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Community Genet ; 11(4): 201-7, 2008.
Artículo en Inglés | MEDLINE | ID: mdl-18417967

RESUMEN

BACKGROUND/AIMS: Reduced minority participation in clinical research challenges researchers to consider novel recruitment modalities. This study describes a formal partnership between the National Educational Foundation of the Zeta Phi Beta Sorority and the Mid-Atlantic Cancer Genetics Network. The goal was to enhance awareness about inherited breast cancer and to increase enrollment in the national Cancer Genetics Network. METHODS: In this descriptive, pilot study, two recruitment strategies across four states were undertaken: an onsite educational session at four Annual State Leadership Conferences and a 2-tiered direct mail campaign to the sorority membership. RESULTS: Recruitment methods targeted over 1,200 well-educated African American women. Of the 279 attendees at the state conference educational sessions, only 3 women meeting the high risk eligibility requirement enrolled. Direct mail recruitment elicited 24 eligible women. Lessons learned are described. CONCLUSION: Despite low accrual, the partnership laid a foundation for broader collaboration with the Zeta Phi Beta Sorority. In the future, collaboration with minority sororities and fraternities as part of standard registry recruitment should be explored.


Asunto(s)
Negro o Afroamericano/genética , Investigación Genética , Oncología Médica , Neoplasias/psicología , Participación del Paciente , Grupo Paritario , Estudiantes/psicología , Adulto , Negro o Afroamericano/psicología , Anciano , Femenino , Humanos , Persona de Mediana Edad , Neoplasias/genética , Sistema de Registros , Encuestas y Cuestionarios
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