Search details
1.
Development of the Cystic Fibrosis Questionnaire-Revised-8 Dimensions: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised.
Value Health
; 26(4): 567-578, 2023 04.
Article
in English
| MEDLINE | ID: mdl-36509366
2.
Peanut allergy impact on productivity and quality of life (PAPRIQUA): Caregiver-reported psychosocial impact of peanut allergy on children.
Clin Exp Allergy
; 50(11): 1249-1257, 2020 11.
Article
in English
| MEDLINE | ID: mdl-32866989
3.
APPEAL-2: A pan-European qualitative study to explore the burden of peanut-allergic children, teenagers and their caregivers.
Clin Exp Allergy
; 50(11): 1238-1248, 2020 11.
Article
in English
| MEDLINE | ID: mdl-32757478
4.
Associations between commonly used patient-reported outcome tools in postpartum depression clinical practice and the Hamilton Rating Scale for Depression.
Arch Womens Ment Health
; 23(5): 727-735, 2020 10.
Article
in English
| MEDLINE | ID: mdl-32666402
5.
A Novel Patient-Derived Conceptual Model of the Impact of Celiac Disease in Adults: Implications for Patient-Reported Outcome and Health-Related Quality-of-Life Instrument Development.
Value Health
; 20(4): 637-643, 2017 04.
Article
in English
| MEDLINE | ID: mdl-28408006
6.
Mapping the EQ-5D index from the cystic fibrosis questionnaire-revised using multiple modelling approaches.
Health Qual Life Outcomes
; 13: 33, 2015 Mar 12.
Article
in English
| MEDLINE | ID: mdl-25879833
7.
Qualitative and quantitative validation of the FACIT-fatigue scale in iron deficiency anemia.
Health Qual Life Outcomes
; 13: 60, 2015 May 17.
Article
in English
| MEDLINE | ID: mdl-25980742
8.
Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis.
J Patient Rep Outcomes
; 8(1): 24, 2024 Feb 28.
Article
in English
| MEDLINE | ID: mdl-38416239
9.
A qualitative study to explore the burden of disease in activated phosphoinositide 3-kinase delta syndrome (APDS).
Orphanet J Rare Dis
; 19(1): 203, 2024 May 18.
Article
in English
| MEDLINE | ID: mdl-38760658
10.
Exploration of oncologists' attitudes toward and perceived value of patient-reported outcomes.
Qual Life Res
; 22(4): 725-31, 2013 May.
Article
in English
| MEDLINE | ID: mdl-22684493
11.
A forgotten aspect of the NICE reference case: an observational study of the health related quality of life impact on caregivers of people with multiple sclerosis.
BMC Health Serv Res
; 13: 346, 2013 Sep 09.
Article
in English
| MEDLINE | ID: mdl-24016141
12.
A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis.
Orphanet J Rare Dis
; 18(1): 17, 2023 01 26.
Article
in English
| MEDLINE | ID: mdl-36698133
13.
Exploring the impact of caring for an individual with neurogenic orthostatic hypotension: a qualitative study.
Neurodegener Dis Manag
; 13(3): 191-201, 2023 06.
Article
in English
| MEDLINE | ID: mdl-37313784
14.
Health-related quality-of-life and burden for caregivers of individuals with neurogenic orthostatic hypotension.
Neurodegener Dis Manag
; 13(1): 35-45, 2023 02.
Article
in English
| MEDLINE | ID: mdl-36382590
15.
Symptoms and impacts of familial chylomicronemia syndrome: a qualitative study of the patient experience.
Orphanet J Rare Dis
; 18(1): 316, 2023 Oct 11.
Article
in English
| MEDLINE | ID: mdl-37817256
16.
Effect of Zuranolone on Concurrent Anxiety and Insomnia Symptoms in Women With Postpartum Depression.
J Clin Psychiatry
; 84(1)2023 01 30.
Article
in English
| MEDLINE | ID: mdl-36724109
17.
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Trials.
Value Health
; 20(7): 856-857, 2017.
Article
in English
| MEDLINE | ID: mdl-28712613
18.
Symptoms and impacts of aromatic L-amino acid decarboxylase (AADC) deficiency among individuals with different levels of motor function.
Orphanet J Rare Dis
; 17(1): 128, 2022 03 21.
Article
in English
| MEDLINE | ID: mdl-35313922
19.
Exploring Health-Related Quality of Life Burden in Peanut Allergy and the Potential Benefit of Oral Immunotherapy: Estimation of Health State Utility Values for Children and Adolescents and Their Caregivers.
Patient Prefer Adherence
; 16: 1269-1278, 2022.
Article
in English
| MEDLINE | ID: mdl-35619589
20.
Allergy to Peanuts imPacting Emotions And Life (APPEAL): The impact of peanut allergy on children, teenagers, adults and caregivers in the UK and Ireland.
PLoS One
; 17(2): e0262851, 2022.
Article
in English
| MEDLINE | ID: mdl-35130296