RESUMO
EXPERT PATIENTS: A PLACE AT LAST. The rise of user involvement in the healthcare system raises the question of how to integrate patient partners into care services, and how to create a new profession. France has a legislative framework in place to promote the role of patients and users in the healthcare system. But the question of the training, status and professionalization of these new players remains to be discussed.
PATIENTS EXPERTS: UNE PLACE ENFIN ACQUISE. L'essor de l'engagement des usagers dans le système de santé pose la question de l'intégration des patients partenaires dans les services de soins et de la création d'un nouveau corps de métier. La France dispose d'un dispositif législatif pour favoriser cette place des patients et des usagers dans le système de santé. Mais il reste à discuter la question de la formation, du statut et des modalités de professionnalisation de ces nouveaux acteurs.
Assuntos
Atenção à Saúde , Pacientes , Humanos , FrançaRESUMO
PURPOSE: This study investigated how patients with severe aphasia communicated in daily living, which verbal and non-verbal communication skills were spared and which were impaired, and whether activity limitations in communication are related to verbal impairments. METHODS: Twenty-seven patients with severe aphasia and 9 with moderate aphasia originating from a sample of 102 aphasic persons followed up in a French regional survey were assessed with a communication test and a communication activity limitation questionnaire 12-18 months after a first stroke. RESULTS: Patients with severe aphasia suffered severe activity limitations in communication, with performance 3-fold lower than that of patients with moderate aphasia, and 4-fold lower than scores attained by normals. Both aphasia severity and communication disability at follow-up were related to the initial severity of aphasia. Using a phone, credit card and a chequebook, reading and filling in administrative documents, and communication behaviours involved in social life were the most severely impaired. Non-verbal communication performance was not related to aphasia severity. CONCLUSIONS: We conclude that there is a great need for speech therapy research to develop new compensatory or alternative strategies for patients with severe aphasia.
