What is disability history the history of?

This article has two connected aims. First, to contour the boundaries of modern disability history through outlining its development and second, to provide a new methodological agenda for disability history. The design model of disability has outlined an important new programme to integrate the social and medical models of disability by foregrounding materials. Yet 'disability things' (to use Ott's memorable term) have been part of disability history's genesis since the material turn, which started the process of social historians recovering the lives of those not recorded in textual sources through objects, including prosthetics. From considering objects as things, the influence of Science and Technology Studies scholars pushed disability historians to further consider objects as agents and objects in use. These approaches have highlighted the differential levels of autonomy and power that objects and their users have in making history. However, this focus on materials has highlighted visible and recorded disability over 'invisible' disability, which has perpetuated its opacity and created definitional difficulties around disability demarcation. Medical history methodologies aimed at revealing the 'patient view' can help bring people back into focus but uphold the categories of patients and biomedicine in a way that impedes the aims of disability scholars. Focusing on exactly what is hidden is less useful than focusing on how it is hidden, and science and technology study methodologies can illuminate these processes.

Who Invented the Possum? What Historians Can Learn from Disabled Innovation in Britain's Responaut Communities.

This article provides a new exploration of disabled innovation that transforms our understanding of collective contributions to the history of science and technology. It does so by showing how a user network galvanized individual inventions into disabled expertise by tracking the development of two technologies-the Selectascan/Possum and the adapted Loudspeaking Telephone. Hamraie and Fritsch's 2019 "Crip Technoscience Manifesto" defined "disabled expertise" by exploring how disabled technology modification has been devalued. This article takes up their manifesto's challenge to combine disability history with science and technology studies by analyzing the technologies discussed in Responaut, a British quarterly magazine published between 1963 and 1989. Responauts were people who depended on respirators to breathe. This technological interdependence meant that users adapted an extraordinary variety of technologies to live well with respirators and modify their personal environment.

'The body says it': the difficulty of measuring and communicating sensations of breathlessness.

Breathlessness is a sensation affecting those living with chronic respiratory disease, obesity, heart disease and anxiety disorders. The Multidimensional Dyspnoea Profile is a respiratory questionnaire which attempts to measure the incommunicable different sensory qualities (and emotional responses) of breathlessness. Drawing on sensorial anthropology we take as our object of study the process of turning sensations into symptoms. We consider how shared cultural templates of 'what counts as a symptom' evolve, mediate and feed into the process of bodily sensations becoming a symptom. Our contribution to the field of sensorial anthropology, as an interdisciplinary collaboration between history, anthropology and the medical humanities, is to provide a critique of how biomedicine and cultures of clinical research have measured the multidimensional sensorial aspects of breathlessness. Using cognitive interviews of respiratory questionnaires with participants from the Breathe Easy groups in the UK, we give examples of how the wording used to describe sensations is often at odds with the language those living with breathlessness understand or use. They struggle to comprehend and map their bodily experience of sensations associated with breathlessness to the words on the respiratory questionnaire. We reflect on the alignment between cognitive interviewing as a method and anthropology as a disciplinary approach. We argue biomedicine brings with it a set of cultural assumptions about what it means to measure (and know) the sensorial breathless body in the context of the respiratory clinic (clinical research). We suggest the mismatch between the descriptions (and confusion) of those responding to the respiratory questionnaire items and those selecting the vocabularies in designing it may be symptomatic of a type of historical testimonial epistemic injustice, founded on the prioritisation of clinical expertise over expertise by experience.

Objects of safety and imprisonment: Breathless patients' use of medical objects in a palliative setting.

In this article, the authors consider breathless adults with advanced non-malignant lung disease and their relationship with health objects. This issue is especially relevant now during the Covid-19 pandemic, where the experiences of breathlessness and dependence on related medical objects have sudden and global relevance. These objects include ambulatory oxygen, oxygen concentrators and inhalers, and non-pharmacological objects such as self-monitoring devices and self-management technologies. The authors consider this relationship between things and people using an interdisciplinary approach employing psychoanalytic theory (in particular Winnicott's theory of object relations and object use), Science and Technology Studies (STS) and phenomenology. This collaborative approach allows them to relate patient use of health objects to ways of thinking about the body, dependency, autonomy, safety and sense-making within the context of palliative care. The authors illustrate the theoretical discussion with three reflective vignettes from therapeutic practice and conclude by suggesting further interdisciplinary research to develop the conceptual and practice-based links between psychoanalytic theory, STS and phenomenology to better understand individual embodied experiences of breathlessness. They call for palliative care-infused, psychoanalytically informed interventions that acknowledge breathless patients' dependence on things and people, concomitant with the need for autonomy in being-towards-dying.

The categorisation of hearing loss through telephony in inter-war Britain.

The telephone in inter-war Britain was an important tool in both the identification and categorisation of individual hearing loss. Between 1912 and 1981, the British Post Office had control over a nationalised telephone system. Linkage between telephony and hearing has long been noted by historians of sound and science, and Post Office engineers in the inter-war period had considerable expertise in both telecommunications and hearing assistive devices. This article first demonstrates how the inter-war Post Office categorised different kinds of hearing loss through standardizing the capacity of its users to engage effectively with the telephone, and secondly investigates how successful it was in doing so. By utilising the substantial but little used material held by BT Archives, we can trace the development of the Post Office's 'telephone for deaf subscribers' and explore how it was used to manage and standardise the variability of hearing and hearing loss within the telephone system.

'X-rays don't tell lies': the Medical Research Council and the measurement of respiratory disability, 1936-1945.

During the first half of the twentieth century, the mining industry in Britain was subject to recurrent disputes about the risk to miners' lungs from coal dust, moderated by governmental, industrial, medical and mining bodies. In this environment, precise measurements offered a way to present uncontested objective knowledge. By accessing primary source material from the National Archives, the South Wales Miners Library and the University of Bristol's Special Collections, I demonstrate the importance that the British Medical Research Council (MRC) attached to standardized instrumental measures as proof of objectivity, and explore the conflict between objective and subjective measures of health. Examination of the MRC's use of spirometry in their investigation of pneumoconiosis (miner's lung) from 1936 to 1945 will shed light on this conflict and illuminate the politics inherent in attempts to quantify disability and categorize standards of health.

Phyllis M. Tookey Kerridge and the science of audiometric standardization in Britain.

The provision of standardized hearing aids is now considered to be a crucial part of the UK National Health Service. Yet this is only explicable through reference to the career of a woman who has, until now, been entirely forgotten. Dr Phyllis Margaret Tookey Kerridge (1901-1940) was an authoritative figure in a variety of fields: medicine, physiology, otology and the construction of scientific apparatus. The astounding breadth of her professional qualifications allowed her to combine features of these fields and, later in her career, to position herself as a specialist to shape the discipline of audiometry. Rather than framing Kerridge in the classic 'heroic-woman' narrative, in this article we draw out the complexities of her career by focusing on her pursuit of standardization of hearing tests. Collaboration afforded her the necessary networks to explore the intricacies of accuracy in the measurement of hearing acuity, but her influence was enhanced by her ownership of Britain's first Western Electric (pure-tone) audiometer, which she placed in a specially designed and unique 'silence room'. The room became the centre of Kerridge's hearing aid clinic that, for the first time, allowed people to access free and impartial advice on hearing aid prescription. In becoming the guardian expert and advocate of the audiometer, Kerridge achieved an objectively quantified approach to hearing loss that eventually made the latter an object of technocratic intervention.