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Design and development of a disease-specific quality of life tool for patients with aplastic anaemia and/or paroxysmal nocturnal haemoglobinuria (QLQ-AA/PNH)-a report on phase III.
Niedeggen, Cathrin; Singer, Susanne; Groth, Martha; Petermann-Meyer, Andrea; Röth, Alexander; Schrezenmeier, Hubert; Höchsmann, Britta; Brümmendorf, Tim H; Panse, Jens.
Afiliación
  • Niedeggen C; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, University Hospital RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Germany.
  • Singer S; Division of Epidemiology and Health Services Research, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Centre Mainz, Mainz, Germany.
  • Groth M; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, University Hospital RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Germany.
  • Petermann-Meyer A; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, University Hospital RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Germany.
  • Röth A; Department of Hematology, University Hospital Essen, University of Duisburg-Essen, Essen, Germany.
  • Schrezenmeier H; Institute of Clinical Transfusion Medicine and Immunogenetics, German Red Cross Blood Transfusion Service and University Hospital Ulm and Institute of Transfusion Medicine, University of Ulm, Ulm, Germany.
  • Höchsmann B; Institute of Clinical Transfusion Medicine and Immunogenetics, German Red Cross Blood Transfusion Service and University Hospital Ulm and Institute of Transfusion Medicine, University of Ulm, Ulm, Germany.
  • Brümmendorf TH; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, University Hospital RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Germany.
  • Panse J; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, University Hospital RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Germany. jpanse@ukaachen.de.
Ann Hematol ; 98(7): 1547-1559, 2019 Jul.
Article en En | MEDLINE | ID: mdl-31115593
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Encuestas y Cuestionarios / Hemoglobinuria Paroxística / Anemia Aplásica Tipo de estudio: Clinical_trials / Guideline / Qualitative_research Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Ann Hematol Asunto de la revista: HEMATOLOGIA Año: 2019 Tipo del documento: Article País de afiliación: Alemania
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Encuestas y Cuestionarios / Hemoglobinuria Paroxística / Anemia Aplásica Tipo de estudio: Clinical_trials / Guideline / Qualitative_research Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Ann Hematol Asunto de la revista: HEMATOLOGIA Año: 2019 Tipo del documento: Article País de afiliación: Alemania