Identifying young Aboriginal and Torres Strait Islander children in linked administrative data: A comparison of methods.

BACKGROUND: In the ongoing debate on optimum methods for identification of Indigenous people within linked administrative data, few studies have examined the impacts of method on population counts and outcomes in family-based linkage studies of Aboriginal children. OBJECTIVE: To quantify differences between three algorithms in ascertaining Aboriginal and Torres Strait Islander children in linked administrative data. METHODS: Linked administrative health data for children born in Western Australia (WA) from 2000-2013, were used to examine the cohorts identified by three methods: A) the Indigenous Status Flag (ISF, derived by the WA Data Linkage Branch using a multistage-median approach) for the children alone; B) the ISF of the children, their parents and grandparents; and C) Indigenous status of the child, mother or father on either of the child's perinatal records (Midwives or birth registration), to determine differing characteristics of each cohort. RESULTS: Method B established a larger cohort (33,489) than Method C (33,306) and Method A (27,279), with all methods identifying a core group of 26,790 children (80-98%). Compared with children identified by Method A, additional children identified by Methods B or C, were from less-disadvantaged and more urban areas, and had better perinatal outcomes (e.g. lower proportions of small-for-gestational age, 10% vs 16%). Differences in demographics and health outcomes between Methods C and B were minimal. CONCLUSIONS: Demographic and perinatal health characteristics differ by Aboriginal identification method. Using perinatal records or the ISF of parents and grandparents (in addition to the ISF of the child) appear to be more inclusive methods for identifying young Indigenous children in administrative datasets. KEYWORDS: Aboriginal health, identification, data linkage, Indigenous, child, methodology.

Exploring disparities in acute myocardial infarction events between Aboriginal and non-Aboriginal Australians: roles of age, gender, geography and area-level disadvantage.

We investigated disparities in rates of acute myocardial infarction (AMI) between Aboriginal and non-Aboriginal people in the 199 Statistical Local Areas (SLAs) in New South Wales, Australia. Using routinely collected and linked hospital and mortality data from 2002 to 2007, we developed multilevel Poisson regression models to estimate the relative rates of first AMI events in the study period accounting for area of residence. Rates of AMI in Aboriginal people were more than two times that in non-Aboriginal people, with the disparity greatest in more disadvantaged and remote areas. AMI rates in Aboriginal people varied significantly by SLA, as did the Aboriginal to non-Aboriginal rate ratio. We identified almost 30 priority areas for universal and targeted preventive interventions that had both high rates of AMI for Aboriginal people and large disparities in rates.

The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in indigenous health research.

Human rights and ethical principles justify Indigenous control of health research conducted in Indigenous communities, but also emphasise the need for scientific rigour, knowledge and expertise, much of which currently resides with the non-Indigenous community. In 1994, we began development of the Bibbulung Gnarneep Project on Aboriginal maternal and child health in Perth, Western Australia. We describe the process of developing a protocol to ensure ethical conduct of this research through consultation and negotiation between Aboriginal and non-Aboriginal people involved in the project.

Infant care practices in a metropolitan aboriginal population Bibbulung Gnarneep Team.

OBJECTIVE: To describe sleeping position, room and bed-sharing, tobacco smoke exposure and infant feeding for a sample of Australian Aboriginal infants from a metropolitan area. METHODS: Interviews with Aboriginal mothers who resided in the Perth metropolitan area and had given birth during a continuous 15-month study period. The interviews took place when the infants were approximately 6-12 weeks old and efforts were made to contact all eligible mothers. Results are presented as proportions with 95% confidence intervals. RESULTS: Of all the eligible mothers (n = 515), 87% were contacted and 53% (n = 273) completed the interview. Of all the infants, 11% slept prone, 96% shared a room and 68% shared a bed; 65% of mothers smoked during pregnancy and 65% were smokers at the time of interview; 66% of the partners were smokers and 80% of the infants were regularly exposed to tobacco smoke; 89% of mothers initiated breast-feeding and 70% were breast-feeding at time of interview. CONCLUSION: Prevalences of non-prone sleeping and breast-feeding are similar to the overall Western Australian population, whilst tobacco smoke exposure of the infants is markedly higher. Programs of community and family education and support are required urgently to decrease this exposure.