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Z Psychosom Med Psychother ; 65(3): 272-287, 2019 Sep.
Artigo em Alemão | MEDLINE | ID: mdl-31477000

RESUMO

Development of an evaluation system for online self-help groups by using the example of German-speaking cancer forums Objectives: This paper pursues the question how the quality of forums can be evaluated. Therefor a grading system was designed and 23 German-speaking cancer forums were evaluated by content and formal criteria Methods: Using a keyword-based internet search, 23 forums were identified. Data was gathered about: number of themes, posts and members, structure, key subjects and type of financing. Furthermore, an evaluation system was developed, with which the forums where assessed. Results: The forums were divided in forums with (n = 10) and without (n = 9) focus on a type of cancer. Four are health portals with forum-function. The quality of online cancer forums is heterogeneous, the evaluation resulted an average quality index of 2.7 for the total cancer forums Conclusion: A good information editing, moderation, data protection and transparency are important quality criteria. The evaluation of forums may help the patients, to autonomously value the quality of the presented information.


Assuntos
Internet , Idioma , Neoplasias , Avaliação de Programas e Projetos de Saúde/métodos , Grupos de Autoajuda/normas , Mídias Sociais/normas , Alemanha , Humanos
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