RESUMO
BACKGROUND: Patients' experience with health care is becoming a key component for the provision of a patient-centered health care model. The aim of this study was to assess the experience with health care of patients with inflammatory arthritis and patient- and health care-related factors. METHODS: Patients responded to an anonymous survey provided by their treating clinical teams. The survey comprised the validated 12-item IEXPAC (Instrument to Evaluate the EXperience of PAtients with Chronic diseases) tool and demographic variables and health care-related characteristics that may affect patients' experience. RESULTS: A total of 359 of 625 surveys were returned (response rate, 57.4%). Overall, patient responses were positive (>60% gave "always/mostly" answers) for statements assessing the interaction between patients and health care professionals or patient self-management following health care professional guidance. However, positive patient responses for items regarding patient interaction with the health care system via the internet or with other patients were less than 13%. Only 25.6% of patients who had been hospitalized reported receiving a follow-up call or visit following discharge. In the bivariate analysis, experience scores were higher (better experience) in men, those seen by fewer specialists or by the same physician, and in patients treated with a fewer number of drugs or with subcutaneous/intravenous drugs. Multivariate analyses identified regular follow-up by the same physician and treatment with subcutaneous/intravenous drugs as variables associated with a better patient experience. CONCLUSIONS: This study identifies areas of care for patients with inflammatory arthritis with the potential to improve patients' experience and highlights the importance of patient-physician relationships and comprehensive patient care.
Assuntos
Artrite , Preferência do Paciente , Medidas de Resultados Relatados pelo Paciente , Melhoria de Qualidade/organização & administração , Artrite/psicologia , Artrite/terapia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Administração dos Cuidados ao Paciente/métodos , Relações Médico-Paciente , Pesquisa Qualitativa , Espanha , Inquéritos e QuestionáriosAssuntos
Anti-Infecciosos/efeitos adversos , Compostos Aza , Clostridioides difficile , Diarreia/induzido quimicamente , Enterocolite Pseudomembranosa/induzido quimicamente , Fluoroquinolonas , Quinolinas , Adulto , Diarreia/microbiologia , Enterocolite Pseudomembranosa/microbiologia , Feminino , Humanos , MoxifloxacinaRESUMO
A 51-year woman with a seropositive rheumatoid arthritis (RA) developed antiLa/SSB antibodies and erythematosquamous lesions on her upper back. The histological diagnosis was subacute cutaneous lupus erythematosus (SCLE) (papulosquamous form). There was no indication or a drug-induced SCLE. The concurrence of RA and SCLE seems to be rare. We review the clinical, serologic and immunogenetic features in these patients with coexistent RA and SCLE.
Assuntos
Artrite Reumatoide/patologia , Lúpus Eritematoso Cutâneo/patologia , Ribonucleoproteínas/imunologia , Formação de Anticorpos , Artrite Reumatoide/complicações , Artrite Reumatoide/imunologia , Autoantígenos , Comorbidade , Ensaio de Imunoadsorção Enzimática , Feminino , Humanos , Lúpus Eritematoso Cutâneo/complicações , Lúpus Eritematoso Cutâneo/imunologia , Pessoa de Meia-Idade , Antígeno SS-BRESUMO
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