Your browser doesn't support javascript.
loading
Evaluation of age of death in Niemann-Pick disease, type C: Utility of disease support group websites to understand natural history.
Bianconi, Simona E; Hammond, Dylan I; Farhat, Nicole Y; Dang Do, An; Jenkins, Kisha; Cougnoux, Antony; Martin, Kyle; Porter, Forbes D.
Afiliación
  • Bianconi SE; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Hammond DI; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Farhat NY; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Dang Do A; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Jenkins K; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Cougnoux A; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Martin K; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA.
  • Porter FD; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, DHHS, Bethesda, MD, USA. Electronic address: fdporter@mail.nih.gov.
Mol Genet Metab ; 126(4): 466-469, 2019 04.
Article en En | MEDLINE | ID: mdl-30850267
Asunto(s)
Palabras clave
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Grupos de Autoayuda / Internet / Enfermedad de Niemann-Pick Tipo C Tipo de estudio: Evaluation_studies Límite: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Idioma: En Revista: Mol Genet Metab Asunto de la revista: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Grupos de Autoayuda / Internet / Enfermedad de Niemann-Pick Tipo C Tipo de estudio: Evaluation_studies Límite: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Idioma: En Revista: Mol Genet Metab Asunto de la revista: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos