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1.
J Clin Epidemiol ; 65(1): 10-5, 2012 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-22118265

RESUMO

OBJECTIVES: The doctor-patient relationship has been linked to patient satisfaction, treatment adherence, and treatment outcome. Many different instruments have been developed to assess this relationship. The large variety makes it difficult to compare results of different studies and choose an instrument for future research. This review aims to provide an overview of the existing instruments assessing the doctor-patient relationship. STUDY DESIGN AND SETTING: We performed a systematic search in PubMed, PsychInfo, EMBASE, and Web of Science for questionnaires measuring the doctor-patient relationship. We appraised each instrument ascertaining the questionnaires focused on the doctor-patient relationship. We compared the content and psychometric characteristics of the instruments. RESULTS: We found 19 instruments assessing the doctor-patient relationship. The instruments assess a variety of dimensions and use diverse conceptual models for the doctor-patient relationship. The instruments found also vary in terms to which they have been psychometrically tested. CONCLUSION: We have provided an overview of 19 instruments assessing the doctor-patient relationship. The selection of an instrument for future research should be based on the model or conceptual basis of the doctor-patient relationship that is most applicable to the study objectives and the health care field in which it will be applied.


Assuntos
Continuidade da Assistência ao Paciente/normas , Satisfação do Paciente , Relações Médico-Paciente , Inquéritos e Questionários , Humanos , Adesão à Medicação , Qualidade de Vida , Projetos de Pesquisa , Resultado do Tratamento
2.
Pediatr Cardiol ; 31(2): 229-33, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19937010

RESUMO

To assess the prevalence, history, and treatment of arrhythmias, in particular preexcitation and Wolff-Parkinson-White (WPW) syndrome, in patients with Ebstein anomaly (EA) during childhood and adolescence, we performed a multicenter retrospective study of all consecutive live-born patients with EA, diagnosed, and followed by pediatric cardiologists between 1980 and 2005 in The Netherlands. During a follow-up after EA diagnosis of 13 years 3 months (range: 6 days to 28 years 2 months), 16 (17%) of the 93 pediatric EA patients exhibited rhythm disturbances. Nine patients showed arrhythmic events starting as of the neonatal period. Supraventricular tachycardia was noted in 11 patients. One patient died in the neonatal period due to intractable supraventricular tachycardia resulting in heart failure and one patient died at 5 weeks of age most probably due to an arrhythmic event. The 14 surviving patients all show preexcitation, albeit 4 of them intermittently, and all have a right-sided accessory pathway location. Nine patients underwent catheter ablation of an accessory pathway. Only four patients are currently on antiarrhythmic drugs. The 17% prevalence of rhythm disturbances in pediatric EA patients, most commonly supraventricular arrhythmias, is significantly lower than in adult EA patients. Life-threatening rhythm disturbances are not frequent early in life. Symptomatic patients are well treated with radiofrequency catheter ablation.


Assuntos
Arritmias Cardíacas/epidemiologia , Anomalia de Ebstein/epidemiologia , Adolescente , Adulto , Criança , Pré-Escolar , Eletrocardiografia , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Países Baixos/epidemiologia , Síndromes de Pré-Excitação/epidemiologia , Estudos Retrospectivos , Taquicardia Supraventricular/epidemiologia , Síndrome de Wolff-Parkinson-White/epidemiologia
3.
Eur Heart J ; 28(21): 2661-6, 2007 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-17895254

RESUMO

AIMS: The objective of this study is to establish factors associated with death after diagnosis of Ebstein's anomaly (EA) during childhood and adolescence. METHODS AND RESULTS: This study is a retrospective chart review. All paediatric patients were diagnosed with EA and followed in tertiary-care university hospitals between 1980 and 2005. Factors associated with death were obtained using the Cox regression and log-rank tests. Of the 93 patients with EA, 18 (19%) died and 75 (81%) survived. The median age at EA diagnosis and follow-up was 0 (range 0-162) and 86 months (range 0-216), respectively. After 35 months of diagnosis, the Kaplan-Meier survival probability remains stable at 80%. Young age at presentation (< or =12 months), hepatomegaly, the need for medication (diuretics and Prostin) and mechanical ventilation at presentation, pulmonary valve defects (defined as moderate-to-severe pulmonary stenosis and pulmonary atresia), patent arterial duct, and ventricular septal defect were significantly associated with death. CONCLUSION: The overall survival of patients with EA during childhood and adolescence has dramatically improved when compared with earlier reports.


Assuntos
Anomalia de Ebstein/mortalidade , Adolescente , Fatores Etários , Causas de Morte , Criança , Pré-Escolar , Anomalia de Ebstein/complicações , Métodos Epidemiológicos , Feminino , Humanos , Lactente , Recém-Nascido , Masculino
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