Parent knowledge regarding food selection for children with PKU: Results of a survey in the United States.

OBJECTIVES: Dietary treatment is the main therapy for most patients with phenylketonuria (PKU). Parental knowledge regarding food selection is crucial to ensure adequate metabolic control and brain development during childhood and to promote lifelong adherence and healthy dietary behavior in the offspring. The aims of this study were to assess whether parental or caregiver knowledge regarding nutritional selection for children with PKU is in accordance with medical recommendations and to evaluate factors that influence their level of knowledge. METHODS: This was a cross-sectional observational study. An online or paper survey (N = 178) was distributed throughout the United States. The survey included a validated food selection questionnaire to assess whether the respondent adequately identified foods that require certain restrictions versus foods that can be consumed freely by an individual with PKU. RESULTS: General knowledge of food selection among the caregivers was very high or high in nearly 60% (60-98th score percentile). Participants with the lowest scores in general knowledge of the PKU diet (quartile 1) were more likely to label allowed foods incorrectly. Respondents with the highest scores (quartile 4) were more likely to label limited foods correctly but incorrectly label allowed items. CONCLUSION: Knowledge of restricted foods is important to avoid poor metabolic control, but knowledge of allowed foods can be just as important to allow for a diet that is diverse, palatable, and nutritionally balanced.

Development and Validation of SERR Scale for Detecting Extremism and Religious Radicalism.

BACKGROUND: In line with the growing religious, political and social violence around the world, this study evaluates the psychometric properties of a new scale for Detecting Extremism and Religious Radicalism (SERR), a self-report measure of extremism and religious radicalism. METHOD: Factor analyses, validity and reliability data were collected using a sample of 1985 participants from 58 different cities around Spain who self-identified as actively practicing their religion. RESULTS: Statistical analyses of SERR scores yielded acceptable internal consistency scores (ω > .74) and confirmed key factors associated with radicalism and extremism. The structure of the scale was confirmed as two-dimensional (χ2(64) = 361.22, p < .001, CFI = 0.976, TLI = 0.970, RMSEA (90% CI) = 0.089 (0.080 - 0.098), SRMR = 0.064). Scores for the extremism dimension correlated significantly and positively with scores for the same factor on the Activism and Radicalism Intention Scales (r = .32, p < .001, n = 139). CONCLUSIONS: The SERR demonstrates adequate reliability and validity for evaluating the degree of extremism and radicalism in Christian/Catholic and Muslim believers.

Development and Validation of SERR Scale for Detecting Extremism and Religious Radicalism / Desarrollo y Validación de la Escala SERR para la Detección del Extremismo y Radicalismo Religioso

Background: In liiine with the growing religious, political and social violence around the world, this study evaluates the psychometric properties of a new scale for Detecting Extremism and Religious Radicalism (SERR), a self-report measure of extremism and religious radicalism. Method: Factor analyses, validity and reliability data were collected using a sample of 1985 participants from 58 different cities around Spain who self-identified as actively practicing their religion. Results: Statistical analyses of SERR scores yielded acceptable internal consistency scores (ω > .74) and confirmed key factors associated with radicalism and extremism. The structure of the scale was confirmed as two dimensional (χ²(64) = 361.22, p < .001, CFI = 0.976, TLI = 0.970, RMSEA (90% CI) = 0.089 (0.080 - 0.098), SRMR = 0.064). Scores for the extremism dimension correlated significantly and positively with scores for the same factor on the Activism and Radicalism Intention Scales (r = .32, p < .001, n = 139). Conclusions: The SERR demonstrates adequate reliability and validity for evaluating the degree of extremism and radicalism in Christian/Catholic and Muslim believers.(AU)

Antecedentes: en consonancia con la creciente violencia religiosa, política y social en todo el mundo, este estudio evalúa las propiedades psicométricas de la escala para la detección del extremismo y el radicalismo religioso (SERR), una medida de autoinforme del extremismo y el radicalismo religioso. Método: los análisis factoriales y las evidencias de validez y fiabilidad se recopilaron utilizando una muestra de 1985 participantes de 58 ciudades distintas de España que se identificaron a sí mismos como practicantes activos de su religión. Resultados: los análisis estadísticos de las puntuaciones SERR arrojaron puntuaciones de consistencia interna aceptables (ω > .74) y confirmaron los factores clave asociados con el radicalismo y el extremismo. La estructura de la escala se confirmó como bidimensional (χ²(64) = 361.22, p < .001, CFI = 0.976, TLI = 0.970, RMSEA (90% CI) = 0.089 (0.080 - 0.098), SRMR = 0.064). Las puntuaciones de la dimensión de extremismo se correlacionaron significativa y positivamente con las puntuaciones del mismo factor en la Escala de Intención de Activismo y Radicalismo (r = 0,32, p < 0.001, n = 139). Conclusiones: los autores concluyen que el SERR muestra una fiabilidad y validez adecuadas para evaluar el grado de extremismo y radicalismo en creyentes cristianos/católicos y musulmanes.(AU)

Adaptation and Validation of a Questionnaire to Evaluate Knowledge of the Low Phe Diet in PKU.

Phenylketonuria (PKU) is an autosomal recessive disorder of phenylalanine (Phe) metabolism, causing a build-up of Phe in the body. Treatment consists of a Phe-restricted diet for life and regular determination of blood Phe levels to monitor the intake of Phe. Despite the fact that diet is the cornerstone of treatment, there are no studies examining common knowledge about food items and whether they are allowed as part of the PKU diet. Improving parents' and patients' knowledge and competence about the diet enables them to make appropriate food choices. This study validates a food-knowledge questionnaire first developed in Spanish and modified for English speaking populations. The questionnaire potentially helps parents to prepare appropriate meals and healthcare providers to create individualized educational programs about PKU for children and adolescents with this disorder.