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1.
J Interpers Violence ; 37(9-10): NP7315-NP7342, 2022 05.
Artigo em Inglês | MEDLINE | ID: mdl-33107369

RESUMO

Antidomestic violence advocates have begun to question two essential policies that have long defined domestic violence shelters-strict secrecy regarding shelter location and prohibitions on shelter access to all except staff and residents-both of which serve to increase survivors' social isolation and entail coercive rules that resonate painfully with broader oppressive dynamics. In response a growing number of communities have begun experimenting with open shelters, which break from tradition by making their locations public, and allowing visitors. Although this innovation is a sharp departure from tradition, virtually no research exists to explore its philosophical underpinnings, benefits, and challenges. This study addresses this gap. Study Questions: We used a qualitative descriptive approach to explore the experiences and perspectives of open shelter directors. Participants included 14 open shelter directors from 11 states. We conducted semistructured phone interviews with each participant, focusing on their shelter's (a) nature and history; (b) rationale; (c) policies and programs related to secrecy and openness; (d) benefits and challenges; (e) effects on specific survivor subgroups; and (f) practices used to build or strengthen survivors' relationships. Open shelters: (a) promote physical safety using a broad array of measures; (b) adopt a range of policies that promote varying degrees of location disclosure and visitor accessibility; (c) face challenges, such as the need to gain buy-in from multiple constituents; and (d) Improve survivor outcomes, including decreased shame; improved advocacy relationships; increased access to services and community involvement in shelter life; and deepened relationships with network members; in turn increasing prospects for physical and psychological well-being long after survivors' shelter stays are over. Findings suggest a new path for shelters interested in promoting survivor safety and healing in the context of a web of meaningful relationships.


Assuntos
Violência Doméstica , Habitação , Humanos , Políticas , Sobreviventes
2.
Cancer Nurs ; 44(6): E520-E530, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33813530

RESUMO

BACKGROUND: Discharge education practices vary among institutions and lack a standardized approach for newly diagnosed pediatric oncology patients and their parents. OBJECTIVE: The purpose of this American Nurses Credentialing Center-supported pediatric multisite trial was to determine the feasibility and effectiveness of 2 nurse-led Parent Education Discharge Support Strategies (PEDSS) for families with a child who is newly diagnosed with cancer. INTERVENTIONS/METHODS: A cluster randomized clinical trial design assigned 16 Magnet-designated sites to a symptom management PEDSS intervention or parent support and coping PEDSS intervention. Outcome measures evaluated at baseline, 1, and 2 months after diagnosis include symptom experiences, parent perceptions of care, unplanned service utilization, and parent evaluation of the PEDSS interventions. RESULTS: There were 283 newly diagnosed children and their parent participating in this study. Linear mixed models revealed pain differed over time by the intervention; children in the symptom management group had a greater decrease in pain. Greater nausea and appetite disturbances were experienced by older children in both groups. Fatigue and sleep disturbance showed a significant decrease over time in both groups. The symptom management group reported significantly greater satisfaction with the PEDSS intervention. CONCLUSIONS: This study is among the first to examine the effects of 2 different early-discharge planning strategies for families of a newly diagnosed child with cancer. The evidence supports a standardized discharge education strategy that can be successfully implemented across institutions. IMPLICATIONS FOR PRACTICE: Nurses play a major role in the educational preparation and discharge of newly diagnosed pediatric cancer patients and their families.


Assuntos
Neoplasias , Alta do Paciente , Adaptação Psicológica , Adolescente , Criança , Humanos , Oncologia , Neoplasias/terapia , Pais
3.
J Nurs Adm ; 50(5): 287-292, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-32317570

RESUMO

Multisite study participation provides an opportunity for hospitals to gain access to the resources required to facilitate nursing research. The nurse-led Parent Educational Discharge Support Strategies for children newly diagnosed with cancer (PEDSS) multisite study engaged direct care nurses for successful implementation across 16 Magnet-designated hospitals. This article addresses strategies to overcome barriers to nursing research demonstrated through the PEDSS experience.


Assuntos
Relações Enfermeiro-Paciente , Pesquisa em Enfermagem , Recursos Humanos de Enfermagem Hospitalar , Pais/educação , Alta do Paciente , Educação de Pacientes como Assunto , Humanos , Satisfação no Emprego
4.
J Pediatr Oncol Nurs ; 36(3): 219-235, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-30943831

RESUMO

Pediatric oncology protocols frequently include multiple oral medications administered at varied dosing schedules, often for prolonged periods of time. Nonadherence to protocol-directed oral medications may place patients at increased risk for morbidity and mortality. The purpose of this systematic review was to evaluate the existing body of evidence to determine best-practice recommendations regarding interventions for oral medication adherence in children and adolescents with cancer. Twenty-four articles were systematically reviewed and evaluated according to the Grading of Recommendations, Assessment, Development, and Evaluation criteria; 2 studies focused on the pediatric oncology population, and the remaining 22 studies focused on other chronic illnesses of childhood. A variety of interventions to increase oral medication adherence in children were identified, including pill swallowing, technology, incentivization, education-based intervention, psychosocial support-based intervention, and combination intervention. Most interventions were shown to have some benefit in pediatrics, most in the non-oncology setting. The overall synthesis of the literature indicates that nonadherence to oral medications is a prevalent problem in pediatrics, and much work is needed to address this problem, particularly in pediatric oncology.


Assuntos
Antineoplásicos/uso terapêutico , Doença Crônica/psicologia , Promoção da Saúde/métodos , Adesão à Medicação/psicologia , Neoplasias/tratamento farmacológico , Educação de Pacientes como Assunto/métodos , Pediatria/normas , Guias de Prática Clínica como Assunto , Administração Oral , Adolescente , Antineoplásicos/administração & dosagem , Criança , Feminino , Humanos , Masculino
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