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1.
Narrat Inq Bioeth ; 13(2): 129-137, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-38661968

RESUMO

Comatose survivors of cardiac arrest may die following withdrawal of life-sustaining therapy (WLST) due to poor neurologic prognosis. Family members, acting as surrogate decision makers, are frequently asked to decide whether the patient should continue to receive ongoing life-sustaining therapy such as mechanical ventilation in this context of risk of death following removal. Sometimes, physicians and family members disagree about what is in the patient's best interest, and this conflict causes distress for both families and medical personnel.This article examines themes recorded in the medical records of 24 cardiac arrest patients at Columbia University Medical Center (CUMC) whose families chose to pursue continued life support despite physician recommendations for withdrawal. In documented conversations between patients' families and their providers, the most prominent themes included faith in miracles, the inappropriateness of "playing God," the value of more time with the patient, and differences in how providers and family members perceived the patient's status.


Assuntos
Família , Parada Cardíaca , Médicos , Relações Profissional-Família , Pesquisa Qualitativa , Suspensão de Tratamento , Humanos , Parada Cardíaca/terapia , Feminino , Masculino , Suspensão de Tratamento/ética , Pessoa de Meia-Idade , Tomada de Decisões , Adulto , Idoso , Cuidados para Prolongar a Vida/ética , Conflito Familiar
2.
Narrat Inq Bioeth ; 13(2): 76-77, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-38661955
3.
AMA J Ethics ; 23(7): E524-529, 2021 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-34351261

RESUMO

Following a case in which a patient's self-report contradicts imaging data, this commentary considers how patient-clinician communication, including an assessment of and accommodations for maximizing health literacy and shared decision making, can elucidate a patient's values and preferences. Patients' perceptions of how much input they have in making their health decisions influences the patient-clinician therapeutic alliance and outcomes and can support patients' physical and emotional well-being.


Assuntos
Comunicação , Letramento em Saúde , Tomada de Decisões , Tomada de Decisão Compartilhada , Emoções , Humanos , Participação do Paciente , Relações Médico-Paciente , Autorrelato
7.
J Palliat Care ; 33(3): 167-174, 2018 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-29732904

RESUMO

BACKGROUND: Patients who are frequently admitted to Medicine inpatient services comprise a distinct subset of readmitted patients about whom not much is known. OBJECTIVE: We sought to characterize this group including mortality rates, with the goal of better understanding this population. DESIGN: Observational study of frequently hospitalized patients defined as 4 or more admissions over a 6-month period, with hospitalization defined as nonelective admission to the hospital. SETTING: Single large academic medical center. PATIENTS: Adult inpatients on general medicine and medicine subspecialty services. MEASUREMENTS: The number of nonelective medicine hospitalizations, age, clinical conditions and comorbidities, calculation of an age-adjusted Charlson Comorbidity Index (CCI), outpatient and emergency department visits, length of stay, costs of hospitalization, and mortality over a 5-year period. Descriptive statistics were used to characterize variables of interest. RESULTS: We identified 153 patients with a total of 781 nonelective hospitalizations, totaling greater than 4000 hospital days and with charges of approximately US$9 million during the 6 months. Nearly all had insurance coverage and good outpatient follow-up (median of 7 appointments over the 6-month study period). Only 14% of those admissions qualified for observation status. Over 40% of patients had comorbid mental health disease or chronic narcotic dependence. Twenty-nine percent of patients died within 1 year; 50% were dead within 5 years. Age-adjusted CCI scores ranged annually from 3.00 to 3.58 among surviving patients versus 4.31 to 6.60 among deceased patients. CONCLUSIONS: These findings point to distinct groups of patients who are frequently hospitalized, and therefore would benefit from tailored management strategies: Those with progression of end-stage disease comprised one-third of the group and targeting that subset with palliative care referrals could help decrease readmission rates. Those with recurrent exacerbations of a chronic medical condition could be managed through telemanagement programs. Those with exacerbations of chronic pain could be addressed through collaboration with pain management specialists. Individualized care management plans may be useful for all, especially the latter two groups. Based on differences between survivors and deceased patients, an age-adjusted CCI score of 4 or 5 could be valuable sensitive or specific cutoffs, respectively, for predicting those who would benefit most from palliative care consultation regarding end-of-life goals and management.


Assuntos
Mortalidade Hospitalar , Pacientes Internados/estatística & dados numéricos , Mortalidade , Cuidados Paliativos/estatística & dados numéricos , Admissão do Paciente/estatística & dados numéricos , Readmissão do Paciente/estatística & dados numéricos , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
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