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1.
Eur J Cancer Care (Engl) ; 19(2): 234-42, 2010 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-19686355

RESUMO

The objective was to explore the psychosocial adaptation of female partners living with men with a diagnosis of either localized or metastatic prostate cancer. Semi-structured qualitative interviews were conducted with 50 women at two time points (baseline and 6 months later). The interviews examined emotions, experiences, attitudes to sexual and continence issues and treatment decision making. As part of a larger prospective observational study, demographic data and scores for depression and anxiety were collected. Initial analysis demonstrated that the group of 11 women assessed as distressed on the anxiety and depression measures described reduced coping skills and poorer adaptation after 6 months. In contrast, the 39 women in the non-distressed group reported emotional adaptation that fitted the Lazarus and Folkman pattern of coping through appraisal of the impact of the diagnosis on their partner and themselves, appraisal of coping strategies and reappraisal of the situation. A surprise finding was the high level of resilience displayed by majority of these women. Results suggest that a psychosocial intervention could strengthen healthy adaptation and provide better coping skills for distressed couples.


Assuntos
Adaptação Psicológica , Ansiedade/psicologia , Neoplasias da Próstata/psicologia , Cônjuges/psicologia , Tomada de Decisões , Feminino , Humanos , Entrevistas como Assunto , Acontecimentos que Mudam a Vida , Masculino , Neoplasias da Próstata/terapia , Pesquisa Qualitativa , Qualidade de Vida , Comportamento Sexual/psicologia , Estresse Psicológico , Incontinência Urinária/psicologia
2.
Aust N Z J Psychiatry ; 38(9): 753-9, 2004 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-15324341

RESUMO

OBJECTIVES: To evaluate the use of the World Health Organization Disability Assessment Schedule II (WHODAS II), a patient questionnaire measuring disability, in patients treated for long-term psychotic disorders. METHOD: The study was conducted at St. Vincent's Mental Health Service, Melbourne, Australia. Twenty patients with long-term psychotic disorders under the care of either the residential Community Care Unit or the outpatient Mobile Support and Treatment Service were selected. For all 20 patients a clinician assessment of disability and functional status was recorded using the International Classification of Impairments, Disabilities and Handicaps-2 (ICIDH-2), Life Skills Profile (LSP) and Health of the Nation Outcome Scale (HoNOS). The WHODAS II survey was then administered to each patient. The WHODAS II was re-administered by a second rater within 5 days of the initial assessment for the purpose of test-retest reliability analysis. Each patient also completed the WHO Quality of Life instrument (brief version) (WHQOL-BREF), a self-report questionnaire on quality of life. RESULTS: The WHODAS II was experienced as relatively complex and at times difficult to administer with full co-operation in this clinical context. Overall, test-retest reliability was fair. The information it yielded gave valuable insights into patients' experiences. Most of the participants reported fewer impairments in mental functions and fewer activity limitations than reported by clinicians. However, patients reported significant restrictions in participation in social activities and limitations due to environmental barriers. The WHOQOL-BREF highlighted difficulties experienced by patients in their participation in society, through exploring difficulties and satisfaction with various aspects of life experience and this instrument was well accepted. CONCLUSIONS: The self-reported experience of patients is needed alongside clinician-rated measures to assess outcomes in people with long-term psychotic disorders. The WHODAS II records and measures patients' own experiences of disability. It may be used together with the WHOQOL-BREF, a distinct and complementary self-report assessment of quality of life.


Assuntos
Avaliação da Deficiência , Transtornos Psicóticos/diagnóstico , Organização Mundial da Saúde , Adulto , Estudos de Viabilidade , Feminino , Humanos , Masculino , Avaliação de Resultados em Cuidados de Saúde , Transtornos Psicóticos/terapia , Reprodutibilidade dos Testes , Tratamento Domiciliar , Inquéritos e Questionários , Fatores de Tempo
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