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1.
Cult Med Psychiatry ; 47(2): 402-421, 2023 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-35301644

RESUMO

Touch is a fundamental sense and the most unexplored of the five senses, despite its significance for everything we do in relation to ourselves and others. Studies have shown that touch generates trust, care and comfort and is essential for constituting the body. Based on ethnographic fieldwork, this study explores the absence and presence of touch in interactions between people with mental illness and professionals, in health care encounters with general practitioners, neurologists and physiotherapists, as well as masseurs. We found that touch and physical examination of patients with mental illness is absent in health care encounters, leaving the patients with feelings of being out of place, misunderstood, less socially approved and less worthy of trust. Drawing on Honneth and Guenther, we conclude that touch and being touched is an essential dimension of recognition-both of the patients' bodily sensations and symptoms and of them as human beings, detached from the psychiatric label-as well as contributing to the constitution of self and personhood. These findings confirm that touch works as an existential hinge that affirms a connection between the patient, the body and others and gives a sense of time, space and existence.


Assuntos
Transtornos Mentais , Tato , Humanos , Transtornos Mentais/terapia , Emoções , Antropologia Cultural , Atenção à Saúde
2.
Med Anthropol Q ; 36(1): 139-154, 2022 03.
Artigo em Inglês | MEDLINE | ID: mdl-34813120

RESUMO

Irritable bowel syndrome (IBS) is a health challenge in Denmark, especially among young and middle-aged people. It raises questions about control, alienation, responsiveness, and responsibility in relation to the body in welfare societies. Based on long-term ethnographic fieldwork, this article explores how young and middle-aged Danes diagnosed with IBS inhabit and relate to their bodies. Previous studies have described how IBS patients experience their bodies to be unreliable, unpredictable, and embarrassing. Drawing on phenomenological explorations of bodily alterity, we argue that the gut transforms into "an other" for the afflicted. It is involved in a restless process in which it sometimes emerges as "me," sometimes as "not-me," and sometimes as "not-not-me." People attempt to theorize and control their gut trouble, yet it continuously escapes their grasp. How do people live with and care for such an alienness-within? Does an IBS diagnosis make bodies feel more or less alien?


Assuntos
Emigrantes e Imigrantes , Síndrome do Intestino Irritável , Antropologia Médica , Dinamarca , Humanos , Síndrome do Intestino Irritável/diagnóstico , Pessoa de Meia-Idade
3.
Death Stud ; 42(5): 306-313, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-29272220

RESUMO

What might the good life amount to at the margins of life? Taking our point of departure in Jonathan Lear's notions of ontological breakdown and radical hope as well as the phenomenology of lived time, we explore hope within the institutional aging process in Denmark. Drawing on two ethnographic cases, Vagn and Thea, we propose a phenomenological and responsive hope emerging within complex temporalities. This is a relational hope to be included among the living, to be a human being among others. Importantly, it is neither optimistic nor naive but rather hope practiced in the face of devastating life circumstances.


Assuntos
Envelhecimento/etnologia , Esperança , Institucionalização , Idoso , Dinamarca/etnologia , Feminino , Humanos , Masculino
4.
Cult Med Psychiatry ; 41(2): 185-201, 2017 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-28397029

RESUMO

"Moral (and other) laboratories" is a special issue that draws on Cheryl Mattingly's notion of the "moral laboratory" to explore the uncanny interface between laboratory ethnography and moral anthropology, and to examine the relationship between experience and experiment. We ask whether laboratory work may provoke new insights about experimental practices in other social spaces such as homes, clinics, and neighborhoods, and conversely, whether the study of morality may provoke new insights about laboratory practices as they unfold in the day-to-day interactions between test tubes, animals, apparatuses, scientists, and technicians. The papers in this collection examine issues unique to authors' individual projects, but as a whole, they share a common theme: moral experimentation-the work of finding different ways of relating-occurs in relation to the suffering of something or someone, or in response to some kind of moral predicament that tests cultural and historically shaped "human values." The collection as a whole intends to push for the theoretical status of not merely experience itself, but also of possibility, in exploring uncertain border zones of various kinds-between the human and the animal, between codified ethical rules and ordinary ethics, and between "real" and metaphorical laboratories.


Assuntos
Antropologia Cultural/ética , Princípios Morais
5.
Cult Med Psychiatry ; 41(2): 267-283, 2017 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-28389901

RESUMO

Why is "everything I know is the right thing to do a million miles removed from what I do in reality?" This question posed by Rita, my main interlocutor and friend in a fieldwork that started in 2001-2003 and was taken up again in 2014-2015, opens up an exploration of moral work and moral selves in the context of the obesity epidemic and weight loss processes. I address these questions through the notion of "moral laboratories" taking up Mattingly's argument that moral cultivation over time cannot be disconnected from a notion of self. Mattingly has consistently argued for a biographical and narrative self, which is processual and created in community. Along these lines, and by recourse to the German philosopher Bernhard Waldenfels' phenomenology, I will propose the notion of a responsive self. The responsive self highlights the eventness of ongoing experimentation against the odds and captures equally pathic and agentive dimensions of a self that both persists and is transformed over time.


Assuntos
Princípios Morais , Obesidade/psicologia , Dinamarca , Humanos , Redução de Peso
6.
J Aging Stud ; 39: 21-30, 2016 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-27912852

RESUMO

This paper is based on an ethnographic fieldwork aimed at exploring ethnographically how vulnerability in old age is perceived and experienced in contemporary Denmark. The fieldwork showed remarkable differences between two phases of the fieldwork: the first addressing vulnerability from the "outside" through group interviews with professionals, leaders and older people who were not (yet) vulnerable; and the second from the "inside" through more in depth fieldwork with older people who in diverse ways could be seen as vulnerable. After a short introduction to anthropological and social gerontological literature on characteristics of "Western" aging: medicalization, successful, healthy and active aging, I present findings from both phases of this ethnographic fieldwork arguing that the ethnographic approach reveals the composite and complex nature of vulnerability in old age and the constant interactions between first, second and third person perspectives. Through these methodological and analytical moves a complex and empirically tenable understanding of vulnerability in old age has emerged which 1. moves beyond rigid dichotomies that have characterized the study of old age, 2. integrates individual experience, social interaction and the structural and discursive context into the analysis, and 3. reveals the complex interplay between vulnerability and agency in diverse situations and settings of old age.


Assuntos
Envelhecimento , Atitude Frente a Saúde , Renda , Marginalização Social , Apoio Social , Populações Vulneráveis , Centros-Dia de Assistência à Saúde para Adultos , Idoso , Idoso de 80 Anos ou mais , Antropologia Cultural , Dinamarca , Serviços de Assistência Domiciliar , Instituição de Longa Permanência para Idosos , Humanos , Relações Interpessoais , Medicalização , Percepção
7.
Qual Health Res ; 23(10): 1333-43, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24019307

RESUMO

In this study we investigated the moral dilemmas and strategies of a group of Danish parents who were trying to help their overweight children lose weight. Data were drawn from repeated semistructured interviews carried out over a period of 2 years with 12 families with overweight children. Using a narrative approach, we show the moral dilemmas parents found themselves in when trying to further the two seemingly incompatible goals of helping their children lose weight and simultaneously strengthening their self-worth. When the children were young, the parents tried to hide the fact that they needed to lose weight to protect them from feeling stigmatized. As the children grew older, the parents became more forthright about weight loss so the children would take on more responsibility. We suggest that for parents, weight loss is experienced as a risky undertaking because they perceive their children's self-worth as being in jeopardy during the process.


Assuntos
Sobrepeso/psicologia , Relações Pais-Filho , Pais/psicologia , Adulto , Criança , Pré-Escolar , Família/psicologia , Feminino , Humanos , Entrevistas como Assunto , Masculino , Princípios Morais , Sobrepeso/terapia , Poder Familiar/psicologia , Autoimagem , Estereotipagem
8.
Cult Med Psychiatry ; 35(3): 347-75, 2011 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-21695552

RESUMO

The task of caring for those with chronic illnesses has gained a new centrality in health care at a global level. We introduce the concept of "chronic homework" to offer a critical reflection on the treatment of chronic illnesses in three quite different national and local contexts: Uganda, Denmark, and the United States. A major challenge for clinicians, patients, and family caregivers is how to navigate the task of moving health care from clinic to home. By "chronic homework," we refer to the work patients and families are expected to carry out in their home contexts as part of the treatment of chronic conditions. Families and patients spend time receiving training by clinical experts in the various tasks they are to do at home. While this "colonization" of the popular domain could easily be understood from a Foucauldian perspective as yet another emerging mode of governmentality, this a conceptualization can oversimplify the way specific practices of homework are re-imagined and redirected by patients and significant others in their home surroundings. In light of this re-invention of homework in local home contexts, we foreground another conceptual trope, describing chronic homework as a borderland practice.


Assuntos
Doença Crônica/etnologia , Doença Crônica/terapia , Saúde da Família , Serviços de Assistência Domiciliar , Autocuidado , Síndrome da Imunodeficiência Adquirida/etnologia , Síndrome da Imunodeficiência Adquirida/psicologia , Síndrome da Imunodeficiência Adquirida/terapia , Anemia Falciforme/psicologia , Anemia Falciforme/terapia , Antropologia Cultural , Doença Crônica/psicologia , Saúde da Família/etnologia , Humanos , Quênia , Relações Pais-Filho , Autocuidado/métodos , Autocuidado/psicologia , Uganda , Estados Unidos
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