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1.
Rehabil Psychol ; 67(2): 189-204, 2022 May.
Artigo em Inglês | MEDLINE | ID: mdl-35175089

RESUMO

PURPOSE/OBJECTIVE: Children who are Deaf and Hard of Hearing (DHH) with additional special needs ("DHHPlus") have complex differences in psychological development that, when combined with aspects of their environment, often place them at an increased risk for psychological challenges. Further, their combination of special needs places unique demands on their parents. Despite the high proportion of DHH children in this particular subgroup, little research has been done to identify estimates of broad psychological functioning, the parent-child relationship, parent stressors, and parent satisfaction with resources independent of other samples. This study addresses that gap through collecting preliminary data on broad psychological functioning and related parent-child variables in a sample of children who are DHHPlus. RESEARCH METHOD/DESIGN: Thirty-one primary caregivers of children who were DHH with additional medical and/or mental health diagnoses completed several questionnaires about their child and family, including the Behavior Assessment System for Children (BASC-3) Parent Rating Scale, BASC-2 Parenting Relationship Questionnaire, and Family Stress Scale. The current DHHPlus sample was separated into two subgroups by age, including a preschool group (ages 2-5 years, n = 14) and child group (ages 6-11, n = 17) for visual comparison of mean scores with respective normative and clinical samples from each measure. RESULTS: When compared to normative and clinical samples, parents of DHHPlus children endorsed more concerns about their child's behavior, adaptive skills, the parent-child relationship, and higher levels of family-related stress, with a unique rank order of family stressors. CONCLUSIONS/IMPLICATIONS: Results provide initial child and parent estimates to support assessment and treatment services for this diverse and underserved population. (PsycInfo Database Record (c) 2022 APA, all rights reserved).


Assuntos
Perda Auditiva , Pessoas com Deficiência Auditiva , Criança , Pré-Escolar , Humanos , Relações Pais-Filho , Poder Familiar/psicologia , Pais/psicologia , Pessoas com Deficiência Auditiva/psicologia
2.
AJP Rep ; 12(1): e96-e107, 2022 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-35178283

RESUMO

Objective The objective of the study was to review the obstetric outcomes of complete hydatidiform molar pregnancies with a coexisting fetus (CHMCF), a rare clinical entity that is not well described. Materials and Methods We performed a retrospective case series with pathology-confirmed HMCF. The cases were collected via solicitation through a private maternal-fetal medicine physician group on social media. Each contributing institution from across the United States ( n = 9) obtained written informed consent from the patients directly, obtained institutional data transfer agreements as required, and transmitted the data using a Health Insurance Portability and Accountability Act of 1996 (HIPAA) compliant modality. Data collected included maternal, fetal/genetic, placental, and delivery characteristics. For descriptive analysis, continuous variables were reported as median with standard deviation and range. Results Nine institutions contributed to the 14 cases collected. Nine (64%) cases of CHMCF were a product of assisted reproductive technology and one case was trizygotic. The median gestational age at diagnosis was 12 weeks and 2 days (9 weeks-19 weeks and 4 days), and over half were diagnosed in the first trimester. The median human chorionic gonadotropin (hCG) at diagnosis was 355,494 mIU/mL (49,770-700,486 mIU/mL). Placental mass size universally enlarged over the surveillance period. When invasive testing was performed, insufficient sample or no growth was noted in 40% of the sampled cases. Antenatal complications occurred in all delivered patients, with postpartum hemorrhage (71%) and hypertensive disorders of pregnancy (29%) being the most frequent outcomes. Delivery outcomes were variable. Four patients developed gestational trophoblastic neoplasia. Conclusion This series is the largest report of obstetric outcomes for CHMCF to date and highlights the need to counsel patients about the severe maternal and fetal complications in continuing pregnancies, including progression to gestational trophoblastic neoplastic disease. Key Points CHMCF is a rare obstetric complication and may be associated with the use of assisted reproductive technology.Universally, patients with CHMCF who elected to manage expectantly developed antenatal complications.The risk of developing gestational trophoblastic neoplasia after CHMCF is high, and termination of the pregnancy did not decrease this risk.

3.
J Deaf Stud Deaf Educ ; 27(2): 115-124, 2022 03 17.
Artigo em Inglês | MEDLINE | ID: mdl-34952541

RESUMO

Psychological assessment plays a large part in the practice of psychology. Over the years, steps have been taken towards ensuring ethical and culturally sensitive psychological assessment for underserved populations, but little is known about the current state of the field of assessment of deaf and hard-of-hearing (DHH) individuals. An exploratory survey of school and clinical psychologists who work with DHH clients (n = 30) was conducted to obtain a snapshot of the state of the field. The current article focuses on sociodemographic characteristics, clinical training, clinical experiences, and language abilities of clinical psychologists who work with DHH clients. Participants averaged 15 years of assessment experience and almost all participants had some type of specialized training in assessing DHH clients. More than half of participants reported their ability to use multiple languages and communication approaches as either excellent or good. Current findings were compared with a similar survey from nearly 50 years ago (Levine, E. S. (1974). Psychological tests and practices with the deaf: A survey of the state of the art. Volta Review, 76, 298-319), and significant differences were found in participants' self-reported experience with DHH clients, training, and methods of communication.


Assuntos
Surdez , Perda Auditiva , Pessoas com Deficiência Auditiva , Surdez/psicologia , Humanos , Idioma , Pessoas com Deficiência Auditiva/psicologia , Testes Psicológicos
4.
Obstet Gynecol ; 134(6): 1343-1357, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31764749

RESUMO

Blunt abdominal trauma is the leading type of traumatic injury in pregnancy, with motor vehicle crashes, falls, and assault being the most common etiologies. Several adverse outcomes can occur in pregnancy, including placental abruption, preterm labor and preterm delivery, uterine rupture, and pelvic fracture. Understanding and integration of key anatomic and physiologic changes in pregnancy are key when evaluating a pregnant trauma patient. Pregnant women should be managed in a medical center with the ability to provide adequate care to both trauma patients-the pregnant woman and fetus. Multiple clinical providers are usually involved in the care of pregnant trauma patients, but obstetric providers should play a central role in the evaluation and management of a pregnant trauma patient given their unique training, knowledge, and clinical skills. An algorithm for management of trauma in pregnancy should be used at all sites caring for pregnant women. An alignment of policies within each system optimizes appropriate triage, integration of care, management, and monitoring of pregnant trauma patients and their fetuses. Ensuring effective protocols for prehospital and hospital treatment, as well as thorough training of involved health care providers, is essential in ensuring that optimal care is provided.


Assuntos
Traumatismos Abdominais/diagnóstico , Complicações na Gravidez/diagnóstico , Cuidado Pré-Natal , Ferimentos não Penetrantes/diagnóstico , Traumatismos Abdominais/terapia , Acidentes de Trânsito , Serviço Hospitalar de Emergência , Feminino , Humanos , Gravidez , Complicações na Gravidez/terapia , Ferimentos não Penetrantes/terapia
5.
Lang Speech Hear Serv Sch ; 50(1): 34-52, 2019 01 28.
Artigo em Inglês | MEDLINE | ID: mdl-30950776

RESUMO

Purpose The importance of early intervention for fostering language in children with hearing loss has been well documented; those that facilitate parent engagement are particularly effective. Listening and spoken language outcomes among children with hearing loss continue to fall short compared to hearing peers, despite improvements in hearing technologies. The current study evaluated the effectiveness of parent-child interaction therapy (PCIT) as a behavioral intervention for children with hearing loss and its applicability as a language intervention. Method PCIT effectiveness was evaluated for children with hearing loss (PCIT treatment group: N = 18). For a subset of the treatment group (matched experimental group: n = 6), pretreatment and posttreatment language samples were compared to a matched control group ( n = 6). Results Significant changes were observed in parent skills and child behavior from pretreatment to posttreatment for the PCIT treatment group. A subset of the treatment group (matched experimental group) with available matched controls (matched control group) demonstrated a significant increase in utterances and a trend toward significant increase in receptive vocabulary compared to the control group. Conclusion PCIT is a promising intervention for children with hearing loss that empowers parents to engage in optimal indirect language stimulation, improves parent-child interactions, improves child behavior, and promotes spoken language skills.


Assuntos
Terapia Comportamental/métodos , Comportamento Infantil , Linguagem Infantil , Intervenção Educacional Precoce/métodos , Perda Auditiva/reabilitação , Terapia da Linguagem/métodos , Relações Pais-Filho , Estudos de Casos e Controles , Pré-Escolar , Feminino , Perda Auditiva/psicologia , Humanos , Masculino , Resultado do Tratamento
6.
J Obstet Gynaecol Res ; 44(4): 723-729, 2018 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-29359386

RESUMO

AIM: To quantify home opioid use after cesarean delivery and identify factors associated with increased opioid use. METHODS: A convenience sample of women discharged by postoperative day 2 following a term cesarean delivery of a singleton fetus from May 2015 to May 2016 were contacted 2 weeks post-partum and questioned regarding opioid use, pain control and pain expectations. RESULTS: Among 141 women included in the analysis, the median number of opioid tablets used was 36 (interquartile range 16-45) and the median number prescribed was 60 (interquartile range 42-65). Logistic regression identified operative time ≥59.5 min and number of opioid tablets prescribed as two factors independently associated with opioid use in the top quartile. CONCLUSION: In the first 2 weeks post-partum, 75% of women used 45 or fewer opioid tablets. Operative time over 1 h and increased number of opioid tablets prescribed are factors associated with higher post-partum opioid use.


Assuntos
Analgésicos Opioides/uso terapêutico , Cesárea/efeitos adversos , Prescrições de Medicamentos/normas , Dor Pós-Operatória/tratamento farmacológico , Alta do Paciente/normas , Adulto , Feminino , Humanos , Dor Pós-Operatória/etiologia , Estudos Retrospectivos
7.
J Surg Res ; 221: 121-127, 2018 01.
Artigo em Inglês | MEDLINE | ID: mdl-29229117

RESUMO

BACKGROUND: Primary hydrothorax is a congenital anomaly affecting 1 in 10,000-15,000 pregnancies. The natural history of this condition is variable with some fetuses having spontaneous resolution and others showing progression. The associated pulmonary hypoplasia leads to increased perinatal morbidity and mortality. Optimal prenatal intervention remains controversial. METHODS: After obtaining the Institutional Review Board approval, a retrospective review of all patients evaluated for a fetal pleural effusion in the Fetal Diagnosis and Treatment Center at The University of Michigan, between 2006 and 2016 was performed. Cases with secondary etiologies for an effusion or when families decided to pursue elective termination were excluded. RESULTS: Pleural effusions were identified in 175 patients. Primary hydrothorax was diagnosed in 15 patients (8%). The effusions were bilateral in 13/15 cases (86%) and 10/15 (66%) had hydrops at presentation. All 15 patients with primary hydrothorax underwent prenatal intervention. Thoracentesis was performed in 14/15 cases (93%). Shunt placement was performed in 10/15 cases (66%). Shunt migration was seen in four patients (40%) and all of these underwent prenatal shunt replacement. Overall survival was 76%. The rates of prematurity and preterm premature rupture of membranes were 69% and 35%, respectively. CONCLUSIONS: Fetal intervention for the treatment of primary hydrothorax is effective, and it appears to confer a survival advantage. Both the fetuses and the mothers tolerated the procedures well. Preterm labor and preterm premature rupture of membranes remain an unsolved problem. Further studies are needed to understand the mechanisms behind the development of fetal hydrothorax.


Assuntos
Quilotórax/congênito , Terapias Fetais , Toracentese , Quilotórax/terapia , Feminino , Humanos , Gravidez , Estudos Retrospectivos
8.
Obstet Gynecol ; 130(1): 29-35, 2017 07.
Artigo em Inglês | MEDLINE | ID: mdl-28594763

RESUMO

OBJECTIVE: To define the amount of opioid analgesics prescribed and consumed after discharge after cesarean delivery. METHODS: We conducted a survey at six academic medical centers in the United States from September 2014 to March 2016. Women who had undergone a cesarean delivery were contacted by phone 2 weeks after discharge and participated in a structured interview about the opioid prescription they received on discharge and their oral opioid intake while at home. RESULTS: A total of 720 women were enrolled; of these, 615 (85.4%) filled an opioid prescription. The median number of dispensed opioid tablets was 40 (interquartile range 30-40), the median number consumed was 20 (interquartile range 8-30), and leftover was 15 (interquartile range 3-26). Of those with leftover opioids, 95.3% had not disposed of the excess medication at the time of the interview. There was an association between a larger number of tablets dispensed and the number consumed independent of patient characteristics. The amount of opioids dispensed did not correlate with patient satisfaction, pain control, or the need to refill the opioid prescription. CONCLUSION: The amount of opioid prescribed after cesarean delivery generally exceeds the amount consumed by a significant margin, leading to substantial amounts of leftover opioid medication. Lower opioid prescription correlates with lower consumption without a concomitant increase in pain scores or satisfaction.


Assuntos
Analgésicos Opioides/uso terapêutico , Cesárea , Dor Pós-Operatória/prevenção & controle , Padrões de Prática Médica , Adulto , Analgésicos Opioides/provisão & distribuição , Feminino , Humanos , Entrevistas como Assunto , Serviços de Saúde Materna , Transtornos Relacionados ao Uso de Opioides/prevenção & controle , Gravidez , Estados Unidos
9.
Rehabil Psychol ; 59(1): 99-106, 2014 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-24611926

RESUMO

OVERVIEW: Intellectual assessment of children who are deaf or hard of hearing presents unique challenges to the clinician charged with attempting to obtain an accurate representation of the child's skills. Selection of appropriate intellectual assessment instruments requires a working knowledge of the strengths and weaknesses of the measure and what changes in standardized administration might be necessary to accommodate for the needs of children who are deaf or hard of hearing. In the case of some available instruments, there is limited guidance and objective research available examining the performance of children who are deaf or hard of hearing. This review summarizes available information on widely used and most recent editions of intellectual assessment measures with special attention to guidance on accommodations, score interpretation, subtest selection and other test-specific considerations when assessing children who are deaf or hard of hearing. SUMMARY: There is much opportunity for further inquiry in the field of intellectual assessment as it applies to children who are deaf or hard of hearing, as many measures have not been closely scrutinized for their appropriate use with this population. Clinicians must recognize inherent difficulties with intellectual assessment measures with children who are deaf or hard of hearing and issues in providing for an accessible and accurate administration of test items.


Assuntos
Perda Auditiva/complicações , Testes de Inteligência/normas , Pessoas com Deficiência Auditiva , Criança , Surdez/complicações , Humanos , Comunicação não Verbal , Reprodutibilidade dos Testes , Língua de Sinais
10.
J Deaf Stud Deaf Educ ; 18(1): 123-37, 2013 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-23197316

RESUMO

This study reports the development of The Hearing Parents' Perceptions of Health Professionals' Advice Questionnaire (HPP/HPQ). This questionnaire was designed to investigate the impact of the advice and information that parents receive from health professionals during the time when their child's hearing loss is identified and how parents, in turn, make initial decisions about services and interventions for their deaf child. Once developed, the HPP/HPQ was partially validated on 2 separate samples. Analysis of data from both samples supported a 14-item questionnaire, with all items loading onto a single composite factor. The implications of how this tool can be used to both help improve health professionals' services and gain an understanding of how the relationship between hearing parents and health professionals might influence developmental outcomes in deaf children are discussed.


Assuntos
Pessoal de Saúde , Pais/psicologia , Relações Profissional-Família , Inquéritos e Questionários/normas , Adulto , Criança , Serviços de Saúde da Criança/normas , Pré-Escolar , Feminino , Humanos , Lactente , Masculino , Pessoas com Deficiência Auditiva/reabilitação , Atenção Primária à Saúde/normas , Reprodutibilidade dos Testes
11.
Reprod Sci ; 18(3): 286-95, 2011 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-21266667

RESUMO

The objectives were to determine whether single-nucleotide polymorphisms (SNPs) in KCNN3 (encodes the small conductance calcium-activated potassium channel subfamily N, member 3), associate with preterm birth (PTB). In all, 602 preterm families with at least 1 preterm (<37 weeks gestation) infant were studied: DNA from the infant and one or both parents were genotyped for 16 SNPs in KCNN3. A region of interest within KCNN3 was sequenced in 512 Caucasian non-Hispanic mothers (412 with preterm deliveries;100 who delivered at term). Family-based association testing was used for genotyping analysis; Fisher exact test was used for sequencing analysis. Six SNPs (rs1218585, rs4845396, rs12058931, rs1218568, rs6426985, and rs4845394) were associated with PTB (all Ps < .05). These variations were all located within the intronic region between exons 1 and 2. Maternal sequencing revealed an association of 3 SNPs with spontaneous PTB; rs1218585 (P = .007), rs1218584 (P = .05), and a novel SNP at chromosome1:153099353 (P = .02). Polymorphisms in KCNN3 are associated with PTB and investigation into the functional significance of these allelic changes is warranted.


Assuntos
Nascimento Prematuro/genética , Canais de Potássio Ativados por Cálcio de Condutância Baixa/genética , DNA/química , DNA/genética , Feminino , Genótipo , Humanos , Recém-Nascido , Recém-Nascido Prematuro , Masculino , Reação em Cadeia da Polimerase , Polimorfismo de Nucleotídeo Único , Gravidez
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