Ethical principles and practice guidelines concerning the usage of public database for medical researches
Journal of the Korean Medical Association
;
: 1031-1038, 2013.
Article
in Korean
| WPRIM
| ID: wpr-225733
ABSTRACT
In this paper, ethical principles and practice guidelines concerning the usage of public database for medical researches were developed and proposed. Although there are several personal health databases with comprehensive information of each individual, researches aiming at public good are often hindered because of legal, managerial and technical barriers to the usage of public databases. Ethical principles and guidelines are indispensible to promote medical research that will benefit society while protecting personal information from bleaching and abuse. These principles and guidelines should be a basis of trust and supports from society. For this purpose, the meaning of public good was given, and the current status of the linkage and usage of public databases were explored. As a result, three ethical principles-guaranteeing public good, protecting personal information, and transparency were established and eight recommendations were proposed.
Full text:
Available
Index:
WPRIM (Western Pacific)
Main subject:
Database Management Systems
/
Medical Record Linkage
/
Codes of Ethics
/
Ethics, Medical
Type of study:
Practice guideline
Limits:
Humans
Language:
Korean
Journal:
Journal of the Korean Medical Association
Year:
2013
Type:
Article
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