The Life Functioning Scale: a Measurement Tool Developed to Assess the Physical Functioning Abilities of Community-Dwelling Adults Aged 50 Years or Older.

Background: This study aimed to develop an instrument for assessing physical functioning among adults aged 50 years or older living in the community. Methods: Based on a review of various national health surveys and cohort studies, a 144-item bank was constructed for assessing physical functioning. Focus group interviews were conducted among adults aged 50 years or older to investigate their level of understanding of 60 selected items, followed by a pretest of the items on a nationally representative sample (n = 508). The final 25-item questionnaire was tested on an independent sample (n = 259) for validity and reliability based on classical test and item response theories. Predictive validity at the 6-month follow-up was tested in a separate sample (n = 263). Results: The newly developed Life Functioning (LF) scale assessed the dimensions of functional limitations, disabilities, and social activities. The scale satisfied a one-dimensionality assumption with good item fit and demonstrated criterion validity, construct validity, high internal consistency (Cronbach's alpha = 0.93), and test-retest reliability (intra-class correlation coefficient = 0.84; 95% CI, 0.76-0.89). The LF scale comprised 25 items with a total score ranging from 0 to 100. Higher scores indicated higher levels of functioning. The LF score was significantly associated with the physical functioning score at 6 months. Conclusion: The LF scale was developed to assess the physical functioning of people in their late midlife or older. Future studies should test the instrument on a national sample and evaluate its application in diverse population subgroups.

What Types of Burden Experienced by Family Caregivers of Dementia Patients Are Related to Their Life Satisfaction?

BACKGROUND: As the burdens related to dementia caregiving are vast, this study aimed to examine the relationship between life satisfaction and different types of burden reported by family caregivers of patients with dementia. METHODS: Data from the 2019 Korea Community Health Survey were used. The association between life satisfaction and caregiving burden reported by family caregivers of patients with dementia was investigated using multivariable regression analysis. These burdens resulted from social prejudice and temporal, physical, psychological, or economic reasons. Life Satisfaction was measured using the Organization for Economic Cooperation and Development Better Life Index. Subgroup analysis was performed based on the residing status of patients with dementia and the region of residence of the caregiver. RESULTS: Data of 12 617 participants were analyzed. Compared with individuals with no burden, those who reported a burden due to temporal (ß = -0.23, p = .003), psychological (ß = -0.18, p < .001), and economic (ß = -0.27, p < .001) demands showed poorer levels of life satisfaction. These tendencies were maintained in caregivers residing with patients and those providing care for institutionalized patients. Regarding the region where the caregiver lived, for those living in rural regions, burdens related to social prejudice or economical demands were associated with poor life satisfaction. CONCLUSION: Family caregivers reporting caregiving-related burdens for temporal, psychological, or economic reasons had lower life satisfaction. These findings suggest the importance of considering caregiver's different needs and conditions when implementing coping strategies when caring for individuals with dementia.

The influence of multiple frailty profiles on institutionalization and all-cause mortality in community-living older adults.

BACKGROUND: Frailty in older adults is associated with adverse geriatric outcomes. Physical frailty is often accompanied by problems in the cognitive, psychological, and social domains. This study investigated the ability of physical frailty combined with other health domains to predict institutionalization and mortality. METHODS: A national sample of 9171 Koreans aged 65 years or older were surveyed at baseline in 2008 and 3 year follow-up. Those who were prefrail or frail according to the Fried criteria were conceived to have physical frailty. Psychological frailty, cognitive frailty, and social frailty were defined as having depressive symptoms, cognitive impairment, and social vulnerabilities, respectively, in addition to physical frailty. Using Cox proportional hazards and competing-risks regression, the risk of mortality and institutionalization by the number and profiles of different frailty domains was analysed. RESULTS: At baseline, the 9171 participants were aged 73.1 (±6.8) years on average (median: 72, range: 65 to 103), and 59.2% were women. Multidomain frailty was highly prevalent (49.3%), with 6.1% concurrently displaying frailty in all four domains (mixed frailty). The risk of negative health outcomes increased with frailty in a higher number of domains with a subhazard ratio (SHR) of 3.48 (95% confidence interval [CI]: 1.83, 6.62; P < 0.001) for institutionalization and a hazard ratio (HR) of 3.95 (95% CI: 2.62, 5.93; P < 0.001) for mortality among those presenting mixed frailty. Psychological frailty (depressive symptoms combined with physical frailty) was strongly predictive of institutionalization (SHR = 2.85; 95% CI: 1.45, 5.59; P = 0.002) and mortality (HR = 2.47; 95% CI: 1.61, 3.78; P < 0.001). When combined with physical frailty and either depressive symptoms or social vulnerabilities, cognitive impairment also exhibited a significantly elevated risk of negative events. Physical frailty alone was not a strong predictor of adverse events, especially for mortality (HR = 1.13; 95% CI: 0.77, 1.67; P = 0.53). CONCLUSIONS: Co-occurrence of physical frailty with other domains is common in late life. The presence of frailty in multiple domains raises the risk of adverse outcomes, with the effects varying by multidimensional profiles.

Feasibility of Hair Cortisol as a Biomarker of Chronic Stress in People With Dementia.

Hair cortisol concentrations (HCC) are an innovative way to measure chronic stress relying on a small sample of hair. To date, there are no studies that have studied HCC as a biomarker of chronic stress in individuals with dementia. Given the vulnerability to chronic stress in people with dementia, using HCC as an objective measure of physiological stress in those with dementia has potential to enhance our understanding of this population. The goal of this exploratory, multidisciplinary, pilot study was to establish feasibility of HCC testing in people with dementia as a biomarker of chronic stress. HCC was examined over a 6-month period to assess physiological stress response during a transition to memory care. Newly admitted memory care residents (n = 13, mean age = 82) were followed over 6 months. Residents' hair samples and health information were collected at 3-month intervals. HCC levels significantly changed during the transition to memory care, which may reflect chronic physiological stress. Participants with frequent behavioral and psychological symptoms of dementia (BPSD) had significantly lower HCC at baseline and exhibited a blunted cortisol reactivity at follow-up. Based on detected changes in HCC, participants likely experienced stress reactions during the transition to memory care, providing preliminary evidence that HCC may be a useful, non-invasive measure of physiological stress in this population. This approach may also be applied to understanding the significance of person-centered care environments on minimizing chronic stress for people with dementia.

Attitudes toward aging as a psychological resource among caregivers of persons living with dementia.

Although there are a number of existing interventions to support caregivers in managing the behaviors and functioning of care recipients with dementia, less attention has focused on caring for caregivers and understanding how their characteristics may contribute to distress or wellbeing Positive psychological resources can promote health and well-being among caregivers and may also serve as protective factors that buffer negative caregiving experiences and minimize burden and stress. Informal dementia caregivers (N = 99, mean age = 54) answered survey questionnaires related to psychological resources (e.g., Brief Aging Perceptions Questionnaire, Caregiver Self-efficacy for Managing Dementia, Positive Affect and Negative Affect Scale) to explore the connection to their emotional health. After controlling for caregiver factors and care recipient factors, caregivers' aging attitudes and caregiving self-efficacy were predictive of both caregivers' positive and negative affect. Caregivers' aging attitudes also directly affected their emotional health and indirectly influenced emotional health through self-efficacy for caregiving. Future caregiver outreach and education should highlight positive aspects of caregiving, provide accurate dementia information, and improve psychoeducation regarding typical/atypical aging experiences while dispelling negative age stereotypes, which may foster better adaptation and resilience to a dementia caregiver role and strengthen positive mental representations of dementia caregiving.

Supporting LGBTQ+ Foster Teens: Development of a Relationship-Focused, Self-Guided Curriculum for Foster Families.

LGBTQ+ youth are over-represented in the foster care system. Child welfare systems across the country have been struggling with how to make their systems work better for the LGBTQ+ youth they serve. One strategy is developing foster caregiver trainings that bolster caregivers' knowledge and support of LGBTQ+ youth in their care. This study has three aims: (1) to provide an overview of a module designed to support relationship building between LGBTQ+ youth in foster care and their caregivers, (2) to describe the theater testing procedure used to assess usability of the developed module with foster caregivers and adults, and (3) to share the results of the theater test. Overall, participants provided positive usability feedback about the module activities, as well as a wide variety of recommendations for strengthening the content for widespread use. Participants felt the module should be directed specifically toward caregiver skill development rather than toward both caregiver and youth support. This module represents one example of how materials focused on building foster caregivers' knowledge and support have the potential to help LGBTQ+ teens who are overrepresented in the foster care system.

The Role of Caregivers in Physical Activity for Older Adults With Alzheimer's Disease.

This study examined the determinants of physical activity (PA) for older adults with Alzheimer's disease (AD) to learn more about how to promote PA in this population. Caregivers of older adults with AD (N = 99) provided information related to care recipient's PA, as well as addressed sociodemographics and perceptions about their care recipient's PA. Gender of care recipient was a significant predictor of PA (ß = .80, P < .05); men with AD participated in more PA than women with AD. Also, caregiver's outcome expectation for care recipient's PA also predicted more PA (ß = .82, P < .05). Caregiver's perceived benefits of PA (outcome expectation) for their care recipient partially mediated the relationship between self-efficacy for care recipient's PA and the reported levels of PA for the care recipient. This study demonstrated the importance of caregiver perceptions about care recipient's PA.