'We need to share our stories': the lives of Pakistanis with intellectual disability and their guardians.

INTRODUCTION: The experiences of Pakistanis with intellectual disabilities (IDs) and their family members have been underexplored empirically. METHOD: The present study sought to address this gap by understanding the lives of five Special Olympics Pakistan athletes and their guardians through PhotoVoice. FINDINGS: Through thematic analysis, we present the primary theme concerning Pakistan's cultural context that provides an empirical exploration of cultural beliefs about intellectual disability, cultural expectations and support received by people with intellectual disabilities and their guardians. DISCUSSION: We discuss implications for research and practice.

Body mass index among Special Olympics athletes from Muslim majority countries: Differences in gender and adult status.

BACKGROUND: Obesity is higher in adults with intellectual disability than in the general population and for women more than men. Past research however has specifically focused on individuals with intellectual disability in the United States and the United Kingdom with little attention on individuals with intellectual disability in Muslim majority countries. METHOD: The present study examined differences in body mass index (BMI) among 1314 men and women Special Olympics athletes from 32 Muslim majority countries in 2003, 2005, 2006, 2007, 2009 and 2011. Athletes' gender, adult status (minor or adult) and the interaction between gender and adult status were used to predict increases in BMI with a hierarchical linear regression, where athletes were nested within country controlling for athletes' nation's Gross-domestic product. RESULTS: Being female significantly predicted an increase in obesity while adulthood predicted a decrease in BMI. The interaction between gender and adulthood was also significant, however, indicating that obesity decreases with adulthood only for men. For women, BMI continues to increase with age. CONCLUSIONS: This study extends our knowledge on one important indicator of health status for individuals with intellectual disability in Asia, Africa and Eastern Europe. The results may be used to inform health care practices with individuals with intellectual disabilities and stimulate future research to understand contextual factors contributing to health disparities.

'You need to let your voice be heard': research participants' views on research.

BACKGROUND: Persons with intellectual and developmental disabilities have had regrettably few opportunities to voice their opinions on aspects of research with which they have had direct experience. Understanding and responding to these views can contribute to policies and practices that increasingly treat people as they desire to be treated. METHODS: We conducted individual interviews and focus groups with 16 adults with intellectual and developmental disabilities to examine their perspectives on participating in research. RESULTS: Our analysis indicates that adults with intellectual and developmental disabilities want to engage in research to improve their quality of life and to have greater access to a worthwhile activity through more active participation. Our results also highlight trust as a critical ingredient in the success of research with this group. CONCLUSIONS: Our findings suggest that despite ethical challenges, researchers can and should pursue research that has the potential to improve the lives of persons with intellectual and developmental disabilities. Such research is more likely to be both ethical and successful if researchers pay attention to enhancing autonomy and person-centredness, while at the same time engendering participant trust.