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1.
Article in English | LILACS | ID: biblio-1444290

ABSTRACT

Some studies have associated Parkinson's disease with specific personality traits. We aimed to analyze personality profiles in Parkinson's disease based on the Five- Factor Model, using the following 3 instruments as parameters: NEO Personality Inventory, revised NEO Personality Inventory, and NEO Five-Factor Inventory. A systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses. The PsycINFO, PubMed, Scopus, and Web of Science databases were searched. The initial search resulted in 232 studies, and 11 studies were selected for full-text review. The personality traits most commonly associated with Parkinson's disease were high neuroticism and low extraversion and conscientiousness. These results cannot be attributed only to Parkinson's disease because other associated diseases were present in the included studies. Evidence from these studies is insufficient to state that there is a typical personality profile associated with Parkinson's disease, given that this profile is nonspecific and found in many psychopathological disorders that differ considerably from each other. This study was registered with PROSPERO (registration number CRD42021271526)


Alguns estudos têm associado a doença de Parkinson a traços de personalidade específicos. Esta pesquisa teve como objetivo analisar o perfil de personalidade na doença de Parkinson com base no Modelo dos Cinco Fatores, utilizando como parâmetro três instrumentos baseados nessa teoria: NEO Personality Inventory, NEO Personality Inventory revisado e NEO Five-Factor Inventory. Foi realizada uma revisão sistemática de acordo com os critérios de Preferred Reporting Items for Systematic Reviews and Meta-Analyses. Foram consultadas as bases de dados PsycINFO, PubMed, Scopus e Web of Science. A busca inicial resultou em 232 estudos, e 11 deles foram selecionados para análise completa. Os traços de personalidade mais frequentemente associados à doença de Parkinson foram o elevado neuroticismo e baixos níveis de extroversão e de conscienciosidade. Estes resultados não podem ser atribuídos apenas à doença de Parkinson, uma vez que outras doenças associadas estavam presentes nos trabalhos avaliados. Não há evidências suficientes nestes estudos para afirmar que existe um perfil de personalidade típico associado à doença de Parkinson, visto que esse perfil é inespecífico e encontrado em muitos transtornos psicopatológicos que diferem consideravelmente entre si. Este estudo foi registrado na plataforma International Prospective Register of Systematic Reviews ­ PROSPERO (número CRD4202127151526)


Subject(s)
Humans , Parkinson Disease/psychology , Personality , Neuroticism
2.
Psico USF ; 26(3): 439-449, Jul.-Sept. 2021. tab
Article in English | LILACS, INDEXPSI | ID: biblio-1351333

ABSTRACT

The objective of this study was to investigate executive functions (EFs) in older adults with Parkinson's disease (PD). It was a cross-sectional and comparative study, composed of 62 participants divided into PD group (n = 31; M age = 75.26; SD age = 7.26) and control group (n = 31; M age = 74.03; SD age = 6.95), aged 61 to 93 years, recruited for convenience in 5 cities in the state of Rio Grande do Sul. The instruments used were a sociodemographic data questionnaire; MMSE; GDS-15; BIS-11; verbal fluency tasks (FAS and animals), DEX; WCST-64 and FDT. Descriptive analyzes and Student's t and Chi-square tests were used. The PD group had a lower performance in the WCST-64 and FDT tests compared to controls, indicating worse performance in tasks that required reasoning, cognitive flexibility and processing speed, in addition, showed difficulties in performing tasks that require EF (DEX). (AU)


O objetivo foi investigar as funções executivas (FE) em idosos com Doença de Parkinson (DP). Estudo transversal e comparativo, composto por 62 participantes, 50% do sexo feminino, recrutados por conveniência em cinco cidades do estado do Rio Grande do Sul, e divididos em dois grupos: com DP (n = 31; Midade = 75,26; DP idade = 7,26) e grupo controle (n = 31; M idade = 74,03; DP idade = 6,95), com idade entre 61 e 93 anos. Os instrumentos utilizados foram: questionário de dados sociodemográficos, MEEM; GDS-15; BIS-11; tarefas de fluência verbal (FAS e animais); DEX; WCST-64 e FDT. Foram utilizadas análises descritivas e os testes t de Student e Qui-quadrado. O grupo com DP teve desempenho inferior nos testes WCST-64 e FDT em comparação aos controles, indicando pior desempenho nas tarefas que exigiam raciocínio, flexibilidade cognitiva e velocidade de processamento, além disso, mostraram dificuldades ao realizar tarefas que demandam FE (DEX). (AU)


El objetivo de este trabajo fue investigar las funciones ejecutivas (FE) en ancianos con enfermedad de Parkinson (EP). Se trató de un estudio transversal y comparativo, compuesto por 62 participantes, 50% mujeres, reclutados por conveniencia en cinco ciudades de la provincia de Rio Grande do Sul, y divididos en dos grupos: con EP (n = 31; M edad = 75,26; DS edad = 7,26) y grupo control (n = 31; M edad = 74,03; DS edad = 6,95). Fueron usados cuestionarios de datos sociodemográficos, MEEM, GDS-15; BIS-11; tareas de fluencia verbal (FAS y animales), DEX; WCST-64 y FDT. Se realizaron análisis descriptivos, prueba t de Student y chi-cuadrado. El grupo EP tuvo un rendimiento más bajo en las pruebas WCST-64 y FDT en comparación con el grupo control, lo que indica un peor rendimiento en tareas que requerían razonamiento, flexibilidad cognitiva y velocidad de procesamiento, además, mostró dificultades para realizar tareas que demandan FE (DEX). (AU)


Subject(s)
Humans , Male , Female , Middle Aged , Aged , Aged, 80 and over , Parkinson Disease/psychology , Executive Function , Socioeconomic Factors , Chi-Square Distribution , Cross-Sectional Studies , Surveys and Questionnaires , Mental Status and Dementia Tests , Wisconsin Card Sorting Test
3.
Rev. bras. ativ. fís. saúde ; 26: 1-8, mar. 2021. tab
Article in English | LILACS | ID: biblio-1358091

ABSTRACT

The world has been hit by a pandemic caused by the new coronavirus (COVID-19), which has result-ed in government recommendations and measures including social isolation to reduce the spread of the disease. In view of these recommendations, there were drastic changes in lifestyle, impacting the physical and mental health of men and women. Thus, this study aimed to investigate the practice of physical activity, according to sex, in individuals with Parkinson's disease in social isolation before and during the COVID-19 pandemic.Cross-sectional observational study, based on an online question-naire validated for individuals with Parkinson's disease PAFPA/COVID19, in which 156 individuals of both sexes and degrees of the disease (I to V ) were allocated, with a mean age of 63.70 ± 11.00 years and from different Brazilian regions. Chi-square, Fisher's exact and binary logistic regression tests were used. It is observed that 92% of the participants were in social isolation, which caused nega-tive effects on the level of physical activity of the participants, even though most of them doing phys-ical activity online. In addition, it was found that those who participated in specific exercise programs for Parkinson's disease, are less likely to be insufficiently active, as well as individuals who receive online guidance. Although social isolation is a necessary measure to combat COVID-19, the results show a negative effect of this social isolation on the parameters of physical activity in this population in different regions of Brazil. This suggests that better strategies for health promotion in order to increase levels of physical activity at home are necessary to reduce the physical inactivity lifestyle dur-ing the pandemic, in order to prevent diseases associated with social isolation and physical inactivity


O mundo foi atingido por uma pandemia causada pelo novo coronavírus (COVID-19), que resultou em re-comendações e medidas governamentais, incluindo isolamento social para reduzir a disseminação da doença. Diante dessas recomendações, ocorreram mudanças drásticas no estilo de vida, impactando na saúde física e mental de homens e mulheres. Assim, este estudo teve como objetivo investigar a prática de atividade física, segundo o sexo, em indivíduos com doença de Parkinson em isolamento social antes e durante a pandemia de COVID-19. Estudo observacional transversal, baseado em questionário online validado para indivíduos com doença de Parkinson PAFPA/COVID19, no qual foram avaliados 156 indivíduos de ambos os sexos e graus da doença (I ao V ), com média de idade de 63,70 ± 11,00 anos e de diferentes regiões brasileiras. Foram utilizados os testes Qui-quadrado, exato de Fisher e a regressão logística binária. Observa-se que 92% dos participantes encontravam-se em isolamento social, o que causou repercussões negativas no nível de atividade física dos participantes, embora a maioria realizasse atividade física online. Além disso, verificou-se que aqueles que participaram de programas de exercícios específicos para a doença de Parkinson, tiveram menor probabilidade de serem insuficientemente ativos, assim como os indivíduos que recebem orientação online. Embora o isolamento social seja uma medida necessária para combater a COVID-19, os resultados mostram um efeito negativo desse isolamento social sobre os parâmetros de atividade física dessa população em dife-rentes regiões do Brasil. Isso sugere que melhores estratégias de promoção da saúde para aumentar os níveis de atividade física no domicílio são necessárias para reduzir o inatividade física durante a pandemia, a fim de prevenir doenças associadas ao isolamento social e inatividade física


Subject(s)
Humans , Male , Female , Middle Aged , Aged , Parkinson Disease , Social Isolation , Exercise , COVID-19 , Parkinson Disease/psychology , Logistic Models , Cross-Sectional Studies , Surveys and Questionnaires , Sex Distribution , Education, Distance , Physical Distancing , COVID-19/psychology , Sociodemographic Factors
5.
Braz. J. Psychiatry (São Paulo, 1999, Impr.) ; 42(2): 190-194, Mar.-Apr. 2020. tab
Article in English | LILACS | ID: biblio-1089252

ABSTRACT

Objective: Parkinson's disease (PD) is often accompanied by stigma, which could contribute to a worse prognosis. The objective of this study is to identify the variables associated with stigma in PD patients who are candidates for deep brain stimulation (DBS). Methods: We investigated sociodemographic and clinical variables associated with stigma in a sample of 54 PD patients indicated for DBS. The independent variables were motor symptoms assessed by the Movement Disorder Society‐sponsored revision of the Unified Parkinson Disease Rating Scale (MDS-UPDRS III), depressive symptoms measured by the Hospital Anxiety and Depression Scale, age, disease duration and the presence of a general medical condition. The Mobility, Activities of daily living and Emotional well-being domains of the 39-item Parkinson's Disease Questionnaire (PDQ-39) were also investigated as independent variables, and the Stigma domain of the PDQ-39 scale was considered the outcome variable. Results: After multiple linear regression analysis, activities of daily living remained associated with the Stigma domain (B = 0.42 [95%CI 0.003-0.83], p = 0.048). The full model accounted for 15% of the variance in the Stigma domain (p = 0.03). Conclusions: Although causal assumptions are not appropriate for cross-sectional studies, the results suggest that ADL difficulties could contribute to greater stigma in PD patients with refractory motor symptoms who are candidates for DBS.


Subject(s)
Humans , Male , Female , Aged , Parkinson Disease/psychology , Parkinson Disease/therapy , Quality of Life/psychology , Activities of Daily Living/psychology , Deep Brain Stimulation/methods , Social Stigma , Severity of Illness Index , Cross-Sectional Studies , Surveys and Questionnaires , Treatment Outcome , Middle Aged
7.
Rev. bras. neurol ; 54(3): 9-15, jul.-ago. 2018. tab, graf
Article in English | LILACS | ID: biblio-948060

ABSTRACT

The primary purpose of this study was to investigate the effect of dual-tasking on swallowing performance and attention in patients with Parkinson Disease (PD). Twenty six participants were included, thirteen patients with PD and thirteen controls matched by age and education. All subjects were evaluated at single swallowing task and attentional dual-tasking. Swallowing parameters were analyzed by using Fiberoptic Endoscopic Evaluation Swallowing Safety Study (FEESS). The attentional dual-tasking was realized using an adaptation of "Stroop color test" on video. Images about swallowing parameters in both conditions were analyzed by three experienced evaluators using literature definitions. Both groups underwent cognitive screening using MoCA. Although significant difference between swallowing parameters in both conditions were not found, in PD group there was an association between changes in parameters according to graduation and cognitive performance. The results show the dual-tasking influence worsening in PD patients with low scores on cognitive screening and low graduation. The results suggest more attention to PD patients that have worse cognitive status and / or low levels of education as the worsening of dysphagia and aspiration risk in performing dual-tasks to feed themselves.


O objetivo principal deste estudo foi investigar o efeito da dupla tarefa atencional no desempenho da deglutição em pacientes com doença de Parkinson (DP). Vinte e seis participantes foram incluídos, treze pacientes com DP e treze controles pareados por idade e escolaridade. Todos os sujeitos foram avaliados em tarefa única de deglutição e dupla tarefa atencional. Os parâmetros da deglutição foram analisados por meio do Fiberoptic Endoscopic Evaluation Swallowing Safety Study (FEESS). O attentional dual-tasking foi realizado usando uma adaptação do "Stroop color test" em vídeo. Imagens sobre os parâmetros de deglutição em ambas as condições foram analisadas por três avaliadores experientes utilizando definições da literatura. Ambos os grupos foram submetidos a triagem cognitiva usando MoCA. Embora não tenha sido encontrada diferença significativa entre os parâmetros da deglutição nas duas condições, no grupo DP foi encontrada associação entre alterações nos parâmetros de acordo com a graduação e desempenho cognitivo. Os resultados mostram que a influência da dupla tarefa piorou nos pacientes com TP, com baixa pontuação na triagem cognitiva e baixa graduação. Os resultados sugerem maior atenção para os pacientes com DP que apresentam pior estado cognitivo e / ou baixos níveis de escolaridade como o agravamento da disfagia e risco de aspiração na realização de tarefas duplas para se alimentar.


Subject(s)
Humans , Middle Aged , Aged , Parkinson Disease/complications , Parkinson Disease/diagnosis , Parkinson Disease/psychology , Deglutition Disorders/etiology , Case-Control Studies , Deglutition , Stroop Test
8.
Arq. neuropsiquiatr ; 76(8): 499-506, Aug. 2018. tab, graf
Article in English | LILACS | ID: biblio-950580

ABSTRACT

ABSTRACT Objective: To assess the effects of resistance training on the anxiety symptoms and quality of life in patients with Parkinson's disease. Methods: Thirty-five elderly patients were randomly divided into two groups: 17 patients in the control group and 18 in the intervention group. All patients maintained standard pharmacological treatment for Parkinson's disease, but the intervention group participated in a 24-week resistance training program. The anxiety symptoms were assessed through the Beck's Anxiety Inventory, and quality of life by the Parkinson's Disease Questionnaire-39. Results: There was a significant reduction in anxiety level and increase in quality of life after 24 weeks of resistance training. Conclusion: The results of the present study indicate that resistance training is an effective intervention in the reduction of anxiety symptoms and improves the quality of life in elderly people with Parkinson's disease.


RESUMO Objetivo: avaliar os efeitos do treinamento resistido nos sintomas de ansiedade e na qualidade de vida em pacientes com doença de Parkinson. Métodos: Trinta e cinco pacientes idosos foram divididos randomicamente em dois grupos: 17 indivíduos no grupo controle e 18 no grupo de intervenção. Todos os sujeitos mantiveram o tratamento farmacológico padrão para a doença de Parkinson, mas o grupo de intervenção participou de um programa de treinamento resistido de 24 semanas. Os sintomas de ansiedade foram avaliados através do inventário de ansiedade de Beck e a qualidade de vida pelo questionário da doença de Parkinson-39. Resultados: Houve redução significativa no nível de ansiedade e melhora da qualidade de vida após 24 semanas de treinamento resistido. Conclusão: Os resultados do presente estudo indicam que o treinamento resistido é uma intervenção efetiva na redução dos sintomas de ansiedade e melhora a qualidade de vida em idosos com doença de Parkinson.


Subject(s)
Humans , Male , Female , Aged , Aged, 80 and over , Anxiety/therapy , Parkinson Disease/psychology , Quality of Life/psychology , Resistance Training/methods , Anxiety/physiopathology , Parkinson Disease/physiopathology , Parkinson Disease/rehabilitation , Psychiatric Status Rating Scales , Time Factors , Surveys and Questionnaires , Reproducibility of Results , Analysis of Variance , Treatment Outcome , Statistics, Nonparametric , Hand Strength/physiology
9.
Rev. bras. enferm ; 71(2): 272-279, Mar.-Apr. 2018.
Article in English | LILACS, BDENF | ID: biblio-898425

ABSTRACT

ABSTRACT Objective: To understand the daily lives of people with Parkinson's disease. Method: Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease. Results: From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services. Final considerations: Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects.


RESUMEN Objetivo: Comprender el cotidiano de las personas con la enfermedad de Parkinson. Método: Investigación cualitativa, utilizando como referencial metodológico y teórico la Teoría Fundamentada en Datos y el Interaccionismo Simbólico, respectivamente. La entrevista en profundidad fue realizada con 30 personas con la enfermedad de Parkinson. Resultados: Por medio de la codificación de los datos, emergieron tres categorías: Viviendo la rutina de la enfermedad: la convivencia con el tratamiento y las modificaciones en vivir; Modificando su rendimiento en el trabajo: revelando incapacidad para el trabajo y la necesidad de anticipar la jubilación y; Conviviendo con estigmas: el sentimiento de prejuicio por la enfermedad y la percepción de limitaciones de los servicios de salud. Consideraciones finales: La convivencia con una enfermedad crónica no transmisible engloba efectos sociales, físicos, culturales y las experiencias personales de cada uno. Este estudio auxilia la mejora de la asistencia a las personas con la enfermedad, pues la práctica de cuidados emerge de las interacciones entre los sujetos.


RESUMO Objetivo: Compreender o cotidiano das pessoas com a doença de Parkinson. Método: Pesquisa qualitativa, utilizando como referencial metodológico e teórico a Teoria Fundamentada nos Dados e o Interacionismo Simbólico, respectivamente. A entrevista em profundidade foi realizada com 30 pessoas com a doença de Parkinson. Resultados: Por meio da codificação dos dados, emergiram três categorias: Vivendo a rotina da doença - a convivência com o tratamento e as modificações no viver; Modificando seu desempenho no trabalho - revelando incapacidade para o trabalho e a necessidade de antecipar a aposentadoria e; Convivendo com estigmas - o sentimento de preconceito pela doença e a percepção de limitações dos serviços de saúde. Considerações finais: A convivência com uma doença crônica não transmissível engloba efeitos sociais, físicos, culturais e as experiências pessoais de cada um. Este estudo auxilia no aprimoramento da assistência às pessoas com a doença, pois a prática de cuidados emerge das interações entre os sujeitos.


Subject(s)
Humans , Male , Female , Adult , Aged , Aged, 80 and over , Parkinson Disease/psychology , Adaptation, Psychological , Parkinson Disease/complications , Parkinson Disease/therapy , Chronic Disease/psychology , Chronic Disease/therapy , Interviews as Topic , Cost of Illness , Qualitative Research , Grounded Theory , Middle Aged
10.
Arq. neuropsiquiatr ; 76(3): 145-149, Mar. 2018. tab, graf
Article in English | LILACS | ID: biblio-888365

ABSTRACT

ABSTRACT The Consortium to Establish a Registry for Alzheimer's Disease (CERAD) neuropsychological battery was created to assess cognitive impairment in Alzheimer's disease (AD) but it is widely-used for various dementias. The aim of this study was to analyze the efficacy of using the CERAD battery in the assessment of patients with Parkinson's disease. Forty-nine patients with Parkinson's disease were divided into two groups (one with dementia and one without) using the Movement Disorder Society criteria for Parkinson's disease dementia. Cognitive deficits were assessed with the Clinical Dementia Rating Scale as the gold standard, and the CERAD. The ROC curve for the CERAD battery had an area under the curve = 0.989 (95% CI = 0.967 - 1, p<0.0001). Among the CERAD subtests, verbal fluency had the worst accuracy, and word list learning had the best accuracy. Despite the limits of this study, the CERAD battery can be efficient for assessment of cognitive deficits in Parkinson's disease patients.


RESUMO A Bateria Neuropsicológica do Consortium to Establish a Registry for Alzheimer's Disease (CERAD) foi criada para a avaliação da doença de Alzheimer (DA), mas é usada em várias demências. O objetivo deste estudo foi avaliar a efetividade dessa bateria na avaliação de pacientes com doença de Parkinson (DP). Foram avaliados 49 pacientes com DP sendo aplicadas CDR, como padrão-ouro e CERAD. Os pacientes foram divididos em dois grupos: com e sem demência, a partir dos critérios para DPP pela Movement Disorders Society. A curva ROC para o CERAD resultou em uma AUC=0.989 (95% CI = 0.967 - 1, p<0.0001). Entre os subtestes do CERAD, fluência verbal obteve a pior acurácia, e aprendizado de lista de palavras, a melhor. Apesar das limitações do estudo, a bateria do CERAD pode ser uma ferramenta eficaz na avaliação de déficits cognitivos em pacientes com DP


Subject(s)
Humans , Male , Female , Middle Aged , Aged , Parkinson Disease/diagnosis , Dementia/diagnosis , Cognitive Dysfunction/diagnosis , Neuropsychological Tests/standards , Parkinson Disease/psychology , Reference Standards , Reproducibility of Results , ROC Curve , Age of Onset , Disease Progression , Alzheimer Disease/diagnosis
11.
Rev. Hosp. Ital. B. Aires (2004) ; 38(1): 19-24, mar. 2018.
Article in Spanish | LILACS | ID: biblio-1046029

ABSTRACT

Durante el proceso de envejecimiento se producen una serie de cambios que a veces pueden sorprender desfavorablemente a aquellos individuos más frágiles. La pérdida de la continuidad identitaria constituye uno de los retos más significativos de los muchos que se presentan en la vejez y puede ocasionar imprevisibles consecuencias, entre las cuales la tentativa de suicidio aparecería como una manera última y desesperada de recuperar el control perdido. La vejez trae aparejados diversos cambios, que no son vividos de igual manera por todos; la característica de cada pérdida o de cada alteración determinará la repercusión en cada uno; por eso, poder comprenderlos en esta vivencia nos permite abrirnos hacia un nuevo entendimiento de esta etapa de la vida. A través de ella analizaremos tres historias de personas que perdieron en el camino aquello que las definía como seres humanos. (AU)


During the aging process several changes occur that may surprise unfavorably those who are more fragile. One of the most significant challenges that occur in the elderly is related with the lost of the previous identity which can lead to unforeseeable consequences, where the suicide attempt may seem to be the last and the most desperate way to regain control. Old age involves various changes and losses which will be experienced differently by every person according to their one personality and life story. To be able to fully comprehend this process will allow us to understand this stage of life in each singularity. In this article we will analyze three life stories illustrating people who lost the meaning of what defined them as human beings. (AU)


Subject(s)
Humans , Male , Female , Adolescent , Adult , Aged, 80 and over , Young Adult , Personality Disorders/complications , Self Concept , Suicide, Attempted/psychology , Frail Elderly/psychology , Depression/complications , Identity Crisis , Parkinson Disease/psychology , Personality Disorders/psychology , Suicide/psychology , Bereavement , Health of the Elderly , Depression/psychology , /psychology
12.
Rev. bras. enferm ; 71(supl.6): 2628-2634, 2018.
Article in English | LILACS, BDENF | ID: biblio-977663

ABSTRACT

ABSTRACT Objective: To understand the experience of caring for a person with Parkinson's Disease. Method: We used the qualitative study and thematic analysis with family caregivers of people with Parkinson's Disease. Results: Three thematic categories were identified, being: Feelings related to Parkinson's Disease; Changes in family daily routines; Caregiver strategies for self-care. Final considerations: Family care has shown the need for health services to provide caregivers support, as they experience situations of overload in care that can contribute to their illness. The findings also allow nurses to see the need for differentiated care for caregivers that, by assisting them with their needs, favor the quality of life of the caregiver, reduce the possibility of illness, allowing a more efficient care to the entity with chronic illness.


RESUMEN Objetivo: Comprender la experiencia de cuidar de una persona con la enfermedad de Parkinson. Método: Se utilizó el estudio cualitativo y el análisis temático con cuidadores familiares de personas con la enfermedad de Parkinson. Resultados: Se identificaron tres categorías temáticas: Sentimientos referentes a la enfermedad de Parkinson; Cambios en las rutinas diarias de la familia; y Estrategias del Cuidador para el cuidado de sí. Consideraciones finales: El cuidado del familiar mostró la necesidad de los servicios de salud en proporcionar apoyo a los cuidadores, ya que éstos experimentan situaciones de sobrecarga en el cuidado, que pueden contribuir a su enfermedad. Los hallazgos aún posibilitan al enfermero la visualización de la necesidad de una asistencia diferenciada al cuidador que, al asistirlo en sus necesidades, favorece la calidad de vida del mismo, reduce la posibilidad de enfermedad, permitiendo un cuidado más eficiente al ente con enfermedad crónica.


RESUMO Objetivo: Compreender a experiência de cuidar de uma pessoa com a Doença de Parkinson. Método: Utilizou-se o estudo qualitativo e a analise temática com cuidadores familiares de pessoas com a Doença de Parkinson. Resultados: Foram identificadas três categorias temáticas: Sentimentos referentes à Doença de Parkinson; Mudanças nas rotinas diárias da família; e Estratégias do Cuidador para o cuidado de si. Considerações finais: O cuidado do familiar mostrou a necessidade dos serviços de saúde em fornecer suporte aos cuidadores, visto que estes vivenciam situações de sobrecarga no cuidado, que podem contribuir para seu adoecimento. Os achados ainda possibilitam ao enfermeiro a visualização da necessidade de uma assistência diferenciada ao cuidador que, ao assisti-lo em suas necessidades, favorece a qualidade de vida do mesmo, reduz a possibilidade de adoecimento, permitindo um cuidado mais eficiente ao ente com doença crônica.


Subject(s)
Humans , Male , Female , Adult , Aged , Parkinson Disease/complications , Caregivers/psychology , Parkinson Disease/psychology , Caregivers/trends , Cost of Illness , Qualitative Research , Middle Aged
14.
Arq. neuropsiquiatr ; 75(8): 497-502, Aug. 2017. tab
Article in English | LILACS | ID: biblio-888312

ABSTRACT

ABSTRACT Objective To investigate which factors are associated with the quality of life decline in Parkinson's disease patients from mild to moderate stages. Methods The Unified Parkinson's Disease Rating Scale and Parkinson's Disease Questionnaire-39 were used to evaluate clinical/functional data and the quality of life. Results The markers of clinical/functional worsening were drooling (p < 0.004), need for assistance with hygiene (p = 0.02), greater freezing frequency (p = 0.042), bradykinesia (p = 0.031), greater intensity of the resting tremor (p = 0.035) and "pill rolling" (p = 0.001). The decline in quality of life was related to stigma (p = 0.043), greater impairment in cognition (p = 0.002), mobility (p = 0.013) and for daily living activities (p = 0.05), and was considered more significant in men, married, older individuals, and those with a longer time of disease. Conclusions The quality of life worsening markers at the moderate stage were related to stigma, worsening of cognition, and to greater impairment in mobility and daily living activities.


RESUMO Objetivo Verificar os fatores relacionados ao declínio clínico/funcional e de Qualidade de Vida de indivíduos com Doença de Parkinson, da fase leve para moderada. Métodos Foram utilizadas as escalas Unified Parkinson's Disease Rating Scale and Parkinson's Disease Questionnaire-39 (UPDRS e PDQ-39) para avaliação clínico/funcional e de qualidade de vida Resultados Os marcadores de piora clínico/funcional na fase moderada foram: sialorréia (p < 0,004), necessidade de ajuda para higiene (p = 0,02), maior frequência do "freezing" (p = 0,042), bradicinesia (p = 0,031) e maior intensidade do tremor de repouso (p = 0,035) e bater dos dedos (p = 0,001). O declínio da qualidade de vida esteve relacionado ao estigma (p = 0,043), ao maior comprometimento da cognição (p = 0,002), da mobilidade (p = 0,013) e da independência para realizar as atividade de vida diária (AVD's) (p = 0,05), sendo mais importante nos homens, nos casados, nos indivíduos com maior idade e naqueles com maior tempo de evolução da doença. Conclusão Os marcadores de piora da qualidade de vida na fase moderada estiveram relacionados ao estigma, à piora da cognição, ao maior comprometimento para mobilidade e AVD's.


Subject(s)
Humans , Male , Female , Middle Aged , Aged , Aged, 80 and over , Parkinson Disease/physiopathology , Quality of Life , Parkinson Disease/psychology , Tremor , Activities of Daily Living , Cross-Sectional Studies , Surveys and Questionnaires , Cognition/physiology , Disease Progression
15.
Rev. eletrônica enferm ; 19: 1-8, 20170000.
Article in English, Portuguese | LILACS, BDENF | ID: biblio-836937

ABSTRACT

Estudo com objetivo de compreender o impacto da aposentadoria nas pessoas com doença de Parkinson em idade ativa. Trata-se de pesquisa qualitativa, que utilizou como Referencial Metodológico a Teoria Fundamentada nos Dados. Foram entrevistados 30 indivíduos com doença de Parkinson, dos quais seis se aposentaram em idade ativa. Os dados foram coletados de setembro de 2013 a abril de 2014 e analisados por meio das técnicas de codificação aberta, axial e seletiva. Da análise emergiram quatro categorias: aposentadoria e a identidade na doença de Parkinson; a incompatibilidade entre o desejo e a capacidade para o trabalho; desligando-se e encarando a realidade; o inesperado da aposentadoria. Os resultados indicaram que a pessoa enfrenta dificuldades no processo de aposentadoria por invalidez, sendo identificadas necessidades de acompanhamento emocional e preparação para esse momento de transição de forma a estimular um viver produtivo, mesmo com a doença de Parkinson.


Our objective was to comprehend the retirement impact in individuals with Parkinson disease during active age. We conducted a qualitative study using as Methodological Reference the Theory Grounded on Data. We interviewed 30 people with Parkinson disease, from those six were retired during active age. The data collection was in September 2013 to April 2014 and analyzed throughopen coding, axial and selective techniques. From the analysis, four categories emerged: retirement and identity in Parkinson disease; the incompatibility between the desire and the capacity to work; disconnecting and facing reality; the unexpected from retirement. The results indicated that people face difficulties in the disability retirement process, and we identified the need for emotional accompaniment and preparation for this transition moment in a way to stimulate a productive living, even with Parkinson disease.


Subject(s)
Humans , Male , Female , Adult , Middle Aged , Chronic Disease , Parkinson Disease/complications , Parkinson Disease/nursing , Parkinson Disease/psychology , Retirement
16.
Rev. bras. neurol ; 52(4): 27-32, out.-dez. 2016. tab
Article in Portuguese | LILACS | ID: biblio-831611

ABSTRACT

OBJETIVO: Avaliar o impacto da disfagia na qualidade de vida (QV) de indivíduos com Doença de Parkinson (DP) através do instrumento recomendado para essa população. MÉTODOS: Participaram deste estudo pacientes com diagnóstico de DP. Todos os participantes foram submetidos à avaliação fonoaudiológica de deglutição com as consitências sólida (pão francês) e líquida (água), responderam ao PDQ-39 e tiveram o estadiamento da DP classificado pela escala de Hoehn &Yahr. RESULTADOS: Foram avaliados 31 indivíduos com DP, sendo 21 (67,7%) do gênero masculino. A média de idade foi 59,6 anos (± 11,3), variando de 38 a 79 anos e o tempo doença desde o diagnóstico foi, em média, 9,8 (±4,8) anos. A disfagia esteve presente em 74,2% dos indivíduos avaliados e na correlação entre o PDQ-39 total e a presença de disfagia houve significância apenas no domínio estigma. CONCLUSÃO: Em indivíduos com DP avaliados através do PDQ-39 não fica evidente o impacto da disfagia na percepção de QV dessa população.


OBJECTIVE: To assess the impact of dysphagia on the overall quality of life (QOL) of patients with Parkinson's disease (PD) through the tool recommended for this population. METHODS: The study included 31 patients diagnosed with PD. All participants underwent clinical assessment of swallowing the solid consistency (French bread) and liquid (water), answered to the PDQ-39 and had the staging of PD classified by Hoehn & Yahr scale. RESULTS: We evalueted 31 subjects with PD, 21 (67.7%) were male. The mean age was 59.6 years (± 11.3), ranging from 38 to 79 years and the disease time since diagnosis was on average 9.8 (± 4.8) years. Dysphagia was present in 74.2% of the individuals and the correlation between the PDQ-39 the presence of dysphagia was significant only in stigma domain. CONCLUSION: In patients with PD assessed by PDQ-39 is not evident the impact of dysphagia on the perception of overall QoL of this population.


Subject(s)
Humans , Male , Female , Middle Aged , Aged , Parkinson Disease/complications , Parkinson Disease/diagnosis , Quality of Life , Surveys and Questionnaires/standards , Parkinson Disease/psychology , Time Factors , Deglutition Disorders/etiology , Cross-Sectional Studies , Sickness Impact Profile , Gagging
17.
Arq. neuropsiquiatr ; 73(10): 856-860, Oct. 2015. tab
Article in English | LILACS | ID: lil-761532

ABSTRACT

Purpose To analyze the effectiveness of electroconvulsive therapy for the management of depression and/or psychosis refractory to drug therapy in patients with Parkinson disease.Methods A retrospective study was carried out including patients treated with electroconvulsive therapy during the period between 2002 and 2013. A review of the literature was performed.Results A total of 27 patients were included. In regards to the neuropsychiatric diagnosis, 14 patients had major depression, 12 patients had both psychosis and depression, and only one patient had isolated psychosis. The mean number of electroconvulsive therapy sessions was 12 ± 2.8. After electroconvulsive therapy, all patients showed a statistically significant improvement in the Brief Psychiatric Rating scale (reduction of 52% points) and Hamilton Depression Rating Scale (reduction of 50% points) independent of the presence of psychosis, depression or both.Conclusion Electroconvulsive therapy is effective for the treatment of refractory neuropsychiatric symptoms in Parkinson’s disease.


Propósito Analisar a eficácia da eletroconvulsoterapia para o tratamento da depressão e/ou psicoses refratária ao tratamento medicamentoso em pacientes com doença de Parkinson.Métodos Um estudo retrospectivo foi realizado com pacientes tratados com a eletroconvulsoterapia, durante o período entre 2002 e 2013. Uma revisão da literatura foi realizada.Resultados Um total de 27 pacientes foram incluídos. Em relação ao diagnóstico neuropsiquiátrico, 14 pacientes tinham depressão maior, 12 pacientes tiveram tanto psicoses e depressão, e apenas um paciente tinha isolado psicoses. O número médio de sessões de eletroconvulsoterapia foi de 12 ± 2,8. Após a eletroconvulsoterapia, todos os pacientes apresentaram uma melhora estatisticamente significativa no Brief Psychiatric Rating Scale (redução de 52% de pontos) e Hamilton Depression Rating Scale (redução de 50% de pontos), independente da presença de psicose, depressão ou ambos.Conclusão Eletroconvulsoterapia é eficaz para o tratamento de sintomas neuropsiquiátricos refractários na doença de Parkinson.


Subject(s)
Aged , Female , Humans , Male , Middle Aged , Depressive Disorder/therapy , Electroconvulsive Therapy/methods , Parkinson Disease/therapy , Psychotic Disorders/therapy , Psychiatric Status Rating Scales , Parkinson Disease/psychology , Retrospective Studies , Treatment Outcome
18.
Rev. chil. neuropsicol. (En línea) ; 9(1/2): 30-35, jul.-dic.2014. tab
Article in Spanish | LILACS | ID: lil-783429

ABSTRACT

La enfermedad de Parkinson (EP), se identifica como una enfermedad neurodegenerativa, que tiende a atacar al Sistema Nervioso Central, dañando severamente regiones neuronales de la sustancia negra. A nivel mundial la EP ocupa la segunda posición como la enfermedad de degeneración neuronal con mayor prevalencia. Los orígenes de la EP resultan multifactoriales, pues al presente se desconoce una única causa biológica o genética que explique su etiología de forma plena y satisfactoria. Se reconocen en la actualidad una variedad de siete tipos de Parkinsonismo, que producen afectaciones en sus distintas etapas, tanto a nivel de los sistemas de serotonina, noradrenalina como acetilcolina. Los drásticos efectos que provoca la EP sobre la Calidad de Vida (CV) de los pacientes, puede ser evaluada científica y cuantitativamente, desde las múltiples pruebas y evaluaciones que han surgido dentro del campo de las ciencias de la salud. Los cuatro síntomas más comunes para el reconocimiento del Parkinsonismo, son la inestabilidad postural, la rigidez corporal, la bradicinesia y los temblores. La EP continúa siendo poco intervenida en sus etapas tempranas de aparición, especialmente en naciones en vías de desarrollo, por lo que se requiere mayor unidad entre disciplinas científicas y sistemas públicos de salud, para mejorar la CV de estas poblaciones...


Parkinson's disease (PD), is identified as a neurodegenerative disease, tending to attack the Central Nervous System, severely damaging neural regions of substantia nigra. Globally PD ranks second as the most prevalent neuronal degeneration disease. The origins of PD are multifactorial, because nowadays a unique biological or genetic cause to explain the etiology of full and satisfactory way is unknown. They now recognize a variety of seven types of Parkinsonism, producing affectations in its various stages, both at the serotonin, norepinephrine and acetylcholine systems. The drastic effects caused by PD on Quality of Life (QoL) of patients, can be evaluated quantitatively and scientifically and from the multiple tests and evaluations that have emerged within the field of health sciences. The four most common symptoms of Parkinsonism recognition are postural instability, body rigidity, bradykinesia and tremors. PD is still little intervened in the early stages of emergence, especially in developing nations, so that greater unity between scientific disciplines and public health systems are required to improve the QoL’s populations...


Subject(s)
Humans , Nerve Degeneration/physiopathology , Parkinson Disease/physiopathology , Parkinson Disease/psychology , Neurotransmitter Agents/physiology , Quality of Life
19.
Diagnóstico (Perú) ; 53(3): 117-122, jul.-sept. 2014. tab, graf
Article in Spanish | LILACS, LIPECS | ID: lil-765151

ABSTRACT

Objetivos: Describir el perfil cognitivo en pacientes con enfermedad de Parkinson (EP) provenientes de zonas urbanorurales y determinar posibles factores asociados. Metodología: Estudio descriptivo y transversal realizado en el Hospital Regional de Huacho y Hospital de Chancay. Se realizo la evaluación cognitiva en 48 pacientes con Parkinson y sus respectivos controles entre los meses de Abril a Junio del 2013. Resultados: El porcentaje de pacientes con EP que presentaron deterioro cognitivo (87.5%) fue significativamente mayor al grupo control (62.5%), las deficiencias se encontraron principalmente en las áreas visuoespacial/ejecutiva, nominación, lenguaje y memoria diferida. Los pacientes con mayor edad y menos nivel de escolaridad presentaron mayor deterioro cognitivo. Conclusiones: el deterioro cognitivo asociado a la enfermedad de Parkinson es más elevado en poblaciones con menos grado de escolaridad provenientes de zonas con menor desarrollo socioeconómico.


Objectives: To describe the cognitive profile in patients with Parkinson's disease (PD) from semi-urban rural zones and to determine possible associated factors. Methodology: A descriptive and cross-sectional study in Hospital Regional de Huacho and Hospital de Chancay was performed. Forty-eight patients with PD and theirs controls received a cognitive evaluation from April to June 2013. Results: The percentage of patients with cognitive impairment (87.5%) was significantly higher than controls (62.5%); visuospatial/executive, denomination, language and memory (delayed recall) areas show more deficiencies. patients with advanced age and low level education had more cognitive impairment. Conclusions: Cognitive impairment in Parkinson's disease is higher in people with low level of education from zones with a poor socioeconomic development.


Subject(s)
Humans , Male , Female , Aged , Cognitive Dysfunction , Parkinson Disease/psychology , Epidemiology, Descriptive , Cross-Sectional Studies
20.
Braz. j. phys. ther. (Impr.) ; 18(4): 315-322, 08/2014. tab, graf
Article in English | LILACS | ID: lil-718139

ABSTRACT

Background: Gait disorders are common in individuals with Parkinson's Disease (PD) and the concurrent performance of motor and cognitive tasks can have marked effects on gait. The Gait Profile Score (GPS) and the Movement Analysis Profile (MAP) were developed in order to summarize the data of kinematics and facilitate understanding of the results of gait analysis. Objective: To investigate the effectiveness of the GPS and MAP in the quantification of changes in gait during a concurrent cognitive load while walking in adults with and without PD. Method: Fourteen patients with idiopathic PD and nine healthy subjects participated in the study. All subjects performed single and dual walking tasks. The GPS/MAP was computed from three-dimensional gait analysis data. Results: Differences were found between tasks for GPS (P<0.05) and Gait Variable Score (GVS) (pelvic rotation, knee flexion-extension and ankle dorsiflexion-plantarflexion) (P<0.05) in the PD group. An interaction between task and group was observed for GPS (P<0.01) for the right side (Cohen's ¯d=0.99), left side (Cohen's ¯d=0.91), and overall (Cohen's ¯d=0.88). No interaction was observed only for hip internal-external rotation and foot internal-external progression GVS variables in the PD group. Conclusions: The results showed gait impairment during the dual task and suggest that GPS/MAP may be used to evaluate the effects of concurrent cognitive load while walking in patients with PD. .


Subject(s)
Aged , Female , Humans , Male , Cognition , Gait , Parkinson Disease/physiopathology , Parkinson Disease/psychology , Gait/physiology , Movement/physiology
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