Coping strategies in young and adult haemophilia patients: A tool for the adaptation to the disease.

INTRODUCTION: Chronic diseases, after diagnosis, involve changes that have to favour coping with the new situation. The resources used will help control, manage and adapt to the disease. The psychological aspects may be influencing how the individual faces the situation. AIM: To assess whether perceptions or beliefs and illness behaviour influence the choice of coping strategies for young and adult patients with haemophilia. METHODS: Multicenter cross-sectional descriptive study. We recruited 63 patients with haemophilia A and B, adolescents, young and adults, and both types of treatment. A clinical and sociodemographic data sheet, the Coping Strategies Inventory (CSI), the Illness Perception Questionnaire-revised (IPQ-R) and the Illness Behaviour Questionnaire (IBQ) were used. RESULTS: Patients with haemophilia use appropriate coping strategies, both cognitive and behavioural. Most of them are on-demand treatment, and despite arthropathy, they perceive good control of haemophilia. However, patients in prophylactic treatment are those employed more maladaptive coping strategies, less perception of control and hypochondriacal behaviour to the disease. The age variable may be relevant but we did not find significant differences. CONCLUSIONS: Coping strategies used by patients with haemophilia are adequate. Although it is noted that the perception of the disease, its controllability or not, affects illness behaviour and consequently how coping with haemophilia. These are based on personal characteristics, cognitive and attitudinal dispositions that the individual consciously use to solve or face adverse situations. The analysis of coping styles of patients could be a tool for professionals to manage properly the disease.

Analysis of the familiar psychopathology as a therapeutic tool / Análisis de la psicopatología familiar como herramienta terapéutica

The objective of this study is to find out the degree of psychopathology which patients with an eating disorder present (ED) and to which degree this is accompanied by the presence of psychopathology in mothers and fathers of patients. Three groups of patients with Anorexia Nervosa (AN), Bulimia Nervosa (BN), and eating disorders not otherwise specified (EDNOS) and a control group were selected. Each group had 30 participants (and mothers and fathers). A socio-demographic questionnaire and the SCL-90-R were applied. This scale measured nine dimensions of psychopathology in patients, mothers and fathers. An ANOVA of partially repeated measures with two factors was applied to each dimension of SCL- 90-R. Multiple comparisons between groups within each of the repeated measures were carried out with Sidak test. Patients in three clinical groups obtained significant differences in all psychopathological variables compared with the control group, except in phobic anxiety. These clinical results were accompanied by some degree of psychopathology in mothers but not fathers. The presence of high levels of psychopathology in the three groups of patients and mothers has therapeutic implications that indicate the need for psychological intervention in patients and their mothers (AU)

El objetivo de este estudio es averiguar el grado de psicopatología que presentan los pacientes con un Trastorno de la Conducta Alimentaria (TCA) y en qué grado está acompañado por la presencia de psicopatología en madres y padres de los pacientes. Se seleccionaron tres grupos de 30 pacientes cada uno con Anorexia Nerviosa, Bulimia Nerviosa y TCA No especificado y un grupo control (y sus madres y padres). Se aplicó un cuestionario socio-demográfico y la escala SCL-90-R que mide nueve dimensiones de psicopatología de pacientes, madres y padres, en los cuatro grupos. El análisis de datos se realizó con una ANOVA de dos factores con medidas parcialmente repetidas en cada subescala de la SCL-90-R. Las comparaciones múltiples entre los grupos dentro de cada medida repetida se realizaron con la prueba de Sidak. Los pacientes de los tres grupos clínicos obtuvieron diferencias significativas en todas las variables psicopatológicas frente al grupo control, menos en ansiedad fóbica. Este cuadro clínico fue acompañado por cierto grado de psicopatología de las madres pero no de los padres. La presencia de altos niveles de psicopatología en los tres grupos de pacientes y en las madres tiene implicaciones terapéuticas que marcan la necesidad de la intervención psicológica en las pacientes y en sus madres (AU)

Validation of the VERITAS-Pro treatment adherence scale in a Spanish sample population with hemophilia.

PURPOSE: We aimed to conduct a validation in Spanish of the Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro) questionnaire for use in patients with hemophilia under prophylactic treatment. PATIENTS AND METHODS: The VERITAS-Pro scale was adapted through a process of back translation from English to Spanish. A bilingual native Spanish translator translated the scale from English to Spanish. Subsequently, a bilingual native English translator translated the scale from Spanish to English. The disagreements were resolved by agreement between the research team and translators. Seventy-three patients with hemophilia, aged 13-62 years, were enrolled in the study. The scale was applied twice (2 months apart) to evaluate the test-retest reliability. RESULTS: Internal consistency reliability was lower on the Spanish VERITAS-Pro than on the English version. Test-retest reliability was high, ranging from 0.83 to 0.92. No significant differences (P>0.05) were found between test and retest scores in subscales of VERITAS-Pro. In general, Spanish patients showed higher rates of nonadherence than American patients in all subscales. CONCLUSION: The Spanish version of the VERITAS-Pro has high levels of consistency and empirical validity. This scale can be administered to assess the degree of adherence of prophylactic treatment in patients with hemophilia.