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1.
Support Care Cancer ; 32(6): 376, 2024 May 23.
Artículo en Inglés | MEDLINE | ID: mdl-38780826

RESUMEN

OBJECTIVE: This study aimed to evaluate the impact of an intervention using the Treatment Summary and Survivorship Care Plan (TSSCP-P) on self-efficacy and quality of life (QoL) in breast cancer survivors. METHOD: A clinical study, randomized and controlled, conducted to assess self-efficacy and QOL in breast cancer survivors. The participants were randomly assigned to either an intervention group or a control group. The intervention group received individualized nursing consultations guided by the TSSCP-P, while the control group received standard care. Self-efficacy and QoL were assessed at three evaluation moments using validated scales: Functional Assessment of Cancer Therapy-Breast Plus Anm Morbidity (FACT B + 4) and Perceived General Self-Efficacy Scale. Statistical analyses, including regression analysis and hypothesis tests, were conducted to examine the effects of the intervention on self-efficacy and QoL. RESULTS: Female breast cancer survivors (N = 101) were recruited. The intervention group demonstrated a significant improvement in self-efficacy over time compared to the control group (p = 0.01). However, no significant differences were observed in the overall QoL scores between the two groups. Subscale analysis revealed a significant improvement in physical well-being for the intervention group (p = 0.04), while emotional well-being showed a non-significant improvement (p = 0.07). The study suggests that individualized care plans and support strategies, such as the TSSCP-P, can positively influence breast cancer survivors' self-efficacy and certain aspects of their QoL. CONCLUSION: These findings highlight the potential benefits of the TSSCP-P intervention in enhancing self-efficacy among breast cancer survivors. However, further research is needed to explore its impact on overall QoL and its effectiveness across different stages of breast cancer, as well as with longer follow-up periods. CLINICAL TRIAL REGISTRATION NUMBER: Brazilian Registry of Clinical Trials (ReBEC- RBR-2m7qkjy; UTN code: U1111-1257-3560), registered in April 19th, 2022.


Asunto(s)
Neoplasias de la Mama , Supervivientes de Cáncer , Calidad de Vida , Autoeficacia , Humanos , Femenino , Neoplasias de la Mama/terapia , Neoplasias de la Mama/psicología , Supervivientes de Cáncer/psicología , Persona de Mediana Edad , Brasil , Adulto , Planificación de Atención al Paciente , Anciano
2.
Psychooncology ; 27(12): 2740-2746, 2018 12.
Artículo en Inglés | MEDLINE | ID: mdl-30171792

RESUMEN

OBJECTIVE: Rare cancers are a heterogeneous group of conditions that can be associated with emotional and physical impairments. In view of the dearth of research in this area, we investigated the quality of life and prevalence of distress in a cohort of patients diagnosed with a rare cancer, classified by the RARECARE definition. METHODS: A cohort of rare cancer patients, treated in a Brazilian public cancer center, was assessed for distress (Distress Thermometer), anxiety/depression (Hospital Anxiety and Depression Scale), and quality of life (Functional Assessment of Cancer Therapy-General Version). Descriptive statistics were generated, and multivariate analyses were used to identify factors associated with distress, anxiety/depression, and quality of life. RESULTS: A total of 137 patients (52.6% male, mean age of 50 years; range 18-90) were identified. Nearly half (49.6%) of patients reported high levels of distress, with 19.7% endorsing anxiety and 15.3% depression. In multivariate analysis, demographic and clinical variables associated with worse psychosocial outcomes included younger age (P < 0.05), female gender (P < 0.01), advanced disease stage (P < 0.01), and engagement in active therapy (P < 0.05). CONCLUSIONS: Patients diagnosed with rare cancer reported poorer psychosocial outcomes and impaired quality of life when compared to the general population of cancer patients. Certain demographic groups (eg, women and younger patients) may benefit from targeted psychosocial interventions.


Asunto(s)
Ansiedad/psicología , Supervivientes de Cáncer/psicología , Depresión/psicología , Neoplasias/psicología , Calidad de Vida/psicología , Enfermedades Raras/psicología , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Ansiedad/etiología , Brasil , Depresión/etiología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Análisis Multivariante , Neoplasias/complicaciones , Enfermedades Raras/complicaciones , Adulto Joven
3.
Can Oncol Nurs J ; 27(4): 365-374, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-31148740

RESUMEN

OBJECTIVE: To investigate the association between demographic, economic and clinical variables, cancer symptoms, and daily life interference in patients receiving cancer treatment in Brazil. METHODS: In this cross-sectional study, 268 patients were assessed. A questionnaire was used to collect data on demographic, economic and clinical variables, and the M.D. Anderson Symptom Inventory was used to assess cancer symptoms. Data were analyzed using bivariate and multivariate descriptive statistics. FINDINGS: The following variables were associated with higher symptom scores: female sex (prevalence ratio [PR]=1.28; 95% confidence interval [95% CI] 1.06-1.53), illiteracy or ≤ 9 years of formal education (PR=1.40; 95% CI 1.08-1.82), clinical equipment or situations that requiring nursing care (PR=1.23; 95% CI 1.03-1.46), and family history of cancer (PR=1.23; 95% CI 1.04-1.45). Daily life interference was associated with female sex (PR=1.40; 95% CI 1.12-1.75), secondary tumour (PR=1.42; 95% CI 1.16-1.74) and radiotherapy (PR=1.24; 95% CI 1.01-1.51). CONCLUSION: Management of cancer patients requires multidisciplinary knowledge, taking into consideration all the subjective dimensions of the patients. Knowing the profile of patients most strongly affected by symptoms will help them face the limitations and consequences of the disease and its treatment.

4.
J Cancer Educ ; 31(4): 804-810, 2016 12.
Artículo en Inglés | MEDLINE | ID: mdl-26224242

RESUMEN

Nurses working in oncology require continuing education and nowadays distance education is a possibility. To compare learning outcomes of the professionals participating in classroom learning versus distance learning; describing the sociodemographic characteristics and digital fluency of participants; comparing learning outcomes with independent variables; assessing the adequacy of educational practices in Virtual Environment Moodle Learning through the constructivist online learning environment survey. An experimental, randomized controlled study; conducted at the A C Camargo Cancer Center, located in São Paulo, SP, Brazil. The study included 97 nurses, with average training of 1 to 2 years. A control group (n = 44) had face to face training and the experiment group (n = 53) had training by distance learning, both with identical program content. The dependent variable was the result of learning, measured by applying a pre-assessment questionnaire and post-intervention for both groups. The sociodemographic and digital fluency data were uniform among the groups. The performance of both groups was statistically significant (p 0.005), and the control group had a greater advantage (40.4 %). Distance education has proven to be an effective alternative for training nurses, especially when they have more complex knowledge, more experience in the area and institutional time. Distance Education may be a possibility for the training of nurses for work in oncology. The association of age, training time and the institution, and the experience in Oncology interfered in the performance of both groups.


Asunto(s)
Instrucción por Computador/métodos , Educación Continua/métodos , Educación Continua en Enfermería/métodos , Aprendizaje , Enfermería Oncológica/educación , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Adulto Joven
5.
J Cancer Educ ; 31(3): 533-40, 2016 09.
Artículo en Inglés | MEDLINE | ID: mdl-26130194

RESUMEN

This study aims to identify whether the use of concept mapping (CM) strategy assists a student to extend and revise their expertise in oncology and analyze the abilities developed in a student in order to go through theoretical to practical knowledge. This study is descriptive and qualitative, with 20 undergraduate students of the Undergraduate Nursing Course of Paulista School of Nursing of Federal University of São Paulo, Brazil. The critical incident technique and content analysis were used. There were 12 categories represented by facilities, difficulties, and learning applicability in oncology provided by CM strategy during the surgical and clinical nursing discipline. The graphics resource, CMapTools®, and the clinical case data arranged in mapping for resolution generated an active search and exercise of self-learning in oncology. Despite the challenges of the use of CM as a teaching strategy-pedagogical, the results suggested an increase of autonomy and clinical reasoning in nursing practice.


Asunto(s)
Competencia Clínica/normas , Formación de Concepto , Bachillerato en Enfermería/métodos , Aprendizaje , Estudiantes de Enfermería , Adulto , Femenino , Humanos , Masculino , Adulto Joven
6.
Rev Gaucha Enferm ; 35(1): 31-8, 2014 Mar.
Artículo en Portugués | MEDLINE | ID: mdl-24930270

RESUMEN

To analyze the relation between social support and socio-demographic characteristics of oncology patients. Transversal study, developed with oncology patients living in the Ijut city, Rio Grande do Sul state, Brazil between July and December 2012, the population was selected through convenience. For data collection we used the Brazilian version of the Social Support Scale and the Medical Outcomes Study data were analyzed with descriptive statistics resources and analytical. Average scores on the dimensions were: 82.36 +/- 24.42 (positive interaction), 85.39 +/- 19.81 (information), 87.98 +/- 18.68 (emotional support), 88.52 +/- 18.56 (material support) and 93.50 +/- 14.44 (affective support). Evidences showed higher averages in male mulattos patients (p < 0.05). There was a direct and growing relationship between per capita income, social support and affective positive interaction. It was proven that patients receive social support in all dimensions, with high scores, but with variations, considering the characteristics of gender, civil status, educational level, per capita income and race.


Asunto(s)
Actitud , Neoplasias/psicología , Apoyo Social , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Brasil , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Factores Socioeconómicos , Adulto Joven
7.
Rev Esc Enferm USP ; 57: e20230079, 2024.
Artículo en Inglés, Portugués | MEDLINE | ID: mdl-38373186

RESUMEN

OBJECTIVE: To characterize the perceptions and feelings of parents diagnosed with cancer in relation to communication with their children between 3 and 12 years old. METHOD: A cross-sectional, multicenter, with data triangulation, through structured and semi-structured interviews, with a question with a Semantic Differential Scale, carried out with the father or mother with cancer undergoing outpatient treatment in two hospital institutions in the city of São Paulo, São Paulo, Brazil. Data were analyzed using descriptive statistics, content analysis, using the ATLAS.ti 8.0R software and the Social Representation Theory. RESULTS: Forty-three respondents participated, 37 (86.0%) were female, 23 (53.5%) aged between 31 and 50 years old, 29 (67.5%) with only children between 7 and 12 years old. The experience was considered painful (73.1%), stressful (53.6%), clear (53.7%) and safe (51.2%). The feelings experienced generated two categories: Trial by fire; and Grateful rewards. Children's reactions from parents' perspective generated the categories: Sadness and suffering; Trust and support; Change of behavior; and Denial or insensitivity. CONCLUSION: Communication was assessed as negative and conflicting, positive and welcoming, and causing changes in children's behaviors.


Asunto(s)
Neoplasias , Padres , Niño , Humanos , Femenino , Adulto , Persona de Mediana Edad , Preescolar , Masculino , Estudios Transversales , Brasil , Comunicación
8.
Rev Gaucha Enferm ; 34(4): 75-83, 2013 Dec.
Artículo en Portugués | MEDLINE | ID: mdl-25080703

RESUMEN

This study assessed how well patients who had undergone breast cancer surgery monitored their continuous drainage system after receiving one-to-one instructions at the Mastology Outpatient Clinic of Hospital São Paulo at Federal University of São Paulo. Participants were 79 women who had undergone breast cancer surgery between May 2009 and March 2010, and were using a drain. It was found that the self-care training that the patients received in addition to the strategy used in that training, had a positive effect on their self-monitoring of the continuous drainage, which prevented the drain from clogging, evinced by the percentage of patients who maintained the permeability of the drainage system (84.2%).


Asunto(s)
Neoplasias de la Mama/cirugía , Drenaje/métodos , Mastectomía , Educación del Paciente como Asunto , Cuidados Posoperatorios/educación , Cuidados Posoperatorios/métodos , Autocuidado , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Persona de Mediana Edad , Estudios Prospectivos
10.
Rev Esc Enferm USP ; 46(4): 967-72, 2012 Aug.
Artículo en Portugués | MEDLINE | ID: mdl-23018409

RESUMEN

Concept mapping (CM) is a teaching strategy that can be used to solve clinical cases, but the maps are difficult to write. The objective of this study was to describe the challenges and contributions of the Cmap Tools® software in building concept maps to solve clinical cases. To do this, a descriptive and qualitative method was used with junior nursing students from the Federal University of São Paulo. The teaching strategy was applied and the data were collected using the focal group technique. The results showed that the software facilitates and guarantees the organization, visualization, and correlation of the data, but there are difficulties related to the handling of its tools initially. In conclusion, the formatting and auto formatting resources of Cmap Tools® facilitated the construction of concept maps; however, orientation strategies should be implemented for the initial stage of the software utilization.


Asunto(s)
Educación en Enfermería/métodos , Modelos Educacionales , Investigación en Educación de Enfermería , Programas Informáticos , Estudiantes de Enfermería , Femenino , Humanos , Adulto Joven
11.
Rev Esc Enferm USP ; 55: e20200084, 2021.
Artículo en Inglés, Portugués | MEDLINE | ID: mdl-34617952

RESUMEN

OBJECTIVE: To compare evaluations performed by undergraduate nursing alumni in three dimensions: sociodemographic characterization, identification and insertion into the job market, and professional training evaluation. METHODS: Cross-sectional, quantitative, and multicenter study with alumni of three Brazilian public institutions. Data analysis was carried out according to the internal reliability of the used instrument and by applying descriptive statistics. RESULTS: The participants were 446 alumni who obtained their degrees from 2013 to 2016. Most were women, white (44%) or brown (38%), and were between 25 and 30 years old. Most had a specialization degree or were studying to obtain one (54%), had a paid occupation (89%), and were employed by a single institution (60%), with the care area prevailing (57%) in the sample. High levels of satisfaction were found among alumni of two institutions in the evaluation of content learning and essential experiences for training, whereas the other institution obtained better evaluations regarding professional practice. CONCLUSION: The profile of academic experiences, graduate education, and entry into the job market varied according to the evaluated institution. The findings favored critical-reflective analysis of the institutions' pedagogical projects.


Asunto(s)
Bachillerato en Enfermería , Estudiantes de Enfermería , Adulto , Brasil , Estudios Transversales , Femenino , Humanos , Reproducibilidad de los Resultados
12.
Ecancermedicalscience ; 15: 1331, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-35211200

RESUMEN

INTRODUCTION: Globally, Brazil has the third highest number of confirmed COVID-19 cases and the second highest number of deaths related to COVID-19 at the time of writing. Maintaining cancer care has been a challenge for patient safety and for the physical and mental health of oncology nurses. OBJECTIVES: To describe which effects of the COVID-19 pandemic on cancer care could already be evaluated and to identify the psychosocial impact on cancer nurses in Brazil. METHOD: Reflective, analytical, qualitative study. RESULTS: Although the Brazilian cancer care policy has reached important achievements in overcoming access barriers to cancer diagnosis and treatment over the past decade, the COVID-19 pandemic has caused losses of timely access to health services for patients with cancer, which has compromised screening, early diagnosis and treatment, and patient follow-up. Oncology nurses have actively participated in the management and assistance strategies during the pandemic. This path has generated an increase in oncology nurses' workload, leading to physical and mental stress and anxiety related to the fear of contagion for themselves and their family. CONCLUSION: The pandemic has affected the care of cancer patients, with the potential to suffer greater losses because of reductions in screening, early diagnosis and treatment, and patient follow-up. In addition to the worsening of the cancer setting, the COVID-19 pandemic has overwhelmed Brazilian oncology nurses, physically and mentally.

13.
Rev Gaucha Enferm ; 31(2): 375-82, 2010 Jun.
Artículo en Portugués | MEDLINE | ID: mdl-21500520

RESUMEN

The objective was to identify definitions and/or explanations of the term self-management in educative programs that aim its development. The authors also aimed to describe the educative plans and results of the educative programs analyzed. As a methodology we used integrative review, with 15 published articles (2002 the 2007). The inclusion criteria was: the occurrence of the term self-management; the existence of an educative program for the development of self-management; to be related to the area of the health of the adult. Self-management means the improvement or acquisition of abilities to solve problems in biological, social and affective scopes. The review pointed to different educational methodologies. However, it also showed the predominance of traditional methods, with conceptual contents and of physiopathological nature. The learning was evaluated as favorable, with warns in relation to the application in different populations and contexts and to the increase of costs of the educative intervention. It was concluded that research has evidenced the importance of the education for self-management, but lacked in strength for not relating the biopsychosocial demands of the chronic patient and for not describing in detail the teaching and evaluation methodologies employed.


Asunto(s)
Educación del Paciente como Asunto , Autocuidado , Humanos
14.
J Geriatr Oncol ; 11(2): 280-283, 2020 03.
Artículo en Inglés | MEDLINE | ID: mdl-31401205

RESUMEN

OBJECTIVE: Utilizing the Cancer and Aging Research Group (CARG) chemotherapy toxicity risk score before starting treatment in older adults with cancer is guideline-recommended. However, this has not been tested in most developing countries. We investigated the use of a Portuguese version of the CARG score, including the association between this score and physical symptoms, among older Brazilian adults with cancer. PATIENTS AND METHODS: We enrolled patients aged ≥65 starting chemotherapy at a public Brazilian hospital. A Portuguese version of the CARG tool was created and linguistically validated. Patients were assessed for chemotherapy toxicity risk using the CARG score, and physical symptoms were evaluated using the Functional Assessment of Cancer Treatment-General (FACT-G) scale. Multivariable logistic regression was used to identify physical symptoms associated with high CARG scores, including pain, nausea, and fatigue. RESULTS: Older patients (65+) with cancer were enrolled (n = 117). Patients were mostly female (57.3%), white (52.1%), married (52.1%), and had less than high school education (75.2%). Breast, gastrointestinal and lung cancers were the most common diagnosis, and 66.7% had metastatic disease. Elevated pain scores (P < .01) were associated with higher chemotherapy toxicity risk scores, even after adjusting for potential confounders. CONCLUSION: We created and implemented a Portuguese language version of the CARG tool. We found that, although physical symptoms are not included in the CARG model, elevated pain was strongly associated with having a high CARG score. As a modifiable risk factor, pain should be addressed among older patients with cancer considering chemotherapy, to help mitigate their risks for toxicity.


Asunto(s)
Antineoplásicos , Neoplasias Pulmonares , Anciano , Antineoplásicos/efectos adversos , Brasil , Femenino , Humanos , Neoplasias Pulmonares/tratamiento farmacológico , Masculino , Medición de Riesgo , Factores de Riesgo
15.
Rev Lat Am Enfermagem ; 17(6): 933-9, 2009.
Artículo en Inglés | MEDLINE | ID: mdl-20126933

RESUMEN

This study aimed to understand the meanings caregivers attributed to the process of caring for a neutropenic child at home and know their needs for orientation related to care for these children. This descriptive study was carried out at the Pediatric Oncology Institute through semi-structured interviews, involving eleven caregivers. Data were organized according to the content analysis technique and interpreted according to Social Representations theory. Results indicate changes in the physical environment, people and human relationships, evidencing crises and transition towards stability. The following care procedures raised doubts: hyperthermia, body, food and environmental hygiene, risks of interpersonal contact and special care. The conclusion is that caregivers need technical and emotional preparedness to cope with the reported difficulties, including aggravating situations.


Asunto(s)
Cuidadores , Servicios de Atención de Salud a Domicilio , Neoplasias/complicaciones , Neutropenia/etiología , Neutropenia/terapia , Adulto , Niño , Preescolar , Femenino , Humanos , Masculino , Evaluación de Necesidades , Adulto Joven
16.
Rev Gaucha Enferm ; 30(3): 413-9, 2009 Sep.
Artículo en Portugués | MEDLINE | ID: mdl-20187421

RESUMEN

This study aimed at analyzing the representations regarding the relationships between Nursing and Education practices, to reveal expectations regarding the course Fundamentals, Methods and Techniques of Teaching and evaluate the use of the Projects Method. Method this is a qualitative evaluation research performed between April and June 2007 with first-year nursing students of a Baccalaureate Degree Program. The data were analyzed based on the Social Representations framework and the constructivist postulates. The students revealed that their learning expectations were related with the contents of didactics, human communication, and the teaching-learning process. The Projects Method was considered capable of providing dynamism, interest towards the content, and the ability to associate theory and practice, in addition to having favored the amplitude and appreciation of the educate/care binomial. In conclusion, health didactics contents are capable of generating students' interest, especially when an innovative methodology is used.


Asunto(s)
Educación en Enfermería , Estudiantes de Enfermería , Educación en Enfermería/normas
17.
Rev Gaucha Enferm ; 30(1): 77-84, 2009 Mar.
Artículo en Portugués | MEDLINE | ID: mdl-19653559

RESUMEN

The present study aims to describe how families perceive the communication of bad news about hospitalized newborns given by professionals. A qualitative and descriptive study was carried out with families of hospitalized newborns in the neonatal unit. Five mothers and one father were interviewed The thematic analysis of data revealed four categories: Message content in relation to clarity, detailing and not disclosed information. The way the news was transmitted: leads to ambiguity in reactions. Families' perceptions aboutprofessionals' attitudes to transmit the news: sometimes attitudes are different depending on the professional's experience and involvement with the customer. Use of communication strategies for message transmission: considered by the families as a mean to minimize the gravity of the baby's problem. The results pointed out the use of a non symmetrical communication between professional-family The adoption of a team practice, which incorporates it in its interventions, may meet the families' needs of information and social support.


Asunto(s)
Padre/psicología , Enfermedades del Recién Nacido/psicología , Recién Nacido , Madres/psicología , Revelación de la Verdad , Adulto , Actitud del Personal de Salud , Actitud Frente a la Salud , Comunicación , Emociones , Femenino , Humanos , Enfermedades del Recién Nacido/enfermería , Unidades de Cuidado Intensivo Neonatal , Masculino , Relaciones Padres-Hijo , Relaciones Profesional-Familia , Pronóstico
18.
Rev. Esc. Enferm. USP ; 57: e20230079, 2023. tab, graf
Artículo en Inglés | LILACS, BDENF - enfermagem (Brasil) | ID: biblio-1535154

RESUMEN

ABSTRACT Objective: To characterize the perceptions and feelings of parents diagnosed with cancer in relation to communication with their children between 3 and 12 years old. Method: A cross-sectional, multicenter, with data triangulation, through structured and semi-structured interviews, with a question with a Semantic Differential Scale, carried out with the father or mother with cancer undergoing outpatient treatment in two hospital institutions in the city of São Paulo, São Paulo, Brazil. Data were analyzed using descriptive statistics, content analysis, using the ATLAS.ti 8.0R software and the Social Representation Theory. Results: Forty-three respondents participated, 37 (86.0%) were female, 23 (53.5%) aged between 31 and 50 years old, 29 (67.5%) with only children between 7 and 12 years old. The experience was considered painful (73.1%), stressful (53.6%), clear (53.7%) and safe (51.2%). The feelings experienced generated two categories: Trial by fire; and Grateful rewards. Children's reactions from parents' perspective generated the categories: Sadness and suffering; Trust and support; Change of behavior; and Denial or insensitivity. Conclusion: Communication was assessed as negative and conflicting, positive and welcoming, and causing changes in children's behaviors.


RESUMEN Objetivo: Caracterizar las percepciones y sentimientos de padres diagnosticados con cáncer en relación a la comunicación con sus hijos entre 3 y 12 años. Método: Transversal, multicéntrico, con triangulación de datos, mediante entrevistas estructuradas y semiestructuradas, con una pregunta con Escala Diferencial Semántica, realizadas con el padre o la madre con cáncer en tratamiento ambulatorio en dos instituciones hospitalarias de la ciudad de São Paulo, São Paulo, Brasil. Los datos fueron analizados mediante estadística descriptiva, análisis de contenido, utilizando el software ATLAS.ti 8.0R y la Teoría de las Representaciones Sociales. Resultados: Participaron 43 encuestados, 37 (86,0%) eran del sexo femenino, 23 (53,5%) con edades entre 31 y 50 años, 29 (67,5%) con hijos únicos entre 7 y 12 años. La experiencia fue considerada dolorosa (73,1%), estresante (53,6%), clara (53,7%) y segura (51,2%). Los sentimientos vividos generaron dos categorías: Prueba de fuego; y recompensa agradecida. Las reacciones de los niños, desde la perspectiva de los padres, generaron las categorías: Tristeza y sufrimiento; Confianza y apoyo; Cambio de comportamiento; y Negación o insensibilidad. Conclusión: La comunicación fue evaluada como negativa y conflictiva, positiva y acogedora, y provoca cambios en las conductas de los niños.


RESUMO Objetivo: Caracterizar as percepções e os sentimentos dos pais diagnosticados pelo câncer em relação à comunicação com seus filhos entre 3 e 12 anos. Método: Transversal, multicêntrico, com triangulação de dados, por meio de entrevistas estruturadas e semiestruturadas, com uma pergunta com Escala de Diferencial Semântico, realizadas com o pai ou a mãe com câncer em tratamento ambulatorial em duas instituições hospitalares da cidade de São Paulo, São Paulo, Brasil. Os dados foram analisados por meio da estatística descritiva, análise de conteúdo, utilizando o software ATLAS.ti 8.0R e a Teoria das Representações Sociais. Resultados: Participaram 43 respondentes, sendo 37 (86,0%) do sexo feminino, 23 (53,5%) com idades entre 31 e 50 anos, 29 (67,5%) com filho único entre 7 e 12 anos. A experiência foi considerada dolorosa (73,1%), estressante (53,6%), clara (53,7%) e segura (51,2%). Os sentimentos vivenciados geraram duas categorias: Prova de fogo; e Grata recompensa. As reações dos filhos, na perspectiva dos pais, geraram as categorias: Tristeza e sofrimento; Confiança e apoio; Mudança de comportamento; e Negação ou insensibilidade. Conclusão: A comunicação foi avaliada como negativa e conflituosa, positiva e acolhedora, e causadora de mudanças nos comportamentos dos filhos.


Asunto(s)
Humanos , Educación en Salud , Comunicación , Oncología Médica , Relaciones Padres-Hijo , Emoción Expresada
19.
J Glob Oncol ; 3(3): 189-193, 2017 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-28717759

RESUMEN

PURPOSE: It has become crucial to translate scientific findings and to find ways by which to mobilize local resources to improve the quality and accessibility of cancer care in developing countries. This study seeks to provide insight into challenge through examining differences in clinician documentation of patients with cancer treated at a Brazilian Public University Hospital. METHODS: ASCO Quality Oncology Practice Initiative (QOPI) measures were used to examine the care provided in the departments of breast, colorectal, lymphoma, gynecology, and lung cancers. For this study, data from a representative sample of patients receiving chemotherapy in the previous month were extracted and quality of cancer care indicators examined. RESULTS: Certain elements of medical care were consistently and appropriately documented, including cancer diagnosis and stage, chemotherapy planning, administration, and summary. In general, considering the specific cancer management measures, patients received recommended care in accordance with recognized guidelines. Despite this, a number of important gaps in care were identified, including the assessment and treatment of pain, documentation of chemotherapy intention, symptom and toxicity management, patients' psychosocial status, and provision of a treatment summary at care completion. CONCLUSION: These findings are encouraging in terms of adherence to core treatment guidelines in cancer care in Brazil. However, results suggest important opportunities for improving care across a number of domains, many of which represent a challenge throughout both developing and developed countries. This study may also provide preliminary guidance for enhancing educational and training programs for professionals and students alike, to implement high-quality, comprehensive cancer care.

20.
rev. cuid. (Bucaramanga. 2010) ; 12(2): e1377, mayo 1, 2021. graf
Artículo en Portugués | LILACS, BDENF - enfermagem (Brasil) | ID: biblio-1341806

RESUMEN

Resumo Introdução A pandemia de Covid-19 trouxe muitos desafios para a assistência oncológica, gerando novos desenhos operacionais nas esferas da gestão e da assistência. Objetivo Descrever experiências de implantação de processos administrativos e assistenciais de instituições prestadoras de atendimento oncológico durante a pandemia da Covid-19. Método Relato de caso, descritivo, qualitativo. As experiências contidas nos relatos compreendem o período de 05 de março a 31 de janeiro de 2021. Os relatos são provenientes de instituições distintas do município de São Paulo, São Paulo, Brasil. Resultados Os 3 relatos descrevem ações como: triagem dos pacientes para a incorporação de estratégias de telemedicina e tele-enfermagem; preparação de ambientes livres de Covid-19 para a segurança de profissionais e pacientes; reforço às ações educativas na geração de conhecimentos e adoção de comportamentos seguros para equipes de saúde e pacientes, entre outras. Discussão Os relatos descreveram como eixo comum a implementação de ações para viabilizar a segurança dos pacientes, dos profissionais e do meio ambiente, bem como a continuidade da assistência oncológica. A literatura científica e as recomendações dos conselhos, sociedades e organizações foram subsidiárias das medidas instituídas. Conclusão O ineditismo da situação de isolamento social devido ao risco da disseminação da COVID-19 demonstrou-se um campo fecundo para a incorporação de novas estratégias de gestão e assistência em Oncologia. Perdas e danos certamente ocorrerão no processo de assistência oncológica na vigência desta pandemia. Neste contexto, o mapeamento da queda de diagnósticos de câncer bem como das interrupções de tratamento é fundamental para mitigação de suas consequências.


Abstract Introduction The COVID-19 pandemic has brought many challenges to oncology care, leading to the implementation of new operational models in health management and care. Objective To describe the experiences related to the implementation of health management and care models in cancer treatment centers during the COVID-19 outbreak. Materials and Methods A qualitative descriptive case report was conducted including experiences from March 5 to January 31, 2021. Reports were provided by different cancer treatment centers in São Paulo, Brazil. Results Actions such as identification of patients eligible for telemedicine and telenursing strategies, preparation of COVID-19-free environments for healthcare professionals and patients, and support for educational actions to increase knowledge and adoption of safety behavior for healthcare professionals and patients were observed in the three reports. Discussion A common element described in the reports is the implementation of actions to improve the safety of healthcare professionals, patients and the environment, as well as the continuity of cancer care. Scientific literature and recommendations of advisory boards, associations and organizations were supplementary to the measures applied. Conclusions Social distancing due to the risk of COVID-19 spread proved to a successful field for the introduction of new health management and care in cancer treatment. Although there will certainly be loss and damage to cancer treatment processes during this pandemic, mapping the drop in cancer diagnosis, as well as treatment interruptions, is essential to mitigate any consequences.


Resumen Introducción La pandemia de Covid-19 trajo muchos desafíos para la atención oncológica, generando nuevos diseños operativos en las esferas de gestión y atención. Objetivo Describir las experiencias de implementación de procesos administrativos y de atención de instituciones proveedoras de atención oncológica durante la pandemia de Covid-19. Métodos Reporte de caso, descriptivo, cualitativo. Las experiencias del reporte cubren el período del 5 de marzo al 31 de enero de 2021. Los informes provienen de diferentes instituciones en el municipio de São Paulo, São Paulo, Brasil. Resultados Los 3 reportes describen acciones tales como: detección de pacientes para las estrategias de telemedicina y tele enfermería; preparación de entornos libres de Covid-19 para la seguridad de profesionales y pacientes; refuerzo de acciones educativas para generación de conocimiento y adopción de comportamientos seguros para profesionales y pacientes, entre otros. Discusión Los reportes describen como eje común la implementación de acciones para la seguridad de los pacientes, los profesionales y el medio ambiente, así como la continuidad de la atención oncológica. La literatura científica, las recomendaciones de consejos, sociedades y organizaciones fueron subsidiarias de las medidas instituidas. Conclusión La novedad del confinamiento social debido al riesgo de propagación de COVID-19 demostró ser un campo fructífero para la incorporación de nuevas estrategias de gestión y asistencia oncológica. Ciertamente, habrá pérdidas y daños en el proceso de atención oncológica durante esta pandemia. En este contexto, el mapeo de la caída del diagnóstico de cáncer, así como de las interrupciones del tratamiento, es esencial para mitigar sus consecuencias.


Asunto(s)
Administración de la Seguridad , Infecciones por Coronavirus , Pandemias , Atención Ambulatoria , Oncología Médica
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