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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting.
Breckenridge, Kate; Bekker, Hillary L; Gibbons, Elizabeth; van der Veer, Sabine N; Abbott, Denise; Briançon, Serge; Cullen, Ron; Garneata, Liliana; Jager, Kitty J; Lønning, Kjersti; Metcalfe, Wendy; Morton, Rachael L; Murtagh, Fliss E M; Prutz, Karl; Robertson, Susan; Rychlik, Ivan; Schon, Steffan; Sharp, Linda; Speyer, Elodie; Tentori, Francesca; Caskey, Fergus J.
Afiliación
  • Breckenridge K; UK Renal Registry, Southmead Hospital, Bristol, UK.
  • Bekker HL; Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.
  • Gibbons E; Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
  • van der Veer SN; European Renal Best Practice, Methods Support Team, University Hospital Ghent, Ghent, Belgium Health eResearch Centre, Farr Institute for Health Informatics Research, University of Manchester, Manchester, UK.
  • Abbott D; The National Kidney Federation, Shireoaks, Worksop, UK.
  • Briançon S; CHU de Nancy, Epidémiologie et évaluation cliniques, Inserm CIC 1433, Nancy, France.
  • Cullen R; UK Renal Registry, Southmead Hospital, Bristol, UK.
  • Garneata L; 'Dr Carol Davila' Teaching Hospital of Nephrology, Bucharest, Romania.
  • Jager KJ; European Renal Association-European Dialysis and Transplant Association Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.
  • Lønning K; Section of Nephrology, Department of Organ Transplantation, Oslo University Hospital Rikshospitalet, Oslo, Norway.
  • Metcalfe W; Renal Unit, Royal Infirmary of Edinburgh, Edinburgh, UK The Scottish Renal Registry, Glasgow, UK.
  • Morton RL; School of Public Health, The University of Sydney, Sydney, Australia Health Economics Research Centre, Nuffield Department of Population Health, University of Oxford, Headington, UK.
  • Murtagh FE; Department of Palliative Care, Policy & Rehabilitation, King's College London, Cicely Saunders Institute, London, UK.
  • Prutz K; Swedish Renal Registry, Jönköping, Sweden Department of Internal Medicine, Hospital of Helsingborg, Helsingborg, Sweden.
  • Robertson S; Dumfries and Galloway Royal Infirmary, Dumfries, UK.
  • Rychlik I; 2nd Department of Medicine, 3rd Faculty of Medicine, Charles University, Prague, Czech Republic.
  • Schon S; Swedish Renal Registry, Jönköping, Sweden Diaverum Renal Services Group, Lund, Sweden.
  • Sharp L; National Cancer Registry Ireland, Cork, Ireland.
  • Speyer E; CHU Nancy, Pôle QSP2, Epidémiologie et Evaluation Cliniques, Nancy, France Université de Lorraine, Université Paris Descartes, Nancy, France.
  • Tentori F; Arbor Research Collaborative for Health, Ann Arbor, MI, USA.
  • Caskey FJ; UK Renal Registry, Southmead Hospital, Bristol, UK School of Social and Community Medicine, University of Bristol, Bristol, UK.
Nephrol Dial Transplant ; 30(10): 1605-14, 2015 Oct.
Article en En | MEDLINE | ID: mdl-25982327
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Sistema de Registros / Recolección de Datos / Terapia de Reemplazo Renal / Insuficiencia Renal / Evaluación del Resultado de la Atención al Paciente Tipo de estudio: Guideline / Prognostic_studies / Systematic_reviews Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Nephrol Dial Transplant Asunto de la revista: NEFROLOGIA / TRANSPLANTE Año: 2015 Tipo del documento: Article País de afiliación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Sistema de Registros / Recolección de Datos / Terapia de Reemplazo Renal / Insuficiencia Renal / Evaluación del Resultado de la Atención al Paciente Tipo de estudio: Guideline / Prognostic_studies / Systematic_reviews Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Nephrol Dial Transplant Asunto de la revista: NEFROLOGIA / TRANSPLANTE Año: 2015 Tipo del documento: Article País de afiliación: Reino Unido