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1.
BMC Public Health ; 23(1): 711, 2023 04 19.
Article in English | MEDLINE | ID: mdl-37076813

ABSTRACT

BACKGROUND/AIM: The Kaiser Permanente (KP) Northern California Heart Health for South Asians (HHSA) Program is a two-hour educational class that provides culturally relevant lifestyle and dietary recommendations to South Asian (SA) patients, in an effort to reduce their known disproportionate burden of cardiovascular (CV) disease. We evaluated the impact of the HHSA Program on CV risk factors and major adverse CV events (MACE). METHODS: A retrospective cohort study identified 1517 participants of SA descent, ≥ 18 years old from 2006 to 2019. We evaluated the change in risk factors with program attendance (median follow up of 6.9 years) for systolic blood pressure (SBP), diastolic blood pressure (DBP), triglycerides (TG), LDL, HDL, BMI, and HbA1c. We also performed a propensity matched analysis to evaluate differences in MACE including stroke, myocardial infarction (MI), coronary revascularization, and all-cause mortality. RESULTS: There were significant improvements in DBP, TG, LDL-c, HDL-c, BMI, and HbA1c at one year follow up and sustained improvements in DBP (-1.01mmHg, p = 0.01), TG (-13.74 mg/dL, p = 0.0001), LDL-c (-8.43 mg/dL, p = < 0.0001), and HDL-c (3.16 mg/dL, p = < 0.0001) levels at the end of follow up. In the propensity matched analysis, there was a significant reduction in revascularization (OR 0.33, 95% CI 0.14-0.78, p = 0.011) and mortality (OR 0.41, 95% CI 0.22-0.79, p = 0.008), and a trend towards reduction in stroke. CONCLUSIONS: Our study demonstrates the efficacy of a culturally tailored SA health education program in improving CV risk factors and reducing MACE. The program highlights the importance and value of providing culturally tailored health education in primary CV disease prevention.


Subject(s)
Cardiovascular Diseases , Culturally Competent Care , Health Education , Heart Disease Risk Factors , South Asian People , Adolescent , Humans , Cardiovascular Diseases/epidemiology , Cardiovascular Diseases/ethnology , Cardiovascular Diseases/etiology , Cardiovascular Diseases/prevention & control , Cholesterol, LDL , Glycated Hemoglobin , Health Education/methods , Health Education/statistics & numerical data , Retrospective Studies , Risk Factors , South Asian People/statistics & numerical data , Stroke , Triglycerides , Culturally Competent Care/ethnology , Culturally Competent Care/methods , Culturally Competent Care/statistics & numerical data
2.
BMC Health Serv Res ; 23(1): 380, 2023 Apr 19.
Article in English | MEDLINE | ID: mdl-37076841

ABSTRACT

BACKGROUND: Ear and hearing care programs are critical to early detection and management of otitis media (or middle ear disease). Otitis media and associated hearing loss disproportionately impacts First Nations children. This affects speech and language development, social and cognitive development and, in turn, education and life outcomes. This scoping review aimed to better understand how ear and hearing care programs for First Nations children in high-income colonial-settler countries aimed to reduce the burden of otitis media and increase equitable access to care. Specifically, the review aimed to chart program strategies, map the focus of each program against 4 parts of a care pathway (prevention, detection, diagnosis/management, rehabilitation), and to identify the factors that indicated the longer-term sustainability and success of programs. METHOD: A database search was conducted in March 2021 using Medline, Embase, Global Health, APA PsycInfo, CINAHL, Web of Science Core Collection, Scopus, and Academic Search Premier. Programs were eligible or inclusion if they had either been developed or run at any time between January 2010 to March 2021. Search terms encompassed terms such as First Nations children, ear and hearing care, and health programs, initiatives, campaigns, and services. RESULTS: Twenty-seven articles met the criteria to be included in the review and described a total of twenty-one ear and hearing care programs. Programs employed strategies to: (i) connect patients to specialist services, (ii) improve cultural safety of services, and (iii) increase access to ear and hearing care services. However, program evaluation measures were limited to outputs or the evaluation of service-level outcome, rather than patient-based outcomes. Factors which contributed to program sustainability included funding and community involvement although these were limited in many cases. CONCLUSION: The result of this study highlighted that programs primarily operate at two points along the care pathway-detection and diagnosis/management, presumably where the greatest need lies. Targeted strategies were used to address these, some which were limited in their approach. The success of many programs are evaluated as outputs, and many programs rely on funding sources which can potentially limit longer-term sustainability. Finally, the involvement of First Nations people and communities typically only occurred during implementation rather than across the development of the program. Future programs should be embedded within a connected system of care and tied to existing policies and funding streams to ensure long term viability. Programs should be governed and evaluated by First Nations communities to further ensure programs are sustainable and are designed to meet community needs.


Subject(s)
Culturally Competent Care , Hearing Loss , Indigenous Peoples , Otitis Media , Child , Humans , Hearing Loss/diagnosis , Hearing Loss/epidemiology , Hearing Loss/ethnology , Hearing Loss/therapy , Indigenous Peoples/statistics & numerical data , Time Factors , Otitis Media/diagnosis , Otitis Media/epidemiology , Otitis Media/ethnology , Otitis Media/therapy , Healthcare Disparities/ethnology , Developed Countries/economics , Developed Countries/statistics & numerical data , Health Services Accessibility/economics , Health Services Accessibility/statistics & numerical data , Culturally Competent Care/ethnology , Culturally Competent Care/statistics & numerical data
3.
Aust J Prim Health ; 29(2): 165-174, 2023 Apr.
Article in English | MEDLINE | ID: mdl-37079465

ABSTRACT

BACKGROUND: Patient-reported outcome measures (PROMs) provide clinicians and consumers a platform to inform and improve healthcare planning and management. Aboriginal people experience disproportionately high rates of chronic diseases, including type 2 diabetes. Treatment and management require holistic approaches that draw on culturally relevant resources and assessment tools. This study explored perceptions of Aboriginal people about two diabetes management-related PROMs (PROMIS-29, PAID Scale). METHODS: Twenty-nine Aboriginal people living with diabetes in the Shoalhaven discussed two PROMs in one of four focus groups or at an individual interview. Preliminary data coding was conducted by clinician researchers, with thematic analysis overseen by Aboriginal co-researchers. Subsequent individual interviews with participants were undertaken to seek further feedback and articulate what is needed to improve methods of evaluating Aboriginal people's self-reported quality of life and diabetes management. RESULTS: The PROMs did not capture information or knowledge that Aboriginal people considered relevant to their diabetes-related health care. Participants' recommendations included adapting survey materials to be more culturally sensitive; for example, by improving the alignment of measures with common day-to-day activities. This study also describes a genuine collaborative, Aboriginal community-guided approach to evaluate 'fit-for-purpose' diabetes management tools. CONCLUSIONS: Appropriate evaluation methods are paramount to address the disproportionate burden of diabetes experienced by Aboriginal peoples and overcome inverse diabetes care. Our learnings will contribute to development of tools, resources or methods that capture culturally tailored outcome measures. Study findings are relevant to clinicians and researchers using and/or developing Patient Reported Measures, particularly in relation to the practicality of tools for First Nations peoples.


Subject(s)
Australian Aboriginal and Torres Strait Islander Peoples , Diabetes Mellitus, Type 2 , Patient Reported Outcome Measures , Quality of Life , Humans , Delivery of Health Care/methods , Diabetes Mellitus, Type 2/ethnology , Diabetes Mellitus, Type 2/psychology , Diabetes Mellitus, Type 2/therapy , New South Wales , Culturally Competent Care/statistics & numerical data , Disease Management
4.
J Natl Med Assoc ; 115(2): 147-156, 2023 Apr.
Article in English | MEDLINE | ID: mdl-36717351

ABSTRACT

The number of black male applicants to US medical schools has remained stagnant over the last 30 years. The etiology behind the lack of applicants is multifaceted and involves greater systemic barriers, specifically, educational and social barriers. The lack of representation of black males in medicine also has downstream implications for the health of the African American/black community. African Americans exhibit some of the lowest levels of trust in the healthcare system, have less access to care than their non-minority peers, and have, comparatively, poorer healthcare outcomes than other populations in the US. Research has demonstrated that patient-provider race concordance improves communication, outcomes, culturally competent care, and satisfaction with care. The greater the gap between these two populations, the harder it becomes to improve healthcare outcomes, maintain a medically ready fighting force in the US military, and improve trust in the healthcare system. This article provides an analysis of the multifactorial barriers black male applicants face applying, matriculating, and graduating medical school and how decreased representation may affect healthcare delivery. Furthermore, this review explores next steps and potential implementations at the Uniformed Services University of the Health Sciences to address the above deficiencies.


Subject(s)
Black or African American , Culturally Competent Care , Delivery of Health Care , Education, Medical, Undergraduate , Healthcare Disparities , Humans , Male , Black or African American/psychology , Black or African American/statistics & numerical data , Black People/psychology , Black People/statistics & numerical data , Culturally Competent Care/ethnology , Culturally Competent Care/organization & administration , Culturally Competent Care/statistics & numerical data , Delivery of Health Care/ethnology , Delivery of Health Care/organization & administration , Delivery of Health Care/statistics & numerical data , Medicine/organization & administration , Medicine/statistics & numerical data , Trust , Healthcare Disparities/ethnology , Healthcare Disparities/statistics & numerical data , Health Status Disparities , United States/epidemiology , Education, Medical, Undergraduate/organization & administration , Education, Medical, Undergraduate/statistics & numerical data , Physicians/statistics & numerical data
6.
Int J Equity Health ; 20(1): 10, 2021 01 06.
Article in English | MEDLINE | ID: mdl-33407531

ABSTRACT

BACKGROUND: The history of infant mortality inequities among Maori in New Zealand provides a remarkable case study for understanding the shortcomings of policy which fails to consider the differential risks associated with disadvantaged groups. Specifically, the failure of the initial 1991 reform in addressing Maori infant health, followed by the relative success of post-1994 policy, demonstrate that disadvantaged populations carry differential social risks which require adjusting policy accordingly. Literature on these policies show that differential risks may include disparities in representation, access to resources, socioeconomic status, and racism. The consideration of differential risks is important in analyzing the underlying causes of inequities and social policy deficiencies. AIM: To describe and illustrate the need for policy addressing inequities to consider the differential risks associated with disadvantaged groups through an analysis of New Zealand's Maori infant mortality policy progression. METHODS: The article is a commentary on a series of policies aimed at reducing infant mortality in New Zealand. It analyses three policies and how their differences are linked to the corresponding trends in equity between Maori and non-Maori populations. FINDINGS: The progression of Maori infant mortality policy clearly demonstrates that equitable social policy must be culturally sensitive and inclusive towards disadvantaged groups, as well as willing to adapt to changing circumstances and shortcomings of current policy. Prior to 1994, health policy which did not account for the differential risks of Maori populations caused inequities in infant mortality to increase, despite infant mortality decreasing on a national level. After policy was adjusted to account for Maori-specific risks in 1994, infant mortality inequities significantly declined. A comprehensive analysis of these policies shows that the consideration of differential risks is highly related to a decrease in corresponding inequities. CONCLUSIONS: As New Zealand, and other countries facing inequities such as the United States and Australia, move forward in constructing policy, they would do well to consider the lessons of how New Zealand policy changed the frequency of infant mortality in Maori populations. The study shows that the consideration of differential risks associated with disadvantaged groups is necessary for policy to successfully address inequities.


Subject(s)
Culturally Competent Care/economics , Health Policy/economics , Healthcare Disparities/economics , Healthcare Disparities/statistics & numerical data , Indigenous Peoples/statistics & numerical data , Infant Mortality , Native Hawaiian or Other Pacific Islander/statistics & numerical data , Culturally Competent Care/statistics & numerical data , Female , Humans , Infant , Infant, Newborn , Male , New Zealand , Social Class
7.
South Med J ; 114(1): 17-22, 2021 01.
Article in English | MEDLINE | ID: mdl-33398355

ABSTRACT

OBJECTIVES: Previous negative experiences with the medical community often leave transgender people reluctant to seek medical care. Inadequate teaching and exposure to transgender health during medical training perpetuates the health disparities experienced by this community. Although undergraduate medical education is uniquely positioned to address these disparities, curricular coverage of these topics remains inadequate. METHODS: The second-year clinical skills course at the Florida International University Herbert Wertheim College of Medicine includes a workshop consisting of a 1-hour lecture about the inclusive sexual history, followed by a 1.5-hour small group during which students interview a standardized patient playing the role of a transgender man and participate in a faculty-facilitated debriefing. To evaluate the 2019 workshop, students were provided with an optional, anonymous, pre- and postsession survey consisting of multiple choice and Likert-type questions. RESULTS: After the session, there was a statistically significant increase in students' knowledge of the components of an inclusive sexual history, in the number of students who believed that their medical training had prepared them to effectively provide care for transgender patients, and in the number who reported feeling comfortable taking a sexual history from a patient who identifies as transgender. Most students thought the standardized patient case was realistic and found the postencounter debriefing session helpful in identifying their own strengths and weaknesses. CONCLUSIONS: Our findings suggest that students found this brief, interactive sexual history workshop, which included a lecture and standardized patient case, to be an effective component of their medical training. Although our transgender patient case was acted primarily by cis-gender people, students perceived this as a realistic opportunity to actively explore the nuances of obtaining a history from a transgender patient. In addition, our findings suggest that it is possible to merge teaching on sexual history and transgender health care, which is important in time-limited undergraduate medical education curricula.


Subject(s)
Culturally Competent Care/methods , Medical History Taking/methods , Patient Simulation , Teaching/standards , Transgender Persons/education , Culturally Competent Care/statistics & numerical data , Education/methods , Humans , Teaching/statistics & numerical data , Transgender Persons/psychology
8.
Gynecol Oncol ; 160(2): 369-374, 2021 02.
Article in English | MEDLINE | ID: mdl-33323276

ABSTRACT

OBJECTIVE: To study differences in screening adherence and follow-up after an abnormal Pap test in Non-Hispanic Black (Black) and Non-Hispanic White (White) women. METHODS: An observational cohort study using 2010 National Health Interview Survey cancer module to examine HPV knowledge, screening behavior, and follow-up to abnormal Pap test in Black and White women 18 years of age or older without a hysterectomy. We fit logistic regression models to examine associations between race and primary outcome variables including: HPV awareness, Pap test in the last three years, provider recommended Pap test, received Pap test results, had an abnormal Pap test, recommended follow-up, and adhered to the recommendation for follow-up. RESULTS: Analyzing data for 7509 women, Black women had lower odds ratios [OR] for: 1) HPV awareness (71% vs 83%; OR = 0.42; 95% CI = 0.36-0.49); 2) reporting Pap screening was recommended (59% vs 64%; OR = 0.76; 95% CI = 0.66-0.88), and 3) acknowledging receipt of Pap results (92% vs 94%; OR = 0.64; 95% CI = 0.49-0.83). Group differences persisted after covariates adjustment. In adjusted models, Black women had higher odds of reporting recent Pap screening (84% vs 77%; OR = 1.7; 95% CI = 1.42-2.03), but reported lower odds of receiving a follow-up recommendation subsequent to abnormal test (78% vs 87%; OR = 0.54; 95% CI = 0.31-0.95). CONCLUSION: Black women reported higher cervical cancer screening adherence but lower rates of being informed of an abnormal Pap test and contacted for follow-up treatment. We recommend a multilevel approach to deliver culturally appropriate education and communication for patients, physicians, clinicians in training, and clinic level ancillary staff.


Subject(s)
Early Detection of Cancer/statistics & numerical data , Health Status Disparities , Mass Screening/statistics & numerical data , Papillomavirus Infections/diagnosis , Uterine Cervical Neoplasms/diagnosis , Adolescent , Adult , Black or African American/statistics & numerical data , Aftercare/organization & administration , Aftercare/standards , Aftercare/statistics & numerical data , Cohort Studies , Communication , Culturally Competent Care/organization & administration , Culturally Competent Care/standards , Culturally Competent Care/statistics & numerical data , Early Detection of Cancer/standards , Female , Guideline Adherence/organization & administration , Guideline Adherence/standards , Guideline Adherence/statistics & numerical data , Health Education/organization & administration , Health Education/standards , Health Knowledge, Attitudes, Practice , Health Literacy/statistics & numerical data , Humans , Mass Screening/organization & administration , Mass Screening/standards , Middle Aged , Papanicolaou Test/statistics & numerical data , Papillomavirus Infections/pathology , Papillomavirus Infections/virology , Patient Compliance/statistics & numerical data , Physician-Patient Relations , Practice Guidelines as Topic , United States/epidemiology , Uterine Cervical Neoplasms/mortality , Uterine Cervical Neoplasms/pathology , Uterine Cervical Neoplasms/virology , Vaginal Smears/statistics & numerical data , White People/statistics & numerical data , Young Adult
9.
Scand J Occup Ther ; 28(4): 285-293, 2021 May.
Article in English | MEDLINE | ID: mdl-32915680

ABSTRACT

BACKGROUND: The Self-Assessment of Modes Questionnaire (SAMQ) was developed for occupational therapists (OTs) to identify their therapeutic style when interacting with clients. To provide Danish Occupational Therapists (OTs) with access to the SAMQ, a rigorous translation, cultural adaptation and validation are required. AIM: To describe the process of translating and culturally adapting the SAMQ into Danish (D-SAMQ) and examining initial validation of the SAMQ in terms of relevance and comprehensiveness in a Danish context. MATERIAL AND METHODS: A 10-step process for translation and cultural adaptation was followed: (1) Preparation, (2) Forward translation, (3) Reconciliation, (4) Back translation, (5) Back-translation review, (6) Harmonization, (7) Cognitive debriefing, (8) Review of cognitive debriefing results and finalization, (9) Proofreading and (10) Final report. The cognitive debriefing also involved validation. RESULTS: Seven OTs and one OT student were included in the cognitive debriefing. Adaptations were made in eight of twenty cases, and modifications regarding the choice of words, sentence structure, and rephrasing were performed. The participants suggested more contextual details in the case descriptions. CONCLUSION: The SAMQ was translated into Danish (D-SAMQ) and adapted and validated by Danish OTs. The D-SAMQ may enable OTs to identify their therapeutic style, and thereby improve the client-therapist relationship.


Subject(s)
Allied Health Personnel/psychology , Allied Health Personnel/standards , Culturally Competent Care/standards , Occupational Therapy/standards , Self-Assessment , Surveys and Questionnaires/standards , Adult , Allied Health Personnel/statistics & numerical data , Culturally Competent Care/statistics & numerical data , Denmark , Female , Humans , Middle Aged , Reproducibility of Results , Translations , Young Adult
11.
Aust N Z J Public Health ; 44(4): 265-270, 2020 Aug.
Article in English | MEDLINE | ID: mdl-32510750

ABSTRACT

OBJECTIVE: To identify and describe caregiver perspectives on factors important for the health and wellbeing of urban Aboriginal children. METHODS: Caregivers of Aboriginal children participating in the Study of Environment on Aboriginal Resilience and Child Health (SEARCH) were asked to describe the single most important factor that would help their children to be healthy and well. Responses were analysed using thematic and content analysis. RESULTS: Of the 626 carers in SEARCH, 425 (68%) provided a response. We identified 13 factors related to: loving family relationships, culturally competent healthcare, food security, active living, community services, education, social and emotional connectedness, safety, breaking cycles of disadvantage, housing availability and affordability, positive Aboriginal role models, strong culture, and carer wellbeing. CONCLUSIONS: Aligning with holistic concepts of health, caregivers believe that a broad range of child, family and environmental-level factors are needed to ensure the health and wellbeing of Aboriginal children. Implications for public health: This study highlights the importance of providing public health initiatives that enable equal access to the social determinants of health for carers of Aboriginal children. Affordable and adequate housing, food security, culturally appropriate healthcare, and family and community connectedness remain critical areas for targeted initiatives.


Subject(s)
Caregivers/psychology , Child Health/ethnology , Culturally Competent Care/statistics & numerical data , Native Hawaiian or Other Pacific Islander/statistics & numerical data , Parents/psychology , Social Environment , Adolescent , Adult , Child , Female , Food Security , Health Services Accessibility , Housing , Humans , Male , Middle Aged , Native Hawaiian or Other Pacific Islander/psychology , Qualitative Research , Urban Population
12.
Hawaii J Health Soc Welf ; 79(6 Suppl 2): 82-88, 2020 06 01.
Article in English | MEDLINE | ID: mdl-32596684

ABSTRACT

Little is known about Marshallese palliative care practices. We explored traditional and contemporary Marshallese palliative care practices and examined generational differences. We performed three focus groups in 2011-2012 among Marshall Islanders in Hawai'i. A native speaking interpreter assisted group facilitators. Data were analyzed using classical thematic triangulation methods to identify specific Marshallese palliative care practices, the effect of economic and social challenges in Hawai'i, and generational differences comparing young and old. Nineteen persons (10 men and 9 women, youth aged 17-27 years, and elders as defined in Marshallese culture, aged 46-79) participated. A "good death" was defined as "peaceful and pain free," occurring from natural causes. Factors associated with a "good death" included gathering of family to absolve conflicts, and proper and timely cultural practices. Factors associated with "bad deaths" included young age, active suffering, accidents, suicides, "black magic/curses," or lack of timely or proper burial. Comparing generational differences, older Marshallese had differing opinions regarding preferred place of death, burial site, cultural practice preservation, artificial prolongation of life, and cremation. Barriers included mortuary fees, cost of transporting bodies, United States (US) government policies, and wait times for death certificates. Many cultural factors contribute to "good" or "bad" deaths. Attitudes toward palliative care practices differ by generation. Having previously documented different approaches by Yapese, a generalized "one size fits all" approach to Micronesians is inappropriate. Overcoming identified barriers may facilitate practices necessary for a good death in Micronesian populations in their home nations and as they migrate to communities throughout the US.


Subject(s)
Culturally Competent Care/standards , Family Characteristics , Palliative Care/methods , Adolescent , Adult , Aged , Attitude to Death , Culturally Competent Care/statistics & numerical data , Female , Focus Groups/methods , Hawaii , Humans , Male , Micronesia/ethnology , Middle Aged , Palliative Care/trends , Qualitative Research
13.
Curr Pharm Teach Learn ; 12(7): 834-842, 2020 07.
Article in English | MEDLINE | ID: mdl-32540045

ABSTRACT

INTRODUCTION: This study investigated readiness of soon-to-be pharmacists to provide culturally sensitive patient-centered care through administration of a capstone workshop. METHODS: The workshop was delivered in 2017 and 2018 and consisted of a pre-survey, a didactic lecture followed by group discussions of Worlds Apart cases, and a post-survey. The surveys contained knowledge questions and perception statements. Results were analyzed using descriptive and inferential statistics. Group questions were aligned to constructs from Campinha-Bacote's Model of Cultural Competence. The percentage of groups with correct answers was calculated. RESULTS: Both cohorts significantly increased their knowledge by the end of the workshop (p = 0.007, 2017; p < 0.001, 2018). Significant increases in respondent agreement to perception statements were also observed post-workshop. The percent of correct group responses varied by construct within the cultural aspect, between the aspects for each year, and between years. The evaluation of overall cultural readiness yielded the lowest results. CONCLUSION: This research revealed the necessity and value of the capstone workshop. Significant improvements in meeting cultural competence standards were observed upon completion of the exercise. Alignment of group discussion questions to Campinha-Bacote's Model of Cultural Competence constructs was useful in augmentation of assessment armamentarium as it unearthed gaps in cultural competences of pharmacy graduates. Further multi-institutional research aimed to generalize the findings of this study is highly desired.


Subject(s)
Attitude of Health Personnel , Culturally Competent Care/standards , Adult , Culturally Competent Care/statistics & numerical data , Education/methods , Education/statistics & numerical data , Female , Humans , Male , New Jersey , Pharmaceutical Services/standards , Schools, Pharmacy/organization & administration , Schools, Pharmacy/statistics & numerical data , Statistics, Nonparametric , Surveys and Questionnaires
14.
Cancer Epidemiol Biomarkers Prev ; 29(5): 910-917, 2020 05.
Article in English | MEDLINE | ID: mdl-32358038

ABSTRACT

BACKGROUND: The Center to Reduce Cancer Health Disparities (CRCHD), NCI, implemented Screen to Save, NCI's Colorectal Cancer Outreach and Screening Initiative to promote awareness and knowledge of colorectal cancer in racial/ethnic and rural populations. METHODS: The initiative was implemented through CRCHD's National Outreach Network (NON). NON is a national network of Community Health Educators (CHE), aligned with NCI-designated Cancer Centers across the nation. In phases I and II, the CHEs focused on the dissemination of cancer-related information and implementation of evidence-based educational outreach. RESULTS: In total, 3,183 pre/post surveys were obtained from male and female participants, ages 50 to 74 years, during the 347 educational events held in phase I. Results demonstrated all racial/ethnic groups had an increase in colorectal cancer-related knowledge, and each group strongly agreed that the educational event increased the likelihood that they would engage in colorectal cancer-related healthful behaviors (e.g., obtain colorectal cancer screening and increase physical activity). For phase II, Connections to Care, event participants were linked to screening. Eighty-two percent of the participants who obtained colorectal cancer screening during the 3-month follow-up period obtained their screening results. CONCLUSIONS: These results suggest that culturally tailored, standardized educational messaging and data collection tools are key change agents that can serve to inform the effectiveness of educational outreach to advance awareness and knowledge of colorectal cancer. IMPACT: Future initiatives should focus on large-scale national efforts to elucidate effective models of connections to care, related to colorectal cancer screening, follow-up, and treatments that are modifiable to meet community needs.


Subject(s)
Colorectal Neoplasms/diagnosis , Early Detection of Cancer/statistics & numerical data , Health Education/organization & administration , Health Knowledge, Attitudes, Practice , Mass Screening/organization & administration , Aged , Colorectal Neoplasms/prevention & control , Culturally Competent Care/organization & administration , Culturally Competent Care/statistics & numerical data , Early Detection of Cancer/psychology , Ethnicity/psychology , Ethnicity/statistics & numerical data , Feasibility Studies , Female , Follow-Up Studies , Health Plan Implementation , Health Status Disparities , Humans , Male , Mass Screening/psychology , Mass Screening/statistics & numerical data , Middle Aged , Patient Acceptance of Health Care/psychology , Patient Acceptance of Health Care/statistics & numerical data , Program Evaluation , Racial Groups/psychology , Racial Groups/statistics & numerical data , Rural Population/statistics & numerical data , Surveys and Questionnaires/statistics & numerical data , United States
15.
BMC Palliat Care ; 19(1): 52, 2020 Apr 22.
Article in English | MEDLINE | ID: mdl-32321494

ABSTRACT

BACKGROUND: Measuring functional status in palliative care may help clinicians to assess a patient's prognosis, recommend adequate therapy, avoid futile or aggressive medical care, consider hospice referral, and evaluate provided rehabilitation outcomes. An optimized, widely used, and validated tool is preferable. The Palliative Performance Scale Version 2 (PPSv2) is currently one of the most commonly used performance scales in palliative settings. The aim of this study is the psychometric validation process of a Polish translation of this tool (PPSv2-Polish). METHODS: Two hundred patients admitted to a free-standing hospice were evaluated twice, on the first and third day, for test-retest reliability. In the first evaluation, two different care providers independently evaluated the same patient to establish inter-rater reliability values. PPSv2-Polish was evaluated simultaneously with the Karnofsky Performance Score (KPS), Eastern Cooperative Oncology Group (ECOG) Performance Status (ECOG PS), and Barthel Activities of Daily Living (ADL) Index, to determine its construct validity. RESULTS: A high level of full agreement between test and retest was seen (63%), and a good intra-class correlation coefficient of 0.85 (P < 0.0001) was achieved. Excellent agreement between raters was observed when using PPSv2-Polish (Cohen's kappa 0.91; P < 0.0001). Satisfactory correlations with the KPS and good correlations with ECOG PS and Barthel ADL were noticed. Persons who had shorter prognoses and were predominantly bedridden also had lower scores measured by the PPSv2-Polish, KPS and Barthel ADL. A strong correlation of 0.77 between PPSv2-Polish scores and survival time was noted (P < 0.0001). Moderate survival correlations were seen between KPS, ECOG PS, and Barthel ADL of 0.41; - 0.62; and 0.58, respectively (P < 0.0001). CONCLUSION: PPSv2-Polish is a valid and reliable tool measuring performance status in a hospice population and can be used in daily clinical practice in palliative care and research.


Subject(s)
Culturally Competent Care/standards , Palliative Care/standards , Psychometrics/standards , Aged , Aged, 80 and over , Culturally Competent Care/methods , Culturally Competent Care/statistics & numerical data , Female , Humans , Male , Middle Aged , Palliative Care/methods , Palliative Care/statistics & numerical data , Poland , Psychometrics/instrumentation , Psychometrics/methods , Reproducibility of Results , Translating
16.
Isr J Health Policy Res ; 9(1): 13, 2020 03 25.
Article in English | MEDLINE | ID: mdl-32213194

ABSTRACT

BACKGROUND: A key component of the quality of health care is patient satisfaction, particularly in regard to Primary Care Physician (PCP), which represents the first contact with health care services. Patient satisfaction is associated with ethnic, regional and socio-demographic differences, due to differences in service quality, patient-doctor communication, and the patient's perceptions. The aim of this study was to evaluate patients' satisfaction related to primary care physicians' (PCP) performance and to explore potential differences by ethnicity in a multicultural population. METHODS: A national cross-sectional telephone survey was conducted, among a random sample of the Israeli population aged ≥25 years. Satisfaction level from performance of PCP was assessed using a validated questionnaire (30 items; 6 different domains). RESULTS: The final sample included (n = 827 Jews; n = 605 Arabs, mean age 54.7(±14.9). In the adjusted logistic regression models, Arabs reported lower general satisfaction related to PCPs' performance as compared to Jews (adjusted odds ratio (AOR), 0.63; (95% CI: 0.40-0.98). Arabs reported lower satisfaction related to PCPs' performance across the following domains: communication skills (AOR, 0.42; 95% CI, 0.22-0.82); interpersonal manners (AOR, 0.37; 95% CI, 0.24-0.58); and time spent with the patients (AOR, 0.60; 95% CI, 0.43-0.85). CONCLUSIONS: Jews and Arabs were very satisfied with PCPs' performance. However, there are ethnic differences in the extent of satisfaction level related to the performance of PCP. Satisfaction from PCPs' performance may be achieved by improving the communication skills of the PCP, encouraging interpersonal interaction between the PCP and the patient, and devoting more time to the patient during the visits.


Subject(s)
Culturally Competent Care/standards , Patient Satisfaction , Physicians/standards , Primary Health Care/standards , Adult , Aged , Arabs/psychology , Arabs/statistics & numerical data , Cross-Sectional Studies , Culturally Competent Care/statistics & numerical data , Female , Humans , Jews/psychology , Jews/statistics & numerical data , Male , Middle Aged , Physicians/statistics & numerical data , Primary Health Care/methods , Primary Health Care/statistics & numerical data , Work Performance/standards , Work Performance/statistics & numerical data
17.
Value Health Reg Issues ; 21: 188-193, 2020 May.
Article in English | MEDLINE | ID: mdl-32113181

ABSTRACT

OBJECTIVES: The ICEpop CAPability measure for adults (ICECAP-A) is a measure of capability well-being for adults and, by focusing on more than health, can extend the evaluative space of economic evaluations. The aim of this study was to translate and culturally adapt the ICECAP-A questionnaire into Persian to assess the construct validity and reliability of the ICECAP-A in the Iranian general population. METHODS: In this study, we followed Beaton's guidelines for cross-cultural adaptation of self-report measures. The questionnaire was administered to a sample of 1200 members of the general population using a stratified probability sampling method. The construct validity and reliability of the ICECAP-A were evaluated in relation to the EuroQol 5-dimension questionnaire (EQ-5D-5L). RESULTS: After translating and adapting the questionnaire, the term "being settled" was changed to "stability" for the Iranian cultural context. A moderate correlation (r = 0.48) was found between the ICECAP-A and EQ-5D-5L index scores, and the ICECAP-A scores showed differences across different health and socio-economic groups. The results of the exploratory factor analysis indicated that the 2 instruments measured 2 different constructs. In terms of reliability, the internal consistency of the measure using Cronbach's alpha was found to be 0.82 and for test-retest reliability, the intraclass correlation coefficient (ICC) was found to be 0.90 for total scores. CONCLUSIONS: The results of this study suggest that the Persian version of the ICECAP-A is a valid and reliable questionnaire and can complement EQ-5D measures already used in Iran.


Subject(s)
Culturally Competent Care/methods , Psychometrics/standards , Quality of Life/psychology , Adolescent , Adult , Aged , Culturally Competent Care/standards , Culturally Competent Care/statistics & numerical data , Female , Humans , Iran , Male , Middle Aged , Psychometrics/instrumentation , Psychometrics/methods , Reproducibility of Results , Surveys and Questionnaires , Translating
18.
Cancer Epidemiol Biomarkers Prev ; 29(3): 606-615, 2020 03.
Article in English | MEDLINE | ID: mdl-32132128

ABSTRACT

BACKGROUND: Latinos are underrepresented in biomedical research, particularly biomarker research, yet they constitute the nation's largest ethnic/racial minority. Optimal methods for obtaining biospecimens for biomarker research among Latinos need to be identified. To minimize barriers and enhance participation, this study developed and tested tailored strategies for collecting biomarkers of chronic stress and premature aging among Spanish-speaking Latina breast cancer survivors. METHODS: This study used a community-based participatory approach and selected hair and saliva as noninvasive biospecimens to assess telomere length, the cortisol awakening response (CAR), and hair cortisol concentration. We developed bilingual multimedia instructional materials, and community health workers assisted in collections. Telephone surveys assessed willingness to participate in future studies, barriers to sample collection, and recommendations for improving the strategies. RESULTS: A total of 103 participants were recruited over 18 months from two rural sites in California, and 88 were retained at 6-month follow-up. At baseline, rates of donating salivary DNA for telomere length measurement, saliva for CAR analysis, and hair for cortisol concentration were 98%, 89%, and 52%, respectively. At follow-up, rates were 83%, 76%, and 55%, respectively. The majority of participants reported being very willing to provide hair (72%) or saliva (74%) for future studies. CONCLUSIONS: Our results support the feasibility of including minorities in biomedical research. We report excellent rates of saliva collection when community partners are engaged in the process, and when patient-centered and culturally tailored recruitment methods are implemented. IMPACT: The development of methods to facilitate the inclusion of minorities in biomedical research is critical to eliminate racial/ethnic health disparities.


Subject(s)
Biomarkers, Tumor/genetics , Breast Neoplasms/diagnosis , Cancer Survivors/psychology , Patient Participation/psychology , Adult , Aged , Aged, 80 and over , Breast Neoplasms/genetics , California , Cancer Survivors/statistics & numerical data , Community-Based Participatory Research , Culturally Competent Care/methods , Culturally Competent Care/organization & administration , Culturally Competent Care/statistics & numerical data , DNA/genetics , DNA/isolation & purification , Feasibility Studies , Female , Follow-Up Studies , Hair/chemistry , Hispanic or Latino/psychology , Hispanic or Latino/statistics & numerical data , Humans , Middle Aged , Minority Groups/psychology , Minority Groups/statistics & numerical data , Patient Participation/statistics & numerical data , Patient-Centered Care/methods , Program Evaluation , Saliva/chemistry , Specimen Handling/psychology , Specimen Handling/statistics & numerical data
19.
BMC Health Serv Res ; 20(1): 20, 2020 Jan 07.
Article in English | MEDLINE | ID: mdl-31910837

ABSTRACT

BACKGROUND: Increasing diversity in Australia requires healthcare practitioners to consider the cultural, linguistic, religious, sexual and racial/ethnic characteristics of service users as integral components of healthcare delivery. This highlights the need for culturally appropriate communication and care. Indeed the Australian Government in various policies mandates culturally responsive communication. Therefore this paper aims to provide a brief overview of Australian healthcare literature exploring the components; prevalence and effects of this style of communication in healthcare. METHODS: A rapid review was conducted using the knowledge to action evidence summary approach. Articles included in the review were those reporting on the components, prevalence and outcomes of culturally responsive communication in Australian healthcare, published in English between 2008 and 2018. Articles were reviewed using reliable critical appraisal procedures. RESULTS: Twenty- six articles were included in the final review (23 qualitative studies; 2 systematic reviews; 1 mixed methods study). The literature indicates knowledge of the positive effects of culturally responsive communication in healthcare. It also highlights the disparity between the perceptions of healthcare practitioners and services users over the existence and components of culturally responsive communication in healthcare. The review identified a limited use of this style of communication, but rather a focus on barriers to culturally appropriate care, lacking an awareness of the importance of culturally responsive communication in this care. CONCLUSION: While literature suggests the importance and positive effects of culturally responsive communication, evidence suggests inconsistent implementation of this style of communication within Australian healthcare settings. This has implications for the outcomes of healthcare for the diverse population in Australia.


Subject(s)
Communication , Culturally Competent Care/statistics & numerical data , Physician-Patient Relations , Australia , Humans , Systematic Reviews as Topic
20.
Rev. Rol enferm ; 43(1,supl): 146-153, ene. 2020. graf
Article in Portuguese | IBECS | ID: ibc-193174

ABSTRACT

Maternal health care for migrant women poses new challenges to countries in the WHO European Region. Migrant women tend to have worse perinatal health outcomes as a result of migration conditions, socioeconomic needs, health status, language or health literacy. These women may manifest different representations and cultural practices associated with motherhood that need to be understood and respected during nursing care in the host country. The aim was to explore the meanings attributed by migrant women to nursing interventions implemented during prenatal care to postpartum period. Qualitative study using Grounded Theory. Thirty interviews were conducted with pregnant migrant women and mothers from various countries, between February 2015 to December 2016, in Primary Health Care. Emerging coding of data determined the central category BUILDING TRUST, representative of the use of professional skills and competencies to help migrant women gain confidence and expose emotions, insecurities and needs: "Feeling recognized" highlights sensitivity to cultural differences and transition experiences; "Explaining with simplicity" by the clarity, simplicity, practical and grounded meaning, contributing to the acquisition of skills in the exercise of motherhood and a quality of intercultural communication; "Getting answer", nurse acting in accordance with the needs exposed by the Other, promoting autonomy, confidence and satisfaction. The development of a trusting relationship has emerged as an essential component of maternal care. The study results may contribute to knowledge and quality of care indicators by showing the migrant client's perspective on the care received


No disponible


Subject(s)
Humans , Female , Pregnancy , Young Adult , Adult , Nursing Care/psychology , Obstetric Nursing/statistics & numerical data , Patient Outcome Assessment , Delivery, Obstetric/nursing , Prenatal Care/classification , Culturally Competent Care/statistics & numerical data , Emigrants and Immigrants/statistics & numerical data , Social Perception , Postpartum Period/psychology , Qualitative Research
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