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1.
Am J Geriatr Psychiatry ; 32(10): 1187-1199, 2024 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-38839462

RESUMEN

OBJECTIVES: Cognitive impairment poses considerable challenges among older adults, with the role of family support becoming increasingly crucial. This study examines the association of children's residential proximity and spousal presence with key modifiable risk factors for dementia in cognitively impaired older adults. METHODS: We analyzed 14,600 individuals (35,165 observations) aged 50 and older with cognitive impairment from the Health and Retirement Study (1995-2018). Family support was categorized by spousal presence and children's residential proximity. Modifiable risk factors, including smoking, depressive symptoms, and social isolation, were assessed. Associations between family support and the modifiable risk factors were determined using mixed-effects logistic regressions. RESULTS: A significant proportion of older adults with cognitive impairment lacked access to family support, with either no spouse (46.9%) or all children living over 10 miles away (25.3%). Those with less available family support, characterized by distant-residing children and the absence of a spouse, had a significantly higher percentage of smoking, depressive symptoms, and social isolation. Moreover, we revealed a consistent gradient in the percentage of the risk factors by the degree of family support. Relative to older adults with a spouse and co-resident children, those without a spouse and with all children residing further than 10 miles displayed the highest percentage of the risk factors. These findings were robust to various sensitivity analyses. CONCLUSIONS: Family support from spouses and nearby children serves as a protective factor against modifiable dementia risk factors in cognitively impaired older adults. Policies that strengthen family and social support may benefit this population.


Asunto(s)
Disfunción Cognitiva , Demencia , Apoyo Social , Humanos , Masculino , Femenino , Demencia/epidemiología , Anciano , Disfunción Cognitiva/epidemiología , Factores de Riesgo , Persona de Mediana Edad , Esposos/psicología , Esposos/estadística & datos numéricos , Depresión/epidemiología , Aislamiento Social/psicología , Anciano de 80 o más Años , Fumar/epidemiología , Familia/psicología , Apoyo Familiar
2.
Ann Behav Med ; 58(7): 477-487, 2024 Jun 18.
Artículo en Inglés | MEDLINE | ID: mdl-38795386

RESUMEN

BACKGROUND: Latino/a/x families experience persistent Type 2 diabetes mellitus (T2DM) disparities, including higher rates of diagnosis and mortality due to disease complications than their non-Hispanic White counterparts. Though greater social support is associated with improved disease outcomes for Latino/a/x patients with diabetes, research has yet to identify the specific pathways through which social support, and specifically family support, influences self-management. PURPOSE: This study tested a theoretical model highlighting the mechanisms and pathways linking social support and physical health. Specifically, self-efficacy and depression were tested as psychological pathways connecting family support to diabetes self-management behaviors and diabetes morbidity in Latino/a/x patients with T2DM. METHODS: Data from 177 patients were analyzed using structural equation modeling. Measures included diabetes-specific family support needed and received, depressive symptoms, self-efficacy in diabetes management, diabetes self-management behaviors, health appraisal, and hemoglobin A1c. RESULTS: Greater diabetes-specific family support was significantly associated with more frequent engagement in diabetes self-management behaviors, both directly (p < .001) and through diabetes self-efficacy's partial mediation of this relationship (p = .013). Depression was not significantly associated with either family support (support received, p = .281; support needed, p = .428) or self-management behaviors (p = .349). CONCLUSIONS: Family support and diabetes self-efficacy may be important modifiable psychosocial factors to target via integrated care interventions aimed at supporting Latino/a/x patients with T2DM. Future research is needed to test empirically based, culturally adapted interventions to reduce T2DM-related health disparities in this population.


Latino/a/x families experience persistent diabetes disparities, including higher rates of diagnosis and mortality due to disease complications than their non-Hispanic White counterparts. Though greater social support is associated with improved disease outcomes for Latino/a/x patients with diabetes, research has yet to identify the specific pathways through which social support, and specifically family support, influences self-management. This study examined diabetes self-efficacy and depression as potential links in the relationship between family support and diabetes self-management behaviors. Analyses revealed a significant association between greater diabetes-related family support and more frequent engagement in diabetes self-management behaviors, both directly and through diabetes self-efficacy's partial mediation of the relationship. This points to family support and diabetes self-efficacy as important modifiable psychosocial factors that can be targeted in integrated care interventions aimed at supporting Latino/a/x patients with diabetes.


Asunto(s)
Depresión , Diabetes Mellitus Tipo 2 , Apoyo Familiar , Hispánicos o Latinos , Autoeficacia , Automanejo , Apoyo Social , Adulto , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Depresión/terapia , Depresión/psicología , Depresión/etnología , Diabetes Mellitus Tipo 2/terapia , Diabetes Mellitus Tipo 2/psicología , Diabetes Mellitus Tipo 2/etnología , Hemoglobina Glucada/metabolismo , Conductas Relacionadas con la Salud , Hispánicos o Latinos/psicología , Hispánicos o Latinos/estadística & datos numéricos , Poblaciones Vulnerables
3.
J Surg Res ; 303: 519-531, 2024 Oct 18.
Artículo en Inglés | MEDLINE | ID: mdl-39426064

RESUMEN

INTRODUCTION: Firearm victims sustain a disproportionate mental health burden. Inpatient pediatric psychology consult liaison (CL) services provide comprehensive evaluation after injury. We aim to explore CL documentation qualitatively to better understand the initial psychological experience after firearm injury in children compared to motor vehicle crash (MVC) injury. We hypothesized that meaningful differences between the cohorts would be evident by thematic, sentiment, and word cloud analyses of CL notes. MATERIALS AND METHODS: This single-institution, retrospective study at a level I pediatric trauma center identified 5-17-y-old children who sustained firearm injuries and were admitted for ≥48 h from January 1, 2016 to March 31, 2021. Firearm-injured children were propensity score-matched to MVC-injured children. Thematic, sentiment, and word cloud analyses were completed for all CL notes. RESULTS: 98 firearm-injured children were identified. The CL service evaluated 71% of firearm-injured children and 65% of MVC-injured children. Domains of resources, encountering the medical system, prior psychological and legal influences, immediate cognitive reactions, and social influences were identified based on extracted themes. Sentiment analysis revealed more negative than positive words for both firearm- (3318 versus 2190 words) and MVC-injured children (2225 versus 1994 words). Word cloud showed that firearm-injured child notes more frequently mentioned "trauma", while MVC-injured child notes more frequently mentioned "family" and "support". CONCLUSIONS: The pediatric CL note analysis suggests that the experience after firearm injury differs from that after MVC injury in reference to family and support. CL notes covered a breadth of topics beyond the psychological impact alone. Understanding the experiences of injured children in relation to injury mechanism offers opportunity for focused intervention strategies.

4.
Pediatr Blood Cancer ; 71(2): e30783, 2024 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-38009632

RESUMEN

Researchers use patient-reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child-caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting is a crucial element of supporting families and can improve family harmony throughout the child's illness journey. This paper offers strategies and language for communicating with families about PRO disagreement.


Asunto(s)
Cuidadores , Neoplasias , Niño , Humanos , Medición de Resultados Informados por el Paciente
5.
Support Care Cancer ; 32(7): 435, 2024 Jun 15.
Artículo en Inglés | MEDLINE | ID: mdl-38878200

RESUMEN

PURPOSE: A new Parent Support Worker (PSW) service was piloted in three Australian hospitals. This study assesses the feasibility and acceptability (including preliminary effectiveness) of the service in supporting cancer patients with children. METHODS: A multi-site, mixed-methods study collected quantitative and qualitative data on the effectiveness of the service (pre post-test, n = 36), qualitative and quantitative data on acceptability of the service (survey, n = 43), and qualitative data on acceptability (semi-structured interviews, n = 13). Feasibility was assessed through rates of service uptake amongst referred parents. RESULTS: Of 1133 parents referred, 810 (71%) accepted to receive the service, suggesting high interest in PSW support. Interviewees likewise reported that the service was accessible and facilitated further referrals, indicating good feasibility. Surveys completed three months after accessing PSW support showed high acceptability and satisfaction. Additionally, there was preliminary evidence of service impacts: parents' distress, parenting concerns, parenting efficacy, and stress about situations of concern improved significantly from pre- to post-service (all p < 0.005). Interviewees further described how their emotional coping and confidence to support and communicate with their children had improved through contact with the service. CONCLUSION: The PSW service, integrated into a novel cross-sector model of care, showed to be feasible and acceptable to parent patients and their partners and improved psychological and parenting outcomes. The study suggests refinements to the service and the need for future larger studies to explore the effectiveness of the service in improving parents' outcomes. This study complements previous evidence on the implementation of the PSW service in hospitals.


Asunto(s)
Estudios de Factibilidad , Neoplasias , Padres , Humanos , Neoplasias/terapia , Neoplasias/psicología , Padres/psicología , Masculino , Femenino , Australia , Adulto , Niño , Proyectos Piloto , Adaptación Psicológica , Apoyo Social , Persona de Mediana Edad , Adolescente , Encuestas y Cuestionarios , Preescolar
6.
Eur J Oral Sci ; 132(3): e12985, 2024 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-38520668

RESUMEN

The association between dental caries experience and socioeconomic status, as reflected in income and educational level, is well known. However, some individuals maintain good health despite socioeconomic disadvantage. The aim of this qualitative study was to explore salutogenic (health-promoting) factors among healthy caries-free young adults of low socioeconomic status. Seventeen participants (11 women), 19-23 years of age, who were caries-free and of low socioeconomic status were interviewed in-depth. The interviews were transcribed verbatim and analysed using qualitative content analysis with an inductive approach. The theme revealed was 'Building trust and shifting responsibility from parent to child throughout children's development lays the salutogenic foundation for oral health', comprising three categories: (i) a basis for health; (ii) creating one's own path by testing wings; and (iii) developing resources for health. A feeling of trust was expressed, participants were confident in the unconditional support of their caregivers, and caregivers were trusting participants to be able to take control over their own oral health. Health-promotive factors were established not only by instilling healthy habits during childhood, but also by parental guidance through adolescence, enabling young adults to develop resources and assets to take control over their own health independently.


Asunto(s)
Salud Bucal , Investigación Cualitativa , Clase Social , Confianza , Humanos , Femenino , Masculino , Adulto Joven , Conductas Relacionadas con la Salud , Factores Socioeconómicos , Actitud Frente a la Salud , Promoción de la Salud , Relaciones Padres-Hijo , Caries Dental , Escolaridad , Higiene Bucal , Entrevistas como Asunto , Apoyo Social
7.
Fam Pract ; 41(2): 114-122, 2024 Apr 15.
Artículo en Inglés | MEDLINE | ID: mdl-38412362

RESUMEN

BACKGROUND: The burden of type 2 diabetes mellitus (T2DM) in China continues to escalate. OBJECTIVE: To investigate the impact of family support system on the self-management behaviour of patients with T2DM. METHODS: In this cross-sectional study, 1,042 participants were sampled using a multistage stratified probability-proportionate-to-size method. On-site interviews were conducted using a structured questionnaire administered by 122 family doctors from 13 community health service centres in 8 administrative districts. A structural equation model was established to investigate the impact of individual factors and family support system on the self-management behaviour of T2DM patients. Statistical analysis was performed using the SPSS 25.0 software. RESULTS: The self-management behaviour pass rate among individuals with T2DM was 40.9%. In terms of individual factors, those with a high school education level or above demonstrated higher self-management behaviour scores than those with a junior high school education level or lower. The structural equation model revealed a path of interactions among individual factors, family support system-related factors, and the self-management behaviour of patients with T2DM: Family function → Family support → Patients' self-management behaviour → Quality of life. The coefficient of the direct path from family function to family support was 0.74 (P < 0.001), while the coefficient of the direct path from family support to self-management behaviour was 0.68 (P = 0.001). CONCLUSION: There is significant room for improvement in the self-management behaviour of T2DM patients in China. Family function can enhance the self-management behaviour of T2DM patients by promoting family support.


Asunto(s)
Diabetes Mellitus Tipo 2 , Automanejo , Humanos , Diabetes Mellitus Tipo 2/terapia , Estudios Transversales , Apoyo Familiar , Calidad de Vida
8.
Arch Womens Ment Health ; 27(5): 765-774, 2024 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-38602553

RESUMEN

BACKGROUND: Mother-to-infant bonding (MIB) is foundational for nurturing behaviors and an infant's development. Identifying risk factors for difficulties or problems in MIB is vital. However, traditional research often dichotomizes MIB using cutoff thresholds, overlooking its underlying complexities. This research utilizes latent profile analysis (LPA) to discern MIB subtypes in a nationwide Japanese dataset. METHODS: We conducted LPA on data from the Mother-to-Infant Bonding Scale (MIBS), collected from 3,877 postpartum women within one year of childbirth. To empirically validate the derived profiles, we examined their associated risk factors, focusing on sociodemographic, health, and perinatal variables. RESULTS: Four distinct MIB profiles emerged. Profile 1 indicated minimal difficulties, while Profile 4 exhibited severe multifaceted difficulties. Profiles 2 and 3 showed moderate difficulties distinguished by lack of positive affection and presence of negative affection (especially indifference), respectively. Compared to Profile 1, women in Profiles 2-4 had a higher likelihood of postpartum depression and low family support. Each profile also presented unique risk factors: medium family support in Profile 2, maternal working status in Profile 3, and pre-pregnancy underweight status in Profile 4. Notably, both Profiles 3 and 4 were also linked to increased feelings of loneliness since the onset of the COVID-19 pandemic. CONCLUSION: This study represents the first application of LPA to MIB, revealing distinct subtypes and their respective risk profiles. These insights promise to enhance and personalize early interventions for difficulties in MIB, affirming the necessity of acknowledging MIB's heterogeneity.


Asunto(s)
Depresión Posparto , Relaciones Madre-Hijo , Madres , Apego a Objetos , Adulto , Femenino , Humanos , Lactante , Recién Nacido , Embarazo , Depresión Posparto/psicología , Depresión Posparto/epidemiología , Pueblos del Este de Asia , Japón , Madres/psicología , Periodo Posparto/psicología , Factores de Riesgo
9.
BMC Geriatr ; 24(1): 519, 2024 Jun 14.
Artículo en Inglés | MEDLINE | ID: mdl-38877412

RESUMEN

BACKGROUND: The majority of persons with dementia in Sweden reside in their own homes with support from family members. Approximately, 12% of persons with dementia have immigrant background. Within the next 20 years, the number of persons with dementia who are non-ethnic Swedes is said to double. Family caregivers with immigrant backgrounds are noted to receive less support in the community than ethnic Swedes and rate their health status lower than ethnic Swedish peers. The Swedish National Board of Health and Welfare have highlighted the importance of follow-up support for family caregivers with immigrant backgrounds as there is a recognized gap in research and available information tailored to meet the needs of this group. PURPOSE OF THE STUDY: The purpose of the study is to test effectiveness of an mHealth based intervention through which community social workers can improve caregiving competence of non-European immigrant family caregivers of people with dementia living at home in Sweden. The overarching aim is to reduce caregiver burden and depressive symptoms, and improve quality of life. METHODS: A randomized controlled trial (RCT) including wait list control group will be performed consisting of an intervention group (A, n = 44) and a wait list control group (B, n = 44), totaling a sample size of 88. On completion of the 10-weeks long intervention in the intervention group, the intervention will be delivered to group B. Effect of the intervention will be analyzed between and within groups over time. The content of the educational component of the intervention is inspired by the iSupport manual developed by the World Health Organization. The contents, in the form of a booklet, aims to equip the family caregivers with structured information on understanding dementia as a condition and its management at home, including self-care guidance designed specifically for family caregivers themselves. DISCUSSION: Similar telephone-delivered intervention studies targeted for family caregivers to persons with dementia are ongoing in Malaysia and will start in India using the same booklet adapted to the local context. These studies will provide evidence on the effectiveness of using digital technologies to deliver support to those who may not be reached or adequately served by the traditional healthcare system. TRIAL REGISTRATION: ISRCTN registry, Registration number ISRCTN64235563.


Asunto(s)
Cuidadores , Demencia , Telemedicina , Humanos , Cuidadores/psicología , Suecia , Demencia/terapia , Demencia/psicología , Emigrantes e Inmigrantes/psicología , Calidad de Vida/psicología , Femenino , Masculino , Trabajadores Sociales/psicología , Anciano
10.
BMC Public Health ; 24(1): 940, 2024 Apr 02.
Artículo en Inglés | MEDLINE | ID: mdl-38566105

RESUMEN

Family has a significant impact on individual mental health. Based on social support theory, family system theory and the Mental Health Continuum Short Form (MHC-SF), this research constructed a model of the pathway of perceived family support on psychological well-being and the results empirically clarified that perceived family support has a significant positive relationship with emotional well-being, social well-being, and psychological well-being (P < 0.001). Emotional well-being positively influences social well-being and psychological well-being (P < 0.001). Social well-being positively affects psychological well-being (P < 0.001). There were direct mediating effects of emotional well-being (13.45%), direct mediating effects of social well-being (32.82%) and a serial mediating effect (28.07%) between perceived family support and psychological well-being (P < 0.001).


Asunto(s)
Apoyo Familiar , Bienestar Psicológico , Humanos , Salud Mental , Emociones , Apoyo Social
11.
Artículo en Inglés | MEDLINE | ID: mdl-38789557

RESUMEN

OBJECTIVE: China has a serious burden of Postpartum depression (PPD). In order to improve the current situation of high burden of PPD, this study explores the factors affecting PPD from the multidimensional perspectives with physiology, family support and social support covering the full-time chain of pre-pregnancy-pregnancy-postpartum. METHODS: A follow-up survey was conducted in the Qujing First People's Hospital of Yunnan Province from 2020 to 2022, and a total of 4838 pregnant women who underwent antenatal checkups in the hospital were enrolled as study subjects. Mothers were assessed for PPD using the Edinburgh Postnatal Depression Scale (EPDS), and logistic regression was used to analyse the level of mothers' postnatal depression and identify vulnerability characteristics. RESULTS: The prevalence of mothers' PPD was 46.05%, with a higher prevalence among those who had poor pre-pregnancy health, had sleep problems during pregnancy, and only had a single female fetus. In the family support dimension, only family care (OR = 0.52, 95% CI 0.42-0.64) and only other people care(OR = 0.78, 95% CI 0.64-0.96) were the protective factors of PPD. The experience risk of PPD was higher among mothers who did not work or use internet. CONCLUSION: The PPD level in Yunnan Province was significantly higher than the global and Chinese average levels. Factors affecting mothers' PPD exist in all time stages throughout pregnancy, and the influence of family support and social support on PPD shouldn't be ignored. There is an urgent need to extend the time chain of PPD, move its prevention and treatment forward and broaden the dimensions of its intervention.

12.
Acta Paediatr ; 113(9): 2119-2125, 2024 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-38381539

RESUMEN

AIM: To evaluate the effect of a universal, school-based family support programme on body mass index (BMI) of children aged 5-7 years, using pooled data from three trials. METHODS: The programme has three to four components and is delivered during the first school year. It aims to promote healthy dietary and physical activity behaviours, and secondarily prevent unhealthy weight gain. Three cluster-randomised controlled trials were conducted between 2010 and 2018 in low and mixed socioeconomic status areas in Sweden. Weight and height were measured. Multiple mixed linear regression analysis was performed on the pooled data. RESULTS: In total, 961 children were included (50% girls, mean age 6.3 years). The post-intervention effect on BMI z-score in all children was small, but in those with obesity at baseline, we observed a significant, clinically relevant, decrease in BMI z-score (-0.21). This was most pronounced in children with a non-Nordic born parent (-0.24). Five to six months after the intervention, decreases were no longer statistically significant. CONCLUSION: The intervention resulted in changes in BMI comparable to obesity treatment programmes focusing on behaviour change. However, the effect attenuated with time suggesting the programme should be sustained and evaluated for a longer time.


Asunto(s)
Índice de Masa Corporal , Obesidad Infantil , Humanos , Femenino , Obesidad Infantil/terapia , Obesidad Infantil/prevención & control , Masculino , Niño , Preescolar , Servicios de Salud Escolar , Suecia , Ejercicio Físico
13.
Appetite ; 196: 107262, 2024 05 01.
Artículo en Inglés | MEDLINE | ID: mdl-38368910

RESUMEN

Families play a key role in establishing eating habits of children, yet whether families continue to influence eating behaviors of young adults remains an open question. It is also not clear whether associations between family variables (i.e., support and pressure) are similar for adult sons and daughters regarding eating pathology. The present cross-sectional study examined family correlates on disordered eating, body satisfaction, and drive for muscularity. The aim was to examine the associations of family support and family pressure with eating pathology, and to determine whether gender moderated the associations. Among 365 undergraduates (Mage = 18.9 years, 62 % Caucasian, 48 % female), neither family pressure nor family support were significantly associated with the drive for muscularity, whereas both were associated with disordered eating, and family pressure was associated with body satisfaction. Gender moderated the relationship of family pressure and body satisfaction (p = 0.03) and, unexpectedly, the relationship of family support and disordered eating (p = 0.02). Contrary to prediction, family pressure had stronger associations with body satisfaction for men (i.e., men had a more robust association (beta = -0.31, p < .001) than women (beta = -0.19, p = 0.004)). For women, the relationship of family support and disordered eating was not significant (beta = 0.07, p = 0.452); but, was significant for men (beta = -0.25, p < .001). These findings suggest that family pressure and support are associated with eating pathology among young adults, and that in some instances the associations were larger for men, thus highlighting the importance of including men in eating pathology research. Pending replication, these results suggest that family attitudes, behaviors, and support may be necessary topics to address when designing prevention programs for young adults.


Asunto(s)
Imagen Corporal , Trastornos de Alimentación y de la Ingestión de Alimentos , Masculino , Niño , Humanos , Femenino , Adulto Joven , Adolescente , Estudios Transversales , Identidad de Género , Actitud , Conducta Alimentaria
14.
Reprod Health ; 21(1): 86, 2024 Jun 17.
Artículo en Inglés | MEDLINE | ID: mdl-38886725

RESUMEN

BACKGROUND: To discuss the current status of reproductive concerns and its correlation with fear of recurrence and level of family support in patients of childbearing age with gynecologic malignancies. METHODS: A convenient sampling method was used to enroll 188 patients with gynecologic malignancies in Nanjing Maternity and Child Health Care Hospital, Nanjing Drum Tower Hospital, General Hospital of Ningxia Medical University, and Haian Hospital of Traditional Chinese Medicine Affiliated to Nanjing University of Chinese Medicine from September 2022 to April 2023. Patients were assessed using general information questionnaire, Reproductive Concerns After Cancer Scale (RCAC), Fear of Cancer Recurrence Inventory (FCRI) questionnaire, and Perceived Social Support-Family (PSS-FA) Scale. RESULTS: Among patients of childbearing age with gynecologic malignancies, the total RCAC score was (54.35 ± 7.52), indicating a moderate level of reproductive concerns. Patients scored (20.98 ± 4.51) on FCRI, implying a moderate level of fear of recurrence. The PSS-FA score was (9.57 ± 2.76), denoting a moderate level of family support. The total score and each dimensional score of RCAC were positively correlated with FCRI total score (P < 0.05), and negatively correlated with PSS-FA total score (P < 0.05). Fear of recurrence, family support level, number of children, educational background, treatment modality, and fertility intention were influencing factors for reproductive concerns in patients of childbearing age with gynecologic malignancies (all P < 0.05). CONCLUSION: The reproductive concerns, fear of recurrence and family support are all at moderate levels in patients of childbearing age with gynecologic malignancies, and reproductive concerns are positively correlated with fear of recurrence and negatively correlated with family support.


Asunto(s)
Apoyo Familiar , Miedo , Neoplasias de los Genitales Femeninos , Recurrencia Local de Neoplasia , Adolescente , Adulto , Femenino , Humanos , Persona de Mediana Edad , Adulto Joven , China/epidemiología , Miedo/psicología , Neoplasias de los Genitales Femeninos/psicología , Recurrencia Local de Neoplasia/psicología , Encuestas y Cuestionarios
15.
BMC Med Inform Decis Mak ; 24(1): 46, 2024 Feb 12.
Artículo en Inglés | MEDLINE | ID: mdl-38347583

RESUMEN

BACKGROUND: In the intensive care unit (ICU) relatives play a crucial role as surrogate decision-makers, since most patients cannot communicate due to their illness and treatment. Their level of involvement in decision-making can affect their psychological well-being. During the COVID-19 pandemic, relatives' involvement probably changed. We aim to investigate relatives' involvement in decision-making in the ICU before and during the pandemic and their experiences and preferences in this regard. METHODS: A mixed-methods study among relatives of ICU patients admitted to an ICU before or during the COVID-19 pandemic. Relatives in six ICUs completed a questionnaire (n = 329), including two items on decision-making. These were analysed using descriptive statistics and logistic regression analyses. Subsequently, relatives (n = 24) were interviewed about their experiences and preferences regarding decision-making. Thematic analysis was used for analysing the qualitative data. RESULTS: Nearly 55% of the relatives indicated they were at least occasionally asked to be involved in important treatment decisions and of these relatives 97.1% reported to have had enough time to discuss questions and concerns when important decisions were to be made. During the first COVID-19 wave relatives were significantly less likely to be involved in decision-making compared to relatives from pre-COVID-19. The interviews showed that involvement varied from being informed about an already made decision to deliberation about the best treatment option. Preferences for involvement also varied, with some relatives preferring no involvement due to a perceived lack of expertise and others preferring an active role as the patient's advocate. Discussing a patient's quality of life was appreciated by relatives, and according to relatives healthcare professionals also found this valuable. In some cases the preferred and actual involvement was in discordance, preferring either a larger or a smaller role. CONCLUSIONS: As treatment alignment with a patient's values and preferences and accordance between preferred and actual involvement in decision-making is very important, we suggest that the treatment decision-making process should start with discussions about a patient's quality of life, followed by tailoring the process to relatives' preferences as much as possible. Healthcare professionals should be aware of relatives' heterogeneous and possibly changing preferences regarding the decision-making process.


Asunto(s)
COVID-19 , Pandemias , Humanos , Calidad de Vida , Unidades de Cuidados Intensivos , Cuidados Críticos , Familia/psicología , Toma de Decisiones
16.
Aging Ment Health ; : 1-7, 2024 Sep 08.
Artículo en Inglés | MEDLINE | ID: mdl-39244696

RESUMEN

OBJECTIVES: Incidences of psychological distress are on the rise among older Kenyans. While socioeconomic status and family support have been shown to impact the mental health of older individuals, they remain understudied in the older Kenyan population. This study investigated the prevalence of psychological distress among older Kenyans and examined its relationships with economic status and perceived family support. METHOD: Data came from a cross-sectional survey of 376 older Kenyans from four rural and urban areas in 2022. The survey collected demographic, global health, social support, socioeconomic, and psychological health variables. Structural equation modeling was used to test the relationship between socioeconomic status, family support, and psychological distress. RESULTS: Overall, 61% reported high psychological distress, with women experiencing significantly higher levels. Structural equation modeling results indicated that food insecurity, flooring material, material wealth, chronic health, self-rated physical health, sex, and education were significant predictors. The dimensions of family support were not significantly associated with psychological distress. CONCLUSION: The findings illuminate that psychological distress is a critical health concern for the sample and needs targeted health interventions. They also underline the essential role of economic status in the psychological distress of older Kenyans. Future studies should explore these relationships using longitudinal, family-level, and representative data.

17.
J Adv Nurs ; 2024 Oct 18.
Artículo en Inglés | MEDLINE | ID: mdl-39422155

RESUMEN

AIM: To investigate the experience with and progress of the implementation of a Family Support Intervention (FSI) into adult intensive care units (ICUs) as part of the cluster-randomised FICUS trial. DESIGN: A mixed-methods process evaluation using a multiple case study approach guided by the normalisation process theory. METHODS: This study took place between June 2022 and July 2023 in eight Swiss ICUs randomised to the intervention arm. A tailored implementation strategy was used to introduce the multicomponent FSI, consisting of a new family nursing role and a family care pathway, into interprofessional ICU teams. Participants were 40 ICU key clinical partners. Qualitative data were collected twice, early (3-6 months) and mid-implementation (9-12 months), using small group interviews. A questionnaire with psychometric measures (Acceptability of Intervention Measure, Feasibility of Intervention Measure, Intervention Appropriateness Measure, Normalisation Measure Development Questionnaire) was administered at mid-implementation. RITA pragmatic rapid thematic analysis and descriptive statistics were used to analyse the data. Qualitative and quantitative results were then compared across ICUs (cases). FINDINGS: Findings indicated the desired progress of the FSI integration overall and across cases, with high acceptability and appropriateness ratings but only moderate to high feasibility scores. Study-related barriers were noted in all ICUs (i.e., FSI delivery as part of a clinical trial). Implementation barriers included family nurses' limited capacity and clinician's attitudes towards the FSI. Leadership support and interprofessional collaboration were identified as facilitators. Case-based, integrated findings yielded two implementation pathways, namely early and protracted adopters. CONCLUSION: Implementation barriers were related to the feasibility of FSI delivery within the study context that required a high degree of standardisation and protocol adherence. Implementation progress was shaped by an interprofessional culture of family care, sufficient staff and time resources, and leadership support. The study's findings will inform future implementation of complex health interventions in ICUs. REPORTING METHOD: Good reporting of a Mixed-Methods Study (GRAMMS). PATIENT OR PUBLIC CONTRIBUTION: Within the FICUS trial, a patient and family advisory board with a patient expert, three family members and a patient with own lived experience of critical care collaborate with the research team.

18.
Child Care Health Dev ; 50(1): e13228, 2024 01.
Artículo en Inglés | MEDLINE | ID: mdl-38265131

RESUMEN

BACKGROUND: It is known that chronic condition also affects siblings without chronic illness. Healthy siblings of children with a chronic condition and aged 9-14 years and healthy children with a sibling without chronic illness and their parents were included in the study. AIM: The aim of our study was to examine the internet-game addiction, physical activity, quality of life and sleep in children with a sibling with chronic condition and compare them with their peers with a healthy sibling. METHODS: Computer game addiction, physical activity, sleep quality and quality of life were evaluated respectively by Computer Game Addiction Scale for Children, Child Physical Activity Questionnaire, Children's Sleep Disorder Scale and Children's Quality of Life Scale. RESULTS: While the mean age of 75 children with chronically ill siblings was 10.65 ± 1.59 years, the mean age of 75 healthy children with healthy siblings was 10.46 ± 2.09 years. It was observed that children with a sibling with a chronic condition were more tend to computer-game addiction, had lower sleep quality, lower quality of life in terms of school functionality and psychosocial health compared to children with a healthy sibling (p < 0.05). CONCLUSIONS: It was revealed that in families with children with a chronic condition, siblings with no health problems should also be evaluated in psychosocial terms and supported by appropriate approaches, such as to increase the level of physical activity.


Asunto(s)
Calidad de Vida , Juegos de Video , Niño , Humanos , Anciano , Hermanos , Sueño , Enfermedad Crónica , Ejercicio Físico , Computadores
19.
Child Care Health Dev ; 50(4): e13290, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38874392

RESUMEN

Children who experience homelessness are vulnerable to mental health problems, developmental delays and lower academic achievement. Research suggests that parental health literacy, sensitive parenting behaviour and child self-regulation are modifiable mechanisms that might enhance children's resilience to adversities associated with homelessness, yet empirical evidence on implementing such interventions in shelter settings is limited. Through a coordinated academic-community partnership, this study aimed to examine the (1) feasibility of conducting an integrated health approach in shelter settings and (2) the effectiveness of separate interventions on child and parent outcomes. Results are discussed in terms of best practices in shelter settings and building resilience in families experiencing homelessness with young children.


Asunto(s)
Desarrollo Infantil , Personas con Mala Vivienda , Responsabilidad Parental , Resiliencia Psicológica , Humanos , Responsabilidad Parental/psicología , Femenino , Personas con Mala Vivienda/psicología , Masculino , Niño , Preescolar , Adulto , Estudios de Factibilidad , Padres/psicología
20.
J Formos Med Assoc ; 2024 Feb 28.
Artículo en Inglés | MEDLINE | ID: mdl-38423925

RESUMEN

BACKGROUND/PURPOSE: Depressive and anxiety symptoms were common among lesbian, gay, and bisexual (LGB) individuals during the COVID-19 pandemic. This 4-year follow-up study was conducted to investigate the predictors of depressive and anxiety symptoms in Taiwan's young adult LGB population. METHODS: Baseline data, including depressive and anxiety symptoms, demographic characteristics, sexual stigma, self-identity confusion, and family support were collected from 1000 LGB individuals. The participants' depressive and anxiety symptoms were reassessed 4 years after the baseline measurements. The predictive effects of the baseline factors on depressive and anxiety symptoms at follow-up were examined through linear regression analysis. RESULTS: Greater lack of identity, unconsolidated identity, sexual orientation microaggression, and lower perceived family function at baseline were significantly associated with more severe depressive and anxiety symptoms at follow-up. After adjustment for baseline depressive symptoms, being men, greater lack of identity, lower perceived family function, and more severe anxiety symptoms at baseline were significantly associated with more severe depressive symptoms at follow-up. After adjustment for baseline anxiety symptoms, greater unconsolidated identity and more severe depressive symptoms at baseline were significantly associated with more severe anxiety symptoms at follow-up. CONCLUSIONS: Intervention aimed at reducing depressive and anxiety symptoms in LGB individuals should be developed considering the predictors identified in this study.

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