RESUMEN
OBJECTIVE: To explore the perspective of parents with regard to disclosure of disability and early follow-up care. DESIGN: The research approach was hermeneutic phenomenology. Data were collected using focused interviews that were audio-taped, transcribed and interpreted. SETTING: Scotland. PARTICIPANTS: The parents of 63 children born with a congenital limb deficiency. FINDINGS: The findings demonstrate the complexity and variability in parental response. Additionally, what is shown is that disclosure was often handled poorly and that the support offered during the stay in the maternity unit was frequently inadequate. CONCLUSION: In order to handle disclosure effectively, health professionals require appropriate education and training and it is recommended that innovative ways of encouraging discussion and debate are sought.
Asunto(s)
Actitud Frente a la Salud , Niños con Discapacidad/psicología , Deformidades Congénitas de las Extremidades/diagnóstico , Padres/psicología , Relaciones Profesional-Familia , Revelación de la Verdad , Adaptación Psicológica , Adulto , Femenino , Humanos , Recién Nacido , Masculino , Cuerpo Médico de Hospitales/psicología , Enfermeras Obstetrices/psicología , Investigación Metodológica en Enfermería , Alta del Paciente , Embarazo , Apoyo Social , Encuestas y CuestionariosRESUMEN
This article is predominantly concerned with the value of single-case research designs for generating nursing knowledge. The argument in favour of single-case research designs is made with reference to the testing of a range of body-worn incontinence pads in a group of cognitively impaired elderly women in two clinical settings.
Asunto(s)
Investigación en Enfermería Clínica/métodos , Pañales para la Incontinencia , Proyectos de Investigación , Incontinencia Urinaria/enfermería , Anciano , Análisis Costo-Beneficio , Femenino , Humanos , Pañales para la Incontinencia/economía , Pañales para la Incontinencia/normasRESUMEN
AIM: To explore the impact of parent-to-parent support when a child is born with a disability. DESIGN: The research approach was qualitative. Data were collected retrospectively and were derived from in-depth interviews with parents. The audio-taped interviews were transcribed and then analysed using constant comparative procedures. SETTING: Scotland. PARTICIPANTS: The parents of 63 children born with a congenital upper limb deficiency. FINDINGS: The early weeks and months following the birth of their baby was a difficult and emotional time for most parents. Feelings of isolation were common and there was a lot of concern about what the future would hold. Although a certain amount of support was derived from contact with family, friends and health professionals, parents did not generally obtain the level of support that was required from these sources. Contact with other parents of limb-deficient children, however, clearly exerted a powerful stress-buffering influence, providing much needed emotional, social and practical support. CONCLUSIONS: This study suggests that parents of children with special needs are uniquely qualified to help each other. The challenge is to ensure that health professionals are aware of the potential benefits of parent-to-parent support and provide parents with information about appropriate local organizations/ contacts.