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Background: Care giving of children with leukemia involves considerable stress and anxiety on the part of family caregivers. Although caregivers’ burden is a crucial predictor of the health of both the child and the caregiver, it is often overlooked. Aim and Objectives: The present study aimed to assess the burden faced by caregivers of pediatric leukemia patients attending a tertiary care hospital in West Bengal, to elicit their sociodemographic characteristics and patients’ profile, and to find out relationship among these, if any. Materials and Methods: The study was descriptive observational type with cross-sectional design. It was conducted among caregivers of pediatric leukemia patients. Data were collected from 38 caregivers using predesigned, pretested, semi-structured schedule, and patients’ records. Burden was measured using Zarit Burden Interview, which is a 22 item 5-point Likert scale. Data were compiled and analyzed in Microsoft Excel and Statistical Software for the Social Sciences 20.0 for statistical analysis. Sociodemographic and clinical variables were expressed as number, percentages, mean, and standard deviations. To find out the association between different factors and caregiver burden, a logistic regression model was used. P < 0.05 was considered as statistically significant. Results: Majority of the caregivers were the mothers of the patients (68.42%), and most of the families of caregivers belonged to lower middle class according to modified BG Prasad Scale. Half of the caregivers (50%) experienced moderate–to-severe burden according to Zarit Burden Interview. Association was found between burden experienced and duration of disease and treatment. However, socioeconomic status was found to be the most significant determinant of burden as per multiple logistic regression by ENTER method. Conclusions: Majority of the caregivers were having moderate to severe and severe burden, which was significantly more among people coming from lower socioeconomic status. Prolonged disease duration and treatment were also found to be associated with increased burden of the caregivers.
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Objective To investigate the benefit finding for caregivers of patients with cancer and its influencing factors. Methods Totally 330 couples of cancer patients and caregivers were investigated from October 2014 to September 2015 by convenience sampling method. The cancer patients were investigated with the Hospital Anxiety and Depression Scale. The caregivers of cancer patients were investigated with Benefit Finding Scale, Zarit Caregiver Burden Interview, Medical Outcomes Study Social Support Survey. Results The total score of benefit finding was (59.65 ± 11.12) points. Regression analysis indicated that caregivers' education, religious, informational and emotional support, caregiver burden, patients' depression symptom, cancer stage and self-caring were influencing factors of benefit finding for caregivers (t=-3.689-5.913, P<0.01 or 0.05), which explained 30.0% of the variance. Conclusions The caregivers of patients with cancer have a low level of benefit finding. Oriented by influencing factors of benefit finding, the health workers should enhance targeted interventions, promote positive perception in the process of caring, develop the quality of caring and life.
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Objective To investigate the level of caregivers′burden and the coping style among parents of cancer children. Methods Totally, 229 parents of cancer children participated in the investigation by Chinese version of zarit burden interview (ZBI), Chinese version of coping health inventory for parents (CHIP) and self-designed general information questionnaire. The associations between caregivers′burden and coping styles were tested by Spearman correlation analysis. Results The caregiver′s burden on the parents was in the middle level with a total score of (30.50 ± 12.24). The coping style the parents took most frequently was to unite the family and keep a positive attitude and regard it as most effective. The caregiver′s burden was negatively associated with the positive coping style . Conclusion The parents of cancerous children suffer from middle level of burden . Nurses should assess the caregiver′s burden, provide targeted interventions to relieve it, help the to establish effective coping style and change their psychological and mental state and ultimately improve their quality of life.
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A desinstitucionalização psiquiátrica resultou em maior responsabilidade dos familiares no cuidado informal dos pacientes, o que pode resultar em elevada sobrecarga para estes cuidadores. Essa sobrecarga pode ser diminuída com o uso de estratégias eficazes de enfrentamento, segundo o modelo teórico da sobrecarga. Foi realizada uma busca sistemática nos indexadores SciELO, LILACS, Pubmed, Web of Science e PsycINFO, sendo encontrados 36 estudos internacionais que avaliaram a relação entre coping e sobrecarga dos familiares cuidadores. Os resultados indicaram que os familiares utilizam uma diversidade de estratégias de enfrentamento, mas, em geral, elas não estão associadas a um menor grau de sobrecarga. As estratégias de evitação e de resignação estão claramente associadas a um maior grau de sobrecarga, devendo, portanto, ser evitadas.
Psychiatric deinstitutionalization has resulted in greater responsibility for family members in the informal care of patients, which may result in high degree of burden for these caregivers. Burden may be reduced by the utilization of effective coping strategies, according to the theoretical model of burden. A systematic search was conducted in SciELO, LILACS, Pubmed, Web of Science and PsycINFO databases, where were found 36 international studies evaluating the relationship between coping and burden of family caregivers. Results indicate that family members use several types of coping strategies, but these strategies in general are not associated with a lower degree of burden. Two strategies, avoidance and resignation, were clearly associated with a higher level of burden and should, therefore, be avoided.
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Humans , Caregivers/psychology , Mental Health , Mentally Ill Persons , Review Literature as TopicABSTRACT
Objetivo Comparar os graus das sobrecargas objetiva e subjetiva sentidas por familiares cuidadores de pacientes com esquizofrenia e por familiares cuidadores de pacientes com depressão maior, bem como os fatores associados e as dimensões mais afetadas em cada grupo. Métodos Participaram desta pesquisa 50 cuidadores de pacientes com esquizofrenia e 50 cuidadores de pacientes com depressão maior. Esses familiares participaram de uma entrevista estruturada, na qual foram aplicados dois instrumentos: a escala de sobrecarga FBIS-BR e um questionário. Resultados Os resultados indicaram que os dois grupos apresentavam diferenças significativas quanto ao grau de sobrecarga, na análise detalhada dos itens da escala. Os familiares cuidadores de pacientes com esquizofrenia apresentaram sobrecarga objetiva significativamente mais elevada ao assistir o paciente na tomada de medicamentos e na administração do dinheiro e apresentaram maior sentimento de peso financeiro resultante do papel de cuidador. Os cuidadores de pacientes com depressão maior apresentaram maior frequência de supervisão de comportamentos autoagressivos, mais preocupação com a vida social dos pacientes e maior sentimento de incômodo nas tarefas de assistência na vida cotidiana. Não foram encontrados dados significativos referentes aos escores globais da escala de sobrecarga. Conclusão As diferenças encontradas nesta pesquisa apontam para a necessidade de os serviços de saúde mental planejarem intervenções específicas para cada grupo de cuidadores. .
Objective This study aimed to compare the degree of objective and subjective burden felt by family caregivers of patients with schizophrenia and by family caregivers of patients with major depression, as well as the associated factors and life dimensions most affected in each group. Methods Participated in this study 50 family caregivers of patients with schizophrenia and 50 family caregivers of patients with major depression. These subjects participated in a structured interview for the application of the FBIS-BR burden scale and a sociodemographic and clinical questionnaire. Results The results indicated significant differences in the degree of burden of the two family caregivers groups, in the analysis of specific scale items. The family caregivers of patients with schizophrenia showed significantly higher objective burden in the subscale “Assistance in Everyday Life”, particularly in the tasks related to medication administration and financial management, and they also had more feeling of financial burden. Caregivers of patients with major depression had a higher frequency of self-injurious behaviors supervision, more concern with the social life of patients and a greater feeling of discomfort in the service tasks in everyday life. No difference was observed between groups regarding the scale global scores. Conclusion The differences found in this study pointed out the need for mental health services to plan specific interventions for each group of family caregivers. .
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Background: Schizophrenia being a debilitating illness leads to deterioration in occupational, interpersonal and self supporting abilities. This can pose numerous psychosocial difficulties for patients as well as family members who care for their loved ones resulting in burden of care. Due to the chronic stress of caring for these patients many caregivers develop psychiatric symptoms. Aims: This study was undertaken to assess the burden perceived by caregivers of schizophrenia patients, impact of socio-demographic and patient variables on perceived burden as well as the presence of psychological distress in the caregivers. Methods: 54 patients diagnosed as having schizophrenia as per the DSM IV TR with a duration of illness of two years or more and their caregivers were evaluated using the appropriate psychometric instruments to measure burden, anxiety and depression in caregivers. Results: Our study showed that overall burden perceived was 22.2% with no significant difference between the caregivers of either sex and burden perceived by the caregivers of the sample studied also had a significant impact on their anxiety and depression. Conclusion: Care-givers of schizophrenia patients experience burden as well as psychological distress secondary to caring for a relative with a chronic mental illness. Key message: Care-giver burden must be anticipated in schizophrenia patients and appropriate support must be provided.
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Objective To probe into the burden of caregivers of patients with Alzheimer' s disease (AD) ,coping styles and the correlation. Methods A survey involving 143 caregivers of patients with AD was conducted with Caregivers' Burden Scale and a simple Coping Style Questionnaire to analyze the burden of caregivers of AD and the characteristics of their coping styles and discuss the correlation. Results The burden of the caregivers of patients with AD was at intermediate level the score was 46. 96 ±7. 28. 78. 32% of the caregivers had intermediate burden. Both the grade of the positive coping and that of the negative coping of the caregivers of patients with AD were higher than the domestic norm (P < 0.01); the positive coping styles of the caregivers of patients with AD were negatively related with their burden while nursing; their negative coping styles were positively related with their burden while nursing (P < 0.01). Conclusion The burdens while nursing are related with their coping styles. In the aspect of nursing activity, caregivers should be encouraged to adopt positive coping styles.
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Purpose<br> Long-term elderly care of the elderly (Jap. “Ro-ro Kaigo”) is a serious problem in Japan. The purpose of this study is to reveal the current state of Ro-ro Kaigo and to evaluate the factors affecting the burden on elderly caregivers. <br>Method<br> Ninety-three households of elderly subjects participated in this study. We conducted semi-structured interviews concerning the life styles of caregivers, the burden on caregivers and the condition of elderly subjects requiring long-term care. <br>Results<br> Eighty percent or more of the caregivers were spouses, and about 40 percent of the households were not supported by family members living separately. <br>Moreover, the burden of care borne by the caregivers was correlated with "hours spent daily providing care", "ADL of elderly requiring long-term care" (p<0.001), "hours of sleep" (p<0.01), "subjective feeling of wellbeing", "support from family living separately", and "behavioral disorders of dementia" (p<0.05). <br>Conclusion<br> These data suggest that supporting "health promotion", "reduction of hours of caregiving", "reduction of amount of assistance with toilet activity of care recipients", and "securing enough hours of sleep" were important for maintaining home care in Ro-ro kaigo.
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A proposta deste estudo é refletir sobre o ônus físico (burden) enfrentado pelas cuidadoras de idosos dependentes, visto pela ótica da própria cuidadora ao longo da sua experiência no desempenho do seu papel, após um ou mais episódios de acidente vascular cerebral (AVC) de pessoa idosa necessitada de cuidados e com perdas de independência física. É uma pesquisa com dados qualitativos realizada no município de Toledo ? PR, em 2004, com cuidadores de oito adultos acometidos por AVC após a alta hospitalar, tendo a cuidadora mais de 50 anos de idade. O procedimento metodológico foi a pesquisa empírica através do uso de questionários aplicados em visitas domiciliares. O instrumento da pesquisa foi composto para contextualizar a sobrecarga do cuidador através da coleta de informações sobre as sensações de seu ônus físico frente às suas tarefas e cuidados com o familiar dependente e dar visibilidade a indicadores de ônus e desgaste do cuidador familiar de idosos para ampliar a visão de elementos subjetivos que compõem as perdas que ocorrem nos cuidadores de idosos dependentes sem apoios externos. Esta dissertação contém três capítulos, além da introdução e das considerações finais. O trabalho está dividido em: o envelhecimento populacional, os desafios enfrentados pelos idosos com as doenças crônico-degenerativas e as dependências instaladas, o ônus emocional e social dos cuidadores, com ênfase no ônus físico. Os dados da pesquisa e seus resultados completam o estudo. Espera-se ter colaborado para aprofundar o conhecimento referente ao cuidador familiar e ao ônus que experimenta, seja ele, físico, emocional e ou social, tendo em vista que a sobrecarga vivida pelo cuidador depende de fatores como estresse, isolamento social, dentre outros, e não apenas do grau de incapacidade do idoso, sendo de grande importância o significado das mudanças e acréscimo nas tarefas diárias para o cuidador. Os resultados da pesquisa apontam para esposas-cuidadoras com idade média de 68 anos, revelando intensa sobrecarga de trabalho para a realização das tarefas direcionadas ao cuidado do idoso, da família e das tarefas domésticas. O ônus físico e emocional destas mulheres repercute na sua própria saúde e no isolamento social.