Advancing Diabetes Quality Measurement in the Era of Continuous Glucose Monitoring.

PURPOSE: The purpose of this research is to develop a set of continuous glucose monitoring (CGM)-related measure concepts to be tested in a health care system. Existing measures assessing the quality of diabetes care do not include modern approaches to diabetes management, such as CGM. Continuous glucose monitors rival traditional methods of measuring diabetes management by providing real-time, longitudinal data and demonstrating glucose variability over time. The Improving Diabetes Quality Initiative seeks to address this gap in diabetes quality measurement. METHODS: A Technical Expert Panel (TEP) was convened to curate a diabetes quality measures portfolio and conceptualize three new CGM-related quality measures within the portfolio. From the additional measure concepts identified in the portfolio, the TEP prioritized three for conceptualization. High-level measure concept specifications were made available during a public comment period. RESULTS: The measure concepts prioritized by the TEP included a shared decision-making measure to assess the value of initiating CGM for disease management, a utilization measure to address disparities in access and use of CGM, and a patient-provider review of CGM data to promote routine consideration of these assessments in treatment and ongoing management. Clinical literature, public comments, and TEP feedback informed full measure specifications. CONCLUSIONS: The evolution of diabetes technology reflects the need to shift diabetes quality of care. The measure concepts will be tested in a flexible pilot setting to understand the future of diabetes care and communicate the value of CGM to people with diabetes, providers, and payers.

Creating a Legion of Diabetes Patient Advocates: DPAC Policy Training Meeting and Hill Day.

The Diabetes Patient Advocacy Coalition (DPAC) held a Policy Training Meeting and Hill Day September 29-October 1, 2018, in Washington, DC. Attendees were members of DPAC's Board of Directors and Staff, Patient Advisory Board, and individuals identified through a competitive call for applicants on DPAC's website and social media. We were joined by advocates from the Association of Black Cardiologists and the Endocrine Society. The Policy Training Meeting focused on teaching citizen advocates how to share their stories with legislators while integrating facts and statistics to reinforce their experiences. After two days of training, we met with our legislators on Capitol Hill to discuss two closely related issues: access to affordable insulin and diabetes self-management training. The partnership of patient advocates and health care providers was a powerful tool to get our message across. Meetings like this encourage open discussion and networking as well as education regarding individual advocacy. They are an effective way to bring people together as allies for the diabetes community. DPAC plans to hold additional Policy Training Meetings to develop leaders in each state who represent the voice of people living with diabetes.