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1.
Palliat Med ; 32(5): 950-959, 2018 05.
Artículo en Inglés | MEDLINE | ID: mdl-29400619

RESUMEN

BACKGROUND: Internationally, evidence on the support needs of family carers who look after a terminally ill adult in home settings is incomplete. AIM: To illustrate the relevance of 'relevant background worries' in family carers' accounts of caring at home for a dying adult. DESIGN: A qualitative cross-sectional observational study was conducted in England, United Kingdom, in 2011-2013 on the experiences of adult family carers ( n = 59) of older dying adults (aged 50+ years) with malignant and/or non-malignant conditions. Interviews occurred post-bereavement. This article reports on a subset of participants' interview transcripts ( n = 30) where narrative analysis was undertaken. SETTING/PARTICIPANTS: Carers were interviewed in their home setting, having been purposively recruited via general practitioner practices in two study sites in England. The subset of participants ( n = 30) was purposively selected from the parent sample with reference to carers' age, relationship to the patient, family circumstances and study sites. RESULTS: Evidence is provided on the importance of what we conceptualise as carers' 'relevant background worries'; these varied in nature, significance and impact. Four case studies are presented where these worries constituted psychosocial factors that impacted on caregivers' actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. CONCLUSION: It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers' relevant background worries.


Asunto(s)
Adaptación Psicológica , Cuidadores/psicología , Muerte , Adulto , Anciano , Anciano de 80 o más Años , Estudios Transversales , Inglaterra , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Narración , Investigación Cualitativa
2.
Age Ageing ; 45(3): 421-6, 2016 05.
Artículo en Inglés | MEDLINE | ID: mdl-27055880

RESUMEN

BACKGROUND: older people aged 80 and over are increasingly providing end-of-life care to spouses at home and often do so for long periods of time, while also trying to manage their own illnesses and disabilities. Little of the research on older spousal carers has focussed on the oldest carers; hence, the needs of this particular population are not fully known. OBJECTIVE: to explore the experiences of the 'oldest carers' in caring for a dying spouse at home. METHODS: secondary analysis was undertaken on a subset of data from a larger qualitative interview study; this dataset comprised 17 interviews from participants aged 80 or over. Framework analysis methods were used, with items derived from the thematic analysis of the main study. RESULTS: the oldest carers in this subset demonstrated high levels of resilience and the ability to adapt to their caring role. Caring until death was accepted as an integral part of the commitment made to their partner as part of the 'wedding contract'. Carers felt they benefitted from the support provided by family, friends and care services; however, their own care needs were not always recognised by health and social care services. CONCLUSIONS: these findings underscore the complexity of the oldest carers' experiences and challenges in times of illness and end of life. Healthcare professionals should be alerted to the myriad ways caregiving is enacted in serious illness and seek opportunities for developing supportive interventions specifically for older carers.


Asunto(s)
Cuidadores/psicología , Anciano Frágil , Calidad de Vida , Esposos/psicología , Cuidado Terminal/psicología , Factores de Edad , Anciano de 80 o más Años , Estudios Transversales , Emociones , Femenino , Humanos , Masculino , Evaluación de Necesidades , Investigación Cualitativa , Estrés Psicológico , Cuidado Terminal/métodos , Reino Unido
3.
Nurs Older People ; 2023 Dec 13.
Artículo en Inglés | MEDLINE | ID: mdl-38087856

RESUMEN

The shift towards delivering more clinical care in the community not only supports the healthcare system by avoiding unnecessary hospital admissions, but can also improve outcomes, particularly for older people with complex healthcare needs. Therefore, healthcare organisations need to consider how to ensure their workforce has the capabilities required to provide care in accordance with this new model. This article details a project that involved the design and development of a replicable Ageing Well programme of learning to increase knowledge, skills and confidence among registered and unregistered practitioners, underpinned by a 'skills not roles' strategy. Although evaluation of the programme is ongoing, the authors encourage its wider adoption by outlining its benefits, how the challenges encountered during this project were overcome and the learning points gained from the experience.

4.
Front Nutr ; 10: 1297624, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-38024371

RESUMEN

Introduction: There is an emerging need for plant-based, vegan options for patients requiring nutritional support. Methods: Twenty-four adults at risk of malnutrition (age: 59 years (SD 18); Sex: 18 female, 6 male; BMI: 19.0 kg/m2 (SD 3.3); multiple diagnoses) requiring plant-based nutritional support participated in a multi-center, prospective study of a (vegan suitable) multi-nutrient, ready-to-drink, oral nutritional supplement (ONS) [1.5 kcal/mL; 300 kcal, 12 g protein/200 mL bottle, mean prescription 275 mL/day (SD 115)] alongside dietary advice for 28 days. Compliance, anthropometry, malnutrition risk, dietary intake, appetite, acceptability, gastrointestinal (GI) tolerance, nutritional goal(s), and safety were assessed. Results: Patients required a plant-based ONS due to personal preference/variety (33%), religious/cultural reasons (28%), veganism/reduce animal-derived consumption (17%), environmental/sustainability reasons (17%), and health reasons (5%). Compliance was 94% (SD 16). High risk of malnutrition ('MUST' score ≥ 2) reduced from 20 to 16 patients (p = 0.046). Body weight (+0.6 kg (SD 1.2), p = 0.02), BMI (+0.2 kg/m2 (SD 0.5), p = 0.03), total mean energy (+387 kcal/day (SD 416), p < 0.0001) and protein intake (+14 g/day (SD 39), p = 0.03), and the number of micronutrients meeting the UK reference nutrient intake (RNI) (7 vs. 14, p = 0.008) significantly increased. Appetite (Simplified Nutritional Appetite Questionnaire (SNAQ) score; p = 0.13) was maintained. Most GI symptoms were stable throughout the study (p > 0.06) with no serious adverse events related. Discussion: This study highlights that plant-based nutrition support using a vegan-suitable plant-based ONS is highly complied with, improving the nutritional outcomes of patients at risk of malnutrition.

5.
BMC Palliat Care ; 11: 23, 2012 Nov 22.
Artículo en Inglés | MEDLINE | ID: mdl-23173986

RESUMEN

BACKGROUND: Recent end of life care policy prioritises patient choice over place of care and in particular promotes dying at home. This policy is predicated on the assumption that there are family carers able and willing to provide care for the dying person. Through the accounts of bereaved family members, the 'Unpacking the home' study aims to gain an in-depth understanding of 'home' and the issues faced by family members caring for a dying older person at home; it also aims to examine the way the home is transformed in the process of providing end of life care, and offer a critical analysis of policies that aim to increase home deaths. This paper presents the protocol for this study. METHODS/DESIGN: A cross-sectional qualitative study has been designed to achieve the study aims. In-depth interviews will be conducted in the north and south of England with 50 bereaved family carers to elicit their accounts of witnessing the dying in the home of an older person (50+ years). All interviews will be subjected to thematic analysis, and narrative analysis will be undertaken on a subset of 30 interview transcripts. A final phase of integration and policy analysis will be conducted towards the end of the study. User involvement is integral to this study, with service users actively engaged at every stage. DISCUSSION: This study will seek to take a qualitative approach by explicitly recognising that family carers are central to the experience of dying at home for older people, and they have needs that may be amenable to support and anticipatory planning. The strengths of this study, which include its interdisciplinary and participatory approach, and in-depth data collection and analysis methods, will be explored. The limitations and challenges of this research will also be considered. This study seeks to make recommendations that will ensure that family carers receive appropriate and adequate support in caring for their loved ones at the end of life.

6.
Prim Care Respir J ; 21(3): 261-6, 2012 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-22596245

RESUMEN

BACKGROUND: It is recognised that patients with chronic obstructive pulmonary disease (COPD) should have the chance to discuss end-of-life care and advance care planning (ACP). Admission to hospital with an exacerbation may be a possible opportunity. AIMS: To examine whether an admission to hospital for an exacerbation of COPD is an opportunity for ACP and to understand, from the patient perspective, the optimum circumstances for ACP. METHODS: Patients who had a recent admission for an exacerbation of COPD were identified. Sixteen patients and their carers were interviewed. The interviews were analysed using qualitative methodology. RESULTS: No patients recalled discussions about resuscitation or planning for the future. Hospital admission and discharge was seen as chaotic and lacking in continuity. Some patients welcomed the opportunity to discuss ACP and felt that their general practitioner (GP) would be the best person for this. Others wished to avoid end-of-life care discussions but there was evidence that, with empathetic and knowledgeable support, these discussions could be initiated. CONCLUSIONS: The period of hospitalisation may not be an appropriate time to initiate ACP but may be a milestone that can lead to discussions. GPs should be alert to that opportunity after discharge from hospital.


Asunto(s)
Planificación Anticipada de Atención , Hospitalización , Enfermedad Pulmonar Obstructiva Crónica/terapia , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa
7.
Matern Child Health J ; 15 Suppl 1: S65-74, 2011 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-21928117

RESUMEN

UNLABELLED: This study sought to examine relationships between depressive symptoms and prenatal smoking and/or household environmental tobacco smoke exposure (HH-ETSE) among urban minority women. We analyzed private, audio computer-assisted self interview data from a clinic-based sample of 929 minority pregnant women in Washington, DC. Depressive symptoms were assessed via the Beck Depression Inventory Fast Screen. HH-ETSE, current smoking, and former smoking were assessed via self-report. Depression levels and demographic characteristics were compared: (1) among nonsmokers, for those reporting HH-ETSE versus no HH-ETSE; and (2) among smokers, for those reporting current smoking (in last 7 days) versus former smokers. Measures associated with HH-ETSE/current smoking in bivariate analysis at P < 0.20 were included in adjusted logistic regression models. HH-ETSE, as a possible indicator of a social smoking network, was assessed as a mediator for the relationship between depression and current smoking. RESULTS: Non-smokers reporting moderate-to-severe depressive symptoms showed significantly higher adjusted odds of prenatal HH-ETSE (AOR 2.5, 95% CI [1.2, 5.2]). Smokers reporting moderate-to-severe or mild depressive symptoms showed significantly higher adjusted odds of current smoking (AOR 1.9, 95% CI [1.1, 3.5] and AOR 1.8, 95% CI [1.1, 3.1], respectively). Among smokers, HH-ETSE was a significant mediator for the association between moderate-to-severe symptoms and current smoking. In conclusion, health care providers should be aware that depressed urban minority women are at risk of continued smoking/HH-ETSE during pregnancy. Interventions designed to encourage behavior change should include screening for depression, and build skills so that women are better able to address the social environment.


Asunto(s)
Depresión/epidemiología , Mujeres Embarazadas/psicología , Cese del Hábito de Fumar/psicología , Fumar/epidemiología , Fumar/psicología , Contaminación por Humo de Tabaco/efectos adversos , Adulto , Depresión/diagnóstico , Depresión/psicología , District of Columbia/epidemiología , Femenino , Humanos , Entrevistas como Asunto , Modelos Logísticos , Embarazo , Factores de Riesgo , Cese del Hábito de Fumar/estadística & datos numéricos , Población Urbana , Adulto Joven
8.
Matern Child Health J ; 15 Suppl 1: S42-53, 2011 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-21809218

RESUMEN

Adolescent mothers in Washington, DC have a high rate of subsequent teen pregnancies, often within 24 months. Children of teen mothers are at risk for adverse psychosocial outcomes. When adolescents are strongly attached to parents, schools, and positive peers, they may be less likely to repeat a pregnancy. This study tested the efficacy of a counseling intervention delivered by cell phone and focused on postponing subsequent teen pregnancies by strengthening healthy relationships, reproductive practices, and positive youth assets. The objective of this study was to compare time to a repeat pregnancy between the intervention and usual care groups, and, secondarily, to determine whether treatment intensity influenced time to subsequent conception. Primiparous pregnant teens ages 15-19, were recruited in Washington, DC. Of 849 teens screened, 29.3% (n = 249) met inclusion criteria, consented to participate, and completed baseline measures. They were then randomized to the intervention (N = 124) or to usual care (N = 125). Intervention group teens received cell phones for 18 months of counseling sessions, and quarterly group sessions. Follow-up measures assessed subsequent pregnancy through 24 months post-delivery. A survival analysis compared time to subsequent conception in the two treatment groups. Additional models examined the effect of treatment intensity. By 24 months, 31% of the intervention and 36% of usual care group teens had a subsequent pregnancy. Group differences were not statistically significant in intent-to-treat analysis. Because there was variability in the degree of exposure of teens to the curriculum, a survival analysis accounting for treatment intensity was performed and a significant interaction with age was detected. Participants who were aged 15-17 years at delivery showed a significant reduction in subsequent pregnancy with increased levels of intervention exposure (P < 0.01), but not those ≥ 18 years. Adolescents ≥ 18 years faced considerable challenges to treatment success. Individual, social, and contextual factors are all important to consider in the prevention of repeat teen pregnancy. Cell phone-based approaches to counseling may not be the most ideal for addressing complex, socially-mediated behaviors such as this, except for selective subgroups. A lack of resources within the community for older teens may interfere with program success.


Asunto(s)
Teléfono Celular , Consejo/métodos , Servicios de Planificación Familiar/métodos , Embarazo en Adolescencia/prevención & control , Apoyo Social , Adolescente , Distribución por Edad , Intervalo entre Nacimientos , District of Columbia , Femenino , Humanos , Análisis de Intención de Tratar , Madres/psicología , Paridad , Embarazo , Encuestas y Cuestionarios , Análisis de Supervivencia , Adulto Joven
9.
Community Pract ; 84(11): 27-31, 2011 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-23270019

RESUMEN

Some of the most vulnerable children will need co-ordinated help from health, children's services and other agencies. Co-ordinated and joint working hinges on effective communication at all levels. Evidence shows that direct verbal communication is a more effective way to share concerns and that this should be followed up by written information. Yet barriers persist that prevent this from happening. Integrated health and social care teams are purported to break down professional and communication barriers. This paper reports on the evaluation of a pilot integrated model of health and social care in the North West of England. Such models can work and produce positive outcomes for children and families, but require full commitment from all parties. There are principles that need to be in place for this integrated model to achieve its aims and objectives, such as a robust governance framework that specifies the roles and responsibilities of each agency, managers and practitioners. Despite the model achieving its aim, the project was not as efficient as it could have been due to the lack of an integrated information technology system.


Asunto(s)
Protección a la Infancia , Enfermería en Salud Comunitaria/organización & administración , Prestación Integrada de Atención de Salud/organización & administración , Servicios de Enfermería Escolar/organización & administración , Servicio Social/organización & administración , Actitud del Personal de Salud , Niño , Preescolar , Gestión Clínica , Eficiencia Organizacional , Inglaterra , Femenino , Humanos , Lactante , Difusión de la Información , Relaciones Interprofesionales , Modelos Organizacionales , Proyectos Piloto
10.
Am J Public Health ; 99(6): 1053-61, 2009 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-19372532

RESUMEN

OBJECTIVES: We evaluated the efficacy of a primary care intervention targeting pregnant African American women and focusing on psychosocial and behavioral risk factors for poor reproductive outcomes (cigarette smoking, secondhand smoke exposure, depression, and intimate partner violence). METHODS: Pregnant African American women (N = 1044) were randomized to an intervention or usual care group. Clinic-based, individually tailored counseling sessions were adapted from evidence-based interventions. Follow-up data were obtained for 850 women. Multiple imputation methodology was used to estimate missing data. Outcome measures were number of risks at baseline, first follow-up, and second follow-up and within-person changes in risk from baseline to the second follow-up. RESULTS: Number of risks did not differ between the intervention and usual care groups at baseline, the second trimester, or the third trimester. Women in the intervention group more frequently resolved some or all of their risks than did women in the usual care group (odds ratio = 1.61; 95% confidence interval = 1.08, 2.39; P = .021). CONCLUSIONS: In comparison with usual care, a clinic-based behavioral intervention significantly reduced psychosocial and behavioral pregnancy risk factors among high-risk African American women receiving prenatal care.


Asunto(s)
Terapia Conductista/métodos , Negro o Afroamericano/psicología , Embarazo/etnología , Embarazo/psicología , Atención Prenatal/métodos , Consejo/métodos , Trastorno Depresivo/diagnóstico , Trastorno Depresivo/prevención & control , Trastorno Depresivo/terapia , Femenino , Humanos , Resultado del Embarazo , Atención Primaria de Salud/métodos , Análisis de Regresión , Factores de Riesgo , Conducta de Reducción del Riesgo , Fumar/efectos adversos , Fumar/psicología , Cese del Hábito de Fumar/métodos , Prevención del Hábito de Fumar , Maltrato Conyugal/diagnóstico , Maltrato Conyugal/prevención & control , Maltrato Conyugal/psicología , Contaminación por Humo de Tabaco/efectos adversos , Contaminación por Humo de Tabaco/prevención & control , Resultado del Tratamiento , Adulto Joven
11.
J Ky Med Assoc ; 107(11): 443-9, 2009 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-19999861

RESUMEN

BACKGROUND: Colonization in the nares with Methicillin Resistant Staphylococcus aureus (MRSA) has been described as a risk factor for eventual MRSA infection. The objective of this report is to describe the outbreak investigation, to identify the risk factors involved, and to evaluate and recommend control measures. METHODS: This study was a retrospective observational outbreak study carried out in the Intensive Care and Cardiac Unit. Percentages of patients with positive conversions were graphically plotted out and were used to determine expected percentage of conversions versus observed. The case definition was determined to be a patient with a positive culture for MRSA from a nasal swab upon discharge or transfer from the ICCU whose initial swab on admission was negative. RESULTS: The expected number of conversions was 2% per month and the newly observed number of conversions was 6%, which was >3 standard deviations from the mean. Repetitive sequence-based PCR (rep-PCR) was performed for the microbial DNA typing, which discovered genetically identical strains. DISCUSSION: The main finding in this outbreak investigation was that the common room which housed four of these patients was contaminated with MRSA. A limitation was that some patients who would have been included in the study did not get screened at discharge and their conversion status could not be ascertained and environment cultures were not performed. Active surveillance allowed for the detection of an outbreak of MRSA colonization which led to early intervention that prevented more patients from becoming colonized. Prevention of colonization should be one of the primary goal in the prevention of MRSA.


Asunto(s)
Portador Sano/epidemiología , Infección Hospitalaria/microbiología , Staphylococcus aureus Resistente a Meticilina/genética , Infecciones Estafilocócicas/epidemiología , Anciano , Anciano de 80 o más Años , Técnicas de Tipificación Bacteriana , Instituciones Cardiológicas , Portador Sano/microbiología , Infección Hospitalaria/epidemiología , Genotipo , Humanos , Incidencia , Unidades de Cuidados Intensivos , Kentucky/epidemiología , Masculino , Persona de Mediana Edad , Estudios Retrospectivos , Infecciones Estafilocócicas/transmisión
12.
Obstet Gynecol ; 112(3): 611-20, 2008 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-18757660

RESUMEN

OBJECTIVE: To evaluate the efficacy of an integrated multiple risk intervention, delivered mainly during pregnancy, in reducing such risks (cigarette smoking, environmental tobacco smoke exposure, depression, and intimate partner violence) postpartum. METHODS: Data from this randomized controlled trial were collected prenatally and on average 10 weeks postpartum in six prenatal care sites in the District of Columbia. African Americans were screened, recruited, and randomly assigned to the behavioral intervention or usual care. Clinic-based, individually tailored counseling was delivered to intervention women. The outcome measures were number of risks reported postpartum and reduction of these risks between baseline and postpartum. RESULTS: The intervention was effective in significantly reducing the number of risks reported in the postpartum period. In bivariate analyses, the intervention group was more successful in resolving all risks (47% compared with 35%, P=.007, number needed to treat=9, 95% confidence interval [CI] 5-31) and in resolving some risks (63% compared with 54%, P=.009, number needed to treat=11, 95% CI 7-43) as compared with the usual care group. In logistic regression analyses, women in the intervention group were more likely to resolve all risks (odds ratio 1.86, 95% CI 1.25-2.75, number needed to treat=7, 95% CI 4-19) and resolve at least one risk (odds ratio 1.60, 95% CI 1.15-2.22, number needed to treat=9, 95% CI 6-29). CONCLUSION: An integrated multiple risk factor intervention addressing psychosocial and behavioral risks delivered mainly during pregnancy can have beneficial effects in risk reduction postpartum.


Asunto(s)
Negro o Afroamericano , Terapia Cognitivo-Conductual , Atención Posnatal , Atención Prenatal , Depresión Posparto/prevención & control , Femenino , Humanos , Embarazo , Conducta de Reducción del Riesgo , Prevención del Hábito de Fumar , Maltrato Conyugal/prevención & control
13.
BMC Pregnancy Childbirth ; 8: 22, 2008 Jun 25.
Artículo en Inglés | MEDLINE | ID: mdl-18578875

RESUMEN

BACKGROUND: African American women are at increased risk for poor pregnancy outcomes compared to other racial-ethnic groups. Single or multiple psychosocial and behavioral factors may contribute to this risk. Most interventions focus on singular risks. This paper describes the design, implementation, challenges faced, and acceptability of a behavioral counseling intervention for low income, pregnant African American women which integrated multiple targeted risks into a multi-component format. METHODS: Six academic institutions in Washington, DC collaborated in the development of a community-wide, primary care research study, DC-HOPE, to improve pregnancy outcomes. Cigarette smoking, environmental tobacco smoke exposure, depression and intimate partner violence were the four risks targeted because of their adverse impact on pregnancy. Evidence-based models for addressing each risk were adapted and integrated into a multiple risk behavior intervention format. Pregnant women attending six urban prenatal clinics were screened for eligibility and risks and randomized to intervention or usual care. The 10-session intervention was delivered in conjunction with prenatal and postpartum care visits. Descriptive statistics on risk factor distributions, intervention attendance and length (i.e., with < 4 sessions considered minimal adherence) for all enrolled women (n = 1,044), and perceptions of study participation from a sub-sample of those enrolled (n = 152) are reported. RESULTS: Forty-eight percent of women screened were eligible based on presence of targeted risks, 76% of those eligible were enrolled, and 79% of those enrolled were retained postpartum. Most women reported a single risk factor (61%); 39% had multiple risks. Eighty-four percent of intervention women attended at least one session (60% attended > or = 4 sessions) without disruption of clinic scheduling. Specific risk factor content was delivered as prescribed in 80% or more of the sessions; 78% of sessions were fully completed (where all required risk content was covered). Ninety-three percent of the subsample of intervention women had a positive view of their relationship with their counselor. Most intervention women found the session content helpful. Implementation challenges of addressing multiple risk behaviors are discussed. CONCLUSION: While implementation adjustments and flexibility are necessary, multiple risk behavioral interventions can be implemented in a prenatal care setting without significant disruption of services, and with a majority of referred African American women participating in and expressing satisfaction with treatment sessions.


Asunto(s)
Consejo/métodos , Prestación Integrada de Atención de Salud/organización & administración , Complicaciones del Embarazo/prevención & control , Atención Prenatal/métodos , Servicios Preventivos de Salud/organización & administración , Conducta de Reducción del Riesgo , Adulto , Negro o Afroamericano , Consejo/estadística & datos numéricos , Prestación Integrada de Atención de Salud/métodos , Depresión/prevención & control , Estudios de Factibilidad , Femenino , Humanos , Tamizaje Masivo/métodos , Satisfacción del Paciente , Embarazo , Complicaciones del Embarazo/epidemiología , Complicaciones del Embarazo/psicología , Atención Prenatal/estadística & datos numéricos , Servicios Preventivos de Salud/métodos , Factores de Riesgo , Enfermedades de Transmisión Sexual/prevención & control , Cese del Hábito de Fumar/métodos , Factores Socioeconómicos , Maltrato Conyugal/prevención & control , Estrés Psicológico/epidemiología , Estrés Psicológico/prevención & control , Contaminación por Humo de Tabaco/prevención & control , Contaminación por Humo de Tabaco/estadística & datos numéricos , Estados Unidos , Salud Urbana
14.
Perspect Sex Reprod Health ; 39(4): 194-205, 2007 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-18093036

RESUMEN

CONTEXT: Unintended pregnancy is associated with risk behaviors and increased morbidity or mortality for mothers and infants, but a woman's feelings about pregnancy may be more predictive of risk and health outcomes than her intentions. METHODS: A sample of 1,044 black women who were at increased risk were enrolled at prenatal care clinics in the District of Columbia in 2001-2003. Bivariate and multivariate analyses assessed associations between pregnancy intentions or level of happiness about being pregnant and multiple psychosocial and behavioral risk factors, and identified correlates of happiness to be pregnant. RESULTS: Pregnancy intentions and happiness were strongly associated, but happiness was the better predictor of risk. Unhappy women had higher odds than happy women of smoking, being depressed, experiencing intimate partner violence, drinking and using illicit drugs (odds ratios, 1.7-2.6). The odds of being happy were reduced among women who had other children or a child younger than two, who were single or did not have a current partner, who had had more than one sexual partner in the past year and who reported that the baby's father did not want the pregnancy (0.3-0.6). In contrast, the odds of being happy were elevated among women who had better coping strategies (1.03), who had not used birth control at conception (1.6) and who had 1-2 household members, rather than five or more (2.1). CONCLUSIONS: Additional psychosocial screening for happiness about being pregnant and for partner characteristics, particularly the father's desire to have this child, may help improve prenatal care services and prevent adverse health outcomes.


Asunto(s)
Negro o Afroamericano/estadística & datos numéricos , Felicidad , Conducta Materna/etnología , Complicaciones del Embarazo/etnología , Embarazo no Deseado/etnología , Adulto , Negro o Afroamericano/psicología , Comorbilidad , Depresión/etnología , District of Columbia/epidemiología , Femenino , Humanos , Recién Nacido , Conducta Materna/psicología , Embarazo , Complicaciones del Embarazo/psicología , Embarazo no Deseado/psicología , Asunción de Riesgos , Autocuidado , Fumar/etnología , Maltrato Conyugal/etnología , Trastornos Relacionados con Sustancias/etnología
15.
Health Place ; 38: 103-11, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-26916987

RESUMEN

Public Health England (2013) survey data indicates that while the place of death is geographically uneven across England, given a choice, many older people nearing end of life would prefer to die at home. There is, however, a growing critique that policies designed to support home death fail to understand the needs and preferences of older people and the impact on family carers. Such policies also make assumption about within whose home the home death takes place. Hence, there are major gaps in our understanding of firstly, where and how care work undertaken by family members within domestic settings takes place; and secondly, how it can create tensions between home and care that fundamentally disrupt the physical and socio-emotional meaning of home for family carers, impacting on their sense of home post-death. This can have consequences for their own well-being. In this paper we draw on interview data from our 'Unpacking the Home' study to elicit an in-depth understanding of how facilitating a home death can create an ambiguity of place for family carers, where the issues faced by them in caring for a dying older person at home, and the home death itself, can fundamentally reshape the meaning and sense of home.


Asunto(s)
Actitud Frente a la Muerte , Cuidadores/psicología , Vivienda , Anciano , Inglaterra , Femenino , Política de Salud , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Cuidados Paliativos , Prioridad del Paciente , Encuestas y Cuestionarios
16.
BMJ Support Palliat Care ; 5(2): 181-8, 2015 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-25256259

RESUMEN

OBJECTIVE: To explore how bereaved family members recall managing end of life medications when delivering care to a patient dying at home in England. DESIGN: Qualitative study. SETTING: Domestic homes in two contrasting areas in England. PARTICIPANTS: 59 bereaved family carers who have delivered care to a patient who spent a minimum of 2 weeks at home prior to their death from cancer or other non-malignant condition. Cases were excluded if the place of death was: a hospice, nursing home or National Health Service (NHS) hospital. RESULTS: Participants identified a number of important concerns about managing end of life medication for the dying person at home. Although some support with medications is provided by general practitioners and nurses in the community, family carers take primary responsibility for drug administration and storage. They reported anxiety about giving correct and timely dosages, and concerns about keeping the patient comfortable without overdosing them or risking shortening their lives. In particular, they reported that certain analgesic medications, especially opioids, were considered to have a symbolic significance increasing analgesia requirements, and the use of a syringe driver was associated with deterioration and approaching death. Key barriers to managing end of life medications at home included: complex regimes; unwanted responsibility in deciding when to use 'as needed' medication; disagreements with professional staff, and anxiety about medication errors, especially if perceived to have implications for survival. CONCLUSIONS: Family carers require more information about end of life drugs and their effects, support and training in managing medication for a dying person.


Asunto(s)
Cuidadores/psicología , Atención Domiciliaria de Salud/métodos , Cuidados Paliativos/métodos , Cuidado Terminal/psicología , Anciano , Anciano de 80 o más Años , Aflicción , Femenino , Humanos , Masculino , Errores de Medicación , Persona de Mediana Edad , Investigación Cualitativa
17.
JRSM Open ; 6(12): 2054270415614543, 2015 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-26664734

RESUMEN

OBJECTIVES: To determine the importance of fear and anxiety at the time of an exacerbation of chronic obstructive pulmonary disease. To assess the influence of carers and health professionals on this fear and anxiety. DESIGN: A qualitative study to elicit the views of patients and their carers during a hospital admission for exacerbations of chronic obstructive pulmonary disease. SETTING: Interviews were conducted in a District General Hospital. PARTICIPANTS: Twenty patients were interviewed shortly after admission to hospital with an exacerbation. MAIN OUTCOME MEASURES: Key themes were identified using cross-sectional thematic analysis of transcripts where commonalities and differences were identified. RESULTS: Four themes emerged: panic and fear; anxiety management techniques used during an exacerbation; intervention from family members and carers; response to medical services. CONCLUSION: Panic and fear are important emotions prior to admission. Many patients recognised the link between panic-fear and a worsening of symptoms, and some were able to use self-management techniques to reduce their panic-fear. Some relatives were seen as helping and others exacerbating the symptoms of panic-fear. The emergency services were seen as positive: providing reassurance and a sense of safety. How best to help patients with chronic obstructive pulmonary disease manage panic and fear remains a challenge.

18.
Br J Gen Pract ; 64(629): e796-803, 2014 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-25452545

RESUMEN

BACKGROUND: Dying at home is the preference of many patients with life-limiting illness. This is often not achieved and a key factor is the availability of willing and able family carers. AIM: To elicit family carers' views about the community support that made death at home possible. DESIGN AND SETTING: Qualitative study in East Devon, North Lancashire, and Cumbria. METHOD: Participants were bereaved family carers who had provided care at the end of life for patients dying at home. Semi-structured interviews were conducted 6-24 months after the death. RESULTS: Fifty-nine bereaved family carers were interviewed (54% response rate; 69% female). Two-thirds of the patients died from cancer with median time of home care being 5 months and for non-cancer patients the median time for home care was 30 months. An overarching theme was of continuity of care that divided into personal, organisational, and informational continuity. Large numbers and changes in care staff diluted personal continuity and failure of the GPs to visit was viewed negatively. Family carers had low expectations of informational continuity, finding information often did not transfer between secondary and primary care and other care agencies. Organisational continuity when present provided comfort and reassurance, and a sense of control. CONCLUSION: The requirement for continuity in delivering complex end-of-life care has long been acknowledged. Family carers in this study suggested that minimising the number of carers involved in care, increasing or ensuring personal continuity, and maximising the informational and organisational aspects of care could lead to a more positive experience.


Asunto(s)
Cuidadores , Muerte , Medicina Familiar y Comunitaria/organización & administración , Cuidados Paliativos/organización & administración , Cuidado Terminal/organización & administración , Enfermo Terminal/psicología , Actitud del Personal de Salud , Aflicción , Cuidadores/psicología , Cuidadores/estadística & datos numéricos , Cuidadores/provisión & distribución , Atención Domiciliaria de Salud/psicología , Humanos , Comunicación Interdisciplinaria , Entrevistas como Asunto , Cuidados Paliativos/psicología , Relaciones Médico-Paciente , Investigación Cualitativa , Apoyo Social , Cuidado Terminal/psicología , Reino Unido
19.
Br J Gen Pract ; 63(617): e821-8, 2013 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-24351498

RESUMEN

BACKGROUND: Chronic non-cancer pain (CNCP) is common in the UK. GPs manage most patients with such pain. Previous research has suggested that prescribing is influenced by patient and doctor factors, but less is known about the decision- making process involved in prescribing opioid drugs for CNCP. AIM: To describe the factors influencing GPs' prescribing of strong opioid drugs for CNCP. Design and setting Semi-structured interviews and a focus group of a purposive sample of GPs from a range of practice settings including male and female GPs with experience of prescribing strong opioids. METHOD: Transcripts of interviews and a focus group were analysed using qualitative research methodology (thematic analysis). RESULTS: GPs described prescribing opioid drugs for patients with CNCP as being different from treating cancer related pain. GPs followed accepted stepwise approaches in their prescribing for CNCP. They reported difficulty in assessing the level of pain and concern over duration of use of strong opioids and their possible side effects, tolerance, and addiction. Variation in reported practice was observed, which may be linked to experience and significant events. CONCLUSION: GPs in this study demonstrated a thoughtful attitude towards prescribing strong opioids for CNCP. They were aware of the difficulties of long-term strong opioid prescription. Only a few GPs had had specific training in chronic pain management and this may explain some of the variation in practice reported. GPs may benefit from training in pain assessment and long-term management of patients with CNCP.


Asunto(s)
Analgésicos Opioides/uso terapéutico , Dolor Crónico/prevención & control , Medicina General/métodos , Pautas de la Práctica en Medicina , Analgésicos Opioides/economía , Actitud del Personal de Salud , Dolor Crónico/economía , Costos de los Medicamentos , Femenino , Medicina General/economía , Médicos Generales/economía , Médicos Generales/psicología , Humanos , Masculino , Trastornos Relacionados con Opioides/economía , Trastornos Relacionados con Opioides/prevención & control , Dimensión del Dolor , Cuidados Paliativos/economía , Cuidados Paliativos/métodos
20.
Pediatrics ; 125(4): 721-8, 2010 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-20211945

RESUMEN

OBJECTIVE: We tested the efficacy of a cognitive-behavioral intervention in reducing environmental tobacco smoke exposure (ETSE) and improving pregnancy outcomes among black women. METHODS: We recruited 1044 women to a randomized, controlled trial during 2001-2004 in Washington, DC. Data on 691 women with self-reported ETSE were analyzed. A subset of 520 women with ETSE and salivary cotinine levels (SCLs) of <20 ng/mL were also analyzed. Individually tailored counseling sessions, adapted from evidence-based interventions for ETSE and other risks, were delivered to the intervention group. The usual-care group received routine prenatal care as determined by their provider. Logistic regression models were used to predict ETSE before delivery and adverse pregnancy outcomes. RESULTS: Women in the intervention were less likely to self-report ETSE before delivery when controlling for other covariates (odds ratio [OR]: 0.50 [95% confidence interval (CI): 0.35-0.71]). Medicaid recipients were more likely to have ETSE (OR: 1.97 [95% CI: 1.31-2.96]). With advancing maternal age, the likelihood of ETSE was less (OR: 0.96 [95% CI: 0.93-0.99]). For women in the intervention, the rates of very low birth weight (VLBW) and very preterm birth (VPTB) were significantly improved (OR: 0.11 [95% CI: 0.01-0.86] and OR: 0.22 [95% CI: 0.07-0.68], respectively). For women with an SCL of <20 ng/mL, maternal age was not significant. Intimate partner violence at baseline significantly increased the chances of VLBW and VPTB (OR: 3.75 [95% CI: 1.02-13.81] and 2.71 [95% CI: 1.11-6.62], respectively). These results were true for mothers who reported ETSE overall and for those with an SCL of <20 ng/mL. CONCLUSIONS: This is the first randomized clinical trial demonstrating efficacy of a cognitive-behavioral intervention targeting ETSE in pregnancy. We significantly reduced ETSE as well as VPTB and VLBW, leading causes of neonatal mortality and morbidity in minority populations. This intervention may reduce health disparities in reproductive outcomes.


Asunto(s)
Resultado del Embarazo/epidemiología , Atención Prenatal/métodos , Prevención del Hábito de Fumar , Contaminación por Humo de Tabaco/prevención & control , Adolescente , Adulto , Terapia Cognitivo-Conductual/métodos , Femenino , Humanos , Recién Nacido , Embarazo , Fumar/psicología , Contaminación por Humo de Tabaco/análisis , Adulto Joven
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