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1.
BMJ Open ; 13(10): e073585, 2023 10 25.
Artigo em Inglês | MEDLINE | ID: mdl-37880170

RESUMO

INTRODUCTION: Despite the high mortality rates in long-term care (LTC) homes, most do not have a formalised palliative programme. Hence, our research team has developed the Strengthening a Palliative Approach in Long Term Care (SPA-LTC) programme. The goal of the proposed study is to examine the implementation and effectiveness of the SPA-LTC programme. METHODS AND ANALYSIS: A cross-jurisdictional, effectiveness-implementation type II hybrid cluster randomised control trial design will be used to assess the SPA-LTC programme for 18 LTC homes (six homes within each of three provinces). Randomisation will occur at the level of the LTC home within each province, using a 1:1 ratio (three homes in the intervention and control groups). Baseline staff surveys will take place over a 3-month period at the beginning for both the intervention and control groups. The intervention group will then receive facilitated training and education for staff, and residents and their family members will participate in the SPA-LTC programme. Postintervention data collection will be conducted in a similar manner as in the baseline period for both groups. The overall target sample size will be 594 (297 per arm, 33 resident/family member participants per home, 18 homes). Data collection and analysis will involve organisational, staff, resident and family measures. The primary outcome will be a binary measure capturing any emergency department use in the last 6 months of life (resident); with secondary outcomes including location of death (resident), satisfaction and decisional conflict (family), knowledge and confidence implementing a palliative approach (staff), along with implementation outcomes (ie, feasibility, reach, fidelity and perceived sustainability of the SPA-LTC programme). The primary outcome will be analysed via multivariable logistic regression using generalised estimating equations. Intention-to-treat principles will be used in the analysis. ETHICS AND DISSEMINATION: The study has received ethical approval. Results will be disseminated at various presentations and feedback sessions; at provincial, national and international conferences, and in a series of manuscripts that will be submitted to peer-reviewed, open access journals. TRIAL REGISTRATION NUMBER: NCT039359.


Assuntos
Assistência de Longa Duração , Casas de Saúde , Humanos , Motivação , Coleta de Dados , Cuidados Paliativos , Ensaios Clínicos Controlados Aleatórios como Assunto
2.
Nurse Educ Pract ; 71: 103693, 2023 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-37429221

RESUMO

AIM: This article aims to discuss the development of a continuing education course for health care professionals to provide competent healthcare assistance to the Brazilian LGBT+ population and the implementation of this course using a m-Health solution. BACKGROUND: There is a scarcity of continuing education courses in the Brazilian context that update provides evidenced-informed education to ensure health care professional competence in the delivery of health care to LGBT+ individuals. METHODS: Based on Bloom's taxonomy, with a main focus on the cognitive domain, the course "Ally: A Holistic Approach to the LGBT+ Individual'' was developed in five months. This was based on the Nurse's Health Education for LGBT Seniors (HEALE), the Curriculum Implementation and Institutional Climate manual, Changes to Improve Healthcare for LGBT People, Gender Nonconforming or Born with DSD" and the National Comprehensive Health Policy for LGBT+ People, among others. RESULTS: Comprising six modules: i) human sexuality; ii) equitable care and appropriate terminology; iii) public health policy for the LGBT+ population; iv) cultural skills for health professionals; v) aging and health care for the LGBT+ population; and vi) mental health of LGBT+ people. Content validity indexing was established using an expert panel and was Ally was supported by a m-Health Solution called "Over the Rainbow'' and totals of 60 h of education. CONCLUSIONS: This m-Health solution and continuing education course for health professionals can be an opportunity to change health professionals' practice to offer more equitable health care for the LGBT+ population.


Assuntos
Aplicativos Móveis , Minorias Sexuais e de Gênero , Telemedicina , Humanos , Brasil , Currículo , Educação Continuada
3.
BMC Nurs ; 22(1): 47, 2023 Feb 21.
Artigo em Inglês | MEDLINE | ID: mdl-36805691

RESUMO

BACKGROUND: Understanding nursing students' knowledge about and attitudes toward older adults' using context-specific survey instruments can help to identify and design effective learning and teaching materials to improve the care for persons 60 years and above. However, there are no validated instruments to examine nursing students' knowledge and attitudes toward the care for older adults in the African context. The study aimed to evaluate the items on the Knowledge about Older Patients Quiz and Kogan's Attitudes towards Old People Scale suitable for the African context. METHODS: A cross-sectional study was conducted using second-and third-year nursing students from two public Nursing Training Institutions in Ghana. Using Sahin's rule of sample size estimate of at least 150 participants for unidimensional dichotomous scales, 170 nursing students were recruited to participate after an information session in their classrooms. Data were collected from December 2019-March 2020 using the Knowledge about Older Patients Quiz and Kogan's Attitudes Towards Old People Scale. Item response theory was employed to evaluate the Knowledge about Older Patients Quiz difficulty level and discrimination indices. Corrected item-to-total correlation analysis was conducted for Kogan's Attitudes towards Old People Scale. The internal consistency for both scales was examined. RESULTS: Of the 170 participants, 169 returned completed surveys. The mean age of participants was 21 years (SD = 3.7), and (54%) were female. Of the 30-items of the Knowledge about Older Patients Quiz, seven items were very difficult for most students to choose the correct response, and one was easy, as most of the students chose the correct response. Although 22 items demonstrated appropriate difficulty level, discrimination indices were used to select the final 15- items that discriminated moderately between upper and lower 25% performing students. The Kuder-Richardson-20 reliability was. 0.30, which was low. Considering Kogan's Attitudes towards Old People scale, 10-items were removed following negative and low corrected item-to-total correlation and a high Alpha coefficient if items were deleted. The final 22-items had a Cronbach alpha coefficient of 0.65, which was moderately satisfactory. CONCLUSION: Evaluation of the scales demonstrated essential content validity and moderate internal consistency for the context of our study. Further research should focus on ongoing context-specific refinement of the survey instruments to measure nursing students' knowledge about and attitudes toward caring for older adults in the African context.

4.
SAGE Open Nurs ; 7: 23779608211051824, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34746381

RESUMO

INTRODUCTION: Advance care planning can improve the quality of life for residents in long-term care homes and reduce stress for families. However, care home staff and families often lack knowledge about advance care planning, making it especially difficult for residents with dementia to communicate their care plan wishes. A Conversation Starter Kit may increase advance care planning awareness among staff and families. OBJECTIVES: This study evaluated an advance care planning intervention, the Conversation Starter Kit booklet, for use in long term care homes. METHODS: Data were collected at three long-term care homes in southern Ontario. We collected data from 55 residents who were able to make decisions on their own paired with 11 family members of these residents. We also collected data from 24 family members of residents who were unable to make decisions on their own. This study used a quasi-experimental, one group pre/post design. Quantitative surveys were administered before and after a three-month advance care planning intervention. An additional structured interview was completed at the end of the intervention period, which included both closed and open-ended questions to assess perceptions about the booklet's use or non-use. RESULTS: Residents reported more engagement in advance care planning after completing the Conversation Starter Kit booklet, particularly related to asking questions to health care providers about health care decisions. Family members reported feeling very certain that they would be able to make decisions on behalf of the resident but felt less certain after completing the booklet, implying the booklet raised their awareness of the types of decisions they might need to make, hopefully prompting them to be more prepared for decisions in the future. CONCLUSIONS: An advance care planning intervention - The Conversation Starter Kit booklet - appears acceptable and easy to use for residents and family members/friends in long-term care and can improve resident engagement in advance care planning. Although using the booklet may decrease efficacy for decision making among family members of long-term care residents, it may highlight the importance of more actionable engagement in advance care planning among residents, their families/friends, and staff.

5.
BMC Nurs ; 20(1): 192, 2021 Oct 09.
Artigo em Inglês | MEDLINE | ID: mdl-34627234

RESUMO

BACKGROUND: Making fun of growing older is considered socially acceptable, yet ageist humour reinforces negative stereotypes that growing old is linked with physical and mental deterioration, dependence, and less social value. Such stereotypes and discrimination affect the wellbeing of older people, the largest demographic of Canadians. While ageism extends throughout professions and social institutions, we expect nurses-the largest and most trusted group of healthcare professionals-to provide non-ageist care to older people. Unfortunately, nurses working with older people often embrace ageist beliefs and nursing education programs do not address sufficient anti-ageism content despite gerontological nursing standards and competencies. METHODS: To raise awareness of ageism in Canada, this quasi-experimental study will be supported by partnerships between older Canadians, advocacy organizations, and academic gerontological experts which will serve as an advisory group. The study, guided by social learning theory, will unfold in two parts. In Phase 1, we will use student nurses as a test case to determine if negative stereotypes and ageist perceptions can be addressed through three innovative e-learning activities. The activities employ gamification, videos, and simulations to: (1) provide accurate general information about older people, (2) model management of responsive behaviours in older people with cognitive impairment, and (3) dispel negative stereotypes about older people as dependent and incontinent. In Phase 2, the test case findings will be shared with the advisory group to develop a range of knowledge mobilization strategies to dispel ageism among healthcare professionals and the public. We will implement key short term strategies. DISCUSSION: Findings will generate knowledge on the effectiveness of the e-learning activities in improving student nurses' perceptions about older people. The e-learning learning activities will help student nurses acquire much-needed gerontological knowledge and skills. The strength of this project is in its plan to engage a wide array of stakeholders who will mobilize the phase I findings and advocate for positive perspectives and accurate knowledge about aging-older Canadians, partner organizations (Canadian Gerontological Nurses Association, CanAge, AgeWell), and gerontological experts.

6.
Can Geriatr J ; 24(3): 164-169, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34484498

RESUMO

COVID-19 pandemic has resulted in a significant increase in deaths in long-term care homes (LTCH). People with dementia living in LTCHs represent one of the most frail and marginalized populations in Canada. The surge of COVID-19 cases in LTCHs and rationing of health-care resources during the pandemic have amplified the pre-existing need for improvements in palliative and end-of-life care in LTCHs. This position statement, created by a task force commissioned by the Alzheimer Society of Canada, provides recommendations for a multipronged coordinated approach to improving palliative and end-of-life care of people with dementia living in LTCHs during the COVID-19 pandemic and beyond.

7.
PeerJ ; 9: e11491, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34123593

RESUMO

Poor adherence to hypertension treatment increases complications of the disease and is characterized by a lack of awareness and acceptance of ongoing treatment. Mobile health (mHealth) apps can optimize processes and facilitate access to health information by combining treatment methods with attractive solutions. In this study, we aimed at verifying the influence of using an mHealth app on patients' adherence to hypertension treatment, also examining how user experience toward the app influenced the outcomes. A total of 49 participants completed the study, men and women, diagnosed with hypertension and ongoing medical treatment. For 12 weeks, the control group continued with conventional monitoring, while the experimental group used an mHealth app. From the experimental group, at baseline, 8% were non-adherent, 64% were partial adherents and 28% were adherent to the treatment. Baseline in the control group indicated 4.2% non-adherents, 58.3% partial adherents, and 37.5% adherents. After follow-up, the experimental group had an increase to 92% adherent, 8% partially adherent, and 0% non-adherent (P < 0.001). In the control group, adherence after follow-up remained virtually the same (P ≥ 0.999). Results of user experience were substantially positive and indicate that the participants in the experimental group had a satisfactory perception of the app. In conclusion, this study suggests that using an mHealth app can empower patients to manage their own health and increase adherence to hypertension treatment, especially when the app provides a positive user experience.

8.
Psicol. teor. prát ; 23(1): 1-20, Jan.-Apr. 2021. ilus
Artigo em Inglês | LILACS, Index Psicologia - Periódicos | ID: biblio-1250554

RESUMO

Given the importance of developing protective actions to mental health in pandemic contexts, this study aimed to gather evidence about coping mechanisms that health professionals use during the Covid-19 pandemic. This systematic review, developed from international and Brazilian databases between November/2019 and July/2020, identified 3821 potentially relevant articles published in English and Portuguese. Checking the articles' appropriateness to the objective of the review resulted in the selection of 23 articles that were read in full, eight of which were selected for this review. The main coping mechanisms described were psychological support from relatives, colleagues, institutions, and patients; availability of continuing education and Personal Protective Equipment (PPE); spirituality; and time for hobbies. Promoting effective and sustainable coping strategies is vital to enable health professionals to feel capable of facing one of the major contemporary humanitarian challenges - the Covid-19 pandemic.


Considerando a importância do desenvolvimento de ações protetivas à saúde mental diante de pandemias, este estudo buscou reunir evidências sobre os mecanismos de enfrentamento empregados por profissionais de saúde em tempos de Covid-19. A revisão sistemática realizada em bases de dados internacionais e brasileiras, entre os meses de novembro/2019 e julho/2020, resultou em 3821 materiais publicados em inglês e português. A verificação da adequação dos materiais ao objetivo proposto derivou na seleção de 23 artigos para a leitura na íntegra, dos quais foram selecionados oito para compor esta revisão. Os principais mecanismos de enfrentamento descritos foram suporte psicológico oriundos de familiares, colegas, instituições, pacientes; disponibilidade de educação continuada e Equipamentos de Proteção Individual (EPIs); espiritualidade; tempo para hobbies. Promover estratégias de enfrentamento eficazes e sustentáveis é vital para que os profissionais da saúde possam se sentir capazes de enfrentar um dos maiores desafios humanitários contemporâneos - a pandemia do Covid-19.


Considerando la importancia de desarrollar acciones de protección a la salud mental ante a pandemia, este estudio buscó recopilar evidencia sobre los mecanismos de afrontamiento empleados por los profesionales de la salud en tiempos de Covid-19. La revisión sistemática desarrollada en bases de datos internacionales y brasileñas, entre los meses de noviembre/2019 y julio/2020, resultó en 3821 materiales publicados en inglés y portugués. La verificación de la adecuación de los materiales al objetivo propuesto llevó a la selección de 23 artículos para la lectura completa, de los cuales ocho fueron seleccionados para esta revisión. Los principales mecanismos de afrontamiento descritos fueron soporte psicológico, oriundos de familiares, colegas, instituciones, pacientes; disponibilidad de educación continuada y Equipo de Protección Personal (EPP); espiritualidad; tiempo para hobbies. Promover estrategias de afrontamiento eficaces y sustentables es vital para que los profesionales de salud puedan sentirse capaces de enfrentar un de los mayores retos humanitarios contemporáneos - la pandemia de Covid-19.


Assuntos
Humanos , Saúde Mental , Pessoal de Saúde , COVID-19 , Pacientes , Adaptação Psicológica , Família , Revisão , Crescimento e Desenvolvimento , Resiliência Psicológica , Ajustamento Emocional
9.
BMC Palliat Care ; 19(1): 107, 2020 Jul 13.
Artigo em Inglês | MEDLINE | ID: mdl-32660621

RESUMO

BACKGROUND: Despite increased annual mortality in long-term care (LTC) homes, research has shown that care of dying residents and their families is currently suboptimal in these settings. The purpose of this study was to evaluate resident and family outcomes associated with the Strengthening a Palliative Approach in LTC (SPA-LTC) program, developed to help encourage meaningful end of life discussions and planning. METHODS: The study employs a mixed method design in four LTC homes across Southern Ontario. Data were collected from residents and families of the LTC homes through chart reviews, interviews, and focus groups. Interviews with family who attended a Palliative Care Conference included both closed-ended and open-ended questions. RESULTS: In total, 39 residents/families agreed to participate in the study. Positive intervention outcomes included a reduction in the proportion of emergency department use at end of life and hospital deaths for those participating in SPA-LTC, improved support for families, and increased family involvement in the care of residents. For families who attended a Palliative Care Conference, both quantitative and qualitative findings revealed that families benefited from attending them. Residents stated that they appreciated learning about a palliative approach to care and being informed about their current status. CONCLUSIONS: The benefits of SPA-LTC for residents and families justify its continued use within LTC. Study results also suggest that certain enhancements of the program could further promote future integration of best practices within a palliative approach to care within the LTC context. However, the generalizability of these results across LTC homes in different regions and countries is limited given the small sample size.


Assuntos
Cuidados Paliativos/métodos , Cuidados Paliativos/normas , Avaliação de Programas e Projetos de Saúde/métodos , Idoso , Idoso de 80 Anos ou mais , Feminino , Grupos Focais/métodos , Humanos , Masculino , Pessoa de Meia-Idade , Ontário , Projetos Piloto , Pesquisa Qualitativa , Inquéritos e Questionários
10.
Palliat Support Care ; 18(6): 683-690, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-32410716

RESUMO

OBJECTIVE: Quality end-of-life (EOL) care is critical for dying residents and their family/friend caregivers. While best practices to support resident comfort at EOL in long-term care (LTC) homes are emerging, research rarely explores if and how the type of care received at EOL may contribute to caregivers' perceptions of a good death. To address this gap, this study explored how care practices at EOL contributed to caregivers' perceptions of a good resident death. METHOD: This study used a retrospective cross-sectional survey design. Seventy-eight participants whose relative or friend died in one of five LTC homes in Canada completed self-administered questionnaires on their perceptions of EOL care and perceptions of a good resident death. RESULTS: Overall, caregivers reported positive experiences with EOL care and perceived residents to have died a good death. However, communication regarding what to expect in the final days of life and attention to spiritual issues were often missing components of care. Further, when explored alongside direct resident care, family support, and rooming conditions, staff communication was the only aspect of EOL care significantly associated with caregivers' perceptions of a good resident death. SIGNIFICANCE OF RESULTS: The findings of this study suggest that the critical role staff in LTC play in supporting caregivers' perceptions of a good resident death. By keeping caregivers informed about expectations at the very end of life, staff can enhance caregivers' perceptions of a good resident death. Further, by addressing spiritual issues staff may improve caregivers' perceptions that residents were at peace when they died.


Assuntos
Atitude Frente a Morte , Cuidadores/psicologia , Percepção , Assistência Terminal/normas , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Casas de Saúde , Ontário , Estudos Retrospectivos , Inquéritos e Questionários , Assistência Terminal/métodos , Assistência Terminal/psicologia
11.
Can J Aging ; 39(4): 586-599, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-31987062

RESUMO

An aging population and increasing rates of dementia point to the need for alternative strategies that allow individuals to age in place. This multiple case study explored, from an insider's perspective, the role and meaning of music for individuals with dementia who are aging in place. Methods were semi-structured interviews, observations, and videos. The study's central theme is connection, with three types of "connectors" - self, partner, and music - as subthemes. Connection to self involves present moment awareness, accessing memories, and self-expression. Connection to partner builds on self-connection and spending time together with music. Lastly, the connection to music builds on the previous two subthemes as well as the desire to keep things "normal". This study provides insight into the growing body of interdisciplinary literature dedicated to dementia, music, aging in place, and contemplative practices, as well as implications for aging and caring for someone with dementia.


Assuntos
Demência/psicologia , Vida Independente/psicologia , Música , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Ontário , Pesquisa Qualitativa , Cônjuges
12.
Can J Pain ; 4(3): 71-86, 2020 Sep 24.
Artigo em Inglês | MEDLINE | ID: mdl-33987513

RESUMO

Background: Understanding the experience of prodromal ischemic cardiac pain and associated symptoms through use of literary and visual art evokes heightened a wareness of the emotional journey. AIMS: The aim of this study was to describe the initial early prodromal pain-related symptoms and feelings associated with adjusting to this new cardiac health concern and explore the subjective experience of coming to the realization and awareness of developing heart disease. MATERIALS AND METHODS: This study is a secondary supplemental qualitative analysis, using an arts-based embodied layered exploration assisted to translate the experiences of 23 individuals' journeys through symptom recognition. The analytic process involved three iterative layers: qualitative descriptive analysis of participant pain narratives, interpretation with thematic poetry, and representation via visual art to evoke an aesthetic, heightened level of understanding of the data. RESULTS: Denial and disbelief, encroaching pain and symptoms of heart disease, and self-recrimination were three themes that emerged from the data. Pain described by participants brought forward the emotional dimensions of the experience. Participants described their process of realization as a tumultuous time, fraught with feelings of vulnerability and uncertainty, where anger and self-effacing ridicule permeated their thoughts that were tempered with profound gratitude at survival. CONCLUSION: Bridging the connection between science and art to disseminate awareness of the nature of living with cardiac-related prodromal pain and disease is novel. Providing invitation and entrance into an individual's pain experience through qualitative inquiry with use of arts-based approaches makes visible the emotional meaning of pain.


Contexte: La compréhension de l'expérience de la douleur cardiaque ischémique avant-coureuse et des symptômes qui lui sont associés par l'utilisation de la littérature et des arts visuels permet de mieux prendre conscience du cheminement émotionnel.Objectifs: Cette étude avait pour but de décrire les premiers symptômes avant-coureurs liés à la douleur et les sentiments suscités par l'adaptation à ce nouveau problème de santé cardiaque, ainsi que d'étudier l'expérience subjective de la prise de conscience d'être en train de déveloper une maladie cardiaque.Matériel et méthodes: Cette étude constitue une analyse qualitative supplémentaire secondaire utilisant une méthode d'exploration par les arts à plusieurs niveaux pour traduire le cheminement de 23 personnes en ce qui concerne la reconnaissance des symptômes. Le processus d'analyse comportait trois niveaux itératifs : une analyse descriptive qualitative des récits sur la douleur des participants, l'interprétation par la poésie thématique et la représentation par l'art visuel, afin de susciter un niveau de compréhension esthétique et plus élevé des données.Résultats: Le déni, l'incrédulité, la douleur envahissante et les symptômes de maladie cardiaque, de même que l'autorécrimination, sont trois des thèmes qui sont ressortis des données. La description que les participants ont faite de la douleur a révélé les dimensions émotionnelles de l'expérience. Les participants ont décrit leur processus de prise de conscience comme une période tumultueuse, marquée par la vulnérabilité et l'incertitude, où la colère et une dérision discrète imprégnaient leurs pensées, lesquelles étaient tempérées par une profonde gratitude pour avoir survécu.Conclusion: L'établissement d'un lien entre la science et l'art pour faire connaître la vie avec la douleur avant-coureuse et la maladie cardiaque consistue une approche novatrice. Le fait d'être invité à pénétrer à l'intérieur de l'expérience de la douleur vécue par un individu par le truchement d'une enquête qualitative ayant recours à des approches axées sur les arts rend visible la signification émotionnelle de la douleur.

13.
Nurs Leadersh (Tor Ont) ; 32(3): 8-26, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31714204

RESUMO

OBJECTIVE: The goal of this scoping review was to identify existing palliative models in long-term care (LTC) homes and differentiate between the key components of each in terms of training/capacity-building strategies; resident, family and staff support; and advance care planning (ACP) and goals-of-care discussions. METHODS: We conducted a scoping review based on established methods to summarize the international literature on palliative models and programs for LTC. We analyzed the data using tabular summaries and content analysis. RESULTS: We extracted data from 46 articles related to palliative programs, training/capacity building, family support, ACP and goals of care. Study results highlighted that three key components are needed in a palliative program in LTC: (1) training and capacity building; (2) support for residents, family and staff; and (3) ACP, goals-of-care discussion and informed consent. CONCLUSION: This scoping review provided important information about key components to be included in a palliative program in LTC. Future work is needed to develop a model that suits the unique characteristics in the Canadian context.


Assuntos
Cuidados Paliativos/métodos , Assistência Terminal/métodos , Guias como Assunto , Humanos , Casas de Saúde/organização & administração , Cuidados Paliativos/tendências , Assistência Terminal/tendências
14.
Nurs Leadersh (Tor Ont) ; 32(3): 27-39, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31714205

RESUMO

OBJECTIVE: The purpose of this study was to conduct a stakeholder analysis of the strengthening a palliative approach to long-term care (SPA-LTC) model and refine it based on feedback from long-term care (LTC) residents and their families, staff, researchers and decision makers. METHODS: We used a mixed-methods design to conduct a stakeholder analysis of the SPA-LTC model that consisted of two sequential components: qualitative focus groups with LTC staff followed by a quantitative survey with key stakeholders. RESULTS: Twenty-one LTC staff provided feedback about the SPA-LTC model after residents relocated to LTC, during advanced illness and at end of life and in the period of grief and bereavement. This feedback helped to guide revisions of the model. According to the survey results, the SPA-LTC model was well received by 35 stakeholders, but its feasibility was questioned. CONCLUSION: The Canadian SPA-LTC model is evidence based and endorsed by LTC staff and stakeholders. Efforts are needed to determine the feasibility of implementing the model to ensure that residents' needs are made a priority while in LTC.


Assuntos
Guias como Assunto/normas , Cuidados Paliativos/métodos , Assistência Terminal/métodos , Adulto , Idoso , Canadá , Feminino , Grupos Focais/métodos , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/normas , Pesquisa Qualitativa , Assistência Terminal/normas
15.
Can Geriatr J ; 22(1): 13-22, 2019 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31501679

RESUMO

BACKGROUND: The trajectory of dementia through time is characterized by common transitions which are difficult for persons with dementia (PWDs) and their families and friends. Our study sought to identify determinants for the quality of transition outcomes. METHOD: A 24-month, prospective, longitudinal design identified specific transitions as they occurred in 108 person-with-dementia/caregiver dyads, and assessed the perceived transition quality from the perspective of the caregiver and what we denote as the 'summative' transition quality outcome variable (as explained in the Data Processing section under Methods). RESULTS: Among caregivers and during the authors' deliberations of the summative transition quality outcomes, good transition quality was associated with the PWD's baseline Disability Assessment for Dementia (OR 1.04, 95% CI 1.02-1.06 per increase in percent score based on summative assessments), and with the PWD's higher baseline quality of life scores (OR 1.11, 95% CI 1.05-1.18 per increase in unit of score in QOL-AD based on summative assessments). Caregiver-perceived better outcome quality was associated with lower caregiver burden, (OR 0.97, 95% CI 0.95-0.99 per unit CBI score increase). CONCLUSION: Identifying determinants of successful transitions is feasible and may be translated into practical guidance for use in clinical encounters. Those with worse prior quality of life or worse performance in activities of daily living appear to require specific support during transitions, as do those whose caregivers report higher levels of burden.

16.
BMC Geriatr ; 19(1): 128, 2019 05 06.
Artigo em Inglês | MEDLINE | ID: mdl-31060500

RESUMO

INTRODUCTION: This paper details a subset of the findings from a participatory action research project exploring a palliative intervention in long-term care sites across Canada. The findings presented in this paper relate to understanding compassion within the context of a palliative approach to long-term care. METHODS: Findings presented are drawn from qualitative interviews and focus groups with residents, family members, healthcare providers, and managers from 4 long-term care sites across 4 provinces in Canada. In total, there were 117 individuals (20 residents, 16 family members, 72 healthcare providers, and 9 managers) who participated in one of 19 focus groups. Data was analyzed by multiple members of the research team in accordance with thematic analysis. Individual concepts were organized into themes across the different focus groups and the results were used to build a conceptual understanding of compassion within Long Term Care . FINDINGS: Two themes, each comprised of 5 sub-themes, emerged from the data. The first theme 'Conceptualizing Compassion in Long-Term Care generated a multidimensional understanding of compassion that was congruent with previous theoretical models. 'Organizational Compassion: resources and staffing', the second major theme, focused on the operationalization of compassion within the practice setting and organizational culture. Organizational Compassion subthemes focused on how compassion could support staff to enact care for the residents, the families, one another, and at times, recognizing their pain and supporting it through grief and mourning. CONCLUSIONS: Results suggest that compassion is an essential part of care and relationships within long-term care, though it is shaped by personal and professional relational aspects of care and bound by organizational and systemic issues. Findings suggest that compassion may be an under-recognised, but essential element in meeting the promise of person-centred care within long-term care environments.


Assuntos
Empatia , Família , Pessoal de Saúde/normas , Assistência de Longa Duração/normas , Pesquisa Qualitativa , Instituições de Cuidados Especializados de Enfermagem/normas , Atitude do Pessoal de Saúde , Canadá/epidemiologia , Família/psicologia , Feminino , Grupos Focais , Pessoal de Saúde/psicologia , Humanos , Assistência de Longa Duração/psicologia , Masculino
17.
Int J Nurs Stud ; 92: 121-134, 2019 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-30807890

RESUMO

BACKGROUND: The aim of this review was to examine the extent and nature of published literature on nurses' and nursing students' preparedness to care for older adults in lower and middle-income countries. METHOD: A scoping review with 27 articles, guided by the Arksey and O'Malley (2005) framework was conducted. The following electronic databases were searched: MEDLINE, CINAHL, ERIC and SCOPUS. Grey literature using Google Scholar and ProQuest were also searched. Key search terms and subject headings such as "nursing students", "nurses", "stakeholders", "ministry of health", "readiness", "knowledge", "attitudes", "elder care", "seniors care" and "older adults" were used to identify relevant articles. Studies that reported on gerontological nursing, nursing students' and nurses' knowledge and attitudes towards older adults, and stakeholders/employers' views about nursing students' knowledge and attitudes towards older adults were included. RESULTS: Nurses reported having moderate to insufficient knowledge in the care of older adults in the majority of the studies. Nursing students reported insufficient knowledge in the care of older adults. However, both nurses and nursing students reported positive attitudes towards the care of older adults but held misconceptions about caring for older adults. Nursing students also reported a low preference for working with older adults. DISCUSSION AND IMPLICATIONS: The inadequate preparation of nurses and nursing students in the care of older adults means there are opportunities to enhance knowledge about health and nursing care in lower and middle-income countries and build on the positive attitudes towards older adults.


Assuntos
Serviços de Saúde para Idosos , Renda , Recursos Humanos de Enfermagem , Estudantes de Enfermagem , Idoso , Países em Desenvolvimento , Bacharelado em Enfermagem , Enfermagem Geriátrica , Humanos , Pessoa de Meia-Idade
18.
Can J Aging ; 38(3): 281-295, 2019 09.
Artigo em Inglês | MEDLINE | ID: mdl-30675830

RESUMO

ABSTRACTThe purpose of this study was to analyse the consistency and extent of palliative content across high-level guiding documents related to the care of persons residing in Canadian long-term care homes. A systematic search was conducted examining documents at the national level and across five provinces (Alberta, Ontario, Saskatchewan, Manitoba, and Quebec). Twenty-five documents were selected based on inclusion criteria from 273 documents identified in the systematic search. The majority of these documents were created nationally (48%) or in Ontario (28%). Documents varied in palliative topics discussed, and long-term care was discussed minimally. A minimal number of palliative care guiding documents were found. Long-term care specific documents were absent, and all documents lacked consistency on palliative topics. It is imperative that palliative principles are present and consistent in high-level documents in order to improve the quality of life and care for long-term care residents across Canada.


Assuntos
Assistência de Longa Duração/organização & administração , Cuidados Paliativos/organização & administração , Idoso , Canadá , Política de Saúde , Humanos , Planejamento de Assistência ao Paciente/organização & administração , Guias de Prática Clínica como Assunto , Qualidade de Vida
19.
Clin Nurs Res ; 28(6): 692-707, 2019 07.
Artigo em Inglês | MEDLINE | ID: mdl-29271241

RESUMO

The goal of this study was to examine current rates of resident deaths, Emergency Department (ED) use within the last year of life, and hospital deaths for long-term care (LTC) residents. Using a mixed-methods approach, we compared these rates across four LTC homes in Ontario, Canada, and explored potential explanations of variations across homes to stimulate staff reflections and improve performance based on a quality improvement approach. Chart audits revealed that 59% of residents across sites visited EDs during the last month of life and 26% of resident deaths occurred in hospital. Staff expressed surprise at the amount of hospital use during end of life (EOL). Reflections suggested that clinical expertise, comfort with EOL communication, clinical resources (i.e., equipment), and family availability for EOL decision making could all affect nondesirable hospital transfers at EOL. Staff appeared motivated to address these areas of practice following this reflective process.


Assuntos
Serviço Hospitalar de Emergência/estatística & dados numéricos , Assistência de Longa Duração/estatística & dados numéricos , Casas de Saúde/estatística & dados numéricos , Recursos Humanos em Hospital , Assistência Terminal/estatística & dados numéricos , Adulto , Idoso , Competência Clínica/normas , Comunicação , Pesquisa Participativa Baseada na Comunidade , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Ontário , Recursos Humanos em Hospital/psicologia , Recursos Humanos em Hospital/estatística & dados numéricos
20.
Can J Aging ; 38(2): 168-179, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-30526725

RESUMO

L'objectif de cette étude était d'identifier les lacunes dans les compétences gérontologiques autoperçues par le personnel en loisir dans les centres de soins de longue durée en Ontario. Deux séries de compétences gérontologiques ont été présentées dans un sondage en ligne qui a été distribué à du personnel en loisir œuvrant dans 500 centres de soins de longue durée. Parmi eux, 487 membres du personnel ont répondu au sondage. Ce sondage comportait des questions concernant les compétences actuelles du personnel et les compétences dont ils avaient eu connaissance avant d'entrer sur le marché du travail. Les facteurs perçus comme favorables à une plus grande confiance en ces compétences gérontologiques étaient l'expérience, la formation continue et les sessions de formation en cours d'emploi. Une meilleure compréhension des lacunes dans les compétences gérontologiques est nécessaire pour améliorer la formation en loisirs thérapeutiques, dont la formation continue dans ce domaine.The purpose of the study was to identify self-perceived gaps in gerontological competencies among recreation staff in long-term care homes in Ontario. Two sets of gerontological competencies, in an online survey, were distributed to recreation staff working in 500 long-term care homes. There were 487 recreation staff members who completed the questionnaire. The questionnaire contained questions regarding staff's current competencies and competencies that they recalled learning prior to entering the workforce. Factors that were perceived to contribute to confidence in gerontological competencies were experience, continuing education, in-service training sessions, and education. Understanding the gaps in gerontological competencies is required for enhancing therapeutic recreation education and continuing education.

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