RESUMO
Given the expansion of genetics in medicine, there is a growing need to develop approaches to engage patients in understanding how genetics affects their health. Various qualitative methods have been applied to gain a deeper understanding of patient perspectives in topics related to genetics. Community dialogues (CD) are a bi-directional research method that invites community members to discuss a pertinent, challenging topic over the course of a multi-week period and the community members openly discuss their positions on the topic. Authors discuss the first application of the CD method to the topic of pharmacogenetics testing. Additional CD are needed to engage diverse participant populations on this topic to improve genetics literacy, enhance physician engagement and drive policy change.
Assuntos
Letramento em Saúde/ética , Farmacogenética/ética , Testes Farmacogenômicos/ética , Medicina de Precisão/ética , Temas Bioéticos/normas , Grupos Focais/normas , Letramento em Saúde/normas , Humanos , Farmacogenética/normas , Testes Farmacogenômicos/normas , Medicina de Precisão/normasAssuntos
Acessibilidade aos Serviços de Saúde , Farmacogenética , Mecanismo de Reembolso , Política de Saúde , Acessibilidade aos Serviços de Saúde/economia , Acessibilidade aos Serviços de Saúde/organização & administração , Humanos , Farmacogenética/economia , Farmacogenética/organização & administração , Medicina de Precisão/economia , Medicina de Precisão/métodos , Mecanismo de Reembolso/economia , Mecanismo de Reembolso/organização & administração , Avaliação da Tecnologia BiomédicaRESUMO
The Pharmacogenomics Access & Reimbursement Symposium, a landmark event presented by the Golden Helix Foundation and the Pharmacogenomics Access & Reimbursement Coalition, was a 1-day interactive meeting comprised of plenary keynotes from thought leaders across healthcare that focused on value-based strategies to improve patient access to personalized medicine. Stakeholders including patients, healthcare providers, industry, government agencies, payer organizations, health systems and health policy organizations convened to define opportunities to improve patient access to personalized medicine through best practices, successful reimbursement models, high quality economic evaluations and strategic alignment. Session topics included health technology assessment, health economics, health policy and value-based payment models and innovation.