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1.
Soins Pediatr Pueric ; 41(313): 38-43, 2020.
Artículo en Francés | MEDLINE | ID: mdl-32446556

RESUMEN

In order to optimize the care of young hospitalized children with eating disorders, the Orality group at the Necker-Enfants malades University Hospital in Paris has created a therapeutic education tool: the Fleur des sens. This flower which is to be colored at the end of the meal with the child has nine petals representing nine foods that make up the meal, which were initially difficult or even impossible for the young patient to eat. This tool participates in the educational diagnosis and then in the formative evaluation of the child. It is also useful for the parents' understanding of the disease, making the link between sensoriality and food orality.


Asunto(s)
Trastornos de Alimentación y de la Ingestión de Alimentos/diagnóstico , Hospitalización , Hospitales Universitarios , Humanos , Lactante , Paris
2.
Soins Pediatr Pueric ; 37(293): 37-42, 2016.
Artículo en Francés | MEDLINE | ID: mdl-27837771

RESUMEN

To support children and their families with weaning off artificial nutrition, a psychomotor therapist and speech therapist from the 'Pierre Robin syndrome and congenital sucking-swallowing disorders' specialist rare disease centre at Necker-Enfant Malades hospital in Paris, have set up a joint consultation, as a complement to medical consultations. This programme shows how speech therapy and psychomotor education can complement each other in order to help children and their parents during this difficult period.


Asunto(s)
Apoyo Nutricional , Logopedia , Niño , Trastornos de Deglución/terapia , Trastornos de Ingestión y Alimentación en la Niñez/terapia , Humanos , Trastornos Psicomotores/prevención & control
3.
Eur J Clin Nutr ; 76(4): 505-515, 2022 04.
Artículo en Inglés | MEDLINE | ID: mdl-34462558

RESUMEN

Enteral nutrition (EN) allows adequate nutritional intake in children for whom oral intake is impossible, insufficient or unsafe. With maturation and health improvements, most children ameliorate oral skills and become able to eat orally, therefore weaning from EN becomes a therapeutic goal. No recommendations currently exist on tube weaning, and practices vary widely between centres. With this report, the French Network of Rare Digestive Diseases (FIMATHO) and the French-Speaking Group of Paediatric Hepatology, Gastroenterology and Nutrition (GFHGNP) aim to develop uniform clinical practice recommendations for weaning children from EN. A multidisciplinary working group (WG) encompassing paediatricians, paediatric gastroenterologists, speech-language therapists, psychologists, dietitians and occupational therapists, was formed in June 2018. A systematic literature search was performed on those published from January 1, 1998, to April 30, 2020, using MEDLINE. After several rounds of e-discussions, relevant items for paediatric tube weaning were identified, and recommendations were developed, discussed and finalized. The WG members voted on each recommendation using a nominal voting technique. Expert opinion was applied to support the recommendations where no high-quality studies were available.


Asunto(s)
Nutrición Enteral , Guías de Práctica Clínica como Asunto , Niño , Nutrición Enteral/métodos , Humanos , Estado Nutricional , Destete
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