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Quality of life measurement in urticaria: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient-Oriented Outcomes and Urticaria and Angioedema.
Chernyshov, P V; Finlay, A Y; Tomas-Aragones, L; Zuberbier, T; Kocatürk, E; Manolache, L; Pustisek, N; Svensson, A; Marron, S E; Sampogna, F; Bewley, A; Salavastru, C; Koumaki, D; Augustin, M; Linder, D; Abeni, D; Salek, S S; Szepietowski, J; Jemec, G B.
Afiliación
  • Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine.
  • Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK.
  • Tomas-Aragones L; Department of Psychology, University of Zaragoza, Zaragoza, Spain.
  • Zuberbier T; Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.
  • Kocatürk E; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
  • Manolache L; Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.
  • Pustisek N; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
  • Svensson A; Department of Dermatology, Koç University School of Medicine, Istanbul, Turkey.
  • Marron SE; Department of Dermatology, Dali Medical, Bucharest, Romania.
  • Sampogna F; Children's Hospital Zagreb, Zagreb, Croatia.
  • Bewley A; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden.
  • Salavastru C; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain.
  • Koumaki D; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.
  • Augustin M; Barts Health NHS Trust, London, UK.
  • Linder D; Queen Mary University, London, UK.
  • Abeni D; Department of Paediatric Dermatology, Colentina Clinical Hospital, "Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.
  • Salek SS; Department of Dermatology and Venereology, University Hospital of Heraklion, Heraklion, Crete, Greece.
  • Szepietowski J; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Jemec GB; University Clinic for Medical Psychology and Psychotherapy, Medical University of Graz, Graz, Austria.
Article en En | MEDLINE | ID: mdl-38855825
ABSTRACT
The European Academy of Dermatology and Venereology (EADV) Task Forces on quality of life (QoL) and patient-oriented outcomes and on urticaria and angioedema recommendations for the assessment of Health-related (HR) QoL in all patients with urticaria in research and practice are as follows to use the DLQI for adults and the CDLQI for children as dermatology-specific and the CU-Q2oL as a disease-specific HRQoL instruments in urticaria; to use generic instruments to provide comparison of data on urticaria with non-dermatologic diseases, or to compare with healthy volunteers or the general population; to select validated HRQoL instruments with appropriate age limits; to present exact numeric data for HRQoL results; correct title of any HRQoL instrument should be used, along with its correct abbreviation and the reference to its original publication, where possible. The EADV TFs discourage the use of non-validated HRQoL instruments and modified HRQoL instruments that have not undergone standard validation.

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: J Eur Acad Dermatol Venereol Asunto de la revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Año: 2024 Tipo del documento: Article País de afiliación: Ucrania

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: J Eur Acad Dermatol Venereol Asunto de la revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Año: 2024 Tipo del documento: Article País de afiliación: Ucrania