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1.
Support Care Cancer ; 32(8): 516, 2024 Jul 16.
Artículo en Inglés | MEDLINE | ID: mdl-39014258

RESUMEN

PURPOSE: Dyadic communication positively affects marital relationships, good relationships help restore body image, and this study explores the relationship between dyadic communication and body image of breast cancer patients. METHODS: Cross-sectional correlation design with convenience sampling was used to recruit participants from two outpatient medical centers. Demographic information, medical records, and two questionnaires, dyadic communicative resilience scale (DCRS) and body image scale (BIS), were administered. Participants comprised women with breast cancer and their partners. Multiple regression analysis was performed to control related factors to understand the association between the DCRS of the women with breast cancer and their partners and the women's body image. Analysis of variance (ANOVA) was performed to analyze between three categories of couple's communication status (consistent and good, consistent and poor, and inconsistent) and body image of women with breast cancer. RESULTS: Data were obtained from 162 women with breast cancer and 90 partners. The study found (1) significant correlation between the women's perception of their communication and body image, (2) humor in partner's perception of their communication was significantly associated with women's body image, and (3) dyadic communication that both patients and partners were consistent and good in the domain of keeping pre-cancer routines and attractiveness was associated with women's body image. CONCLUSION: The correlation between dyadic communication and the body image of women with breast cancer is significant. Improving communication specific on keeping pre-cancer routines and attractiveness between women with breast cancer and their partners could enhance the women's body image.


Asunto(s)
Imagen Corporal , Neoplasias de la Mama , Comunicación , Humanos , Femenino , Neoplasias de la Mama/psicología , Imagen Corporal/psicología , Estudios Transversales , Persona de Mediana Edad , Adulto , Encuestas y Cuestionarios , Esposos/psicología , Relaciones Interpersonales , Masculino , Anciano , Análisis de Regresión , Análisis de Varianza , Resiliencia Psicológica
2.
J Wound Ostomy Continence Nurs ; 51(1): 19-25, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38215293

RESUMEN

PURPOSE: The aim of this scoping literature review was to identify current knowledge related to management of malignant fungating wounds (MFWs), gaps in this knowledge, and areas for future research. METHODS: This was a scoping literature review. SEARCH STRATEGY: Six electronic databases (Embase, MEDLINE, Cochrane (CENTRAL), CINAHL, Scopus, and Web of Science) were searched spanning the years 1987 and 2022. The initial electronic database search retrieved 6041 studies. The search is based on 60 articles published between 1987 and 2022, along with 14 additional studies were based on search of reference lists of key articles. FINDINGS: Studies were divided into 2 main domains; the vast majority (65 of 72, 87.8%) focused on symptom impact, measurement, and management. The remaining articles (n = 9, 12.2%) focused on caring for patients with MFW; these studies focused on nursing care experiences and competencies, along with lay caregiver experiences. Findings indicated that instruments have been developed to evaluate symptoms of MFW but only a few have been validated. Most of the studies reviewed evaluated the influence of MFW on physical and psychosocial function. Local and systematic symptom managements such as modern dressings, wound care strategies, surgery, and radiotherapy as well as chemotherapy were found to be effective in alleviating symptoms. Findings also indicated that families and nurses encounter obstacles and burdens when caring for patients with MFW; limited studies were retrieved that investigated the competence and needs of nurses in their caring journey. IMPLICATIONS: Future studies should focus on: (1) using better designs to evaluate and compare topical agents and dressings to control odor, (2) validating assessment tools specific to MFW, (3) qualitative studies designed to enhance understanding family and nurses' experiences, and (4) improving the nurse's ability to care for patients with MFWs and their responses to managing these challenging patients.


Asunto(s)
Atención de Enfermería , Cuidados Paliativos , Humanos , Vendajes , Odorantes
3.
Artículo en Inglés | MEDLINE | ID: mdl-39031954

RESUMEN

BACKGROUND: Colorectal cancer (CRC) has emerged as one of the most common cancers, with increasing survival rates globally. As patients with CRC experience diverse treatment effects corresponding to different survival stages, understanding their unmet needs based on the survival stage is critical to tailor supportive care with limited medical resources. AIM: This study aimed to understand the unmet needs of patients with CRC across survival stages. METHODS: This scoping review followed the 5-stage framework established by Arksey and O'Malley. Five online databases were searched with narrative synthesis performed after data extraction. RESULTS: Fifteen studies were identified for this review, with 12 focusing on the acute survival stage and three reporting on the extended survival stage. Ten studies used validated scales to assess unmet needs, with the Supportive Care Needs Survey being the most common scale. Unmet needs in patients with CRC demonstrate distinct patterns across survival stages. Most studies reported a higher prevalence of unmet needs during the extended survival stage compared to the acute survival stage. Unmet emotional needs predominate during the acute survival stage, whereas unmet physical needs become most prominent in the extended survival stage. LINKING EVIDENCE TO ACTION: Healthcare providers are encouraged to conduct assessments tailored to the specific survival stage, with particular emphasis on addressing unmet needs during the extended survival stage. The development of standardized scales is recommended to comprehensively assess the unmet needs of patients with CRC.

4.
J Genet Couns ; 2023 May 16.
Artículo en Inglés | MEDLINE | ID: mdl-37194127

RESUMEN

Genetic testing is becoming increasingly available and affordable. Understanding the reasons for individual decisions about genetic testing may assist in the identification of clinically appropriate use of genetic counseling and genetic testing resources. With the ongoing development of cancer genetic counseling services in Taiwan, we conducted this study to understand the characteristics of those seeking cancer genetic counseling and genetic testing and the predictors for undergoing genetic testing after counseling. Cross-sectional with correlational design was used in this study. Surveys completed by patients visiting the genetic counseling clinic at the cancer center included demographics, personal and family history of cancer, and questions on attitudes toward genetic counseling and genetic testing. Multinomial logistic regression was used to analyze the predictors of decision to undergo genetic testing. A total of 120 participants between the years 2018 and 2021 were analyzed, of which 54.2% were referred by health care professionals. The majority (76.7%) had a personal history of cancer and 50% had breast cancer. Over half (53.3%) had a strong family history of cancer defined as two or more 1st-degree relatives having cancer at a young age. Only 35.8% decided to receive genetic testing right after counseling and 47.5% were undecided. The main reason for hesitation or not pursuing testing was cost (41.4%). Multivariate logistic regression analysis showed that a positive attitude toward genetic counseling was significantly associated with the uptake of genetic testing (Odds ratio 7.60, 95% CI 2.34-24.66, p < 0.001). Given the significant number of individuals undecided about genetic testing after counseling, decision aid could be developed to support genetic counseling and increase satisfaction with the testing decision.

5.
Support Care Cancer ; 30(2): 1473-1481, 2022 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-34532754

RESUMEN

PURPOSE: Women whose mothers have been diagnosed with breast cancer are concerned about their mothers' illness and fear developing cancer themselves. This study, conducted in Taiwan, aims to understand daughters' lived experiences after their mothers were diagnosed with breast cancer. METHOD: In-depth interviews were conducted to understand daughters' emotional reactions to their mothers' diagnoses, their challenges with taking care of their mothers, and their concerns or perceptions regarding their own risks of developing breast cancer. Themes were identified using a phenomenological approach with 18 transcripts. RESULTS: Six themes were identified: "taking care of my mother is my responsibility", "desiring sufficient information/support", "feeling helplessness in providing care", "expecting a cancer diagnosis in fear", "anticipating reassurance other than surveillance", and "worrying about myself is not a priority". In addition, these themes reflected their concerns about how to support their mothers physically and psychologically, how to manage their own worries about cancer, and how to maintain their health. CONCLUSION: The daughters prioritized the responsibility of caring for their mothers physically and psychologically rather than managing their own cancer concerns. Health care professionals should be aware of these priorities to provide education regarding the care of high-risk populations and psychological support to adult daughters.


Asunto(s)
Neoplasias de la Mama , Madres , Adulto , Hijos Adultos , Femenino , Humanos , Relaciones Madre-Hijo , Núcleo Familiar
6.
Support Care Cancer ; 30(4): 3625-3632, 2022 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-35028717

RESUMEN

BACKGROUND: Risk management intentions prior to genetic counseling predict risk management uptake following genetic testing. Limited studies examined the attitude and understanding towards genetic counseling/testing in underserved countries. The purposes of this study were to explore knowledge and attitude towards genetic counseling, testing, and risk management for breast and ovarian cancer, and to understand the factors influencing risk management intentions in women with cancer in Taiwan. METHODS: Cross-sectional with correlational design was used in this study. Participants were enrolled for genetic testing based on clinical criteria suspected of having hereditary cancer. Survey was conducted using a standardized questionnaire including (1) demographics and personal/family history of cancer; (2) prior experience or consideration of genetic testing and reasons for not considering; (3) perception and attitude towards genetic counseling; and (4) intentions for risk management with a hypothetical BRCA1 mutation status. Multinomial logistic regression was used to analyze the predictors of participants' intentions for cancer risk management strategies. RESULTS: A total of 430 women with cancer were analyzed in which 51.6% had family history of cancer in first-degree relatives. Only 30.7% had considered genetic testing and 28.4% had known about genetic counseling prior to the study. When prompted with the services of genetic counseling, the attitude towards genetic counseling was fairly positive (score of 19.8 ± 2.9 out of 25). Given hypothetical BRCA1 mutation status, enhanced breast cancer screening with annual breast MRI was much more accepted than cancer risk reducing interventions. More positive attitude towards genetic counseling (each score point increase) was associated with higher odds of intention for breast MRI (OR 1.20, 95% CI 1.09-1.32) and preventive tamoxifen (OR 1.11, 95% CI 1.02-1.22). Having considered genetic testing prior to the study was associated with higher odds of intention for all four risk management strategies: breast MRI (OR 2.99, 95% CI 1.46-6.11), preventive tamoxifen (OR 1.79, 95% CI 1.00-3.17), risk-reducing mastectomy (OR 2.24, 95% CI 1.13-4.42), and risk-reducing salpingo-oophorectomy (OR 2.69, 95% CI 1.27-6.93). CONCLUSION: Knowledge of genetic testing and positive attitude towards genetic counseling were associated with increased willingness to consider cancer risk management strategies for hereditary breast and ovarian cancer syndrome. Given the limited knowledge on genetic testing and counseling in the studied population, increasing public awareness of these services may increase adoption of the risk management strategies.


Asunto(s)
Neoplasias de la Mama , Neoplasias Ováricas , Neoplasias de la Mama/psicología , Estudios Transversales , Femenino , Genes BRCA1 , Genes BRCA2 , Predisposición Genética a la Enfermedad , Pruebas Genéticas , Humanos , Modelos Logísticos , Mastectomía , Mutación , Neoplasias Ováricas/psicología , Gestión de Riesgos , Taiwán
7.
Palliat Support Care ; : 1-9, 2022 Oct 11.
Artículo en Inglés | MEDLINE | ID: mdl-36217687

RESUMEN

BACKGROUND: Adult daughters concerned about getting breast cancer throughout their lives and required support because their mothers had breast cancer. OBJECTIVES: This article aims to examine the revised Information and Support Needs Questionnaire (ISNQ) and validate it in a Taiwanese community population comprising daughters of mothers with breast cancer. METHODS: Using convenience sampling, daughters of mothers with breast cancer were recruited and were separated into 2 samples (Sample 1, n = 102, and Sample 2, n = 118). First, we translated and modified the ISNQ to ensure cultural adaptation and formed ISNQ Chinese version (ISNQ-C). Second, we conducted an exploratory factor analysis using both samples to explore the ISNQ-C factor structure. Finally, we tested the criterion validity and known-group validity of the ISNQ-C using Sample 2. RESULTS: Thirty-two items addressing 5 factors were identified for the ISNQ-C. Each factor had good internal consistency. The criterion validity was supported by significant correlations between the ISNQ-C scores and scores on the impacts of an event, anxiety, and depression. Known-group comparisons revealed that the group with deceased mothers reported significantly more unmet needs related to "releasing my anxiety" compared to the group where the mother was stable and undergoing regular follow-ups. SIGNIFICANCE OF RESULTS: The ISNQ-C demonstrated good reliability and validity in terms of assessing needs among daughters of mothers with breast cancer in Taiwan. Using this assessment tool before genetic counseling to target the individual needs of this population at risk for breast cancer would be helpful to provide personalized care.

8.
J Cancer Educ ; 36(1): 160-167, 2021 02.
Artículo en Inglés | MEDLINE | ID: mdl-31463810

RESUMEN

Women with breast cancer have difficulty deciding whether to undergo breast reconstruction when mastectomy is necessary. A computer-based decision aid that can be individualized to provide both surgery information and value clarification may be helpful for women considering breast reconstruction surgery. The objectives of this study are to program a prototype of an application (app) with a value clarification exercise and to evaluate the pilot usability, feasibility, and efficacy of the app. In phase 1, a prototype app called Pink Journey for use on the iPhone OS (IOS) platform was created following the framework of shared decision making. In phase 2, 11 women who were given the option of reconstruction by a breast surgeon were recruited from July 2017 to December 2017. A pretest-posttest design was adopted to test the usability and feasibility of the app. The results showed that the women who used the app reported significantly less decisional conflict after intervention on each subscale of the Decision Conflict scale, i.e., "being informed", "uncertainty", "social support", "effective decision", and "value clarification". This research provides preliminary data indicating that Pink Journey holds promise for decreasing decision conflict. Most women felt that the app was both helpful and user-friendly. The app increased their participation in decision making, helped them obtain more accurate risk perceptions, and clarified their values. It also helped the women make decisions regarding breast reconstruction more confidently.


Asunto(s)
Neoplasias de la Mama , Mamoplastia , Neoplasias de la Mama/cirugía , Toma de Decisiones , Técnicas de Apoyo para la Decisión , Femenino , Humanos , Mastectomía , Participación del Paciente , Diseño Centrado en el Usuario , Interfaz Usuario-Computador
9.
Support Care Cancer ; 27(5): 1721-1728, 2019 May.
Artículo en Inglés | MEDLINE | ID: mdl-30132239

RESUMEN

PURPOSE: This study examines the influence of partner involvement in decision-making for breast reconstruction (BR) on women's body image and post-BR decision regret. METHODS: A cross-sectional and correlational approach was used in a convenience sample of 105 women in Taiwan who had breast cancer (BC) whose partners were involved in decision-making for BR. A structured questionnaire including the Involvement in the Breast Reconstruction Decision-Making Process Scale, the Body Image Scale, and the Decision Regret Scale was administered. Pearson's r and path analysis were used to examine the relationships among the dyadic BR decision-making process, women's body image, and decision regret. RESULTS: The greater the amount of medical information women had, the better their body image and the less decision regret they experienced. Moreover, partner involvement was not related to women's body image, though it was inversely related to women's decision regret. The final path model showed that the amount of medical information women obtained was directly related to body image and decision regret, while body image also directly influenced decision regret. Overall, the amount of medical information women obtained and their body image explained 45% of the variance in decision regret. CONCLUSIONS: Medical teams should provide female BC patients with complete medical information, and through partner involvement, women can be supported to make an appropriate decision regarding BR to achieve optimal levels of body image and lower levels of decision regret.


Asunto(s)
Imagen Corporal/psicología , Neoplasias de la Mama/psicología , Neoplasias de la Mama/cirugía , Toma de Decisiones , Emociones , Mamoplastia/psicología , Parejas Sexuales/psicología , Adulto , Estudios Transversales , Femenino , Humanos , Masculino , Mamoplastia/métodos , Persona de Mediana Edad , Encuestas y Cuestionarios , Taiwán
10.
Psychooncology ; 27(1): 236-242, 2018 01.
Artículo en Inglés | MEDLINE | ID: mdl-28699657

RESUMEN

OBJECTIVE: The aims of the study were to modify the Cancer Survivor's Unmet Need (CaSUN) Scale into a short form and then test its psychometric scale-specific properties for breast cancer survivors in Taiwan. METHODS: Using convenience sampling, recruited breast cancer survivors were separated into 2 samples (sample 1, n = 150, and sample 2, n = 162). First, we translated and modified the CaSUN to ensure cultural adaptation. Second, we used statistical methods to eliminate some items and conducted an exploratory factor analysis (EFA) using sample 1 to explore the factor structure of the CaSUN-C. Finally, we conducted a confirmatory factor analysis using sample 2 to confirm the structure suggested by the EFA and tested the criterion validity and known-group validity of the CaSUN-C. RESULTS: Twenty items within 4 factors (information, physical /psychological, medical care, and communication needs) were identified for the CaSUN-C. Each factor had acceptable internal consistency (Cronbach's Alpha = .61 to .82). The criterion validity was supported by the significant correlations between the CaSUN-C scores and scores on fear of recurrence and depression. Known-group comparisons revealed that women who survived more than 60 months had fewer physical/psychological needs than those less 60 months, which supported the validity of CaSUN-C. CONCLUSION: The CaSUN-C demonstrated acceptable reliability and validity for assessing unmet needs among breast cancer survivors in Taiwan. Using this simple assessment to target the individual needs of these survivors can help healthcare professionals provide personalized care efficiently.


Asunto(s)
Neoplasias de la Mama/psicología , Supervivientes de Cáncer/psicología , Necesidades y Demandas de Servicios de Salud , Evaluación de Necesidades/normas , Encuestas y Cuestionarios/normas , Adulto , Anciano , Pueblo Asiatico , Neoplasias de la Mama/etnología , Depresión , Miedo , Femenino , Humanos , Persona de Mediana Edad , Recurrencia Local de Neoplasia , Psicometría , Reproducibilidad de los Resultados , Taiwán , Traducción
11.
Hu Li Za Zhi ; 65(4): 84-93, 2018 Aug.
Artículo en Zh | MEDLINE | ID: mdl-30066326

RESUMEN

BACKGROUND: Dyspnea is a subjective symptom of breathing discomfort that is commonly experienced by terminally ill patients in the last few weeks of life. Fans have been used to reduce breathlessness in clinical practice for terminally ill patients. However, reviews in the systematic literature are insufficient to make definite conclusions regarding the effectiveness of this intervention and to provide a consistent protocol for clinical application. PURPOSE: The purpose of the present study was to evaluate the effects and clinical application of using fans in dyspnea patients. METHODS: A systematic review was used. Relevant articles published prior to September 2017 were retrieved from electronic databases including PubMed, CINAHL, MEDLINE, PsycINFO, and Cochrane CENTRAL. Keywords and MeSH terms were identified for each PICO (participant, intervention, comparison, outcome) element, including dyspnea, breathless, breath shortness, breathing difficulty or labored respiration, fan, and scale. A total of 41 articles that matched the search criteria were extracted. After screening the topics, deleting repetitions, and doing critical appraisals, three randomized controlled trials were selected for further analysis. The GRADE (grading of recommendations assessment, development and evaluation) quality of evidence rating was intermediate. RESULTS: The systematic review of the three articles revealed that a fan set at low speed with facial cooling of the 2nd and 3rd branches of the trigeminal nerve as soon as possible for 5 minutes and at a distance that is comfortable for the participant may relieve subjective feelings of dyspnea in nonhypoxic patients (e.g., cardiopulmonary disease and cancer) better than drugs and oxygen treatment alone. CONCLUSIONS / IMPLICATIONS FOR PRACTICE: Reducing the subjective feelings of dyspnea is the first step for nonhypoxic patients. Using a fan to relieve dyspnea is an evidence-based, non-invasive, economical, and effective nonpharmacological palliative intervention.


Asunto(s)
Disnea/prevención & control , Humanos , Ensayos Clínicos Controlados Aleatorios como Asunto
12.
Hu Li Za Zhi ; 63(3): 83-93, 2016 Jun.
Artículo en Zh | MEDLINE | ID: mdl-27250962

RESUMEN

BACKGROUND: Acid regurgitation typically worsens during nighttime sleep, which influences the quality of life of patients and potentially causes pathological changes. As much as 80% of esophageal cancer patients experience acid regurgitation following esophagectomy and reconstruction surgery. Thus, improving this symptom is important to improving the quality of life of these patients. PURPOSE: The purpose of the present study was to evaluate the effect of elevating the head of the bed for patients with gastroesophageal reflux disease (GERD). METHODS: A systematic review was used. Electronic databases including CINAHL (Cumulative Index to Nursing and Allied Health Literature), Cochrane Library, ProQuest, and PubMed/MEDLINE were retrieved for relevant articles that were published prior to June 2015. Keywords included "elevating the head of the bed/bed position/body position", "flat", "reflux", and the MeSh term "gastroesophageal reflux". A total of 37 articles that matched the search criteria were extracted. After screening the topics and deleting repetitions, three randomized controlled studies and one quasi-experimental designed study were selected. RESULTS: Results of this systemic review revealed that elevating the head of the bed for patients with GERD reduced the duration of exposure of the the esophagus to an acid environment. Furthermore, patients perceived that this intervention not only improved symptoms such as regurgitation and burn sensation without medication but also relieved symptoms better than taking medications alone. CONCLUSIONS: The reviewed studies support that elevating the head of the bed is an easy and effective way to alleviate the symptoms of acid regurgitation. A height of elevation of 20 to 28 cm is recommended in the literature. The slope of the elevated bed must also be considered. Elevating the head of the bed may be useful for improving acid regurgitation among esophageal cancer patients after surgery. A randomized controlled study may be used to validate this effect in the future.


Asunto(s)
Lechos , Neoplasias Esofágicas/cirugía , Reflujo Gastroesofágico/prevención & control , Posicionamiento del Paciente/métodos , Monitorización del pH Esofágico , Esofagectomía , Esofagoscopía , Humanos , Postura
13.
Psychooncology ; 24(12): 1815-22, 2015 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-26110591

RESUMEN

PURPOSE: The aims of the study were the following: (1) to understand the relationship between women's perceptions of empathy from their partners and their depressive symptoms and body image and (2) to examine the moderating effects of women's perceptions of empathy from their partners on the relationship between body image and depressive symptoms. METHODS: A cross-sectional and correlational design was used, in which a convenience sample of 151 women who completed surgery and the necessary chemotherapy/radiotherapy were recruited from southern Taiwan. A structured questionnaire including the Other Dyadic Perspective-Taking Scale, the Body Image Scale, and the Center for Epidemiologic Studies Depression scale were administered. Hierarchical regression was used to examine the moderating effects of empathy from partners between the women's body image and their level of depressive symptoms. RESULTS: The results showed significant relationships between empathy from a partner and depressive symptoms (p < 0.001). However, there was no significant relationship between empathy from a partner and body image (p > 0.05). The moderating effect of empathy from a partner on the relationship between body image and depressive symptoms was also significant (p < 0.01). CONCLUSION: The more empathy women perceived from partners, the fewer depressive symptoms women reported. Empathy from a partner could moderate the impact of body image changes on depressive symptoms. Women's depressive symptoms, resulting from a change in body image after breast cancer surgery, might be minimized if they perceived greater empathy from their partners.


Asunto(s)
Imagen Corporal , Neoplasias de la Mama/psicología , Depresión/diagnóstico , Empatía , Parejas Sexuales/psicología , Sobrevivientes/psicología , Adulto , Anciano , Neoplasias de la Mama/cirugía , Estudios Transversales , Depresión/psicología , Femenino , Humanos , Mastectomía , Persona de Mediana Edad , Encuestas y Cuestionarios , Taiwán
14.
Support Care Cancer ; 23(9): 2551-9, 2015 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-25617071

RESUMEN

PURPOSE: The aims of the study were (1) to understand the relationship between women's marital coping efforts and body image as well as sexual relationships and (2) to test a hypothesized model suggesting that marital coping efforts have a mediating effect on the relationship between body image and sexual relationships among breast cancer survivors. METHODS: A total of 135 breast cancer survivors who had finished cancer treatment completed a self-reported questionnaire concerning body image, marital coping efforts, and sexual relationship. RESULTS: Body image, marital coping, and sexual relationship were found to be significantly correlated with each other. The final path model showed that negative marital coping efforts, including avoidance and self-blame, significantly mediated the effect of women's body image on their sexual relationships. Although a positive approach did not correlate with body image, it did significantly correlate with women's sexual relationships. CONCLUSIONS: Our study demonstrated that negative marital coping using self-blame and avoidance mediated the association between body image and sexual relationship. Future interventions to address the body image and sexual life of breast cancer survivors should be considered using positive approaches that prevent disengaged avoidance or self-blame coping efforts intended to deal with marital stress.


Asunto(s)
Adaptación Psicológica , Imagen Corporal/psicología , Neoplasias de la Mama/psicología , Matrimonio , Sexualidad/psicología , Adulto , Femenino , Humanos , Persona de Mediana Edad , Conducta Sexual , Encuestas y Cuestionarios , Sobrevivientes
15.
J Pain Symptom Manage ; 68(1): 69-77.e1, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38621610

RESUMEN

CONTEXT: Malignant fungating wounds (MFWs) occur among 5%-15% of patients with terminal cancers, the uncontrollable symptoms result in serious psychosocial issues, thereby reducing the quality of life. Caring for MFWs impacts caregivers, including healthcare personnel. While existing studies are patient-focused, the impact of care experiences and associated support for nurses has not been examined. OBJECTIVES: To explore the experiences in caring for patients with MFWs among nurses in Taiwan. METHODS: Qualitative study with a phenomenological approach by thematic analysis was conducted with semi-structured interviews. About 15 nurses who cared for patients with MFWs at local district hospitals in Southern Taiwan. RESULTS: Four themes were identified to describe the phenomenon: (1) Fear of Unpredictability (2) Maintaining Professionalism (3) Feeling Helpless (4) Rationalizing the Negatives. The themes illustrated the distress of managing physical symptoms and highlighted how nurses strived to promote comfort for patients. Nurses felt helpless about the incurable nature of MFWs but found a way to suppress their feelings. CONCLUSION: The findings suggested the need for addressing the emotional well-being of nurses who take care of patients with MFWs. Future studies should identify effective coping strategies for nurses' health when caring for this population.


Asunto(s)
Actitud del Personal de Salud , Profesionalismo , Investigación Cualitativa , Humanos , Taiwán , Femenino , Adulto , Masculino , Persona de Mediana Edad , Enfermeras y Enfermeros/psicología , Neoplasias/enfermería , Adaptación Psicológica , Miedo , Entrevistas como Asunto
16.
Breast Cancer Res Treat ; 137(1): 13-21, 2013 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-23225142

RESUMEN

The purpose of this study was to analyze the available evidence concerning the effects of breast reconstruction (BR) on body image of women with breast cancer. BR is a potential intervention to improve the body image of women with breast cancer. Conflicting research findings about the effects of breast reconstructive surgery on body image compared to breast conservative surgery (BCS) or mastectomy exist. A meta-analysis of studies found in MEDLINE, CINAHL, PsychINFO, PubMed as well as PQDT (dissertation and theses), and other unpublished literature resources from 1970 to 2010 were searched. Comparable studies that examined the difference of body image between breast cancer women receiving mastectomy plus BR and those with BCS were included. A clear definition about the domains of body image including body stigma, body concern, and transparency were identified. Mean effect sizes were calculated. Twelve studies were included in the meta-analysis. Women with BR and BCS were no different on the body concern domain of body image. However, women with BR had a significantly worse score on body stigma domain of body image than women receiving BCS. Women with BR had a better body image score than women with mastectomy. Women who are satisfied with their body shape may still perceive deficiencies because of the stigma of mastectomy and affect on body image. Consistent application of valid and reliable measures of body image specific to breast cancer women is needed.


Asunto(s)
Imagen Corporal , Neoplasias de la Mama/cirugía , Mamoplastia/psicología , Mastectomía Radical Modificada/psicología , Mastectomía Segmentaria/psicología , Neoplasias de la Mama/psicología , Femenino , Humanos
17.
Cancer Nurs ; 46(3): 233-247, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-35349543

RESUMEN

BACKGROUND: Stomas in colorectal cancer (CRC) survivors lead to body image problems. Advances in treatment help reduce the rate of stoma formation, but body image distress is still frequently experienced in CRC survivors. OBJECTIVES: This review is aimed toward mapping and describing the state of knowledge regarding body image in patients with CRC. METHODS: A systematic literature search complying with the Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines was conducted. Screening and data extraction were performed by 2 reviewers independently for all potentially eligible studies. RESULTS: A total of 56 eligible articles were selected. The majority of these studies were quantitative studies (85%). The eligible studies were classified into 4 broad categories: instruments used to assess body image, prevalence of body image distress, factors related to body image, and impact of body image distress. The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-CR38) colorectal questionnaire was the most common measurement tool found among the reviewed studies (70%), and body image distress was reported by 25.5% to 86% of participants. Excluding gender, age, type of surgery, adjuvant therapy, time from diagnosis, social support, and stoma status, changes in bowel habits was identified as affecting the body image of patients with CRC. CONCLUSION: Changing bowel habits emerged as a significant factor causing body image distress for CRC survivors. IMPLICATIONS FOR PRACTICE: Clinicians should raise awareness about body image distress in patients with CRC, focus on finding effective measures and interventions intended to help alleviate symptoms of bowel dysfunction, and prepare patients to adapt to altered bowel functions.


Asunto(s)
Supervivientes de Cáncer , Neoplasias Colorrectales , Humanos , Imagen Corporal , Neoplasias Colorrectales/terapia , Neoplasias Colorrectales/cirugía , Calidad de Vida , Encuestas y Cuestionarios , Sobrevivientes
18.
Breast Cancer ; 30(2): 226-240, 2023 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-36319889

RESUMEN

BACKGROUND: Surgical decisions and methods of surgery highly influence long term QoL for breast cancer (BC) survivors. This study is aimed towards an exploration of the dynamic changes in quality of life (QoL), anxiety/depression status, and body image (BI) among women with BC who received a mastectomy compared with those receiving breast reconstruction (BR) within an 8-year follow-up period. METHODS: Women with major BC surgeries were invited to complete the World Health Organization Quality of Life-Brief (WHOQOL-BREF), the European quality of life five dimensions questionnaire (EQ-5D), and a body image scale within 8 years of surgery. Kernel smoothing methods were applied to describe dynamic changes in QoL, anxiety/depression, and BI at different time points. Linear mixed effects models were constructed to identify the interaction between time, different types of surgery, and the determinants of QoL in these patients. RESULTS: After 1:10 propensity score matching, a total of 741 women who had undergone a BR and mastectomy were included. The BR group exhibited a high WHOQOL QoL score one to five years after surgery with some fluctuations. The mastectomy group had comparatively stable QoL scores on WHOQOL items and were less depressed/anxious. The BR group generally showed fluctuating, higher BI scores two years after surgery, but they exhibited more anxiety/depression during follow up for 8 years. Medical comorbidities, the status of anxiety/depression, and BI were the major factors influencing all domains and items of the WHOQOL BREF among women with BC. CONCLUSION: The mastectomy group showed a decreased trend toward depression in patients with BC. The BR group showed a significant improvement in QoL in the first 5 years with massive fluctuations. These findings should be considered and discussed in patient participatory decision-making and promotion of QoL for breast cancer survivors.


Asunto(s)
Neoplasias de la Mama , Mamoplastia , Femenino , Humanos , Mastectomía/métodos , Calidad de Vida/psicología , Neoplasias de la Mama/cirugía , Estudios de Seguimiento , Imagen Corporal , Mamoplastia/métodos , Encuestas y Cuestionarios
19.
Hu Li Za Zhi ; 59(5): 49-56, 2012 Oct.
Artículo en Zh | MEDLINE | ID: mdl-23034547

RESUMEN

BACKGROUND: Smoking cessation has been an important issue of concern for Taiwan's psychiatric nurses since promulgation of the Tobacco Hazards Prevention Act. However, Taiwan has lacked a qualified tool to evaluate the self-efficacy of nurses in providing smoking cessation services. PURPOSE: The purpose of this study was to validate the Chinese version of the Self- Efficacy in Smoking Cessation Service Scale (SE-SCS). METHODS: A back translation approach was used to develop the SE-SCS Chinese version. We enrolled 193 psychiatric nurses from two psychiatric centers in central and southern Taiwan to assess the reliability and validity of the Chinese version scale using internal consistency, test-retest, factor analysis, and concurrent criteria validity. RESULTS: The reliability of the SE-SCS Chinese version was assessed as good (Cronbach's α = .85) and the Pearson correlation for total test-retest score was acceptable (r = .65, p = .004). Explanatory factor analysis revealed that one factor explained 63.4% of total variance. As to the criteria validity, frequency of smoking cessation service provision was the main criterion, with a correlation of 0.25-0.26. We identified a low, but significant correlation (p < .001). CONCLUSION: The SE-SCS Chinese version appears to be a valid measure for assessing psychiatric nurse self-efficacy in providing smoking cessation services.


Asunto(s)
Enfermería Psiquiátrica , Autoeficacia , Cese del Hábito de Fumar/psicología , Adulto , Femenino , Humanos , Lenguaje , Masculino , Reproducibilidad de los Resultados
20.
Hu Li Za Zhi ; 58(4): 75-80, 2011 Aug.
Artículo en Zh | MEDLINE | ID: mdl-21809290

RESUMEN

The female breast is intimately tied to social values that define the ideal body standard for women. As such, women's bodies are regarded as objects to be evaluated and judged. This paper analyzed the experience of women with breast cancer after mastectomy from the perspective of objectification theory. The authors found that not only medical technology but women themselves objectified the female body. The process of patient-physician communication also strengthened the objectification phenomenon for post-mastectomy women. We found that women with breast cancer worried about facing critical evaluation from the public after losing their breasts and needed to cope with the stress of losing a part of their physical self. Social and cultural antecedents that regard breasts as "objects" strongly influence the perspectives of women facing breast cancer. We hope this analysis may assist healthcare professionals to understand how women's bodies are objectified after mastectomy and consider how to care for this population more appropriately.


Asunto(s)
Neoplasias de la Mama/cirugía , Mastectomía/psicología , Imagen Corporal , Neoplasias de la Mama/enfermería , Neoplasias de la Mama/psicología , Femenino , Humanos
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