 11 were analysed in two or more reviews. The second stage yielded 41 empirical studies published between 2012 and 2018, which used 8 of the 11 resiliency measures searched by name. Of 41, 17 studies measured resiliency of disabled children/youth, 23 assessed resiliency within family members, and 1 studied both children/youth and their families. Our critical appraisal identified inconsistencies between the studies' definition of resiliency and chosen measures' operationalization, implicit assumption of disabilities as a developmental risk that automatically results in life adversities, and the tendency among family studies to reduce resiliency down to stress coping skills. Research that encompasses contextual factors and developmental influences is lacking. CONCLUSIONS: There is a need for a situated measurement approach that captures multiple interacting factors shaping resiliency over one's life course. Resiliency measures would benefit from a greater focus on a person-environment transaction and an alternative definition of resiliency that accounts for multiple capacities to navigate through disabling environments.


Asunto(s)
Niños con Discapacidad/psicología , Resiliencia Psicológica , Adaptación Psicológica , Adolescente , Niño , Preescolar , Humanos , Lactante , Recién Nacido
10.
J Interprof Care ; 34(4): 481-492, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31750748

RESUMEN

Fostering successful interprofessional collaboration remains a challenge in pediatric rehabilitation. A coaching approach can enhance client-centered care and provide a transdisciplinary framework for collaboration. The purpose of this longitudinal study was to evaluate the impact of Solution-Focused Coaching in Pediatric Rehabilitation (SFC-peds) training on pediatric rehabilitation practitioners from multiple disciplinary backgrounds. Thirty-seven service providers (SPs) completed surveys at baseline and three follow-ups. Quantitative and qualitative findings both suggested that the training proved an effective way to achieve substantial and sustainable improvements in SFC knowledge, confidence, and use of SFC-peds techniques among participating SPs. The educational intervention also facilitated the integration of a strengths-based, solution-building approach at an individual and team level, providing SPs with a common language and shared framework for client-centered care and optimal collaboration with colleagues. A need for practice opportunities tailored to unique care contexts was identified. Future research should further explore the impacts of a SFC-peds approach on interprofessional teams, as well as on health outcomes of clients.


Asunto(s)
Personal de Salud/educación , Relaciones Interprofesionales , Tutoría/organización & administración , Pediatría/educación , Rehabilitación/educación , Especialización , Conocimientos, Actitudes y Práctica en Salud , Humanos , Estudios Longitudinales , Planificación de Atención al Paciente , Grupo de Atención al Paciente/organización & administración , Atención Dirigida al Paciente
11.
Phys Occup Ther Pediatr ; 40(3): 311-329, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31530201

RESUMEN

Aims: The aim of this paper is to provide a holistic description of the nature, formation and impact of parents' therapy related expectations.Methods: This qualitative descriptive study drew from initial and follow up interviews with 20 parents of children ≤ 6 years who had a developmental disability or delay and used therapy services at a children's treatment center in Ontario, Canada. Conventional content analysis was used to inductively generate themes and investigator triangulation was completed.Results: Parent's child related expectations focused on whether the child would receive a diagnosis and what they might achieve. Parents held expectations about the availability of service and how it would be offered. Parents' expectations of service providers included their knowledge, skills, relationships and communication with the children and parents. Parents held expectations of themselves related to attendance and roles in therapy sessions and home practice. These expectations are described according to how they are shaped and changed them over time. The impact of matched/mismatched expectations is explored.Conclusion: Service providers can improve family-centred care and collaboration with parents by explicitly discussing parents' expectations when beginning, and throughout, therapy. Parent satisfaction and therapy engagement may improve if parents and service providers negotiate and agree upon expectations.


Asunto(s)
Actitud Frente a la Salud , Niños con Discapacidad/rehabilitación , Padres/psicología , Relaciones Profesional-Familia , Niño , Preescolar , Femenino , Humanos , Lactante , Recién Nacido , Masculino , Motivación , Investigación Cualitativa
12.
Phys Occup Ther Pediatr ; 40(4): 423-440, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31939337

RESUMEN

Background: The ultimate goal of therapeutic intervention is meaningful participation in one's world. For people with Cerebral Palsy (CP), limitations can often become a focus of care.Aim: Our purpose was to investigate the impact of a Solution-Focused Coaching intervention designed for pediatric rehabilitation (SFC-peds) on the attainment of participation goals for children/youth with CP.Method: Twelve participants participated in a repeated measures quantitative study and in qualitative interviews. Children and youth (ages 6-19) and their families participated in three to five coaching sessions, including an initial baseline goal setting session, with one additional follow-up session as well as the qualitative interviews. The Canadian Occupational Performance Measure and Goal Attainment Scaling were incorporated into initial coaching sessions and then re-administered by a blind assessor within one month post-intervention. Qualitative interviews were conducted at this time.Results: Statistically significant improvements were found in goal performance, satisfaction, and attainment. Interview data included consideration of both the content of the intervention (what the practitioner is doing) and the unique SFC-peds process (how the client feels about the intervention).Conclusions: SFC-peds may present an effective approach for working with children/youth with CP to achieve self-selected participation-oriented goals in a relatively short time-period.


Asunto(s)
Parálisis Cerebral/rehabilitación , Tutoría/métodos , Participación del Paciente , Adolescente , Adulto , Niño , Femenino , Humanos , Masculino , Adulto Joven
13.
Phys Occup Ther Pediatr ; 40(2): 152-167, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31409191

RESUMEN

Aims: This preliminary study examined the effects of a participation-based friendship intervention for youth with physical and developmental disabilities on their goal attainment, social self-efficacy, and engagement in program sessions.Methods: Before and after the eight-session intervention, five youth with physical and developmental disabilities ages 15-20 (3 females) completed a measure of goal attainment scaling (GAS) and the Canadian Occupational Performance Measure (COPM) for goals related to friendship, along with a measure of social self-efficacy. Engagement was assessed after every second session (i.e. four times). After the program, youth completed interviews to capture their perceptions of each of these variables. Quantitative data were analyzed descriptively, enriched with the qualitative data.Results: Overall, youth achieved their GAS goals and demonstrated clinically significant change in mean COPM performance and satisfaction. Three youth displayed clinically significant change in social self-efficacy. Engagement in the program was high, with the majority of participants reporting slightly increasing levels of engagement over the sessions. The interviews substantiated these quantitative changes.Conclusions: There are few evidence-informed friendship interventions for youth with disabilities. This study provides initial evidence for the effectiveness of a participation-based friendship intervention incorporating coaching and focusing on real-world goals and contexts.


Asunto(s)
Niños con Discapacidad/psicología , Amigos/psicología , Objetivos , Autoeficacia , Participación Social/psicología , Habilidades Sociales , Adolescente , Adulto , Femenino , Humanos , Masculino , Encuestas y Cuestionarios , Adulto Joven
14.
Phys Occup Ther Pediatr ; 40(3): 263-278, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31657268

RESUMEN

Aims: This qualitative descriptive study explored perceived impacts of solution-focused coaching in pediatric rehabilitation (SFC-peds) from the viewpoint of experienced therapists.Methods: Semi-structured in-depth interviews were conducted with six participants (four occupational therapists and two physical therapists) who had incorporated SFC-peds into their practice for three years or longer. Participants were asked to describe perceived differences SFC-peds has made to their clinical practice, service provision, and relationships with clients and families. Interview transcripts were analyzed using the method of thematic analysis.Results: Three major themes, each with subthemes, were identified: 1) changes in therapists' perception of their roles; 2) increased service effectiveness; and 3) enhanced client capacity. Through long-term engagement with SFC-peds, participants have experienced a role shift from an expert adviser to a collaborative facilitator who assists clients and families with capacity building and self-discovery of solutions for their everyday environments.Conclusions: The findings suggest that SFC-peds can help participants reframe professional expertise and integrate principles of family-centred care into their day-to-day practice. Individual- and system-level support, along with flexibility in service structures and processes, may be needed to further the implementation of SFC-peds in service delivery.


Asunto(s)
Actitud del Personal de Salud , Niños con Discapacidad/rehabilitación , Terapeutas Ocupacionales , Fisioterapeutas , Rol Profesional , Niño , Femenino , Humanos , Investigación Cualitativa
15.
Adv Health Sci Educ Theory Pract ; 24(4): 783-796, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31123847

RESUMEN

Many models of safe and effective clinical decision making in medical practice emphasize the importance of recognizing moments of uncertainty and seeking help accordingly. This is not always done effectively, but we know little about what cues prompt health professionals to call on resources beyond their own knowledge or skill set. Such information would offer guidance regarding how systems might be designed to offer better individual support. In this study, the authors explored the situational factors that are present during moments of uncertainty that lead primary care physicians to access external resources. To do so, a generic qualitative exploratory analysis was conducted on 72 narratives collected through audio recorder-based, self-observational, journaling completed by 12 purposively selected family physicians. Participants were asked to provide a detailed descriptive account of the circumstances surrounding their consultation of external resources immediately after 6 sequential patient encounters in which they felt compelled to seek such support. Thematic analysis of the transcripts was performed to better understand participants' experiences of the social, contextual, and personal features surrounding decisions to seek support. When doing so we observed that specific features of patient encounters were routinely present when physicians decided to access external sources for help. These included medical aspects of the case (e.g., complex presentations), social aspects (e.g., the presence of another individual), and personal factors (e.g., feeling a need for reassurance). External resources were seen as an opportunity for verification, a mechanism to increase patient satisfaction, and a means through which to defend decision-making. Accessing such resources appeared to influence the physician-patient relationship for various reasons. Recognition and further study of the cues that prompt use of external information will further our understanding of physicians' behavioural responses to challenging/uncertain situations, highlight mechanisms through which a culture of self-directed assessment seeking might be encouraged, and offer guidance regarding ways in which physicians can be encouraged to practice mindfully. Our results make it clear that reasons for which primary care physicians seek the support of external resources may be multifactorial and, therefore, one should be cautious when inferring reasons for the pursuit of such support.


Asunto(s)
Toma de Decisiones Clínicas , Conducta de Búsqueda de Ayuda , Médicos de Familia , Femenino , Humanos , Entrevistas como Asunto , Masculino , Ontario , Investigación Cualitativa
16.
BMC Pediatr ; 19(1): 413, 2019 11 06.
Artículo en Inglés | MEDLINE | ID: mdl-31690279

RESUMEN

BACKGROUND: Professional support in pediatric and rehabilitation care environments has been recommended as a means to build youth competence in life skills during their transition to adulthood. Life skills are the essential psychosocial competencies and interpersonal skills needed to manage one's life. Residential immersive life skills (RILS) programs offer youth with physical disabilities enriched learning environments to acquire these skills. This study explored trajectories of personal growth in life skills and positive psychological outcomes among youth participating in a RILS program and related caregiver perspectives. METHOD: Delivered by a multidisciplinary healthcare team, The Independence Program is an intensive summer program housed in a college residence that provides realistic experiences of living away from home for small groups of youth between 17 and 21 years of age who have congenital and/or acquired physical disabilities. Using a longitudinal case study and qualitative descriptive design, four youth and their parents/guardians participated in semi-structured interviews prior to, and then 1 month, and 3 to 4 months after the program. A conventional content analysis yielded chronological narratives for each youth and caregiver dyad of their experiences, perceptions and outcomes over time. These narratives were further summarized using a 'line of development' perspective to describe individual developmental trajectories of personal growth. RESULTS: All four of the youth returned from the program with positive reports about the new life skills acquired and new behaviours they engaged in. These positive reports generally continued post-program, albeit with differing trajectories unique to each youth and varying levels of congruence with their caregivers' readiness to support, accommodate and facilitate these changes. Caregivers differed in their capacity to shift in their parenting role to support consolidation of youth life skill competencies following program participation. CONCLUSIONS: RILS programs can be transformative. Varied youth trajectories identified significant personal growth through enhanced self-determination, self-efficacy and self-advocacy. Congruence in youth and caregiver perceptions of post-program changes was an important transactional factor. Professional support addressing caregiver needs may be beneficial to facilitate developmentally appropriate shifts in parenting roles. This shift is central to a model of shared management whereby adolescents take on greater responsibility for their own care and life choices.


Asunto(s)
Cuidadores , Personas con Discapacidad/rehabilitación , Desarrollo Humano , Vida Independiente/educación , Tratamiento Domiciliario/educación , Habilidades Sociales , Adolescente , Lesiones Encefálicas/rehabilitación , Parálisis Cerebral/rehabilitación , Estudios de Factibilidad , Femenino , Humanos , Relaciones Interpersonales , Masculino , Distrofias Musculares/rehabilitación , Negociación , Responsabilidad Parental , Autonomía Personal , Proyectos Piloto , Investigación Cualitativa , Tratamiento Domiciliario/métodos , Autoeficacia , Participación Social , Adulto Joven
17.
J Adolesc ; 77: 139-146, 2019 12.
Artículo en Inglés | MEDLINE | ID: mdl-31715509

RESUMEN

INTRODUCTION: Residential immersive life skills (RILS) programs are designed for youth with disabilities and facilitate the development of adaptive behaviors for life skills required to navigate adulthood. This study explored parents' experiences of the RILS program journey, shifts in parenting approaches, and the implications of those shifts. METHODS: This study draws on twenty-three qualitative interviews that were conducted with nine parents of youth who attended RILS programs in Ontario, Canada. Three rounds of interviews were conducted at three different time points: Pre-program, 3 months post-program, and 12 months post-program. Data were analyzed using a constructivist grounded theory approach. RESULTS: The interviews captured parents' experiences of the RILS program journey and how their parenting changed as a result. Three overarching themes emerged: (1) Anticipation of RILS programs served as a catalyst for experiencing positive and negative tensions in parenting; (2) Parenting shifted following RILS programs; and (3) Where parenting shifts were limited, challenges for youth arose and reduced youth future growth. CONCLUSION: Parenting approaches can shift as a result of youth attending RILS programs. These shifts can create complex and challenging implications for parents as they seek to further encourage youths' development. This study offers an understanding of the implications of parenting during youths' developmental transition of adolescence to adulthood, and offers recommendations to further support parents in sustaining youth development of life skills during this developmental transition.


Asunto(s)
Actividades Cotidianas , Personas con Discapacidad/psicología , Responsabilidad Parental/psicología , Padres/educación , Adaptación Psicológica , Adolescente , Adulto , Canadá , Femenino , Teoría Fundamentada , Humanos , Masculino , Investigación Cualitativa
18.
Phys Occup Ther Pediatr ; 39(2): 217-235, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-29611777

RESUMEN

Family-Centered Care (FCC) represents the ideal service delivery approach in pediatric rehabilitation. Nonetheless, implementing FCC as intended in clinical settings continues to be hindered by knowledge gaps. One overlooked gap is our understanding of clients' therapy expectations. This perspective article synthesizes knowledge from the mental health services literature on strategies recommended to service providers for generating transparent and congruent therapy expectations with clients, and applies this knowledge to the pediatric rehabilitation literature, where this topic has been researched significantly less, for the purpose of improving FCC implementation. Dimensions of the Measure of Processes of Care, an assessment tool that measures clients' perceptions of the extent a service is family-centered, inform the organization of therapy expectation-generating strategies: (1) Providing Respectful and Supportive Care (assessing and validating clients' expectations); (2) General and Specific Information (foreshadowing therapy journeys, explaining treatment rationale, and conveying service provider qualifications); (3) Coordinated and Comprehensive Care (socializing clients to roles and reflecting on past socialization); and (4) Enabling and Partnership (applying a negotiation framework and fostering spaces safe to critique). Strategies can help pediatric rehabilitation service providers work with families to reframe unrealistic expectations, establish congruent beliefs supporting effective partnerships, and prevent possible disillusionment with therapy over time.


Asunto(s)
Atención a la Salud/métodos , Terapia por Ejercicio/psicología , Servicios de Salud Mental , Relaciones Profesional-Familia , Psicoterapia/métodos , Niño , Terapia por Ejercicio/métodos , Femenino , Humanos , Masculino , Salud Mental , Padres/psicología , Satisfacción del Paciente , Atención Dirigida al Paciente/métodos , Guías de Práctica Clínica como Asunto
19.
Phys Occup Ther Pediatr ; 39(1): 16-32, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-29058558

RESUMEN

AIMS: A qualitative study was conducted to investigate family experiences and outcomes of Solution-Focused Coaching in pediatric rehabilitation (SFC-peds). METHODS: Two interviews (5 months apart) were conducted with nine sets of family members who had received SFC-peds, within the past 6 months, from therapists with 3-10 years of experience using the approach. Transcripts were analyzed using thematic analysis and a phenomenological approach. RESULTS: Participants experienced a goal-oriented collaborative process, high engagement, enhanced capacity and community participation, and empowered mindsets. The therapy process was seen as a collaborative solution-focused conversation, situated in the client's world, and involving individualized and co-created goals and plans. SFC-peds provided families with a supportive, structured, and paced goal-setting process. Reported enhancements to capacity included child/youth skill development, enhanced parent skills, enhanced parent knowledge of their child and options, and changes in parenting. Increased community participation was also reported. Empowered mindsets involved increased confidence, increased self-efficacy and self-determination, and broadened perspectives and expectations. CONCLUSIONS: The study provides evidence for the utility of SFC-peds and the importance of engaging families in a goal-oriented collaborative process. Implications concern greater understanding of transactional dynamics in therapy and real-world client change, and the need to develop measures of client/family resiliency.


Asunto(s)
Atención a la Salud/métodos , Niños con Discapacidad/rehabilitación , Tutoría/métodos , Participación del Paciente/métodos , Adolescente , Canadá , Niño , Preescolar , Familia , Femenino , Humanos , Masculino , Padres , Investigación Cualitativa , Adulto Joven
20.
Phys Occup Ther Pediatr ; 38(5): 527-547, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29303397

RESUMEN

AIM: Client engagement is assumed to affect therapy outcomes. This study examined service providers' perceptions of youth engagement in solution-focused coaching sessions focusing on participation-oriented goals for youth with cerebral palsy. METHOD: Service providers completed the Pediatric Rehabilitation Intervention Measure of Engagement-Service Provider version (PRIME-SP) at the end of each session of the brief solution-focused coaching intervention (3-5 sessions) for 10 youth. RESULTS: Youth engagement was high yet fluctuated over the sessions. Service providers noted a range of components of engagement/disengagement (affective, cognitive, and behavioral) and related factors, including client states, components of behavior change (success or nonsuccess between therapy sessions, and pleasure with success), and service provider strategies. Four preliminary patterns involving engagement, client-reported success, and goal difficulty (personally achievable or dependent on others) appeared to be meaningfully related to quantitative measures of youth outcomes. CONCLUSIONS: The study provides insights into the highly engaging nature of solution-focused coaching and the relational, co-constructed nature of the therapeutic interaction. The study indicates the utility of the PRIME-SP as a tool for recording observations of components of engagement and related factors that may be useful for clinical decisions about the use of engagement strategies and for general reflections on practice.


Asunto(s)
Actitud del Personal de Salud , Parálisis Cerebral/rehabilitación , Participación del Paciente/estadística & datos numéricos , Modalidades de Fisioterapia/estadística & datos numéricos , Psicoterapia Breve/métodos , Adolescente , Niño , Femenino , Objetivos , Humanos , Masculino , Tutoría , Adulto Joven
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